Charleston Bound, part 2
Comments
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Beth praying for a smooth surgery and healing for you!
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For those of you who came from out of town for surgery(Stage 1),how long did you stay after being released from the hospital? I would arrive Tuesday for the MRA,etc, surgery Wednesday,would be released Sunday,have a post op visit Tuesday and one the following Tuesday and then home.Turns out I might have a problem being gone that long,so wondered if anyone stayed a shorter length of time.
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Panda... My PS says we can leave the day after the post op appt which is one week after surgery... So for a Wed surgery, one week, one day later.
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What is then Palms?
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Thanks Betsy,hoping I can talk Dr.Kline into a shorter stay.The Palms is a retirement facility in MT Pleasant that has a guest suite they rent out for a short term stay.It is not available when I am having my surgery so I will stay at Sandpiper Village,which is also a retirement community,but they have little separate cottages.I was told of a place called Somerby,but I have not contacted them.
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Panda,
I'm a patient of Dr. Kline, and I was free to go after my one week post-op appointment. He may ask patients to stay longer if they have complications or with a high risk patient, whatever that may be.
I would give them a ring to ask if you truly need to stay for two weeks post surgery.
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I will call them Monday.When I talked to them,I was planning on staying at my cousins,but that may be changing.And I just really want to come home as soon as possible.
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4 weeks post op and doing better everyday, BUT, the left breast where Dr K used the smaller vessel already has fat necrosis. He said he expected some on that one, but expected it at the middle top, it is at the middle bottom and feels like a golf ball. The top middle is sore is a bit hard, so I am thinking it will probably go, too.
My right breast is beginning to feel like it is part of me now, though.
The arm limitations are aggravating though, but there's been little pain, from the start, suprisingly.
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ketch,
Good to hear from you! From what I hear the fat necrosis can be resolved. Do you have a date yet for Stage 2? Are you drain-free and driving?
The arm limitations drive me crazy! Gotta' get a Grabber! -- Like Catie did
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The grabber is great.
But I have to tell you all something related that is funny -
I decided one day when the grabber was not there that I would see if I could do some things with my toes. I got to where I could get my mail off of the floor (we have a mail slot) with my toes. I could pock ot up with my toes and get it up to knee-level and then pass it to my hand. I could open refrigerator drawers withy toes when I was worried I'd have to pull too hard with my hand, and then during my birthday dinner, I dropped my reading glasses on the floor next to the wall.
We were at a little table in a very nice restaurant. My husband volunteered to get down on the floor to find the glasses, but I just kicked off my right shoe (there was a long tablecloth) and found the glasses under the table with my toes. Then, as my DH said, "All of a sudden a little pair of reading glasses sailed into the floor beside our table," where he could easily pick them up!
I td Dr. K. anout it at my next appointment and he really laughed. Who knew GAP surgery could add to my hidden talents? -
I looked at grabbers..there are so many types..any recommendations??And can you all tell me exactly what the arm limitations are?( I know I will get this info from Dr.Kline,but I am trying to get things ready as time seems to fly by) Thanks!!!
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He wouldn't let me reach up at all and I could only move them out by about 45 degrees. Essentially, he didn't want me to engage my pectoralis muscle since it pulls on the grafted arteries.
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My grabber was a Grip-n-Grab that I got from Amazon. I read someone's post who said be sure not to get the folding grabbers because they don't stay extended.
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How long did you have to limit the use of your arms? So I am thinking,I can put clothes in the washer,but not take them out or hang them on the clothesline.Please tell me I can't wash dishes!!Can I cook?No mopping or sweeping or vacuuming...my poor house!!! How soon did you all get back to normal day to day housework? Thanks for the info on the grabber!
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Panda - you can't put the clothes on the clothes line as that usually means stretching over your head. You can take clothes from the washer and move them to the dryer in small groups, just don't grab a bunch. Use detergent pods, they're lighter. You can wash dishes, just remember 5 lb limit (bet your plates don't weigh that much). You should be able to do normal house work by the 6 - 8 week mark.
I think this is starting to sound like you won't have any use of your arms, but you will. I can't remember if you are having GAP or DIEP. Please PM Jeskachi and ask her to post your date with the type of procedure. There are some different restrictions for each type of surgery. Because GAP comes from the backside, you don't want to put undue stress on the incisions with forward bends and squats. But DIEP comes from the front, so it impacts differently.
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No vacuuming!! And, I'm holding everyone in my household to it!!!!
