Perjeta/Herceptin/Taxotere

Options
1…2122242627…49

Comments

  • violinfingers
    violinfingers Member Posts: 48
    edited February 2013

    Lori, that does not sound fun! Hope round 2 goes better.

    · Share on FacebookShare on Twitter
  • Spoonchek
    Spoonchek Member Posts: 158
    edited February 2013

    Bump

    · Share on FacebookShare on Twitter
  • bhd1
    bhd1 Member Posts: 3,874
    edited February 2013

    I was on tdm1 trial in sc and had slight progression. I will be returning to pa ( home). Will see onc next week to discuss next tx. I think it will be perjeta tax h. May be joining you all. Barb

    · Share on FacebookShare on Twitter
  • JillThut
    JillThut Member Posts: 1,470
    edited February 2013

    Sorry, Barb

    · Share on FacebookShare on Twitter
  • redheadinwv
    redheadinwv Member Posts: 115
    edited February 2013

    Anyone having liver enzymes elevating on this combo?

    · Share on FacebookShare on Twitter
  • SPAMgirl
    SPAMgirl Member Posts: 1,470
    edited February 2013

    Alk Phos --- level

    Alt(SGPT) --- dropping

    AST(SGOT) --- dropping



    When I was on Halaven, all 3 of them were dropping. My onc. Says that they don't care about the Alk Phos. My TM are also dropping.

    · Share on FacebookShare on Twitter
  • redheadinwv
    redheadinwv Member Posts: 115
    edited February 2013

    Mine are continuing to elevate, so... Off to CT scan Wednesday. Up until now I have not had any liver problems, kind of concerned. I can deal with the bone mets but liver? Aaaaccckk! Scary!

    · Share on FacebookShare on Twitter
  • Redmond
    Redmond Member Posts: 17
    edited February 2013

    Is anyone here from Canada?  I was just denyed by health Canada for Perjeta.  Looking for options.  How expensive is this if I were to go to the states?  Has anyone had Perjeta administered one day and taxol / Herceptin on another?  I am on my first chemo and have round 2 of 6 tomorrow.  I could use yout incite.

    · Share on FacebookShare on Twitter
  • Tiger_Blood
    Tiger_Blood Member Posts: 270
    edited February 2013

    Just had my tumor markers done. I went from 91 to 4. Now, I just have to get a pet scan. Hoping that turns out okay.

    · Share on FacebookShare on Twitter
  • Lorijo6600
    Lorijo6600 Member Posts: 51
    edited February 2013

    Redmond, I'm in Washington State and just saw the bill for my first infusion of this combo to my insurance- $53,000.00!

    · Share on FacebookShare on Twitter
  • Kjones13
    Kjones13 Member Posts: 1,520
    edited February 2013

    I believe my perjeta only is $9400 per treatment

    · Share on FacebookShare on Twitter
  • Redmond
    Redmond Member Posts: 17
    edited February 2013

    thanks!!! do you suppose that cost differential is the difference between the first loading dose vs future doses?  I have a call in to great falls (5-6 hour drive depending on the roads) as I am usure about the safety in traveling via plane (germs).  Any thoughts about safe plane travel?

    · Share on FacebookShare on Twitter
  • Lorijo6600
    Lorijo6600 Member Posts: 51
    edited February 2013

    I didn't check the entire breakdown of the charges. I just saw the total for the day was $53,000. My onc said there is no "loading dose". It is the same every time. I'll have to take a look at the breakdown. I am curious now.

    · Share on FacebookShare on Twitter
  • Lorijo6600
    Lorijo6600 Member Posts: 51
    edited February 2013

    The breakdown for just the drugs was Perjeta-$27,974.70;Taxotere-$6,777.68; Herceptin-$16,148.64. The rest was all miscellaneous like the neupogen shots, administration of the drugs, etc.

    · Share on FacebookShare on Twitter
  • Kjones13
    Kjones13 Member Posts: 1,520
    edited February 2013

    I might sound ridiculous, but if I were going to get on a plane, I would wear a mask and gloves...good luck to you. Sorry you are having to make arrangements like this.

