Radiation only, no chemo

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  • pacools
    pacools Member Posts: 53
    edited March 2013

    dalie219 this may sound harsh but they are not the ones who had to hear they had cancer! What a blessing you found it before it became invasive. I agree when you see a 4" scar and went into the cancer center everyday for radiation treatment you know you had cancer! You are the survivor; I certainly hope they never have to face what you and our bc sisters have endured I wish no one any ill will. I know they are likely just trying to be encouraging and positive but it is much more than nothing.

    Katlou you made me smile about your rad sisters meeting at the club everyday like you were our for a glass of wine and social hour.  I start my rads tomorrow and hope to experience that same blessing. Thank you for sharing your experience.

    AmyinMI and I are meeting for lunch tomorrow to celebrate my first rad treatment.  I feel very lucky to have the support of someone in my area. For those who are more distance sending virtual hugs and peaceful thoughts for a good week.

    Patty

  • AmyfromMI
    AmyfromMI Member Posts: 241
    edited March 2013

    Patty, I can't wait for lunch tomorrow! I'll be sending good vibes all morning long tomorrow. Can't wait for you to share your experience with me! 😃 I literally just got off the phone with Novi and have an appointment scheduled for Monday, March 11, with Dr Chan for consult and sim with tats. Looking forward to getting this rad thing moving. At least it will shave about 10 minutes off my commute!



    Katlou, your experience will be my happy thought when I'm starting rads! Lucky you to have met a great group of women during your rads! I just wonder if they'd let me bring in a beer or glass of wine to rads? 😉 Thanks for the well wishes. Good luck with the rest of your treatment! 😊



    Dalie219, I agree with Patty. You were the one who had to hear those words, you had to endure surgery and recovery, and you have to go through radiation. It is a blessing it was found early! 😊 I'm happy and relieved I don't need chemo. There may come a point in time where I may need it (if theres a recurrence or something new pops up) but for now they are telling me I don't. So, I'm happy dancing! Dance with me! 💃



    Hugs to all Warriors!

  • kestrelgurl
    kestrelgurl Member Posts: 266
    edited March 2013

    I follow "Breast Cancer? But Doctor I Hate Pink" on Facebook. Ann is also a member of BCO, so I don't think she'll mind that I share this here:

    Triple negative. HER2+. Age 35 or lower. Colon Cancer. Ovarian or Pancreatic. We don't need a different day, a different hour, a different charity or a different color ribbon to differentiate our specific cancer. If you feel special or more important because of your subtype, that is a problem. All that counts is if you respond to treatment, and some do, some don't.

    I don't like the balkanization of cancer. We are all in this together, my friends.

    We are all sick, we are all in pain and we all want to survive. One solution leads to a breakthrough in another cancer. Herceptin is now used for stomach cancer. Parp inhibitors are used in lung. The truth is, some HER2 (like mine) doesn't respond. Some triple neg does. Some Stage 1a goes mets. Some IIIc never progress. Some ER+ never get their estradiol down, some ER- do fine.

    Treatment might be easier or harder, but it's cancer for everybody.

    That's why I support the AMC or StandUp2Cancer and not typically BC charities. It is not about your type. It's about how to cure cancer. Nobody suffers more because they have a different cell type. This "day" of one type being special, and "month" of pinkTober needs to go away.


    Cancer is cancer. It is all horrible.

  • AmyfromMI
    AmyfromMI Member Posts: 241
    edited March 2013

    Well said! Gail, thank you for sharing!

  • Katlou
    Katlou Member Posts: 27
    edited March 2013

    Amy and Patty - what fun that you can meet up and go through the rest of this journey together! I hope you have a great lunch. Great point Gail!

  • RMlulu
    RMlulu Member Posts: 1,989
    edited March 2013

    Happy Dancing post-op MRI is clear. My Rad setup&tatoos are Friday!

    Can't stop smiling was so prepared for another biopsy and more surgery. Relief no guilt.

