Sept 2012 chemo

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  • Cherioo
    Cherioo Member Posts: 305
    edited March 2013

    Jojo you look so beautiful



    Amy, so glad you are feeling better

  • Amy4978
    Amy4978 Member Posts: 473
    edited March 2013

    Thanks jojo I am only 8 weeks wondering If I should.... HMMMM????

    Cancer makes me need two 6 month vacations a year!

  • Faith-Focus-Finish
    Faith-Focus-Finish Member Posts: 124
    edited March 2013

    You look great Jojo!  : )))

  • Timbek2
    Timbek2 Member Posts: 204
    edited March 2013

    Hi ladies. Just wanting to throw this out there. Is anyone open to creating a private fb page or our group? I am mtg someone locally I met on these boards and she said that's where her chemo buddies go now post treatment to stay connected. Wondered what your thoughts are? I think it's a great idea. All of you are my support group and I'd like a way to stay connected outside of this arena. Hope everyone is starting their week well. I hate rads but am plodding along. :). Xoxoxo Becki

  • Toastiecat
    Toastiecat Member Posts: 132
    edited March 2013

    Timbek, that's a great idea! I'm in. You look fab in your photo!!

    Wow, it's been a while since I posted, and there's so much to catch up on. Someone mentioned a few pages back about feeling frustrated with all the people who say "you're done!" and don't get that a major chunk of it is not done. This experience is like an iceberg -- most people only see the tip of it. I get really upset with people about this too. I feel at times like I don't want to be around anyone who doesn't get it. And the only people who get it are other BC people.

    I have a question, and I'm wondering if you guys can give me some advice. My mom has been having a number of health problems, but won't go to the doctor. There are a number of reasons why, mainly to do with anxiety. She's recently had some symptoms that I worry might be signs of a minor heart attack. My sister and I have both talked to her about getting to the doctor. We have both offered to help her find a doctor she likes, but she puts us off and says she'll handle it on her own. What would you do in my situation? I don't know how far to push it, as she's a pretty sensitive person...but I'm at the point now (and this is probably also due to my own general anxiety) that I'm really afraid of what's coming next.xoxo

  • jojo2373
    jojo2373 Member Posts: 662
    edited March 2013

    Timbek, great idea! Btw, your grin made me smile, awesome.



    Toastie, was in a similar situation with my dad several years ago. Unfortunately, my persistence that he see a doctor found stubborn ears. His cancer was metastatic by the time he was diagnosed. I think serious talk about how much you love her and don't want to lose her is in order. Being proactive with her health rather than reactive is always the best way to go. Would offering to make her appointment and taking her help? Is she also so concerned with your health she is placing hers on hold? Reinforcing how important she is to you could be a start, good luck!

  • Amy4978
    Amy4978 Member Posts: 473
    edited March 2013

    Great advice Jojo.....



    And as far as FB im in!

  • jojo2373
    jojo2373 Member Posts: 662
    edited March 2013

    Amy - you are up way too late too!



    Becki - do you want to start the page? I don't know much about a private page, but can research it and start as well. Anything for my dear friends!

  • Mariposa123
    Mariposa123 Member Posts: 267
    edited March 2013

    Jojo: love your hair!  I am having the same issues (as I think I have complained about before around graying temples making me still look slightly bald).  I may have to try it soon.  

    Becki: I would also love to be a part of a facebook page to stay in touch with each of you.  We have been through so much together- I want to keep rooting for each other in other ways besides just kicking cancer's ass! 

    Toastiecat:  I think Jojo made some great points.  I was also wondering how much of her own health she is putting on hold because of your condition.  Maybe she feels like it would just be too overwhelming right now to have her own health issues.  My sister has been suffering for a very long time with anorexia.  It is tough because she becomes extremely defensive whenever any of us (my family) tries to discuss it with her.  But at the same time, I can't lay off because I know that I would regret it if something horrible happened to her.  The last time she came to visit she said she just wanted to be helpful to me.  I told her that if she wanted to help me, she could start by going to the doctor.  I told her how stressed I was about her health... and even though I had cancer, I had many doctors and specialists looking after me.  She didn't have nearly the same support team.  I have no idea if she will go (doubtful) but I will continue to try to gently say my piece each time I see her.  I guess that is all we can do. 

    I like the idea Jojo had of asking if you can make the appointment for her - or maybe even offering to go with her as a trade for how much she has done for you... and how much it would mean to you.  What the hell.  Sometimes I think it is okay to play the cancer card.  It doesn't give us too many perks, but if one thing it does is makes those we love get medical help- maybe that is okay.

