Follow up with onc...I don't like going.....

Options
karen1956
karen1956 Member Posts: 6,503
edited June 2014 in Stage III Breast Cancer



I had my 6 month check up this afternoon with my onc.  I am 7 years out since Dx and still dread the appts....No matter how far I get out, I am always depressed on day of appt....I dread going....don't want to go, but I go....I've quit all my other docs (BS and PS) as it is a waste of time when I see onc every 6 months....Anybody else feel anxious/depressed/sad on the day of oncologist visit?  I had a knot in my stomach all morning till my appt....Then when I'm there I'm in a funk and I've been done for over an hour and still feeling down....Visit went well....now of course I need to wait for labs to come back for comfirmation.  I just feel like the visits are a waste of time!!!  Everyday except on onc visit days...I go about my life.....yes, I'm involved with a couple BC organizations, but there I feel useful with a purpose to help newly diagnosed...I come here and to AMC What Next and that feels good...I volunteer with Komen and with Sharsheret and that is wonderful.....but when I go to the onc, I'm reminded of everything that I've been through and the reality that I had BC!!! And the reality that no one knows if/when it will return.  I don't live in fear of mets, but I don't like going to the oncologist....Its not the onc as I have no desire to change oncologists..... Does this make any sense?  Onc always says to let him know if I ever want to try AI's again....and I look at him like are you kidding me...never, never, ever again!!!  This month marks 3 years since I quit them...after enduring 3 1/2 years of misery......This was also only the 2nd time I've gone to the oncologist without my DH, but his work schedule has him travelling more than he has in years....onc did ask about him and told me to send his regards to my DH......Thanks....




Comments

  • Moiralf
    Moiralf Member Posts: 1,056
    edited March 2013

    I'm a little different in that my visits to the onc are more "necessary" that yours. I don't mean that yours are not important, they are and the feelings that go along with them are important.

    Like you mentioned, the rest of the time BC is something that has no real impact on your current life and that is wonderful but the onc visits remind you of the fragility of that life. A lost of  control over it , I suppose.

    One of the hateful hangovers of cancer, the never knowing if, or when it might strike again. A bit of PTSD when the appt is coming up and the going though it.

    I think what you feel is entirely normal and even after the number of years, it is still a reality to a part of your life you never want to be part of again.

    Congrats on doing so well and enjoying your life, sure you will bounce back and feel good again soon.

  • Gitane
    Gitane Member Posts: 1,885
    edited March 2013

    It seems I want to treat the visits as just part of my life now, but the reality is my anxiety is very high.  I'm still on Femara, and take Metformin, too, so I get those prescriptions annually.  I get checked out on bloodwork, TM's, etc. and have an exam.  There is some discussion about any possible treatments in the "pipeline" that usually isn't reassuring.  Last visit, as I sat getting my Zometa infusion, the woman next to me was talking to her friend about her treatments as she got her chemo.  It was so difficult to know she had mets to her liver and bones; she was younger than me by far and beautiful, healthy, and so together.   Before the visits I am always nervous, during and after the visits I am always nervous.  It is what it is.  I can very much understand your feelings.

  • Bugs
    Bugs Member Posts: 1,719
    edited March 2013

    {{hugs}} Karen!  Appt time is tough...not sure that will ever change?  Sometimes it seems easier, sometimes there is a big black cloud over my head a few days before til after I walk out of the building.  I know we've talked about this before, but I would suggest going to one year appointments if at all possible.

    Love you, my sistah!

  • krcll
    krcll Member Posts: 343
    edited March 2013

    I know how you feel! A cancer diagnosis once means we can never just assume that a trip to the doctor will always give us good news. Hang in there and you will soon get through this 6 month appointment. All the best!

  • gillyone
    gillyone Member Posts: 1,727
    edited March 2013

    I guess it's something we all have to put up with. My onc said I would be seeing him for ever! We are on 6 monthly appointments, but wonder if it gets to once a year at some point?

  • karen1956
    karen1956 Member Posts: 6,503
    edited March 2013

    Bugs....my onc wants to keep a "watch" on me...I think it has to do that I quit the AI's early....I think he keeps hoping that I'll give them a try again, but unless something new comes along, I'm not willing to compromise my QOL.....and I asked him if I went back and he said at least 5 years!!!  Thanks but no thanks.....The clinical trial I was on said 3 months for 3 years, then year 4 and 5 every 6 months then annual visits....but onc has kept me on a tight leash since I quit the AI's.....

    Gillyone....I've known since time of Dx and first onc visit that I would be seeing him for the rest of my life.....

    I'm feeling better this evening so the black cloud is lifting.....

  • Momine
    Momine Member Posts: 7,859
    edited March 2013

    Karen, yes, I think it is fairly normal to get in the funk at check-up time. Both my docs are nice people, but I still would prefer not having to go see them. At the moment I am seeing 2 of them (BS and onc) every 3 months, so I sometimes feel like I all I do is go get blood work and visit doctors.

    However, I am still giggling about the orthopedist I saw yesterday, who boomed at me in heavily accented English: "You are PERFECT!" It was a non-cancer visit having to do with my terrible back, but I am adopting that as my new slogan and announcing to everyone that I am perfect ;P

  • NancyD
    NancyD Member Posts: 3,562
    edited March 2013

    I think my upcoming visit in April will be my last six-month visit. I do look forward to it becoming just once a year not because of any build up of anxiety, but because I have to play with my schedule to work it in. I guess that causes its own form of anxiety.

    Will your onc let you go to a once-a-year schedule? Let him know that if you ever reconsider taking an AI you'll be back sooner.

    The other alternative is to just make the next appointment a year out. My onc is never in the recpetion area when I leave , so he wouldn't know if I made my appointment for five years out until he saw me again.

  • edwards750
    edwards750 Member Posts: 3,761
    edited March 2013

    I think we can all relate to the fear factor and aptly put, hangover, from the cancer DX. To make matters worse for me I am the poster child for anxiety and worry. My son says I worry even when I dont have to. Probably true. Somehow I have conjured up in my mind that if I worry enough it will somehow control the outcome. Crazy? Of course it is but thats me and I dont guess I will ever change. Nothing any dr says including my ONC will completely erase the fear of the cancer coming back. We can all have the best of stats but we all know there is no guarantee. I think for those of us with early stage bc maybe the odds arent against us as much. Every ache and pain can signal something but most of the time it doesnt. We just dont know which one it is until we are checked out. I can so relate to the anxiety right before a drs appt. I have my last mammogram with my BS in May. I freak out more anticipating that appt than I do my ONC. I know our ONC is our go to person forever. Thats reality and I have accepted that. My BS has a small office and the techs are awesome. I typically go through my fears, etc., with her and then look to see if she has her game face on. The last couple of times she has come into the waiting room and giving me the thumbs up because she knows I am losing it. This dr sends the mammogram to a dr in Atlanta but the results are like instantaneous. No one can imagine what it feels like to be branded with the C word. I am a very optimistic person; I have Stage 2, Grade l, Oncotype score of 11 and currently on Tamoxifen so I am doing what I have to do to prevent a recurrence. We all know there are ladies on this forum who also had early stage BC and had a recurrence but on the bright side there arent too many of them. All we can do is keep the faith which I do every day. BTW I understand women who elect NOT to take Al's and I am blessed the SEs for me arent unbearable. Do think positive though...7 years is a long time. I have heard if you make it 5 years it is a very good sign. Diane

Categories