Nurses with Breast Cancer
Comments
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Hi Sheryl, I'm a nurse in an outpatient dialysis facility also, glad to see you on here!
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its a big concern for me,what we get exposed to and what we don't know about! its becoming common to comeback after a few days off to find another of your pts in isolation. i did not get chemo but did get radiation and mainly worry about resp issues due to the r lung receiving some exposure. i have to have an endometrial biospy this week, periods issues probably related to menopause but because i'm on tamoxifen ,they want to make sure, how many other hear this?
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Endometrial biopsy used to be standard for women on tamoxifen. Now it is tied to symptoms. I had a tubal done in December and my doc added a d&c to do the biopsy "while I have you asleep". He ended up taking off several ovarian cysts as well. I have mixed feelings about having the biopsy as I was not having symptoms, but it came back normal and that is always reassuring. The MA at his office was perplexed as to why I called for the patho results instead of waiting for the 4 week follow up appt. I think once you get a cancer diagnosis, every future biopsy or tissue sample is a heightened experience. What are your symptoms? I am 45 and will probably be entering menopause during my time on tamoxifen. My periods have spaced out to every 6-9 weeks and they are now fairly uinpredictable and start heavy so it is no fun.
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periods irregular,they were 4-6 weeks apart but the last 3 have been 13 weeks ,then 4 weeks plus alittle bit heavier , i had 0.9 drop in my hemaglobin after the 13 week gap( i had a cbc preop(minor i/d minimum blood loss, then routine labs a month later that showed that drop), ,so biopsy time, just to make sure its menopause and nothing else.gyn said possibly yearly biopsys ! both the gyn and mo are test only if symtoms present.
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Hey Cynthia-
When my surgeon made a referral to my ps, the first question from him to my doc was, is she a smoker? I was not, never have, but the explanation was yes, smoking absolutely does alter healing considering all the microvascular work, drainage, postop resp issues, etc.
Sorry for your dx and the whole cold turkey thing. Hope surgery goes well for you.
Keep up the good work, keep your hands busy and know you are strong enough to do it! -
cynthia, hows the not smoking going? had the endometrial biopsy today, bp was 127/84 at the begining! nurse was surprised to. got 800mg of motrin before they started. the speculum was uncomfortible for me, never been pregnant plus it was a little wider than for a pap, the betadine swabs were next, then lidocaine injections to the cervix,no pain, then the actual procedure ,he made 4 passes with the pippelle ,no cramping, took 5 mins tops to do, had some lower abd ache when i left but thats it! and that only lasted until i fell asleep,( worked last night) so it didn't take long! as i was absolutely dreading it ,i was pleasently surprised the procedure was as "easy" as it was. because he did say on previous visit i could now be on yearly biopsy's. hows the flu impacting you all?
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7 days smoke free today, has not been easy, lots of ranting, crying, screaming, etc., but I'm still here, SNB today at 3:30! glad your biopsy went well!
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Namaste!
Cynthia, congrats on the 7 days. That is a huge accomplishment. It is going to get easier as time goes on.
Karla
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well done cynthia,hope the snb went well,
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Congratulations Cynthia!!! That is sooooo hard to do, hope the biopsy went well today? hugs and wishing you continued success on quitting smoking:) Maureen
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SNB on Friday, wasn't all that bad. The scar was a little longer than I expected, but everything went well. I'm suppose to call the office "Tuesday after 3".....This is becoming our private little joke! The last biopsy I was told to call the office "Tuesday after 3". Told my husband I was going to write a book and title it "Tuesday after 3". Everything seems to be hurry up and wait, LOL! Seems the anxiety is a little worse for this biopsy than the last, I don't know why.....hoping everyone has a wonderful Sunday!
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Glad the biopsy went well and it is behind you now...hang it there...I'll be thinking of you Tuesday (afer 3p of course, LOL) and hoping your news is good...hugs, Maureen
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*HUGS* back Maureen!
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Hi what do youll do about your annual TB test? I asked my NM weeks ago if she would give it in my thigh. My left arm has its lymph nodes, no breast. I had thought it was okay to use that arm for some things. She said a few weeks ago no problem. Of course today its a different story. We can only give them in arms, blah blah blah.
