How many have had spread or mets to lungs ?

Lily55
Lily55 Member Posts: 3,534
edited June 2014 in ILC (Invasive Lobular Carcinoma)

For last 3 months I get really breathless when exercising such that I cannot breathe and also get the fatigue etc - looked up lung cancer symptoms for women and I scored all 4 - worried I have ILC spread there but also I had chest infection post rads for several weeks so it could be that - can anyone offer any advice? 

How common is spread to lungs for us ILCérs...?

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  • Rdrunner
    Rdrunner Member Posts: 309
    edited March 2013

    Not sure about ILC spreading to lungs, it can technically but I think the bones stomach/gut and peritoneal and retro peritoneal cavities are the main areas. How is your hemoglobin as if low hemoglobin can cause breathlessness and fatigue. Do you have any existing heart conditions ?

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  • Lily55
    Lily55 Member Posts: 3,534
    edited March 2013

    Hi Roadrunner I think it is fine - and don´t have a diagnosed heart condition but I do have slight prolapse of mitral valve but had that for over 10 years with no symptoms

    How do we find it or what do we look for in stomach / peritoneal and retro peritoneal areas?  I had serious infection there a few years ago.........

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  • Momine
    Momine Member Posts: 7,859
    edited March 2013

    Rads can cause lung damage. I had the same symptoms in the summer, and it made all the docs jump. CT showed no rads damage and no cancer. Heart ultrasound was fine, blood counts were fine. So they told me it was all in my head.

    Then I read somewhere that magnesium could help the bones (I have osteopenia), got some, took some, and after a few weeks the lung symptoms stopped. They have not returned. I checked the symptoms of magnesium deficiency and one of them is asthma-like symptoms.

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  • Lily55
    Lily55 Member Posts: 3,534
    edited March 2013

    THanks I am taking magnesium every day - the side of lungs most affected is the non rads side, unless they missed a bit! I will look it up in ref to breathing as was taking magnesium for emotions.....!

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  • Rdrunner
    Rdrunner Member Posts: 309
    edited March 2013

    I would get the valve checked out to make sure. I have a valve issue also, its fine and no symtoms now but cardiologist said it will as I age.  Do you have any coughing ? It could be exercise induced broncho spasm ? Are you exercising in extremes of temp ? 

    bottomline is you should probably go to doc and have them check it out. Try not to worry

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