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Oh darn..I hate washing dishes..it is a running joke with me and my husband.When I had my first mastectomy, on my final visit to the breast surgeon,I asked him how long it would be before I would be allowed to wash dishes.He knew exactly what I wanted to hear because he responded with a perfectly straight face,looking directly at my husband"it will be several weeks,perhaps months".My husband believed him!!!But then Dr.Tyler and I both started laughing and ruined it..for me...Every time I go to a doctor I ask if I can wash dishes..last time I saw my GP(for my sinuses),he gave me a note saying no washing dishes and for a full recovery I must be doted on and pampered.I am very lucky to have so many doctors caring for me that have a sense of humor.I will be having delayed bilateral SGAP.I did PM Jeskachi with my date and info.Another question,will I be able to go up and down stairs? And my washer is a top load,so I am thinking I will not be able to reach down in to get the clothes out..but maybe I can use the grabber??
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That was a funny story, Sewaneegirl! I didn't have any problems bending or squatting since surgery (SGAP) or I may have tried the toe thing!
On Fri, Jan 18, 2013 at 5:05 PM, Alexander, Elizabeth wrote:
I still cannot reach into the washer (top loader) though, I am 2.5 weeks post-op. I am able to raise my arms over 45 degrees, but I don't do any overhead stretching since I don't want to damage anything. You'd be surprised how many things engage those pecs.
I agree with MartyJ that normal housework will have to wait for at least six full weeks.
Panda, I had the same surgery schedule as you. Pre-ops on Tuesday, surgery Wed., released Sunday, follow-up on Tues. and left Charleston on Wednesday. Thanks for mentioning Somerby, I'll look into that for stage 2 just in case the others are booked.
Lynne, here is an email I had from The Palms (I hope this helps):
Afia,
I have attached our weekly menu. There is also always a fresh fruit and salad bar and about 8-10 everyday alternatives on the menu (made to order omelets, hamburger, hotdog, etc).
I recommend contact AMEDISYS for Home Health Care. They are our top provider. Their information is listed below:
2675 Lake Park Drive
Charleston
(843) 553-1263
Please let me know if you have any additional questions or if you would like to book the guest suite (for $85/night).
I wish you the best in your journey and recovery, I know that this must be a difficult time for you. I hope to get the chance to meet you.
Sincerely, Ashley Alexander
E. Ashley Alexander
Director of Sales & Marketing
The Palms of Mt. Pleasant
A Full Service Retirement Community
937 Bowman Road
Mt. Pleasant, SC 29464
843.884.6949 office
843.801.3486 cell
843.849.5285 fax
www.thepalmsofmtpleasant.com -
Sommerby is not as centrally located as the Palms & Sandpiper. They are about 7 miles further north on 17. If you have transportation from the hospital, it shouldn't a problem. It is in the Park West Subdivision.
Another option is Sweetgrass Village Senior Living. This is at 601 Mathis Ferry Road about 2 miles from East Cooper Hospital. Just be careful as there is another Sweetgrass - Sweetgrass Court. It is a dedicated memory care facility and while we may feel we need that at times, it is really not an option in this case.
One more option might be Extended Stay America. It is in Mount Pleasant, right near the Ravenel Bridge into Charleston. They have a grab n go breakfast, the rooms are studios with kitchens and the rate is about $89 per night.
Panda - I think you should be able to go up and down stairs. Slowly. I watched Sewaneegirl do it within a week of her SGAP.
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I agree with Marty. I also asked the dr about going up and down the stairs and his only limitation was to be super careful when on pain meds since you might be dizzy. But he actually said it was good exercise. I never had trouble with the stairs.
I started driving short distances after my drains came out, but even now at 7.5 weeks, it is hard to do complicated steering.
Putting a few things in the wash wasn't bad at all, but reaching all the way down into a washing machine to retrieve wet items was hard when they were at the bottom ... And bath towels weigh more than you would think when they are wet. I also had a hard time opening my dryer door ... But it is one you really have to pull on.
I think you will become very resourceful and should be able to figure out a solution for most everything you really need to do. -
I was told no bending, reaching or lifting with the SGAP - as much as the flaps need TLC the SGAP area needs time to heal too, I spring a huge leak 2.5 weeks after surgery withy SGAP stitches coming open and another surgery with several days on the hospital - just saying'
With the PAP I was told no bending and squatting would not have been impossible even if I could have. 2 months post op though, very possible!
Vacuuming isn't smart for awhile because of possible LE, I was told years ago. DH is on charge of that. I have them pack groceries very light and make lots of trips into the house from the car. Same with wash - I have front loaders and take a few items at a time.
