DIEP 2013

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  • faith729
    faith729 Member Posts: 244
    edited March 2013

    Emily was it a particular camisole that worked great or do you think any type would work the same?

  • Del11
    Del11 Member Posts: 944
    edited March 2013

    This camisole is great:  http://www.gentlet.com/camisole.html  I wore it through SGAP and DIEP. Very soft and less bulky than a pouch.  I got two that I switched off.

    There's also a cotton version: http://www.gentlet.com/coz-ease.html

  • lilyun
    lilyun Member Posts: 54
    edited March 2013

    jamforme27 is having her DIEP surgery right now. Let's all keep her in our thoughts and prayers.

  • wraithg
    wraithg Member Posts: 93
    edited March 2013

    I was told to wear a bra as normal the day I left hospital but not much else in the way of advice. None of my bras are wires so more like a sports bra. I take it off for bed. Am not sure whether on or off feels better but finding that there are lumps well, maybe swelling under arms. Its hard to describe , just feels uncomfortable under arms where the breasts spread out. Wearing a bra helps this but starts to irritate by dinner time. Getting out of bed at hospital was hard but now its not a problem. Day by day it is getting better. 

  • faith729
    faith729 Member Posts: 244
    edited March 2013

    Jamforme27 thinking of you and praying for you as well :)

  • robinlee76
    robinlee76 Member Posts: 27
    edited March 2013

    Would any of you who have had surgery recommend a lift chair?

  • Janet_M
    Janet_M Member Posts: 1,068
    edited March 2013

    Thanks for the information about the undergarments. I was wondering how to handle the drains. A friend of mine suggested a runner's fanny pack with all the bottle holders - but this sounds much more comfortable. 

  • sbelizabeth
    sbelizabeth Member Posts: 2,889
    edited March 2013

    Hi, everyone.  I just finished my pre-op PET scan.  I hate these things.  Now I'll bubble and percolate and stew with worry until someone gets around to calling me with the results, hopefully before the weekend.

    There's no tangible reason to think the beast has broken loose, but they wanted the PET before the recon because I haven't been scanned in a long while.  My nightmare is that my MO's office calls and says, "we need to schedule an appointment to go over your results.  Bring your husband."  Oh, gosh.  I wish my imagination would dial it down a little.

    I would appreciate your prayers! 

  • wraithg
    wraithg Member Posts: 93
    edited March 2013

    sbelizabeth you have mine!!

  • lilyun
    lilyun Member Posts: 54
    edited March 2013

    sbelizabeth, you have mine too!

  • sbelizabeth
    sbelizabeth Member Posts: 2,889
    edited March 2013

    Thanks so much.  I need a bike ride, or a happy movie or something.  Maybe I'll have time for both after work today.

  • Cuetang
    Cuetang Member Posts: 575
    edited March 2013

    Great ideas on the drains ladies!



    Sbelizabeth, my prayers are with you too! (hugs). There's a nothing like a good bike ride to make things feel better :)



    Robinlee76-- I didn't need a lift chair



  • Cherrie
    Cherrie Member Posts: 1,423
    edited March 2013

    Robin lee- I rented a lift chair and sent it back. I was able to get in and out of chairs on my own and it was not comfy for sleeping. My old recliner ended up being the best for sleep, but my DH put the leg part up for me. Everyone has different experiences though.

  • painterly
    painterly Member Posts: 602
    edited March 2013

    Hi everyone.

    I just finished reading all 28 pages of this thread! I am on the fence about recon. and will take the next few months to decide whether I will follow this route or not. I am currently day 6 post bmx (preventative surgery) and have two drains so cannot do much, so spent the time reading this thread.

    You are a very positive group of women and I enjoyed all the posts. I especially enjoyed the video that ElizabethinPA posted (page 12).

    The video was very informative for me as I had asked my BS about the diep that would follow my bmx and I can see now that he gave me the wrong info or perhaps misunderstood my question. I asked him if he performed the bmx the same way regardless of whether the recon part is delayed. Well, according to the video this is not true. In the video, the breast tissue is removed through a small opening and this creates an envelope or pocket which is then filled with the diep flap.  The result is that the patient is left with a small area that is sewn up. How ingenious is that! I am so amazed!

    In my case, I have horizontal scars across each breast so my result will not be as attractive and I will end up with train tracks across each breast. I wish I could have had the option to do recon at the same time. Oh well, "it is what it is" !! I have to be thankful that I am reducing my recurrence risk drastically by having the bmx.