I got it in my arm. I better not get cording or I am going to be pissed. I got cording last nov after blood draw and bp to that arm. -
well i use my left for everything now as have only has surgery on right. and thankfully have never had anybody give me any problem about it, hope your ppd stays negative,mine went + this year so currently on inh,so no etoh for as long asi'm on the med. why could they not give it in your leg especially as you have had problems with that arm?
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I would think that using a leg instead of an arm would be a reasonable accommodation for a disability under the ADA. Might want to check with HR and ask about that. As health care providers our employers should be aware of and support the same precautions we are teaching our patients/clients.
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Hi-new to the thread-but am wondering if it is still used. Dx in May with LCIS and ALH, currently t rying to decide which route to take. Am a retired RN, after working in hospitals (rural) and general practice medical clinics. Always thought was fairly on top of dxs until May-then research research! Hopefully you all are still out there? Char
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sorry you had to join us char, but threads go dormant then pop up again as people have them flagged. had dcis,so did the surg+rads+tamoxifen route. hopefully someone else will pop up too,with more relevent info for you
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Thank you so much for responding Juliet-Are visiting daughters over the summer but have consult at MD Anderson Chandler Sept 9th. Don't think I can manage the every 3 month exams, MRI, or mammos and wait and see. And definitely do not want to do chemo unless would actually be invasive CA, so that leaves the preventive mastectomys. I do think that will be my final choice. Would rather pick the time for surgery than have cancer pick the time and go thru the chemo and radiation. It was really interesting about not letting medical field know my nursing background. Have found that true over all these years. char
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(((Char66)))...we're all still here, sorry you had to join us, it's not a club I ever wanted to join either...I didn't try to hide being a nurse when I had my surgeries and chemo - I knew too many of the nurses and doctors at the hospital because I had worked with them for so many years - in women's health and surgery! Isn't that ironic...I was suddenly on the "other side" of the cot feeling the fear and dread of breast cancer....but they were great to me and when I wanted to go home right after surgery and not have to stay in the hospital I was able to persuade them that I could take care of myself so being a nurse worked in my favor. I hope your visit to MD Anderson gives you the guidance and information you need for your treatment plan...I so agree with you, I had prophylactic bilateral mastectomies and picked the time for my surgery rather than let the cancer call the shots. I had a strong family history although BRAC neg but both breasts were cancer free when they did the pathology after surgery YAAY! Good luck...(((Hugs))) Maureen
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yes the wait and see can be very agonizing char,here its called scanxeity! plus as you so rightly said, sceduled surgery would give you time to look at all the options plus reconstruction options. there is some good info on this site plus some of the discussion boards can be informitive. and you have the month to plan what you want, found that writing things down -pros and cons helps. my docs know i'm rn ,treated in the sytem where i work. the first 2 surgeries ,never let on i was a nurse but for the second 2 ,the new ehr was up, and if you are an employee there is an extra security screen thats pops up so was busted! because the first question is where do you work? i know we don't have the best reputation for being good pts
. hope your enjoying your summer with your daughters
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I had an invasive component so the decision for mastectomy was easy. I took the other one for both peace of mind and symmetry. Reconstruction can be a long road paved with imperfections. I have had 4 surgeries including my first and they are now livable. I have to remind myself that they weren't really perfect to begin with. I always tell my nurses that I am one as well. I don't have the patience to listen to them explain the pain scale to me and I find that I get more thorough and accurate explanations because they know I'll understand. I also find that I go from being a patient to being one of the gang and I like the collegiality. I have actually found myself laughing and enjoying my time in pre-op and that helps me relax. Versed is also good
. Having the mastectomies keeps me from going through scanxiety and there are no more mammograms. It was removed before it got very big, so no chemo. Chemo and radiation scared me more than the surgery.
Having said all of that, a bilateral mastectomy is a HUGE surgery with massive tissue removal and damage and is quite a lot to go through and recover from. This site has great discussion boards for those in the thick of things--certainly made a big difference for me when I was recovering.