I bought my Grabber ( actually called the Reacher) at a pharmacy for about $29.00 - more than paid for itself! Bought the backscratcher at Bed Bath and Beyond for under $4.00.
Sewannee - loved the toe story! I use my toes when practical, but was limited by size of what I dropped and how slippery ;(....
Had a problem dropping about everything with the PAP- good idea to have a spare bar of soap handy within reach while showering!!!
Panda any chance Hope Lodge might work for you? -
Beth, hoping all is well?
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Another tip for during recovery for SGAP or DIEP or PAP, etc. . . .
I keep a small step stool in kitchen, so I don't have to reach up into cabinets or when putting food in microwave. I'm fairly tall (5'6"), but still needed the extra 12 inch lift.
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For anyone looking to rent, my friend owns two beach houses on the ocean in isle of palm.... You can go through island realty... Ask about 2200 palm blvd or 614 ocean avenue. Both are ocean front. Both have pools. I have been to one of them... Very nice. So for your week down there or an extended stay, it's very nice.
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Catie,
How is your recovery going with your PAP flap versus your good SGAP flap?
I just now read Dr. Allen's web site explaining the advantages of the PAP, and how the surgery is performed. Wow! Did you say Dr. Kline was primary surgeon with Dr. Allen assisting or vice versa?
Here is the link where I found the info. The pictures at the end are a little graphic. The video of the surgery even more so - closed one eye to watch. . . .
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Does anyone know anything about Elizabeth Christian an oncologist in Charleston ?I live about two hours away and see Dr. Massey in April for my 4th and hopefully final reconstruction surgery.
Dr. Christian was recommended to me. I need an oncologist that will spend time with me and listen to me. My current oncologist is in and out of the room in less than three minutes. I am not sure if I am on the right hormonal therapy. Anything anyone knows about Dr. Christian would be great to hear.
Thanks,
Michele -
Michele - I know Elizabeth Christian. She was my doctor when I first moved here 25 years ago. She is very well respected and my neighbor absolutely adores her. Since I have not seen her in many, many years I can not comment on whether she will be in and out. I can also recommend Dr. David Ellison in her office. He is caring and compassionate beyond measure. BC is one of his primary areas of focus. Either of these doctors should serve you very well!
Glad to hear Dr M will (should) be finalizing your recon in April. She will be doing my Stage 2a on the 5th. PM me if you need any info on anything.
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Pink, I have been thinking about the PAP. Vs SGAP lately and have decided the PAP is my preference. Dr Kline was assisted by Dr Allen. Dr Kline brought Dr Allen into my room at East Cooper the next day to meet me, or for me to meet him. But Dr Kline was the primary. The flap has been fine. It started high on my chest and more shaped like a boob than the SGAP flap did/does.
There's only what looks like a small thin purple magic marker line to show where my incision was for the PAP donor sight. I know the pictures and the article by Dr. Allen are extremely graphic and I had to close my eyes the first couple times I went to look there but it does kind of shows it all.
I was the first time that Dr. Kline did the PAP flap. I had run out of places to take a flap from. I'm very Grateful to Dr. Kline for choosing this method and doing it for the first time so that I could have two breasts/flaps!
The flap over time (it's been two and half months I believe) has gone back to where both sides are pretty even on my chest. Although the new one is a little bit less full than the one put on last year. I'm looking forward to stage 2a to clear that problem up though.
Other than the revision of the flap for the PAP to increase its volume, I don't see where they would be doing much if anything to revise the donor site area for the PAP - it is pretty much hidden.
Hugs -
Hi everyone! I've made it to discharge day, so far so good! I am cautiously optimistic that this flap is here to stay. I can say that for me, the DIEP is more painful than the SGAP was, but I do feel a bit better every day. My drains have very low output, so I am hoping they can go at my post-op appointment later this week, but that may be too much to ask. One of my drain sites is very red and swollen. I always seem to have at least 1 angry site. So far, I am trying to do NOTHING with my left arm/hand until I am feeling more certain that the flap will make it. Dr. Craige seems pleased, and the nurses are very encouraging, but I can't help being a little skeptical. I have been hooked up to the biometric monitor the whole time I have been here. They told me the change in policy was a result of my flap failure in January. They said normally failures happen within a day or so, the fact that I was so close to discharge when mine failed caused them to change the way they monitor everyone. That makes me feel good, maybe some good for someone else will come out of what I have been through.
Thanks for the continued prayers and good thoughts!
Beth
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Beth, sounds like you are doing well. Enjoy your discharge day!
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