Perjeta/Herceptin/Taxotere

I was told the steroids are for water retention, too. They don't give me the IV steroids, just pills. I don't find it increases my appetite much myself. Everything is kind of tasteless after chemo.

Kingcour I hope you had a great time in Disney with your family!

It's official . I begin thp thurs dh was on phone 4 hrs today re insurance. He worked the magic.

Wishing you relaxation Bondgirl! Disney sure doesn't leave you feeling relaxed, but I love it anyway!



I got my labs back from the cycle I spent off of taxotere. My TMs dropped 7 points- down to 23. I hope that's a positive sign for the future. Some of my liver enzymes were up and some were down. I am scheduled for a PET scan Tuesday. Please say a prayer for calm nerves and good news!



I made the decision to retire from teaching. I am only 38, but I had in 12 years, so I was able to get a decent monthly pension that my husband will still get after I go. Hopefully I will be enjoying it for a long time. I am thankful the state of Georgia had this available to me.



God is in control. Praying for everyone!

Bondgirl- I am north Georgia- Dalton...aka the Carpet Capital of the World. Haha



I was told I could get SS disability too. That would be nice and very helpful!



We do most of our shopping in Atlanta and Kennesaw.

I have a rash from tdm1. What did the dermatologist give u for it?

Thanks crawmsa. Will u be on this med long term?

A quick question ladies how did you all manage the perjeta diarrhea?. I have it so bad that it is causing me to have vomiting. I was wondering if any of you have experienced this.

It does see to be a balancing act! My doctor prescribed lomotil...it is my saving grace. I think over the last 18 weeks, I've only had to take the entire days amount twice. I found that staying away from sugar (as much as possible) was key. And I'm a sugar holic! I only drank water and drank lots of it, every 15 minutes. I think the tax probably stops you up and then all that water comes out next. Sorry,don't mean to be gross. But maybe take colase the day before chemo and day of and see if your system might balance out....that is if your are constipated right after chemo. Now that I am now just on h/p, the dirarehea is much more managable.

Good morning,

Started Perjeta this past Friday.  Long day.  Showed up at onc's office at 8:45, left at 4:15.  Boring day, but boring for a first time chemo infusion is good!  No reactions.  The nurses were friendly, and watchful, and the heated chemo chair and the added Ativan....not so bad!!  Plus, my wonderful husband was there to support me, as always.

So, I've been looking for others who are Perjeta users too, and think I've finally found my way!  Nobody on the Stage IV boards seem to be on it, or the Triple positive thread either.

Curious to see how you girls are doing?  SEs?  So far, for me, I've just found an icky stomach ache, but nothing too unmanageable.  I've been eating Activia, and drinking Dole smoothies with this probiotic "stuff" in it.  I stopped the steroids effective the last two last night, so feeling not quite so much like Superwoman today.  Little tired.  Slept five hours straight on an Ambien ER though, which after having two steroids at 7, isn't too bad and I'll take it. 

Are the ses from this cocktail less mild?  How is everyone feeling?  I actually said to my husband that they must have made a mistake, because I just don't feel so bad yet.  How about you ladies?

Warm wishes to all of you!

Lynn

I changed my taxotere to weekly instead of once/ 3 weeks. Now I do smaller doses of taxotere for 3 weeks, take 1 week off and then take the whole cocktail, with perjta) on the 4th week.



I get my infusion on Monday and I don't start my close relationship with the toilet until Fi or Sat.

I've had the rash. My mo gave me a mild antibiotic minecycline, it usually cleared up in a few days. Now that I've been on just p/h since it's getting better on it's own.

Lilylady, first congrats on stable. I know you were disappointed to have progressed when they took you off tax. So even at a reduced dose are they keeping you on it for forseaable future?  Have they discussed a gentler chemo?  I just finished round 5 with the taxotere and I just can't imagine being on this much longer even though I think I manage pretty well. Although in the end I will do whatever it takes for stable, regression or the holy grail of breast cancer -NED! 

Good luck and I hope the reduced dose keeps you stable and allows you to feel better.

does the diarreah get worse w each tx

Glad for the stable at least Lilylady. I've never had a colonoscopy but according to my onc you can't do it while on chemo. I did 17 months of taxol and didn't mind it but taxotere or maybe the perjeta is kicking my butt. Second round of it and still no diarrhea for me though. Still taking three Sennas and three stool softeners every night to stay on to of the constipation.