    One thing that does bother me, though, concerns the pain medication that women have to take for this operation. As I mentioned above, I am at day 6 and I have not taken any medication at all. I wonder if this would be the same if I have the recon. I hope so, as I am too sensitive to medication and try to manage without.

    I shall pop in from time to time to check on progress of everyone.

  • heavenschild
    heavenschild Member Posts: 212
    edited March 2013

    Faith729 - I don't know about the drains for Stage 2, I have a sinking feeling that I will have one because I might have to have another (small) flap on the right side where I had radiation and they couldn't do a good (big) fat graft. I won't know what questions to ask until I have my consult for the Stage 2 with the PS and (hopefully) with NOLA docs. You have your surgery 4/1? Glad you are on the count down! My PS said that once the SXs are done, that this procedure has less possibility of having to go back for re-do's like having an implant done, I like that! Gentle cyber hugs to you.

  • bdavis
    bdavis Member Posts: 6,201
    edited March 2013

    Painterly.... Just wondering why you had to have delayed recon?



    And I have had both DIEP and GAP flaps and as for pain, the GAP was much better.... I didn't need meds. For the DIEP I was on meds for one week, then off.... 100%.... So if you want to avoid meds, have you considered a GAP flap?

  • heavenschild
    heavenschild Member Posts: 212
    edited March 2013

    painterly - I would recommend this SX if you are going to have a recon, it has less failure rate than implants. Re: pain meds, if you haven't had to take pain meds (you are simply amazing), then you probably won't have to take as much for this SX. I am an *outlier* re: my recovery, meaning I have had pain problems, but if you check through this thread, most of the ladies are doing really well pain-wise. Peace to you in your healing and decisions.

  • heavenschild
    heavenschild Member Posts: 212
    edited March 2013

    sbelizabeth - I know that feeling...praying for you!

  • Walkinginfaith
    Walkinginfaith Member Posts: 46
    edited March 2013

    Is it possible to do bmx with immediate DIEP if you have to have rads after surgery? Or does reconstruction have to be delayed until after rads.

  • sbelizabeth
    sbelizabeth Member Posts: 2,889
    edited March 2013

    Walkinginfaith, each PS is different.  Some prefer to do the recon and take the risks that rads will distort things.  My own team, faced with a complicated breast cancer situation, much preferred me to have a unilateral mx, followed closely by rads, and then wait at least 6 months for the rads tissue to heal.  Well, it's been 9 months and my radiated side is still cooked and melted to my board-like chest muscles, so we'll see what miracle is wrought with the DIEP!

    Thanks for the prayers and good wishes, dear sisters.  

  • emilyj67
    emilyj67 Member Posts: 21
    edited March 2013

    Delaying for rads is what I've heard too -- I also had a total mx (i.e. left with a flat breast area, no extra skin or nipple. I too have the incisions across the new one, but damn! it's perfect. Having double seems very difficult in terms of recovery, but just the idea of having two perfect breasts without ever having to wear a bra is wow. 

    Regarding bras: I am not permitted to wear any bra for 6 weeks! since the left one doesn't need anything, I think when I go out in a couple weeks for an event (i.e. without a sweatshirt over my tshirt, I will wear one of those strapless stick-on things on my regular old boob. :)

    painterly, I didn't have such pain for the mx but I have for the recon -- perhaps there are ways to select meds, use hot water bottle, lidocaine patch on your back (frankly, back pain was the worst of any of it), etc. as you consider your options.

    Camisole: I have two of the Gentle Touch (http://www.gentlet.com/coz-ease.html) that I also got for my mx, which I got with a prescription at Dana-Farber. They are amazingly soft, and frankly, the idea of having the drains swing around when your skin is *so* tender and hurty seems ridiculous. Some sort of drain-holding top should be standard, but I had to ask for these. They're also handy now that I'm wearing the binder -- very soft cotton, also helpful for dealing with a skin complication I've had. Today, I'm finally wearing a regular tshirt, but in the beginning, the velcro-opening camisole was a GODSEND.

