Stage 3?
Comments
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Angie57, we have very similar stories. I had a normal mammogram in June 2011 and was diagnosed Stage III in October. Same nodes thing. I have a DIEP scheduled next month--are you going for reconstruction anytime soon?
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So sorry you've had to go through all this. Your story sounds almost identical to mine. Had numerous scares over the years, and was always told, fibrosistic breast changes. I ended up with multicentric disease in one breast, DCIS in the other and 13/15+ nodes. I had the exact tx they are suggesting for you. The A/C portion of chemo was the toughest, but I really only felt bad a few days after tx. I did have a really bad bout of mouth sores, so be sure to check with your onc about what to do if the ulikely chance that flares up(or PM me and I'll give you the low down on what I did) and they almost didn't give me the last full dose of A/C. I ended up getting it after waiting a few days to treat the mouth sores. Taxol was MUCH easier for me and I even went back to work about halfway through it. Rads were a breeze after the chemo, and now I am on Tamoxifen. And I AM STILL HERE over 3 years later! I won't lie and say I haven't had a lot of ups and downs, especially when I get a new ache or pain, but the ladies here on BCO (and men
)have helped me through some of my darkest days. YOU CAN DO THIS!!!! And we'll be here to help you!!!
Take care,
Sharon -
Thank you, Sharon. My surgery is Tuesday and I am very scared. I can't believe they have to bother both armpits on top of everything else.
My husband and I just put biotene on our list of things to get. We got a recliner for me today. I think we are going to get away for a night this weekend.
My son is struggling. 3 calls from the school and a crying breakdown at his basketball tournament. He is 14. I hate putting my children through this. My daughter is distracting herself with many fun things with friends. She turned 11 yesterday and I wonder how she will be when my appearance changes. I go through 3 hours of down a d 1 slightly optimistic in a sort of cyclical fashion. I am just being honest. -
My kids were just about yours are now. They kept it pretty much to themselves, but I know they were scared too. My daughter who is now 16 has volunteered for the Avon Wak for the past 3 years (which ironically I walked and crewed even before my own dx) and is now old enough to do the actual walk if she can raise the $1800 donation requirement. Maybe just giving them the minimal information is a good thing. Don't go in to too much detail about staging, etc. I just told my kids that yes I had breast cancer and they were going to have to do surgery and then probably chemo, etc after, but that I was going to do everything the doctors told me to to get through this. They didn't ask for too many details and I didn't offer. You'll know what your kids can handle. Oh, and biotene products are great! Get everything they have, and if you do still end up with the mouth sores the doc can px what they call the "magic mouthwash" that has a numbing agent as well as other fun stuff in it to help. All that together really helped!
Take care hon!
Sharon
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Thank you again!!
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Sharon, your posts were very encouraging - nice to hear from somebody who has been through it all and come out the other side. I just had round 3 of dose dense AC today and am hoping that, like you found, the Taxol will be easier. Not that I've had terrible SEs with the AC. Had intense heartburn after Round 1, but that cleared up once I started taking Prilosec. Otherwise it's just a bit of nausea, constipation, diarrhea. Feel down and out for 2 or 3 days starting on Day 3, but then gradually better so that I actually feel great for about 4 or 5 days before the next round. Makes it hard mentally to go down the road again, but it's not like we have a choice.
LKSHER, I just had mastectomy on left side in January with full axillary dissection (10/25 positive nodes). I guess the pain meds are pretty good because I had very little pain. Had a lot of tingling in the arm and numbness in the armpit, but that is gradually getting better, with the help of physical therapy. They won't touch both armpits unless the sentinel nodes are positive, will they? Here's hoping that won't be necessary.
I'm sorry your son is having a difficult time with this. Perhaps once treatment starts it will be easier for both you and your family to cope. I certainly found that finally having a plan in place and starting on it relieved a lot of my anxiety and as a result probably helped those around me too. Will be thinking of you on Tuesday! -
For those of you with children and teens, check out the American Cancer Society web site. They have some good resources for talking to kids and helping them cope with a parents cancer.
