Radiation side effects

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I am so glad I was able to find a virtual support group. I wanted to reach out to other BC patients, but with my busy schedule it had to be online.



I am on number 28 out of 33 radiation treatments and have to say it has been manageable. My skin is breaking down a bit, but the Calendula cream helps a lot.



I am wonder what side effects other patients have experienced. Expecially lung or heart impairments. Also thoughts or information on secondary cancers caused by the radiation. My cancer was in the left breast. Look forward to hearing back.

Comments

  • Annette47
    Annette47 Member Posts: 957
    edited March 2013

    I'm going in for 29/30 today.   So far moderate fatigue is the main thing.   My whole breast has developed a very slight tan, but never got really red but the boost area is turning pretty pink.  I don't think it will get bad though as there are only two more times it's going to get hit.    Left breast here, as well.

    As for long term things like lung or heart, I was told that I should be at minimal risk for that having done my rads (except for boosts) in the prone position where the breast falls away from the body so the heart/lungs aren't really in the radiation field.  

  • fd1
    fd1 Member Posts: 239
    edited March 2013

    I'm having 13/29 today.  It seems that my skin is slightly pink.  I was told that the side effects wouldn't really start to week 3 so I am a bit worried that the pink skin is a sign of bad things to come.  Does anybody have any comments regarding the timing of the skin changes?  I've been using Glaxal Base and emu oil.

  • CarolynVM
    CarolynVM Member Posts: 137
    edited March 2013

    Today will be 19/28+5 -- finishing week 4.  My skin is looking slightly tan as opposed to slightly pink.  That's about the only skin difference so far.  The woman who gets her treatment after me will have her final boost today.  She is VERY dark in her armpit and had a reddish rash between her boobs.  (We couldn't figure out that one.)  We laugh and chat and haven't broken down in agony and misery so I guess we both are making it.

  • laurascott1016
    laurascott1016 Member Posts: 16
    edited March 2013

    Hi Carolynvm,

    I love your positive attitude and your humor. Thanks for your posts. And your positive results regarding SE are a good sign to those of us at the beginning of this rads process. Sending positive thoughts right back at you!

  • proudtospin
    proudtospin Member Posts: 5,972
    edited March 2013

    I am about 4 years past and can tell you that yes, I did end up with a pink that turned into a tan......I am fair skinned

    someone had advised me to YELL loud if I thought I was burning and I did, but it was close to the end.  They had good creams and while as a DD I ended up with a blister under my boob, that was all

    now, do I have any other side effects?  that is tough to answer.  I occasionally get a pain in my ribs on the same side as the rads.  Have not been able to figure out if a side effect but have read of others with similar pain.  Understand it is only occasionally

    but in 9 months I get to stop the aromasin and call my 5 years done!

  • BeezusComplex
    BeezusComplex Member Posts: 7
    edited March 2013

    I am almost a year out from radiation, and the most annoying part of it for me is the way my skin in the radiated area has attached to the fascia underneath.  I did PT to help with regaining mobility (gentle massage) and to help with skin scarring where it attached to fascia in drain areas.  But no amount of rubbing or massage works for me.  I talked with the plastic surgeon (I'll be having DIEP flap, bilaterally) and he said that a major part of the skin affected will be removed during reconstruction.  But it's still annoying where it's attached along my right side, in the area where my drain was located.  Sometimes when I reach above my head I have to be careful not to move too fast or else it pulls and is very uncomfortable.  

    During radiation, however, I didn't burn badly, and when I finished my last treatment, the RO said that I was just about the perfect level of crispy for radiation to be effective.  I have very mixed feelings about whether radiation was really appropriate for me, but I can't go back and change my decision, so I've just been trying to look forward to the removal of the stuck skin.  I'm sure my mind will be plenty busy trying to deal with all the other new sensations (or should I say areas of numbness?) post-reconstruction.

  • gemini4
    gemini4 Member Posts: 532
    edited March 2013

    I'm exactly halfway through treatment (today was 15 of 30).  I have felt good, energy-wise, since I have been mindful of my water intake (made a huge difference in the beginning!) and have been doing qi gong movement (it's the foundation of tai chi) and have had acupuncture treatments.