    I had some thoughts on the "done" conversation too.  Okay... this may sound really weird, and I still have radiation, a ton more fills, tamoxifen, herceptin, and whatever else before I will be "done" with treatment... but I was thinking the other day about going back to work and my feelings about my co workers who have not kept in touch during this last seven months.  Seeing them again sometimes triggers that same anger in me that happens when people think we are "done" with treatment.  They expect that we can just go back to the way things were before.  They don't understand that we aren't the same as we were before.  And to be quite honest, I am changed and continue to change.  And it is for the most part for the better.  Those who haven't kept up with me since before treatment are now strangers to me.  They think they may know who I am - but they don't any more... and I don't feel like catching them up.  I don't even think I can. 

    Does that make sense?  Okay... I am having some major node pain:-(  Off to take a 1/2 a percoset and 1/2 a valium.  I am trying to take half pills so I will be half as constipated.  (sorry TMI)

  • Hopex3
    Hopex3 Member Posts: 397
    edited March 2013

    Timbek..I too love the fb idea. It really would be great to stay connected. I need you all!

    I don't know how to do a private page either. I will ask my friend who has one.



    JoJo...What great advice to Toastiecat!



    Toastiecat.. I'm sorry your having to go through these stressful times with a parent as well. I think you should sit your mom down, tell her you love her and your worried about her. Tell her you need her to be well so she can be there for you! And go with her to the appointment. We had to do tough love on my FIL and he finally went to the doctor and continues to go. My DH had to get firm with him.



    Off to work! I wish I could just retire and travel around. Have a great day ladies!





  • Amy4978
    Amy4978 Member Posts: 473
    edited March 2013

    I can do the fb page but you wouod have to make it in thw form of a group not a page a group you can make private. I have on set up already. I can invite who I want to and no one else jojo is already a part of it. But if you want me to do it you would have to pm me your full facebook name I would know it was you. Also I would have to name the group.

    Soooo if you want me to I can also any suggestions for the page name?

  • Timbek2
    Timbek2 Member Posts: 204
    edited March 2013

    That sounds great AMY!  I will PM you my name.  Did you make it a secret group?  Just so it's private if we want to share things we don't want to share with the rest of the world.  LOL!  Thanks for setting this up!  I'm excited to be a part.  I was thinking to name it something generic like Fun n Friendship.  Nothing to do with this stinky disease since we are all leaving it behind us and moving forward!!!! :):)

    Becki

  • Amy4978
    Amy4978 Member Posts: 473
    edited March 2013

    I like the idea of.a non cancer related name... I will work on setting it up today...

  • Amy4978
    Amy4978 Member Posts: 473
    edited March 2013

    Okay I am gonna go with Jalapeno Hotties or victorious vixens?

  • jojo2373
    jojo2373 Member Posts: 662
    edited March 2013

    Sister Warriors?

  • Amy4978
    Amy4978 Member Posts: 473
    edited March 2013

    Okay ladies I have made the group. I went with Jalapeno Hotties! and used a seedling as the icon because as we come out of this we are growing(seedling) in to smoken hot babes once again hense the jalapeno hotties lmao...

    I was able to add jojo and patricia and twins since they are already my friend on FB I did make the group secret so only memebers can see posts and I also made it so I have to approve who can be added. I believe if you go to FB and type in https://www.facebook.com/groups/JalapenoHotties/ you should find it and can ask to be invited to the group.

    If this doesnt work I will find a away to get all of you in who want to be! much love....

  • Amy4978
    Amy4978 Member Posts: 473
    edited March 2013

    okay If I click the link it takes me right to it but not sure if it will for non members so someone try please :)

    I also found a spot I can invite you by email so you can pm me your email too!

  • Hopex3
    Hopex3 Member Posts: 397
    edited March 2013

    I want to be in but at work now...so can't get on FB.  Will try tonight.

    Thanks Amy for doing that!  Hope your feeling better.

  • Amy4978
    Amy4978 Member Posts: 473
    edited March 2013

    Okay trial and error lol the link wont work if you are not a member of the FB group so I am working on another way... since its set up secret its a bit tricky but give me a few and I promise I will figure it out!

  • Amy4978
    Amy4978 Member Posts: 473
    edited March 2013

    I got it!

    PM me your email address I can add you that way. Once I invite you by email you will receive an email that will give you join page option just click that and your in!

