Any 10 year survivors with no recurrence ILC and no chemo?

Maybe post this on the ILC board?

I had no chemo or rads.  Choose not to do Tamoxifen too.  One year anniversary this month.  Wish someone would post so I feel more confident.

I was dx IDC(lumpectomy)  prog/estro-positive- grade 2 stageT1a. Waiting on snb results-I am post menopausal and my mo states if nodes neg. I will have radiation and start on Tamoxifen. I was under the impression Tamox was for premenopausal....Has anybody started on Tamox postmenopausal instead of aromatase inhibitors?

I did surgery and don't plan on any other conventional treatment...am doing iodine protocol/DIM etc...I did have 7 positive nodes, had them taken out.  ILC is not supposed to do well on chemo or Tamoxifen...so, I am in a waiting pattern...time will tell.  I will get back to ya in a few years!!! wink wink...

Hi Lily..Breastcancerchoices.org protocol...Dr. Brownstein...magnesium/ATP Cofactors/ Vitamin C/selenium etc..

Hi everyone,

I just started using salt with iodine instead of plain salt to help me with preventing recurrence. It looks like there is more changes I need to do as far as iodine. Can someone let me know if iodine protocal (breastcancerchoices.org) is working? I am ER+,PR+,HER-.

Thanks for your help.   

Joe, I read the article about the Chinese women and the vitamins (B3 and others) from dietary intake. I don't think you can draw any conclusions from that. 

Your goal is to survive. Arimidex has some recurrence benefit but minimal if any survival advantage when all causes are factored in. They are still studying Arimidex in various ways so it's experimental. I wouldn't touch it. Too many heart attacks and strokes associated with it.

Hi Ladies, 

I'm new to this thread and have been reading to catching up. Glad to see all the activity and good input here! I'm on Femara (Letrozole). My MO and ND said it was my first line after surgery and best for lobular. I was on it for 15 months with minimal side effects (except diarrhea) and then at 15 mo. I realized how hard it was hitting me. I felt like I was about 90 years old, getting out of bed in the morning, I had to slide out and hobble to the bathroom, my memory sucked and many other things were just "off".  When my Dr's saw my list of Se's they said to stop and suggested Tamoxifin (even though I'm post meno.)  That sent me into bad depression after only 2 weeks!! I was off of everything for 6 weeks and it was wonderful... Now (after the encouragement of my NO, since I had 3 ITC's in 1 lymph node... I take letrozole every other day or every few days or whatever I feel my body can tolerate. He said "anything is better than nothing" though he knows I also take DIM (Myomin) and many other supplements.

We are all so different - it frustrates me that they try to fit us into a one size fits all medication dosage. Think about it... a 300lb woman is given the same dosage as a 100lb woman... That just doesn't make sense. 

But I do want to join in here, too! Wish I could paste back what I posted earlier thinking it was another thread. 

Anyway, I'd like to be connected here and one of the many women that post here in a few years about our long term successes! 

Hugs, 

Shelly

Has anyone else tried Turmeric? The root extract has been found to reduce inflammation(our enemy) and suppress tumor growth and the blood flow to them. Look for one that is ROOT EXTRACT with 95% curcumin(the active ingredient).Think mustard(ful of turmeric). You can use bulk, but careful-it turns teeth and everything it touches yellow!We buy Solaray capsules-you want 300-600mgs. daily. Good luck. I had ILC with no chemo,and as it's turnong out,no hormone therapy. Dx stage IIa, grade 1,Er+,Pr+,her-,clean nodes. I had hypofractionated radiation,only 16 sessions. MRI in July-I'm expecting good news. Hugs!

Just to correct, mustard is a seed. Turmeric is a root. There is NO turmeric in mustard. There is usually turmeric in curry powder, turmeric being the base for the other spices.

Lilly - my sister has lobular and her ONC recommended no chemo or radiation. She had a MX and has to have scans done periodically because they found a small lesion in her lungs. They collapsed her lung and removed it. She was never a smoker and the dr said the lesion has probably been there like 20 years. It comes from some virus birds transmit....of all things. I think you gotta make your own call and base it on what info you have at the time. There is no one size, fits all decision. I am Stage II, up from I after micromet in the SN, and Grade l. I had the Oncotype test done and it came back 11. If you are in doubt always seek a second opinion. There are a zillion good drs out there but it is your life and ultimately your decision just when you make it dont second guess yourself or look back. When the Path report showed a micromet in my SN I got hysterical and told my BS I should have had a MX instead of a lumpectomy. His response was we can do that. But he also said it would get me chemo. It didnt. The ONC ordered the oncotype test so I dodged chemo. Compared to chemo the Rads are nothing. Good luck....diane