    Thankful for all you RAD ladies. I know that rads are doable ... Lubing up :))

    Hope my rad site will have awesome ladies like katlou's Patty Amy :))

    (((Hugs))) to all!

  • AmyfromMI
    AmyfromMI Member Posts: 241
    edited March 2013

    Yay! I'm happy dancing with you! Awesome news! 😃 I'm set up for my consult, sim and tats on Monday now. I can't wait to get started!



    Lunch with Patty was great! So nice to meet a fellow sister who is close to me. Patty, if you're reading this, I hope we can meet again for lunch again someday soon! Maybe to celebrate my first rads treatment? Hugs!



    Goodnight all! Sweet dreams. 😴

  • Sam44
    Sam44 Member Posts: 6
    edited March 2013

    I have now had 12 rads treatments and it is so bad yet.  My left boob looks a bit like it has been micro-waved and does hurt quite a bit and I have been a little tired / nauseous.  I was recommended Calendula cream which I am putting on 5 times a day. Where I go for treatment, the average age is around 80 I think!  I walk in and everyone smiles at me and then whisper to each other "Goodness, look how young she is, isn't that terrible".  I want to say  "Umm, nice old lady, I can hear you!".  No wine with my group so far sad to say.  I also seem to have lost most of brain and I am very relieved to not be working.  Good luck to all of you starting soon, huge hugs.

  • Annette47
    Annette47 Member Posts: 957
    edited March 2013

    Sam44 - I had the same thing ... everyone in the waiting area looking at me like "how young" (I'm not THAT young - 45, but that seemed like it was at least 20-30 years younger than everyone else there).    One day they had a temp receptionist and she assumed I was there to pick up my mother, LOL.

    I never minded though - since I teach at a University, I am usually surrounded by younger people and usually feel "old" in comparison, so it was nice to be the "young" one for a change!

    Good luck to everyone - you will get through it and will be done before you know it.

  • Katlou
    Katlou Member Posts: 27
    edited March 2013

    Is anyone else looking forward to using real deodorant again?! Training for a half-marathon while using natural deodorant is not a good combination! Sam and Annette - sorry your groups aren't fun. They must think of you as the young whippersnappers.

  • AmyfromMI
    AmyfromMI Member Posts: 241
    edited March 2013

    Honestly, katlou, I'm too scared to go back to regular antiperspirant. I'm using Tom's without any aluminum right now. It helps a bit. Still, I want to avoid the aluminum being 80% ER/PR +. Even though everyone assures me that there is no link I'm not taking any chances. Yep, I'm crazy. 😉

  • Destina
    Destina Member Posts: 89
    edited March 2013

    RMlulu....congrats!! I really know the sense of relief after preparing for some other news. I am so happy for you! You know what I did after I got that news? I bought a groupon for a trip to Ireland with my hubby that we'll take this summer. It was a great deal, but more importantly, it signified that I am, indeed, moving on. :-)



    I started rads yesterday. 2 down, 14 to go. I did feel very emotional while lying there all spread out for x-rays (and two additional tattoos, no less). After the emotional high of a clear MRI and feeling pretty healed up from surgery, it just sort of brought me back again to the vulnerability of breast cancer. But, the techs were wonderful and today was much easier. Still moving onward. And so are you!

  • Destina
    Destina Member Posts: 89
    edited March 2013

    Sam, sorry to hear about your discomfort. Hope the calendula gives you relief. My nurse gave me a tube of aquaphor, but I really don't like the consistency. I'm trying Miaderm based on other women's recommendations and may use the aquaphor at night.

    I did have to chuckle at your "'nice old lady" inner dialogue. The humor really helps get us through a lot.

  • gemini4
    gemini4 Member Posts: 532
    edited March 2013

    Sam, make sure you're drinking enough water ... That might help with the nausea.