  • AnnBR
    AnnBR Member Posts: 853
    edited March 2013

    sbelizabeth...lifting you up in prayer. Ann

  • bdavis
    bdavis Member Posts: 6,201
    edited March 2013

    Walkinginfaith.... My PS in New Orleans does not delay... He does the mx and DIEP and then rads and then stage II.... Doctors who go this route will over stuff the breast to allow for shrinkage... Sometimes he has done mx and uses an implant as a placeholder through radiation and then does DIEP, but never does the mx with nothing.... He has said its more challenging aesthetically if the skin is removed and left to adhere to the chest wall.

  • sbelizabeth
    sbelizabeth Member Posts: 2,889
    edited March 2013

    Bdavis--yes, it certainly will be more challenging for my PS.  My left chest is pretty much adhered to my chest wall, due to rads.  For my situation, however, three tumor boards met to discuss how to save my life and then reconstruct.  I had lymphovascular invasion to a 3" circle in the skin of my breast, and ALL that skin had to go, along with the breast.  The RO was nervous about having an expander there, since it was my inner left side and he wanted the targeting to be perfect.  

    Given the choice between waking up with a reconstructed breast or a better chance at saving my life, well, I'll live with being flat on one side for a few months.  And I trust my team to help me make the best decisions for me.

  • sbelizabeth
    sbelizabeth Member Posts: 2,889
    edited March 2013

    Thanks, Ann.  I appreciate the prayer.  It will be a sketchy couple of days.  

  • faith729
    faith729 Member Posts: 244
    edited March 2013

    Heavenschild when do you go for the consult? Crossing my fingers for no drains!!

    Thank you for the cyber hugs I just got an email from my boss asking me to work early next week. When I read the email I just sat there frozen for a while after seeing the dates and realizing how quickly this is all happening now!



    I had a moment tonight where my fears subsided for a few minutes though. I was walking out to the car with my oldest son and felt some pain where my latest tumor was found. I didn't need to say anything but though it was the sign I've been asking for. So I have these little moments where I have peace in my decision. I hope that all of you ladies in waiting have those same moments of peace.



    Sbelizabeth prayers for you headed your way :) keep us posted we'll all be waiting with you.



    Painterly welcome to the thread DIEP was my choice hands down it was the right choice for me. Whatever type of reconstruction you choose there is loads of support here and Im sure that you'll be able to find something your most comfortable with.



    Hugs and peace of mind to all you lovely ladies tonight.

  • nihahi
    nihahi Member Posts: 3,841
    edited March 2013

    sbelizabeth....haven't been able to post today until just now, but have been reading. Hope you got BOTH the bike ride AND the happy movie done!!!! Positive thoughts sent to you BIG TIME too! I totally agree, life over boobs, no contest!

    Can't speak to the rad issue, as I didn't have rads, but now having gone through multiple surgeries on one breast solely due to implants, I can certainly say that for me....implants are not the right choice!!!! There are many women who are content with their implant recons, but I really do not think the reality of the "lifespan" of implants is not accurately represented to most women. It is normally a quicker, and easier surgery and recovery, but most women do not grasp the understanding that the surgical interventions are ongoing! 

    Got my pre-op bloodwork done today then on to the doc appt. Thought I was doing pretty good today, and considered cancelling the appt. Good thing I didn't, as about 1 minute into the chat with the dr., I completely lost it, tears and all. She was wonderful, understanding, and certainly didn't hesitate to give me a hug, thanked me for coming in for some help, and I left with scrips for anxiety and also for sleep. 

    So.....going to try the sleep one tonight, hopefully tomorrow I'll be a little better at keeping both feet on the ground!!!

    Thinking of everyone. ((((((X)))))))

  • SheChirple
    SheChirple Member Posts: 954
    edited March 2013

    Looking for update from LoriKay - hoping all went well.

  • PinkHeart
    PinkHeart Member Posts: 1,193
    edited March 2013

    I agree with Jeskachi on the genlet camisoles for drains.  www.gentlet.com/coz-ease.html

    My current surgeon gave me two of these soft and comfy camis.

    I woke up with one on after SGAP flap surgery, and it's so much easier for the nurses to open front to get drains out of pockets to empty while in the hospital. 

    I had six drains after my initial BMX & immediate implants recon with dif doc, dif hospital.  The drains were a tangled up mess in my hospital gown with clips that were worthless.

    You may want to ask your PS or hospital if they will provide these for you.

  • nihahi
    nihahi Member Posts: 3,841
    edited March 2013

    Well, this is discouraging......3 hours after taking a sleeping pill, here I am, wide awake!!!!!!!!!

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