Caryn -
Thank you, Caryn. Good idea.
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And thank you, Caitlin! I know they have to take nodes on one side. They are doing sentinel node on the other, at least. I am hopeful I will do well with the pain meds, too.
I can't believe how kind and giving everyone here is. I usually am, too and hope to get back to being me sometime. -
Lk I just wanted to say good luck on your surgery. We are here if you need us. Healing hugs
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Thank you, Mel. Having an especially blue day, so it's nice to get healing hugs.
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Hi,
You will get through this. I am stronger than ever. I remember those pity parties in bathroom -
LKSHER - Hi and I'd like to tell you that you are in a very close-nit and supportive forum. The Stage III forum has a group of women who are always ready to come to your support. I have not posted on this forum for several months. Guess I'm just busy with other things in my life. Which is a good thing. I remember at first coming here very desparate and confused. Breast Cancer is just not the thing you want to research and learn to know every aspect. The diagnosis forces you to become your own expert in the diagnosis and all here at BC.O are wonderful in helping you do that. The one good thing about Stage III is that they throw everything but the kitchen sink at you to keep it from progressing
Sounds like bilateral mastectomy is a good idea for you and the beginning of fighting this horrible disease. I was fearful of the thought of chemo and rads but it's all doable and you will difinitely be able to do it. Your family will help you. Just try to let the "stay positive" comments role off your back. I used to hate that advise. This is the most unpositive time of your life right now and it's ok to give into your feelings about it and get them out. I came here to this stage 3 forum today because I just realized I am 4 years out this month already. Wow, can't believe it. I've had Lot's of non positive, angry, scared, sad, and many other feelings spoken about on this forum since then. Keep sharing here. Take care.
Barb -
Thank you so much to everyone.
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shanagirl,
Thank-you for that too. Your post is very uplifting. I am feeling quite low this evening mulling over my stage 3.
LKsher, the 1st year is really hard, but you will come out the other side. I think it takes a while after tx has finished to put yourself back together again.
I am just 1 year post dx, I cannot say I have 'good/positive' days yet, rather that I don't have those awful panic/numb feelings all the time now. I too have a son at 15, he was 14 as I was dx'd. I think he is a little bit in denial about it all. He was very upset about my hairloss. But as I am NED 1st one, I will let him stay there, unless something happens.
I am not really sure what else to say as I know it is such a tough time. Keep checking in here as the women who have helped me have really helped me.
Kind thoughts for you. xx
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I am nearing one year anniversary of stage 3 locally advanced BC positive nodes ....... It is a ver y though ride emotionally and support from those who have been through it or are in it is invaluable......just allow yourself to be how you feel x
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LKSHER...just wanted you to know we'll be thinking positive thoughts, praying and hoping all goes well tomorrow with your surgery! In the darkest moments, when you can't believe this is really happening in your life and you feel overwhelmed, remember you have all the sisters here...we have been were you're going tomorrow...you are not alone and not the only overwhelmed, frightened, in shock woman to go through this...most of us did too and we're still here and cheering you on!! Please check in and let us know how you are doing!!
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Thank you. Thank you. Starting to feel relieved just to get this out of me. Still so terrified, though.
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Best wishes and prayers for tomorrow LKSHER. I hope that you will start to feel both relief and a sense of being in control once you've started down the treatment path. May you have a speedy recovery from surgery!
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LKSHER..been thinking of you and hoping all went well with surgery!
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Hi, everyone. I got the pathology from my surgery today. On the left, I have 6 positive nodes out of 13. Biggest one was 1.7cm and it was spilling out. My tumor was 3cm. It is now a grade 2. Lymphatic invasion was there. It was tiny IDCon my right breast with no node involvement. Everything is still strongly ER/PR positive.
Surgery was rough for me, but I am healing okay.
