Wrapped today...quite a bit of pain tonight
I was finally able to start with my LET today after a 3 week battle with cellulites. She did MLD and wrapped my arm from shoulder to elbow, hoping that she could avoid the entire arm/hand so I could start back to work tomorrow. I'm a hairstylist, so obviously cant work with a wrapped hand. My LE is truncal and upper arm only.
I'm just curious if being wrapped should be causing me enough pain to need pain meds. I see her again on Wednesday morning. I was planning not to shower tomorrow, so I wouldn't have to unwrap and rewrap. Any info or advice is appreciated.
Tami
Comments
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Tamiami, being wrapped should never be painful. I've had a therapist wrap me with too much pressure and the pain was terrible. I took the wrap off.
A couple of things: there are studies that show that a lower pressure wrap is more effective than a high pressure one.
Pain is not good for lymphedema, as pain brings more lymph to the area.
After cellulitis, the international best practices guideline recommends a low pressure wrap--even during the infection--as tolerated.
And only wrapping from the shoulder to the elbow had the unfortunate problem of pushing lymphedema into the path of least resistance--the forearm and hand.
My LE is primarily in my hand, and I had a PT devise a hand to elbow wrap for me, and it worked for a bit, and then I got a pocket above my elbow....lymph fluid will go to a non-compressed area.
So, can you give her a call? Especially with your cellulitis, you sure don't want pain, and you don't want to chafe or break the skin under the wrap. And re-consider the partial arm wrap--especially if you find new swelling lower down on the arm.
Wrapping works due to graduated pressure: more at the hand, and less at the upper arm. A wrap from shoulder to elbow leaves the forearm and hand with no compression. It's worrisome to me.
Kira
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Thanks Kira~ I'm going to unwrap and try to rewrap with less pressure. The shoulder to elbow was on a trial basis til Wednesday, the LET had the same concerns. I am online looking at sleeves and gauntlets, and may have to go that route instead of wrapping so I can work...I have been off since January 4!
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Oh boy...took the wrap off and immediately was sick to my stomach and vomited. Is that just coincidence?
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Tamiami, don't wrap again tonight. Elevate your arm, take it easy. Take your temp, watch for signs of infection (sorry you're so familiar with them already
!), and try very hard to stay hydrated. If you can't drink anything without getting nauseated, consider an ER visit.
Call your therapist tomorrow. Nausea can be a side-effect of MLD and compression, at least at first--though it shouldn't continue. Then again, some pain meds can cause nausea too. Did removing the wrapping ease the pain? If not--the ER is your friend.
Don't take any chances--pain shouldn't be part of this picture.
Please do keep us posted! Hugs,
Binney -
Tami, I think some of the girls here have got queasy with MLD and also wraps. We will have to see if anyone comments. I haven't heard of vomiting though.
I am also concerned about fluid pushing to your unwrapped part of arm. I don't like the idea at all.
Check with your LEist about wearing a sleeve before you go ahead. The thing about trying to wear a sleeve and glove to work is that you need to build up your time wearing it or you will just want to rip it off due to possible pain, etc. You need a perfect fit or you will get binding at the inner elbow or slipping down, or choak your upper arm or a too tight/loose wrist. For gloves you may end up rubbing your finger webs with a bad fit glove. Ouch.
You should only wear it for a hour or two at a time and build up gradually so I wouldn't do a whole day at work. For binding at the elbow you can put some cornstartch in a toe of a nylon and pat your inner elbow or use the antichafing product runners use. I think it is called GLIDE. You can get it a a runner store. This lessens friction.
Anyone that goes thru the monster Cellulitis deserves chocolate...so go for it!
Stick with us, we have some pretty smart gals here.
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Thank you so much everyone! I left the wrap off last night, and within an hour the nausea was gone. The pain went away, but I still have discomfort (like tendonitis feeling) in my elbow this morning. I'm pretty sure the nasuea was from the wrap, because it happened about 3 hours after taking 1 norco...and I took norco after MX with no problems. The vomiting was immediately after I took off the wrap. I am going to call the LET in a few minutes. I see her tomorrow morning as well.
