Extracapsular Extension

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  • KimManSack
    KimManSack Member Posts: 2
    edited March 2013

    Hi, I am interested in those of you with ILC are also aware of a pathology report that identified 'microscopic extensions' from any positive lymph node. This may be phrased as ECE (Extra Capsular Extensions) as well. These tubular marching cells are seen moving out of the Lymph node but not in the vessel to the next node. Nope, they have busted out the side wall of the node and are infiltrating into the fatty area of the breast tissue. As I understand it, it is a marker for a higher incidence of metastasis to the chest wall, Axillary area, and Supra clavicular nodes. I have one research article (very scientific) to share and am interested in any information you may be able to add. 

    I am a retired biochemical/signal transduction researcher so any MD's or PhD's are welcome to share thoughts too. 

    Thanks in advance. -Kim S.

    Also from Bloomington, IN

  • Momine
    Momine Member Posts: 7,859
    edited March 2013

    Kim, I think I had one of those (out of the 7 with cancer). So far, no mets, but it is early days still for me.

  • gillyone
    gillyone Member Posts: 1,727
    edited March 2013

    Kim this is an old thread which no one had posted on for a year. You might get more response by starting a new thread.

  • mary625
    mary625 Member Posts: 1,056
    edited March 2013

    I had extracapsular extension cited on my path report. I would be interested in any information on it as I have not found much myself.

  • dlb823
    dlb823 Member Posts: 9,430
    edited March 2013

    Kim, I also had extracapsular extension, and it's the primary reason I did RT on top of an mx & chemo.  I didn't know it beforehand, but I was told by one of the rad therapists during my course of txs that RT is excellent at going after those young, immature and confused cancer cells -- the ones that are growing out of the node.  And my BS continues to monitor me with MRIs every other year (in addition to annual mammos).   Extracapsular extension is scary, but I'm grateful it got me very aggressive tx.  

    So sorry you have reason to be here, but I'm glad you've found BCO!   (((Hugs)))  Deanna

  • kyliet
    kyliet Member Posts: 687
    edited March 2013

    I had extracap. extn on 3 nodes. I had rads and chemo. I am Grade 1 which the Onc said means the cancer had been there a long time growing slowly. 

    I had got up to leave the surgeon's office when I asked if the nodes contained the cancer so it doesn't spread. He looked at my path. report and said 'Oh yours isn't contained to the nodes, it has grown outside them.' I really don't think he was going to tell me.  

  • aisha1
    aisha1 Member Posts: 15
    edited March 2013

    hi, i had more than 8 nodes psitive with extracapsular extn and i,m very scared, i just finished 3 weeks of radio.I would like some information thanks aisha

  • Momine
    Momine Member Posts: 7,859
    edited March 2013

    Aisha (such a pretty name, always reminds me of the song), as noted above, the rads are good for mopping up those stray cancer buggers. I know it is scary, but you have so many good chances of being OK.

  • aisha1
    aisha1 Member Posts: 15
    edited March 2013

    Thanks Momine my name mean life in arabic/, someone told me that milk cofee and tea is bad for breast cancer but i can,t give up my tea and cofee yet  

  • Momine
    Momine Member Posts: 7,859
    edited March 2013

    Afwan! Atakallam al3rabia qalilan (qalilan jiddan). 

  • jdootoo
    jdootoo Member Posts: 253
    edited March 2013

    I haven't posted in a while, just doing a lot of browsing, but I am curious about this as well. It is surprisingly difficult to find much helpful information on "Dr. Google".Smile

    My Path report shows 6/7 nodes, but a few more small ones lit up on my PET, so I am a little on the staging fence. What I am curious about is th 3 cm. mass of ECE, which was "matted together".

    What is the significance of this? My oncologist is wonderful, but she doesn't like to talk about prognosis, etc. She tells me that there is nothing to worry about as I am NED.

    Thanks ladies!

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