CALLING ALL STAGE I SISTERS

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  • mimi1964
    mimi1964 Member Posts: 2,163
    edited March 2013

    Hey Sherry, in October it will be 4 yrs since I had my surgery and I have only been seeing my MO once a year for a while now probably for over 2 yrs.  Although I was seeing my Rad Onc in between, but my last appt. in July 2012 I had to cancel and I never rescheduled. He just never seemed to do anything special... check the irradiated breast, measure my arms to check for lymphedema, draw a tumor marker test that my MO said was basically useless and he didn't believe in.  So I haven't made another appt. and Oct. 1 will be 6 yrs since my hubby had his CABG - quadrupplebipass surgery/heart attack.  Today he saw his cardiologist and he finally put him out to seeing him every yr.!! Yeah!!! He is doing really well.  So am I actually.  If I didn't have to work 3rd shift and could sleep 8 hrs a night I would be great haha!!! I so need a day shift job. 

    Hi LibraryLynn... Welcome and hope your treatment goes well.

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  • Wren44
    Wren44 Member Posts: 8,585
    edited March 2013

    Mimi, Best wishes to your DH. Mine had CABG (5 bypasses) almost 25 yrs ago and is still doing fine. Last year his cardiologist said not to come back unless he has symptoms.

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  • sheila888
    sheila888 Member Posts: 25,634
    edited March 2013

    Welcome Lynn...Thanks so much for your kind words

    We are all in this together.....Hugs♥

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  • sheila888
    sheila888 Member Posts: 25,634
    edited March 2013

    My MO that i lost because of Insurance is taking my insurance now.......so i have an appointment on March 18

    I had a new one only saw her once and really liked her...but she is no longer has an office locally and they were gonna replace her......

    OOOH I'm so relieved to have my MO back that he worked with me from the beginning

    Good Night Sisters

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  • Moonflwr912
    Moonflwr912 Member Posts: 6,856
    edited March 2013

    Sheila, happy for you, its so important to trust your MO! Also, hello to Lynn Much love to all.

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  • sheila888
    sheila888 Member Posts: 25,634
    edited March 2013

    Thanks Moonflwr......Smile

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  • Joan811
    Joan811 Member Posts: 2,672
    edited March 2013

    Sheila, so glad to hear you are going back to your MO.  I remember when you had to switch...always stressful!  Hope you are safe and snug in the storm.  Still snowing here. Seabeal, so sorry you have to deal with the darned pain.  Relief is great, but 8 hours isn't really enough.
    I, too, have been feeling the effects of the A.I. drug lately, more than usual.  I don't like what it is doing to me.  I do not recognize this person - in my head I am the same, but then reality sets in and I realize I have lost some of 'me' through all this.
    Welcome Lynn.  Glad you are on your way to staying cancer free. 
    nite all,

    Joan

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  • Belinda977
    Belinda977 Member Posts: 381
    edited March 2013

    Welcome Lynn!  

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  • SheaJ
    SheaJ Member Posts: 16
    edited March 2013

    hello all... still struggling with the hemotoma. they took me into the OR a week ago monday and evacuated it and all appeared good. they removed the drain this past monday and all appeared good. PS said next week they would start pumping up that expander well it started to swell with fluid again and is larger that the left one again (left has been being pumped up) and last night it started leaking out both the old drain site and at the insission. They left the stitches in for an extra week. uggg. only good news is that I was told this week that my oncotype dx was an 8, so no need for chemo I will be put on femara for 5yrs. question does anyone else doubt good news and wonder did someone make a mistake? I'm just not sure what to trust anymore.

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  • Meece
    Meece Member Posts: 19,483
    edited March 2013

    Yes, Shea, I think most of us who have received the original bad new (that we have BC) are waiting for the other shoe to drop.  I have had to have biopsies and many, many scans of 'areas of concern' because there is something there.  I have had several answers such as scar tissue from the biopsy or calcifications or multiple cysts.  The drs are not concerned after the scans and bxs so that should be good news, but I still worry.

    You are normal, but most doctors want to do enough to get you through this.  They wouldn't purposely short your treatment so I would trust your oncotype score.

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  • SheaJ
    SheaJ Member Posts: 16
    edited March 2013

    thanks meece. I trust my oncologist he takes time explains and has a comforting aura. my worry is was there an error in the lab in transit was there a mix up etc. Im stage one grade III and the nurse navigator said she has never seen an oncotype dx that low for that mix.

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  • Meece
    Meece Member Posts: 19,483
    edited March 2013

    What is your ER/PR and HER status?  Perhaps that has something to do with it.  You are grade III which is a more agressive cancer.  I mean you can't rule out a mix up completely, but just because the NN hasn't seen one that low doesn't mean it isn't seen anywhere.

    Best of luck, perhaps others may post their experiences here.

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  • chabba
    chabba Member Posts: 5,065
    edited March 2013

    Shea, I, too, am stage 1, type 3 with an oncotype 8 score.

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  • Mini1
    Mini1 Member Posts: 1,836
    edited March 2013

    OK, random question. My breast hurts. Bad. It's not in the area where I had my surgrey, and not the nerve, tingly type of pain. It's swollen, but not huge. It feels like you feel when you've been hit really hard. I don't feel any lumps or hardness, and can't think of anything that would cause it to hurt this way. Has anyone had a  breast begin to hurt like this for no specific reason?