    Katlou and Amy -- I'm thinking at this point that I won't go back to antiperspirants. I use a deodorant by Desert Essence with tea tree oil as its main active ingredient. Definitely good for BO but come summer probably won't stop sweating -- but I still sweat and got BO even with antiperspirants. A while back I ordered some natural talc-free body powder called "no beo"*-- it contains peppermint which feels clean and fresh, and the powder helps absorb moisture. Makes wearing black tops a little tricky though. I also love Dr Bronner's peppermint soap -- that tingly mint makes me feel very clean!

    * edit -- here's a link FYI
    http://www.drbubbles.com/category_14/Deodorizing-Body-Powder--.htm

    A little expensive ... If your mall has a Lush store, they have a similar deodorizing body powder that may help promote dryness. Haven't tried it but will probably get it when the "no beo" runs out since the Lush store is more convenient for me to visit vs ordering online.


  • AmyfromMI
    AmyfromMI Member Posts: 241
    edited March 2013

    Hi Gemini! Great to see you on the Team ILC Warrior thread! 😃We don't have a Lush store around here that I'm aware of but will check out your link above as well as your other recommendations. Thanks!

  • Katlou
    Katlou Member Posts: 27
    edited March 2013

    Thanks for the info Gemini!  I will definitely give those a try!   Destina, I had the same emotional reaction to radiation initially.  It took me by surprise as I've been able to laugh my way through a large part of this journey.  My sister-in-law sent a text that had me doubled over laughing as I walked into my biopsy and I had a big, super fun party the night before surgery (figured I'd be sleeping all day the next day, so why not?).  You just never know when the sadness and/or fear are going to engulf you.  Your trip to Ireland is such an amazing way of celebrating - love it!!  Amy - you are not crazy! If I can find something natural that works, I'll be all over it.  I am very much into organic/non-toxic cleaners, makeup, food, etc.  I firmly believe that environmental factors are significant.  Sam- I was having some pretty bad fatigue earlier this week.  I did some research and found recommendations to up your protein intake during rads.  I've since been mixing vanilla soy protein powder with milk and I feel so much more energetic.   RMlulu - hope your rads setup and tattoos went well today!!  

  • RMlulu
    RMlulu Member Posts: 1,989
    edited March 2013

    Destina - today 4/16 for you:)) felt like a little girl vulnerable laying there...where's mom...but it past. Next Wed is simulation Thu real lasher beam tag...beware. Like the gift of a special trip with DH to note moving on. Hope you're feeling good & skin is great.

    Katlou- wow half marathon you go...no problems with LE or skin on skin contact running?

    Gemini- agree that a more organic deodorant gives a bit more peace of mind...using desert essence too, but not the same coverage.

    Whippersnappers- yippee wish I was at your rad center. Did not see anyone in there my age either. Maybe they have earlier times...only 11am open so of course it will work for me. Lets get this done.

    Going to make a high protein smoothie & enjoy a movie just like the good old times...:))

  • kkuziel
    kkuziel Member Posts: 191
    edited March 2013

    Had my simulation Thursday. Start the first of 33 treatments this coming Thursday. Kind of nervous. Saw the surgeon before my simulation, all healing well, no residual cancer found in my second surgery, as expected. So now it's on to the last big phase. I want to believe it will be relatively free of issues, but almost afraid to hope it will be that simple. Biggest issue will be the driving. 3 hours total each day. Leaving work at 2:15 and should be returning home about 6:00. Going to find some people to help make the trip less of a drag. Maybe company a couple times a week will break things up.

  • RMlulu
    RMlulu Member Posts: 1,989
    edited March 2013

    Oh kkuziel- 3 hour drive ugh :( Hope you have some great appointment buddies who will also like to drive :)). Pray BFFs will jump at the opportunity so ask!

    My simulation is this Wednesday & Thursday will be my first rad. Guess we will be on the same schedule I'm 11:15, but I go just across the street 10 min drive 20 min walk. Makes me feel guilty but thankful that my care is so close.