I just found out about the pathology and although, I am not surprised, I am feeling very down and scared again. So afraid for my kids who were upset all week to stay with friends and missed me so much. I have no idea what to do to feel less bleak right now. -
LK, glad to hear that you in recovery and that surgery went ok. The path freaked me too, and I too had nodes, including some "spill." I am still here, and, knock wood, doing ok so far. Good to hear from you.
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Hi. Wanted to wish you well. Similar diagnosis as yours. Finished chemo now plowing thru rads. I have kids your kids ages too. It's scary. No doubt about it. Just take it in chunks. You are thru surgery. Then you will conquer your chemo and then the rads. Its like artillery coaster ride and daunting from the start but you will be ok. Sending hugs n prayers your way. Sorry you have to join us. God bless you.
Becki -
OK...well the path report is never fun when your a stage III, but the bright side is that you get to hang out with all of us!!! Yep, I remember this being a dark pit time of the journey. Not much could be really said that got me out of it other than reading stories of woman who had been where I was and were still living years out. Just met a woman today who had 9+ nodes and she'll be 10 years out this summer...HOPE!!
You're a mom and that is a powerful force. You don't want anything to harm your babies...even your cancer! So take that powerful love for them and fight throw the pit because they need their mom!! If curling up in bed with them is all you have the strength for that day..treasure it and let it fuel your desire to get through!! Live only today, than tomorrow when it comes than the next...the days will add up and the end of treatment will come...promise!!
We all here for you and please know all that you are feeling, fearing and totally overwhelmed about is normal and will become less and less...you're going to make it!!!
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LKSHER, glad to hear you have come through surgery and hope you will continue to recover well.
For me, the path report was the biggest blow of the entire process so far. Up until surgery, the suspicion was that I was Stage IIb. However, in addition to finding 10+ nodes out of 25, a second smaller tumor was identified in the same breast, which had not been seen previously in multiple scans (US, MRI, second PET/CT), mammograms, and a second biopsy. I just had my last AC treatment yesterday, with 4 Taxol to go, then rads, then Tamoxifen. I'm just taking it one day at a time, focusing on getting through chemo at the moment.
I think the best we can do is enjoy each day to the greatest extent possible and look forward to better days ahead, without fretting too much about numbers or prognosis. As Hopefour says, there is hope for all of us. -
Thank you, ladies. My emotions are a rollercoaster right now. I know you all understand. Thankfully, I am having more strong and positive moments. I like to think that all the cancer is gone now. I visualize that as much as possible.
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I remember.
Listen to the theme song to million dollar man.
Stronger. You will find your strength.
You have more mountain to climb. I am other side waiting for you.
I am holding your hand . You can do this -
I remember that, Fredntan! And this, too--
"We can rebuild him! We have the technology!"
With my DIEP coming up next month, I'm all into that...
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Thinking of everyone today. My pain is much better. Range of motion is not awesome, but starting more exercise. Took a longer walk last night with my husband and we went up a big hill. I was proud of myself, but have felt cold and tired since getting home after that. Also hardly slept last night due to so much on my mind. I am on a total rollercoaster of .... I had surgery and it's all out and I feel confident and I can do this and live a long life..... to ...... I am terrified and think my time is limited.......
Every twinge is a possible sign of mets even though just had a Pet Scan 3 wks ago. I know a lot of you understand. I constantly reread the survivor stories of ladies with similar pathology to mine. It helps me, but exhausts me, too. I have been a bit obsessive about looking for reassurances and the answer to my What's going to happen to me??? question. My kids are at such tough ages for this and my heart breaks when I sense their fear. They are very smart and have expressed that although meals and invites from all our friends are nice....It is a reminder to them that things aren't normal. They would rather go back to bossy, loving mom who cooks a couple times a week and takes them out to the local restaurant a lot b/c of our busy dance and sports schedule together. I miss that, too and pray and hope hard that it will be our reality again. Love to all.
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