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  • Sherryc
    Sherryc Member Posts: 5,938
    edited March 2013

    Welcome Lynn

    Sheila so happy you are getting your old MO back

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  • Loral
    Loral Member Posts: 932
    edited March 2013

    Mini1-- Mine hurts too. Burning in the nipple area and feels bruised on the top, not where my scar is. Strange ,I go for a Mammo in April. I wonder if Tamoxifen causes breast fullness/tenderness????

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  • Scottiee1
    Scottiee1 Member Posts: 2,329
    edited March 2013

    Hi guys....just popping in to say that I had some fullness and tenderness in my BC breast. It lasted for a few weeks and then went back to normal. I don't know whether to blame it on rads I had last June or Letrozole !!!!!

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  • sheila888
    sheila888 Member Posts: 25,634
    edited March 2013

    Thanks Sherry....Smile

    Mini....About 3 years ago....i had this pain in my effected breast......It felt like a wave of pain......

    Waited and called MO..he said that was nothing but if I was worried should see my BS.....

    BS was going to vacation the following day...he called me and gave me an appointment for 2 weeks later

    I was getting so scared that I took myself to ER......actually they did an US.....everything was fine

    the whole thing lasted about 3 weeks......no tenderness or swallowing.......

    I wold have checked...just for peace of mind.....

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  • Tpettis
    Tpettis Member Posts: 20
    edited March 2013

    Indigestion and I realuze now I was having allergiv reactions from the get go. To top it off before my last treatment I was dealing with bladder control problems. Now I have huge painful sores in the groin area. Saw another thread on this and not having sex cause you need a man for that but worried I May have atrophy since im having hot flashes and no period since December.

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  • Joan811
    Joan811 Member Posts: 2,672
    edited March 2013

    When I read these posts it kind of breaks my heart to hear all the trauma BC has caused to so many -- even stage I.  Wishing healing thoughts to everyone with pain, infected areas, and other SEs.  
    I have continual pain in my surgery site and rads area.  There are so many hard or lumpy areas, how would i ever know if something was growing....I am used to the pain and attribute it to scarring from both surgery and rads.  I also know the surgery side is larger, and my rings are tighter on my hand on the BC side.  I do not worry about LE but I do know there is a long term difference in that side.
    I hope as you get away from the surgery date that the symptoms will become much more manageable.
    Hugs,

    Joan

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  • Mini1
    Mini1 Member Posts: 1,836
    edited March 2013

    I have a mammo next month, so I guess I'll find out then. It's not unbearable, or keeping from normal activity. I try not t focus on it. It's usually most noticible when I'm doing something quiet. I'm sure it's probably nothing, but you know how you get paranoid with this stupid disease.

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  • FireKracker
    FireKracker Member Posts: 8,046
    edited March 2013

    I am nuts right now.goin finally to have this damn tummy fixed.my internist wouldnt give me clearance till i saw the cardio dr.well low and behold he found 2 leaky valves along with a murmur.He still gave me clearance for the surgery on tues.the 12th.at 10am.when this is all over (if i make it) ill be lookin for a 2nd.opinion.

    I read all the posts but damnit i cant remember anything....selfish me im so wrapped up in myself im blocking everyone else out...im sorry.

    for all my stage 1 sistas I wish you all peace,love,hugs and kisses.Ill be back.

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  • seabeal
    seabeal Member Posts: 121
    edited March 2013

    Granny it's not selfish nor are you wrapped up in yourself blocking others out. It has been a rough road for the last several months with so much stress you need to focus on yourself as we will all be focusing on you with good wishes and prayers. Know that you are not alone on the additional journey.

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  • sheila888
    sheila888 Member Posts: 25,634
    edited March 2013

    To my dear friend......{{{{♥Granny♥}}}}

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  • Joan811
    Joan811 Member Posts: 2,672
    edited March 2013

    (((Granny))) OF COURSE YOU'LL MAKE IT...you don't think you're getting out of here that easily, do you???
    We are here...we will be there...clutch that iPad tight and know we are tucked inside whenever you need us.
    Will be in your pocket Tuesday all day. 
    It is good to be focused on yourself at a time like this.  We'll be singing you to sleep [quietly]!

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  • purple32
    purple32 Member Posts: 3,188
    edited March 2013

    That's fabulous, Meece!

    Pocket party for granny !!!!! Laughing
     

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  • Scottiee1
    Scottiee1 Member Posts: 2,329
    edited March 2013

    ((((((((Granny))))))))

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  • mimi1964
    mimi1964 Member Posts: 2,163
    edited March 2013

    Prayers for granny!  Sheila and Joan did you both get a large amount of snow?  did you get snowed in?  We are going to have thunderstorms here possibly monday (again)!! Wish it would stop raining for a while.  Would just like some sunshine and warmth... no bad weather this year at all. 

    Oh by the way there is a job opening for 7-3 at my work, I put in for it.  Say a prayer that i get it please and that I can do the job with all the big wigs there.  It's been a while since I've done day shift so I'm a little worried.  All I've done on days for almost 20 yrs is management work.  This is different, but gotta get of 11-7  :)  Hugs to you all

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  • FireKracker
    FireKracker Member Posts: 8,046
    edited March 2013

    Thanks to all my stage1 sistas.

    im nervous.

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  • seabeal
    seabeal Member Posts: 121
    edited March 2013

    Mimi - You definitely have my prayers! I worked the nightshift for 2 years after transfering to ICU. I was able to obtain a day position post mastectomy in July. It was really scary changing to days although nights are more stressful. You will do great on days and I can't tell you how much better you will feel.

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