Newly diagnosed IDC with + lymph node involvement

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Amberains
Amberains Member Posts: 3

In late December 2012, after my oldest sister was diagnosed w/DCIS, I did a self-exam & found my right nipple was inverted.  After negative screening & diagnostic mammos, I saw a breast specialist who did an ultrasound in his office & saw something suspicious.  The FNA was inconclusive but atypical.  Core biopsy showed IDC.  It is Estrogen/Progestin +.  An ultrasound-guided FNA of a suspicious-looking lymph node under my right arm came back last night as positive.  

My questions:

  • Can I have a + LN but no mets anywhere else in my body?
  • I've been having throbbing left thigh pain & lower back pain for the past 6 months, usually only bad when I'm in bed/after I've been in bed all night -- no pain usually during the day.  Should I be freaking out that this could be bone mets?
  • My CA15-3 tumor marker was slightly elevated.  Should I not let this overly concern me about possible mets?
  • My liver panel was elevated but I'm also on Cymbalta which can cause that.  Would I have other symptoms if I had liver mets?
  • I lost my job last August & have no health insurance.  Can state hospitals turn me away for treatment?  Can I be guaranteed the same level of care as anyone else?

I'm so very terrified.  I'm almost 48 years old.  Can I survive this even if I have mets????

Thank you so much for reading my post and for any advice/guidance/words of wisdom.

Comments

  • Maureen1
    Maureen1 Member Posts: 614
    edited March 2013

    (((Amberains))) so sorry both you and your sister have to face this disease...good that you knew how to do a self exam and found the lump. Like many others on the boards here I had positive nodes but my oncologist said that did not mean it had spread to other areas. I like what some people have said about the positive nodes...they did their job and "caught" the cancer. I had a PET scan and there were no signs of spread but we did chemo anyway which will also help if there are tumor cells that got past the nodes. You will find out so much more when they get the pathology on your mass and your nodes. I have found so much wisdom and advice from the survivors on these boards and you will too. I hope you have a treatment plan soon and know what your options are (((Hugs))) Maureen

  • lostinmo
    lostinmo Member Posts: 922
    edited March 2013

    Amberains-I can't answer most of your questions but the one I can try to answer is this one: You don't say where you are but if you are in the states set up a meeting with the hospitals social worker and she/he can point you in a direction to get help with medical coverage. You might qualify for medicaid if you are unemployed most states have a special coverage for breast and cervical cancer for those that are not insured.

    Also I had positvie lymph nodes and a large breast tumor  but none found elsewhere. 

  • Cuetang
    Cuetang Member Posts: 575
    edited March 2013

    Amberains -- like the other folks, unfortunately I don't have answers to your questions either.  What I can tell you from my experience in the past two months is that once you find out that you have breast cancer, you tend to question all the other ailments and aches that you have had in the past year.  Headaches scream brain mets, unexplained coughs scream lung mets, and bone pains scream bone mets and so forth.  I've had a bone scan just because of that and a ct angiogram (for surgery purposes but looked at other parts of the chest/pelvis area) that had me really scared until the results -- "scananxiety!"   I have to remind myself that we are all normal people, subject to the same colds/coughs, arthritis, body pains...and that doesn't necessarily mean mets.  Unfortunately, after a breast cancer diagnosis, nothing we see will ever be the same again.   

    There is so set rule or standard for breast cancer.  You'll see that many women who have extensive lymph node involvement don't have mets, while those that had no lymph node involvement unfortunately have mets.  Like lostinmo indicated, there are definitely groups out there and state programs that assist with medical coverage for those that are uninsured, so hopefully you'll be able to find one where you are.  Hang in there....you'll find a lot of women here that went through the same thoughts/emotions that you are going through now. 

  • Amberains
    Amberains Member Posts: 3
    edited March 2013

    Thank you all so much for your replies.  It's so very helpful to know others know what I'm going through and how I'm feeling.  I also appreciate knowing that just because I have lymph node involvement doesn't mean I have mets.  Those os you who have had mastectomies, how long was your recovery time?  Your encouragement is invaluable to me.  Thank you, again.  

  • maltomlin
    maltomlin Member Posts: 343
    edited March 2013

    I too was dx (5 years ago) with IDC and lymph node involvement. I had been suffering with pains in my shoulder etc which (strangely seemed worse after my dx). I was convinced that it had already spread but scans showed a cyst in my liver (a shock) and also a cyst on my adrenal gland (more of a shock).

    The answer is ....'of course you can survive this'. I'm still here, enjoying life and you will too.

  • Maureen1
    Maureen1 Member Posts: 614
    edited March 2013

    I wish I could tell you more about recovery from mastectomy but I just had bilateral mastectomies on Monday so I really can't say how long my recovery time will be, but...I am feeling better than I expected and am getting around very well even though I still have 4 drains and dressings in place. My surgeons predict I will need 3 - 4 weeks off work and on restrictions for lifting and using my arms to let the pec muscles heal since I had immediate reconstruction and implants put in...you may want to visit the surgery boards where long term survivors can probably tell you alot more about their recovery...good luck as you start your journey as a survivor:) Maureen 

  • grover
    grover Member Posts: 44
    edited March 2013

    Amberlains- I had my BMX Feb.28,with tissue expanders put in, 2 drains on each side. I still sleep better in a recliner, but have not had to take pain meds in almost a week:) 1 set of drains came out a bit over a week later, the other a week after that. I was feeling highly uncomfortable after that for a couple days (I guess because expanders were shifting & I was healing from drains). A month out now, just uncomfortable and chest feels very tight from expanders. Started physical therapy Thurs. to work on range of motion, & do what we can to limit chance of lymphedema (14 nodes removed on rt.) Hope this gives you an idea,but as I've learned from this site, recovery experience can differ greatly by individual , even with same diagnosis and surgery, but you will find enough similar with enough people to reassure you that you're not alone (or crazy)...and if anything "off" occurs with you, you'll have plenty of people to tell you to call your docs! Best of luck & much love...whatever comes your way, you can handle it, and you will have plenty of whatever kind of support you need at any given moment here.

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