    · Share on FacebookShare on Twitter
  • Bondgirl
    Bondgirl Member Posts: 140
    edited February 2013

    My onco must overcharge because I think they quoted me over $125k for one treatment! Fortunately I have good insurance!

    At treatment 5 this morning. As some of you many recall, I had mixed scan results last month after 3 rounds. Liver met resolved, possible progression in lungs or stability. Really unsure. Because previous scans so much inflammation and infection in lung could not even see tumor but we knew there were active cells. Also, possible spread to spine to be confirmed by bone scan in one month. However, despite my liver results tumor markers continue to elevate so really disappointed. Nothing too huge considering I know many women get up in thousands. I went from 280's to 360's between 3 and 4 treatment. However, I feel like this may not be working after all. :( If today's tumor markers continue to go up my local onco will talk to my MDA doc about treatment change. Probably TDM1 but was hoping to have that in my back pocket. So scary and frustrating when what you thought would be great treatment doesn't come to fruition. Trying not to get ahead of my self my daily bible passage this morning even reminded me that I cannot worry about the future. That let's in the fear and anxiety. Have to live in the present trusting God is holding my hand through all of this.

    · Share on FacebookShare on Twitter
  • bhd1
    bhd1 Member Posts: 3,874
    edited February 2013

    Praying that this tx works for u bondgirl

    · Share on FacebookShare on Twitter
  • bhd1
    bhd1 Member Posts: 3,874
    edited February 2013

    is neulasta shot requierd with taxotere herceptin and perjeta?

    · Share on FacebookShare on Twitter
  • JillThut
    JillThut Member Posts: 1,470
    edited February 2013

    No. That was a huge plus for me switching from carboplatin to perjeta because with the carb I had to drive back to the facility 50 minutes away just for the shot.

    · Share on FacebookShare on Twitter
  • Lorijo6600
    Lorijo6600 Member Posts: 51
    edited February 2013

    They gave me neupogen the first round, which didn't work, and i have to have neulasta now. I am on taxotere, perjeta, herceptin. I spent a week and a half in the hospital after the first go round!

    · Share on FacebookShare on Twitter
  • Kaelia
    Kaelia Member Posts: 163
    edited March 2013

    In my case, I am on taxotere, herceptin and perjeta and they always have me come the day after chemo for the neulasta shot. 

    · Share on FacebookShare on Twitter
  • bhd1
    bhd1 Member Posts: 3,874
    edited March 2013

    Are any of you taking steroid pills the day before, day of, and day after tx eith tph?

    · Share on FacebookShare on Twitter
  • JillThut
    JillThut Member Posts: 1,470
    edited March 2013

    Yes, Barb.

    · Share on FacebookShare on Twitter
  • SPAMgirl
    SPAMgirl Member Posts: 1,470
    edited March 2013

    I'm supposed to, but I refuse to gain anymore weight from those stupid pills. I haven't come close to losing the first round of steroid weight and I still eat tons when they give it to me through my IV. Shhh, don't tell my onc.

    · Share on FacebookShare on Twitter
  • Kaelia
    Kaelia Member Posts: 163
    edited March 2013

    Yes, taking steroids too. I would pass on those -if I could, they make me so jittery.

    · Share on FacebookShare on Twitter
  • bhd1
    bhd1 Member Posts: 3,874
    edited March 2013

    Which drug requires the need for steroids? Taxotere?

    · Share on FacebookShare on Twitter
  • JillThut
    JillThut Member Posts: 1,470
    edited March 2013

    Yes, the taxotere.

    · Share on FacebookShare on Twitter
  • bhd1
    bhd1 Member Posts: 3,874
    edited March 2013

    thanks jill.  so the purpose of steroids is to prevent allergic reaction?

    · Share on FacebookShare on Twitter
  • JillThut
    JillThut Member Posts: 1,470
    edited March 2013

    Not sure about that. That may be part of its purpose with many chemos but there is something specific to taxotere having to do with water retention. I don't really know much about it, just gleaning some of that information from stuff I've heard from infusion nurses.

    · Share on FacebookShare on Twitter
  • Lorijo6600
    Lorijo6600 Member Posts: 51
    edited March 2013

    Yes, to the steroid question. Turns me beet red for those days, lol.

    · Share on FacebookShare on Twitter

Categories