I did have a low fever last night as well, but no signs of the cellulites returning...although I am on my last day of the 3rd week of antibiotics. I had Bactrim 800 for 2 weeks, but had a rash the whole time...PS wanted me off that since it may mean I have a sulfa allergy, so then it was clindamycin 300...yuck! No rash at all anymore though!
I'd like to hear more from anyone that had the nausea experience, especially any advice to help me push through it if that's what I need to do.
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No wrapping here, as my LE has always been mild, but I do take ginger capsules for sea sickness. It works well for nausea, and I wonder if anyone here who did experience wrapping-related nausea has ever tried it? And if any of our pharmacy experts might have a clue if there's any chance that concentrated ginger could interfere with antibiotics? I think it's harmless, but I'm assuming that without really knowing. When I sail, I swallow 8-12 capsules before starting, and then six or eight hours later if still on the boat. That's a lot of ginger! I've never had to use it while on any meds, so I want to suggest it but also ask for expert opinion on any safety precautions.
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Carol, I am a ginger fanatic, as I have vertigo issues from a virus. I drink ginger tea, take ginger capsules, eat crystalized ginger. It's a nice anti-inflammatory. I only take one capsule at a time, but I brew up ginger tea that I drink every night: sliced ginger boiled in water. (My husband buys it for me at an Asian market where it's much cheaper than at the grocery store.)
When I took my CLT training, several of the women who were wrapped for the first time got nauseated.
When I had a wrap that caused pain and cold fingers, I got nauseated.
Saw my LE therapist today--Vodder and Klose (Guenter trained her personally and worked side by side with her for years) trained--and we talked about how a wrap should actually be comfortable. Bulky but comfortable. When I took my Klose class, they taught a 3 bandage wrap, which I thought was too tight and uncomfortable, and I gave the instructor a lot of grief about using more bandages and less stretch to build up compression. A 4 bandage wrap with less pull will be much more comfortable, and using foam underneath can add to the comfort--gray foam cut outs.
Clindamycin can cauase diarrhea, but I think the pain and nausea were due to the wrap, and I don't like the fever.
We have a section on SUSO on wrapping and cellulitis:
http://www.stepup-speakout.org/Emergencies_and_Medical_Care_lymphedema.htm#compression
Light compression is recommended with cellulitis, as stagnant lymph fluid functions like an abscess.
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Kira, I think I'll plop a hunk of fresh ginger into the teapot where I brew my 4 cups of green tea! Not so sure of the flavor combo, but the anti-inflammatory cocktail aspect could be very, very good!
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Thanks Kira~ I called my LET and she was off today, so I just decided to leave the wrap off and see her tomorrow morning. I took my temperature this morning...3 times on 2 different thermometers...and it was 95.8!! Tonight it is up to 96. Something weird is going on! The nausea was gone a while after vomiting last night, and so was the pain. Today was just a constant headache all day and the weird temp. No reddness or heat in the affected breast. Do you think all of that lymph was kinda like poison to my system?
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I just re read the SUSO link, and want to clarify. My cellulites was in my right breast, and my lymphedema is in the left breast/trunk and left arm. Does this make any difference?
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Tamiami, it does make a difference as she wasn't treating the obviously infected area.
Some people do feel ill after wrapping, and even MLD, so I'd hold off on it until she sees you again.
The clindamycin can cause nasty diarrhea--c diff--but you'd know it....
Hope you feel better, and the next attempt at treatment doesn't make you feel sick
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Just wanted to update. I've been able to stay wrapped since Wednesday morning with just a few one hour breaks here and there. I'm pretty sure the swelling is getting a little better, but I started having elbow pain again last night, and tonight I noticed cording in my armpit! Just 1 and only in my armpit, but I'm guessing from reading that is what is causing the elbow pain.
Do you think the cording has been there this whole time, but became more painful from the wrap, and just started to show because some of the swelling went down?
Tami
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