  • marianelizabeth
    marianelizabeth Member Posts: 1,735
    edited March 2013

    Mariposa, not TMI, my constipation pretty much took over but after lots of Sennokot S, Metamucil, prunes, coffee and gallons of water my life got better but not until I was up half last night and then got heartburn too. Totally taking today off in my recliner watching tennis in Indian Wells, your state! Drains could proably have come out but we will see tomorrow when the home care nurse comes.

    Jojo your hair was amazing and hope it comes back the same. No growth to speak of for me yet.

    Amy thanks for FB and thanks to Jo as she got me in!

  • Amy4978
    Amy4978 Member Posts: 473
    edited March 2013

    fyi.... anyone who wants to join the FB group for us sept girls you can now PM me or jojo your email address and we will add you!

  • Jem3
    Jem3 Member Posts: 7
    edited March 2013

    Dear September Chemo Ladies,

    I have been following this thread since I started chemo (AC-T) on Sept. 5. I have been a reader but not a poster.  I cannot tell you how much strength and comfort I have gained from reading all of your posts.  Everything that you went through (side effects, challenges with family members and friends, feelings of anxiety, hope, despair, strength, courage, questions about diet etc.) I was going through at the same time and it helped me so much to read your comments and know that I was not alone.  I had a mastectomy in July and am currently undergoing radiation (day 12/28).  My last day of chemo was 12/12/12.    So many times I have almost posted to this board it but then felt shy or that it was too late for me to join.  I have 3 kids (12, 9, and 6) and I am often terrified that I won't be here to see them grow.  I am trying to focus on now and on being the best mother I can.  Not always easy :).  I am hoping that you might allow me to join your Facebook group. I apologize for not speaking up sooner.  Please know how much I admire each one of you for your strength and courage--not just for facing the diagnosis and treatment but for putting yourselves out there and creating such an amazing community for one another.  I would very much like to be a part of it.  Thanks so much.  Hugs to all of you.

  • whenlifegivesyoulemons
    whenlifegivesyoulemons Member Posts: 184
    edited March 2013

    Thanks for setting up the facebook page!  I say that, and yet here I sit still hesitating to bring my diagnosis into a space that I perceive to be less secure than BC.org.  So far I've kept my diagnosis off facebook and confined to a pretty small group - my family, small group of friends and those at work who needed to know.  

    I think the illusion of controlling who knows about this has been one of the ways I've coped during treatment.    I realize many of you have been on facebook, and have been blogging about your treatment - I just haven't gone there yet.  There's a part of me that knows it's probably healthy for me to step out from underneath my wig. And now that I feel like I've got most of the difficult treatment behind me (I hope) I think I may just do that.

    Toastiecat - I really hope everything works out with your mom.  And I agree that the whole topic of being done with treatment is so difficult.  When my stepmom was diagnosed with ovarian cancer I remember being a wreck about her diagnosis in a way that I'm sure left me incapable of understanding what she was going through and showing her the support she really needed.  So I get that people want us to be OK, few know what to do or say, and so they're desperate for it to be over.  But seeing it from both sides doesn't make it any less frustrating or any less hurtful.  It's yet another part of this that sucks. So I too am glad to have the rest of you who get it.

  • whenlifegivesyoulemons
    whenlifegivesyoulemons Member Posts: 184
    edited March 2013

    Jem3 - Welcome to the thread - you are not alone!  

  • Amy4978
    Amy4978 Member Posts: 473
    edited March 2013

    Jen yes of course pm either me or jojo



    Whenlife....its totally up to you but I have it set up so private it cant be found unless invited. But I will still love you either way!

  • Hopex3
    Hopex3 Member Posts: 397
    edited March 2013

    Jem...So glad you decided to post. I could not be on this journey without all of these ladies.



    When life...I haven't posted anything on FB either about my cancer. There are so many people on there that I haven't really talked with in years and they don't need to know. I'm pretty selective on who I tell. But our page will be private and no one can get in so I feel safe there.

  • cgesq
    cgesq Member Posts: 319
    edited March 2013

    This is funny and made my night!!

    I searched facebook for our group,  and found out jalapeno hotties is a porn video!!!

    HA!!  I just picture all of us, in our various states of chemo weight, radiated skin and semi bald heads appearing in an adult film!!  At least the fake boobs apply!!!!!!!!!!!!!!!Laughing

  • Amy4978
    Amy4978 Member Posts: 473
    edited March 2013

    Oh my I just laughed so hard..... The visual alone was hilarious! I am glad I found a way unknowingly to put a smile and a laughin your day cause lord knows we need it!

  • Hopex3
    Hopex3 Member Posts: 397
    edited March 2013

    Funny! We could do a calendar!

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