LE Crusades

Purple, I think if you can present facts to the boss in a calm, collected manner you may give them something to think about for the next person that visits the PT. If it bothers you then you should do something about it.

One specialist doc once told me that my hearing problem was non existent. I did major research and diagnosed myself with a uncommon disorder.I knew that it wasn't "just in my head diagnosis " which he said. For about 5 years after, I wished I would have went back to that doc, with my research I got from the university hospital that studied the disorder. I often wondered how many people cried leaving this pompous idiot's office like I did.

You can still present the facts to the head of the department without getting the woman in trouble. Explain that you are not out to get her, that perhaps the entire department needs more training on LE.

When I had my total hysterectomy, ovaries, and tubes removed in  November 2011, the care for the LE/PMPS patient on the unit was terrible. Information was not passed down from shift to shift of nurses and nursing assistants. I was constantly having to tell them no bp's on either arm.

I talked it over with the head of the nursing staff on the surgical unit I was in. I didn't want to get anyone in trouble, I just wanted to let them know that there was a kink in services.

This last time, the nursing staff on the floor I was on was so much incredibly better at mangaing my cares, specifically no bp's in the arms. I only had to tell one staff member this time, compared to a handful last time.

I think it is all about our demeanor, how we present the information, and make it clear  you do NOT want to get her in trouble. If she is not educated enough on LE therapies, she either needs to get more education OR not do LE therapy. 

If there was a LANA certified therapist there, I wonder why you weren't on her caseload. 

If the LANA certified therapist is going to be training others, then she should be more thorough. 

Sounds like the department needs better guidelines, treatment rules, and education regarding LE.

If you don't seem like  you are complaining in your tone and words, unless the head of the department is a jerk, they may appreciate the information.

Giving out inaccurate information and treatment for LE (and any illness or injury for that matter), should be nipped sooner than later. Eventually, someone is going to sustain a more severe injury or illness due to a lack of training and education.

If the department head is wise, he/she would rather the correct the problem before someone reports bad treatment results from uneducated therapists than face the state medical review board.

I didn't want to confront the surgeon, three heads of departments at the hospital that botched my stay for appendicitis, but I did it. I didn't think I had the strength. But I plowed through because of the people on these boards and for the person who didn't have the guts to stand up and say, your information about LE was wrong and state my case. Like I said on here before somewhere....the head of the surgery and head of anesthesia at the hospital were just nasty, vindictive people who spewwed false information about LE that I could correct with facts I learned from here and the websites everyone keeps posting. Do I think that those two women have changed their minds? NO. I think they just wanted to intimidate me and be the big B word to me. Their manner of speaking was not learn from the mistakes that happened to me, but to avoid them and avoid any responsibility in the matter.

The head of surgery for the clinic the surgeon works for and the Quality Control Improvment Coordinator, and the Nurse Manager of the floor I was on were interested in hearing what I had to say so that what happened to me wouldn't happen again and were very apologetic.

I certainly support you in what ever you decide, Purple. You were increcilbly supportive to me a couple weeks ago or so. Maybe try not to think of it as saving the world. Maybe to try to think of it being a better place so LE patients get better treatment.

Kira really helped me when she made a numbered list of what the problems were. It stopped my head from swimming and be more organized (something I am not good at anymore).

I think the list helps center my mind, keep it on focus.

What ever you do, Purple, I will be there for  you. Maybe not physically, but bring me with you in the psychological sense.

I am sure you will do fine.

You are a very compassionate person. A great quality to have!!

Hi Purple, just checking in to see how you are doing with this and what you decided and to let you know I am thinking about you!!!