    However, last week I started to develop a very itchy, bumpy rash on my chest.  My RO said it's rads-induced folliculitis.  I have been prescribed a regimen of 3x daily washing of the area with diluted Hibiclens + a mild steroid cream (can't remember the name right now) twice daily.  RO and nurse looked at it again today, because it was driving me crazy over the weekend.  I will admit I have not been good at using the wash and cream more than once daily.  RO also suggested I use a cold washcloth compress over the area after the Hibiclens and before the steroid cream to help calm things down.  I'm trying to leave it alone, but believe me, I'm fantasizing about rubbing a rough, dry washcloth over the area!  (Of course I won't Tongue Out ... but still! ...)

    I just hope this area calms down soon, otherwise it's going to be a long and uncomfortable three weeks ahead.

  • fd1
    fd1 Member Posts: 239
    edited March 2013

    So good to know what everybody is going (or went) through!  My skin seems to have settled down a bit over the weekend, but goodness was I tired.  On Saturday, I slept about 8 hours and had a busy day.  Around 4 p.m. I had a splitting headache and all I wanted to do was nap, but I had to keep going until way after dinner.  That night I slept like a rock for 9.5 hours and I napped for an hour during the day.  I'm feeling better today.  I'm not sure if it was the radiation or some sort of flu bug I was fighting.  My nose was running like crazy all day, so it could be the latter. 

  • pattygallant
    pattygallant Member Posts: 1
    edited March 2013

    I am 1 1/2 weeks post radiation on the left side, 20 treatments.  I'm definitely having some issues with my lung.  Shortness of breath and extreme pain with movement.  This is very discouraging for me as I am a fitness instructor and not able to work.  Has anyone experienced this?  Any advice for me? 

  • cooper1988
    cooper1988 Member Posts: 3
    edited March 2013

    Pattygallan sorry to hear about your side effects. Have you talked to your doctor? The extreme pain would really concern me. When i asked my doctor what symptoms I should look for when it comes to lung and heart issues, she told me not to worry about it. Easy for her to say. It really is to bad you decided to do radiation and now you're dealing with this. If your doctor doesn't help you, find one who will. Keep us posted on your progress.

  • SelenaWolf
    SelenaWolf Member Posts: 1,724
    edited March 2013

    I'm over a year out from receiving left-sided radiation to the breast and regional nodes.  I have experienced no lingering side effects from the treatment.  I am very athletic and have not noticed any issues with my lungs or heart.  No sign of lymphadema.  My breast skin remains a bit reactive to scented skin products, but that's about it: no hardness, no "tanning", no lopsidedness.  It's all cool.

  • fd1
    fd1 Member Posts: 239
    edited March 2013

    Selena, did you have a mastectomy or lumpectomy?  It's so weird, I thought my skin would get tighter around my expander but it seems like it is still stretching.  I'm worried about damaging it if it is fragile or thin or something. 

    I did read a blog online about an atheltic girl that passed out in a spinning class after suffering a collapsed lung as a side effect of radiation.  I've heard such problems are rare but do occur so definitely see with your doctor what can be done.

    I'm currently on R # 18 and the skin is still just pink.  There are three smallish spots that are darker.  I had recurring tinea versicolor before all of this so I am wondering if these are that.  I haven't seen the doctor since I started since he's been on vacation and the technicians just told me to keep on with the cream.

  • SelenaWolf
    SelenaWolf Member Posts: 1,724
    edited March 2013

    I had a lumpectomy; upper, outside quadrant.

  • sbelizabeth
    sbelizabeth Member Posts: 2,889
    edited March 2013

    I'm 8 months out from 37 treatments.  I got burned pretty badly, but that's because I was taking Xeloda at the same time and the drug sensitizes the skin to radiation effects.

    The side effects I wasn't anticipating, though, were the killed-off thyroid and the frozen shoulder.  I can't blame the thyroid completely on the radiation, but I'm very suspicious.  The frozen shoulder is a frequent issue for women after radiation because of the ensuing hardness and inflexibility of the muscles around the shoulder.  I'm in PT and it's helping.

    Uncomfortable and inconvenient, yes.  But for me, killing off any remaining cancer nits in my chest was worth it.

  • numbersinger
    numbersinger Member Posts: 14
    edited March 2013

    I will be doing treatment #10/25 tomorrow.  No side effects so far except for a very itchy rash that I developed since Friday.  It seemed to center around tattoo and sticker between my breasts.  I had to finally remove the sticker last night as it was driving me crazy and applied some cortizone cream.  I will be my oncologist tomorrow and hopefully she will give me something for this.  