    Are you conditioning your skin? Working on closing eyes & holding still but no deep breathing worried might expand my chest too high.... We will rock this!

  • CarolynVM
    CarolynVM Member Posts: 137
    edited March 2013

    I totally loved books on CDs when I had to do lots of driving.  I got so into the books!  You can borrow them from your public library or rent them cheaply from Cracker Barrell restaurant.  I bought a bunch on eBay for second to nothing.  I also bought some lecture series from The Teaching Company.  They were great.  It got so I looked forward to the drive.

  • AmyfromMI
    AmyfromMI Member Posts: 241
    edited March 2013

    Kkuziel, I was whining about a half hour drive one way! I switched to a facility that is now only 20 minutes from my home. It's still run by U of M but 10 minutes closer. I have nothing to complain about knowing you have such a long drive.😶 I go for my consult, sim, and tats on Monday now instead of Thursday. Not sure when I'll actually be starting treatment though. I'm hoping it's this week.



    RMlulu, we will rock this together! 😊

  • Katlou
    Katlou Member Posts: 27
    edited March 2013

    You ladies are all going to rock rads!  I finished 14 of 28 of my treaments on Friday and I did a 20 mile hilly bike ride today, setting a personal record for my average pace.  Just listen to your body and rest when you need to and exercise when you can.  Eating healthy and drinking lots of water are important as well.

    Kkuziel - ugh to your long drive.  I am so sorry!  Do you like self-help and motivational stuff?  If so, you may want to check out the Tony Robbins cds.  You will arrive at the oncology suite all positive and pumped up!

    RMlulu - I'm putting some glide stuff on to help stop chafing.  So far, so good!

  • MaisyDaisies
    MaisyDaisies Member Posts: 6
    edited March 2013

    Hi. I joined these boards a couple months ago when I was diagnosed, but haven't written until now. I just want to say thank you to the person who started this topic and to all of you for sharing your stories because reading them is helping me to get through a lot of feelings now. I had a lumpectomy and will need rads but no chemo and I feel like everyone around me assumes the whole ordeal is done and, wow, it wasn't so bad after all. They're all so happy talking among themselves about how great this all is. No one asks me how I feel about rads or acknowledges that I will have to take a pill for 5 years and that those will take a toll on my body and emotions. When I talk about worry or how uncomfortable some of these procedures are, I hear "yes, but" or all about how someone else did it and it didn't bother them at all. I feel kicked to the curb by people who seem so proud of themselves for being so supportive of me. But, yes, I feel guilty for feeling that and guilty for not being a happier Stage 1 person because I know how much worse things could be. So this thread is helping me get through and making me feel like my feelings aren't so weird after all.

  • AmyfromMI
    AmyfromMI Member Posts: 241
    edited March 2013

    Welcome Maisy!  I'm sending you a great big 'ol hug right now.  Thank you for sharing how you feel.  I feel EXACTLY the same!  I don't know what type of BC you were diagnosed with, IDC or ILC, but there are a couple of threads (Team ILC Warriors and 2013 Warrior Sisters in the IDC forum) you may want to check out if you haven't already found them.  Both groups of women are fantastic and so supportive and offer a ton of great advice and encouragement!  I mainly "lurk" at the Warrior Sisters thread since it is IDC.  Lots of warrior <3 to you!

    ~ Amy

  • RMlulu
    RMlulu Member Posts: 1,989
    edited March 2013

    Hi y'all



    Maisy - Welcome! Great news that you are on top of c & kicking }€{! It is an emotional journey but together we are stand strong! I have appointment buddies which helps & have been one for friends...I now know that there are times when just being there...showing up...silent...is the best.

    Katlou's - you are in the red zone and the goal line is right there whoa who! A 20 mile hilly ride now you are rockin. I'm happy walking 3 milies or riding my bike for 1 hour...wow :))

    Kkuziel - how are you doing on rads & your drive. Hope you are hydrating eating well and able to get some exercise in so your bottom isn't so sore from the car time. Did you find a appt buddy to share the ride or a good DVD to listen on the drive.