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Char66--welcome, and Juliet is right, this thread goes active and then has a rest, but it never quite goes away. My diagnosis is rather different from yours, so my experience doesn't really apply. My recommendation is to be sure to research fully, and check in the various threads on BCO here. I got info about treatments and reconstruction techniques not available to me in my state from the boards here. Also, do not let the people caring for you know that you are a nurse. I found that I got very little information as it was assumed that as a nurse I knew everything I needed to know, and didn't need the usual patient teaching or support services. Take advantage of the info you can get from MD Anderson. Also, in many rural areas you can have your treatment run by a big center who send the orders to a local clinic to administer the actual treatment. Of course, getting treatment in a facility where you work or are know as a nurse means almost no privacy and little control over how much detailed info gets into the community. I wound up driving 90 miles to get my care.
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Thanks to all for replying. It is so very good to know someone understands! Have talked with 3 daughters and DH, they all agree to have the BMX, but they don't have a clue what is all involved in it (I probably am underestimating it also, but as having assisted with mastectomys in the past, have a pretty good understanding of the surgury itself) But not the aftermath.
NM-I don't plan on telling them I am a RN. We have moved to Phoenix area to retire, so do not know any BS (other than initial biopsy surgeon), MO, or really anything about the medical community here. My NP that I was going to just retired while we have been gone for summer-so now have to find a new family provider also. Oh yes-gets more complicated daily. But will talk with MD Anderson and make decision. Again thanks to all.
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Char66, I am also a RN turned PA and even with all my years in medicine I was blindsided by my diagnosis. Fortunately a NP friend who does a lot of Woman's Health told me to consider BMX and not the lumpectomy and radiation. I chose BMX with sentinel node biopsy on the involved breast and in the end the uninvolved breast had LCIS to the surgeons surprise. At first he didn't want to do both and then he was glad he did, all of this with a negative MRI. That ended the worry. Good luck and remember to be the patient this time and let them take care of you. Kathi
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The aftermath of the mastectomy itself isn't too bad, not much pain but the drain(s) are a nuisance. If you have recon at the same time it's more of a recovery and more pain involved, depending on the type of recon. One option you have is to have the mastectomies and then take your time resesarching reconstruction techniques. Most surgeons won't tell you about that option. Don't let anyone rush you into a choice of recon technique, if you are going to do recon.
If we did a poll of women who had BMX's I'm betting that most had some amount of bc or DCIS/LCIS in the "uninvolved" breast. I'm not sure why it's so surprising to the docs when it happens so often.
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Well---had my appt with MD Anderson. Saw first MD who sent my to a surgeon. She walked in and her first two sentences were: 1)I believe in conserving all breast tissue 2)I do not do preventive mastectomies. She went on to tell me that I NEEDED to do chemo but it wasn't really chemo - just a PILL. When I had a "chance" to interupt her (which was very difficult) I explained that I did not want to do chemo or the wait and watch. She then asked "if I had melonoma in one thumb would I cut off both of them?" and "Once your breasts are removed they can not be put back on." Oh really, never thought of that! Husband response was-arrogant know it all. Really knocked me for a loop to say the least. Char
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Char66--I had a consult with a doc like that too. Crossed her off the list and moved on. SHE works for YOU, not the other way around. Forget her and move on.
Bet she doesn't live with a bc diagnosis.
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Char try PRMA in San Antonio. Thats were i went from Va.
Besides docs being wonderful. The hosp methodist was amazing. Was treated well like any nurse would want tobe treated. They did every thing perfect
In horrible contrast to how I was treated after mastectomy at sloan kettering in NYC
I am reading new book
The whole food guide for breast cancer survivors.
I knew about the vit D connection. But there is apparently connection with iodine and bc -
Hi nurses, I need some input-My brother is adamant I not have surgery in Dec. He aquired an infection one Dec and was told it was due to so many surgeries going on before the holidays. That nobody washes their hands or instruments thoroughly because they're so busy during the holiday time. Is this actually true? I find it hard to believe but figured it couldn't hurt to ask since you all know what goes on in hospitals.
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