    Wanted to ask about bras. I have spent a good deal of money on camis, bras, etc. but none of them are doing the job.  I wear a C cup and my breasts want to squish together causing me to sweat and it is uncomfortable.  Since I can't wear an underwire bra, has anyone else had this problem and what is the solution?  I need "the girls" separated, if not lifted.  

    I read here where several of you were emotional the first day - when they applied the markers. I thought I was ready for treatment, had been cheerful and just ready to get started, but the day that the markers were applied I just could not hold back the tears.  I was just not prepared to be half naked with a man in the room....I know he has seen a zillion breasts but that didn't seem to matter.  I can't explain the feeling but I know what some of you are going through.  The therapist at Duke told me this week that there is nothing wrong with crying and I shouldn't care what people think....cry if you want to.  I think that is good advice.

    Looking forward to having this over.  I am staying in NC in the motel room during the week and coming home on weekends.  Three weeks to go.....Good Friday is my last treatment!!!

  • gemini4
    gemini4 Member Posts: 532
    edited March 2013

    Numbersinger, I developed the itchy rash at around the same point where you are now. At times I want to scratch myself so badly! Sometimes I have to compromise by rubbing the area. I know I should leave it alone but it's nearly impossible at times.



    My RO said it's folliculitis from the rads. I was given a chlorhexedine wash to use thrice daily (this kills yeast and bacteria that can cause itchiness) plus a mild rx steroid ointment. Kind of helps but not completely. Hopefully you'll respond better!



    Also for relief from the heat and itchiness, a cold wet washcloth compress on the chest is helpful. Don't use anything as strong as ice; I just keep rinsing the cloth to keep it cold.



    Hope you feel better soon!

  • gemini4
    gemini4 Member Posts: 532
    edited March 2013

    Ps wanted to add about Good Friday being your last day -- I considered rads my Lenten offering! ;-)



    (My last day is 3/25, day after Palm Sunday.)

  • CarolynVM
    CarolynVM Member Posts: 137
    edited March 2013

    I have been strange in the head the last few weeks.  Tomorrow I'll take tx 25 of 28 to be followed by 5 boosts.  My skin is doing pretty well but I've developed lymphedema.  My mind troubles me, though.  Today my husband went out shopping to buy a new TV and said he would bring home dinner.  When he came home he was carrying a pizza box.  I said, "That doesn't look like a TV."  He laughed and agreed with me.  Then I asked, "So what IS it?"  I was completely serious.  I knew it was a pizza box yet I didn't know there was a pizza in it and I didn't associate it with something for dinner.  There have been loads of other silly things and I feel as if I'm losing my mind!

  • tuxtails
    tuxtails Member Posts: 39
    edited March 2013

    CarolynVM, I have been goofy at times also, I think it is a delayed stress reaction. Someone will tell me something and it just doesn't register I have to ask again! I have done fine so far, but last night I was very tired and slept quite a bit....could have been the time change though and the pollen here in Savannah right now is thick! I have been drinking lots of water and I think that helps alot.

  • fd1
    fd1 Member Posts: 239
    edited March 2013

    I also feel like I am losing my mind.  It's just like chemo brain.  It's weird because I was fine in between chemo and radiation.  It must be mental - the treatments weigh over you until you are done or something.

  • tuxtails
    tuxtails Member Posts: 39
    edited March 2013

    It is quite an adjustment to go 5 days a week for a duration, I think that adds to it. I go before work, I have to be there at 7:15, so I am getting up alot earlier than before. I am glad that I made that choice though.

  • NinaMandarin74
    NinaMandarin74 Member Posts: 1
    edited March 2013

    Hi all, I'm a new member at this community and I’m not sure, if this is the right thread. I was reading about the radiation therapy http://www.siemens.co.za/healthcare/medical-treatment.html But I’m not quite sure if it’s preventative or a cancer treatment? And sorry, it this is the wrong spot for this question.

  • LibraryLynn
    LibraryLynn Member Posts: 83
    edited March 2013

    I appreciate all of your input here. I have yet to see the RO, but I am looking at 30 treatments (according to my BS). It seems you see so many negative things about it, it's nice to read some of the lesser evils. I want those evil cancer specks zapped, but I have very sensitive skin, and I'm concerned. It's good to read your issues and feel your support.

    Thanks!

    Lynn

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