    Amy - has your start date been determined? If you started how did it go:))



    I'm 2/30 and I know that each zap only lasts about a minute. But I still prepare each morning with some deep breathing reflecting on healing light praying for the light to be guided to just the right places to zap any lurking errant cells out of my breast. Funny how much this becomes a mind game...control the mind calm the emotions.

    Keep hydrated, moisturize the breast&armpit, eat extr protein, walk, & LOL joy is good medicine! (((Hugs)))

  • AmyfromMI
    AmyfromMI Member Posts: 241
    edited March 2013

    I officially start tomorrow at 10:30. Looking forward to it! I had my consult, sim, and tats last Monday. I was hoping my tats would have been grouped a little closer together though. I was hoping to turn them in to something. ;-) oh well.... I'll let you know how zap #1 goes. Right now, no nerves! So that's a very good thing. :-)



    Hugs to all warriors!



  • Katlou
    Katlou Member Posts: 27
    edited March 2013

    Welcome Maisy!!

    Thanks RMlulu for the kind words and congrats on getting started! It seems like so many treatments, but it will go by faster than you think.   I am in single digits now with only 9 treatments left.  Unbelievable!  Amy, good luck tomorrow!  It feels so good to get it started, so you can start the countdown.

    Speaking of countdown, I wanted to share what some amazing friends made for me.  It is a radiation countdown advent calendar.  The uncovered days are all pink paper with the breast cancer symbol. They are arranged in a large circle on a big pink board. When I get back to work after treatment each day, we all gather around and I get to uncover that day and reveal the treat underneath.   The last day is in the middle and it is huge.  I can't wait to see what's hiding behind there!  It has actually made radiation fun!!  I thought I'd throw that out there if you have any friends going through this, because it is awesome!!

    I hope everyone is doing well and that you all have a great week!!


  • JPH
    JPH Member Posts: 35
    edited March 2013

    I too am new to the blog.  I had surgery in mid-February and am to start radiation on March 25. Still do not know how many treatments I will have - have been told 4 to 6 weeks.  I was marked up 9 days ago and all the markings and tape are a pain and coming off.  I live about 20 minutes from where I will have treatments - the plan is for me to teach each day and have a co-worker watch my class the last 5 minutes so I can get out in front of the buses.  I know how Maisy feels about people forgetting anything is going on in your life.  I am happy to have work as a distraction.  The blogs are helpful - but sometimes disconcerning - too much information for me - I am a positive thinker - don't want to know the worst possible scenarios until I am there.  But I know that information may be helpful for others!

  • CarolynVM
    CarolynVM Member Posts: 137
    edited March 2013

    Everybody seems to say that the time for radiation treatments goes by fast, fast, fast.  It hasn't for me!  I finished 28 regular tx last Thursday, had boost sims on Friday and will start boosts Monday, theoretically to finish on Friday.  This has been one of the most drawn-out miserable experiences I can remember.  It apparently will actually end but I'm so mired in the endlessness of the whole thing that I can't believe it's really going to end.

  • RMlulu
    RMlulu Member Posts: 1,989
    edited March 2013

    JPH - Welcome to the rads thread. Sounds like you have a great group of co-workers to support you & plan in place:)). Hope your RO schedules time to fully discuss your tx plan & answers all your questions. I met with my mine before rads were even scheduled & now each Monday to review how I'm doing & what to expect each week...daily if I have any issues. Grateful for her hands on care. Keep up the positive healing thoughts!

    Katlou - love the rad advent calendar ... creative & up-lifting...wonder what the big surprise is? How fun keep us posted ...counting down:)

    Amy - great attitude you will do well! Zap zap the cancers all gone.



    Wishing all a great week! Stay hydrated, moisturize, active, and positive. Warriors kicking c with rad tag!

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