SO frustrated!!
Hi there
Just to warn you I am going to have a rant now!!!
I had DCIS and had a mastectomy and DIEP reconstruction in December. At first I felt that everyone was great, I had the lovely flat stomach I had been promised (sounds like a silly shallow thing but the thought of that got me thru the op!). However since then have had numerous problems, despite having a great surgeon. My belly button "died" after the op so had another operation to correct it but it is still puss filled and horrible. My stomach has developed a horrible bulge (not a hernia). The surgeon is aware of this and IS going to sort it he said, obviously he has told me I need to wait a while first to let stuff heal until we look at all the things that need correcting.
It is just so frustrating and not getting any understanding from hubby and family. About everything else they have been fantastic, Shopping, housework, driving me to hospital, being there for me every step of the way between them I cannot fault them. But now they seem to have this mentality, and I am sure they're not the only ones that says "Thankgod you're alive stop moaning about other stuff." I totally agree with that but it doesn't make it any easier! I feel like such a selfish *sshole even saying this! Had a massive argument with hubby about it as he said I was taking stuff fo granted and told me to stop moaning about a stupid bulge and go and do some sit ups, my dad even mentioned the other day about maybe losing weight will help! I know they don't realise what they are saying, the surgeon has already said the bulge is either fluid from the belly button infection or it might be loss of muscle which he hastened to add is through no fault of my own. How can it be lol when I only had the op a couple of months ago and was advised by everyone to take it easy!! I have lost nearly a stone since the operation so it's nothing to do with weight, and sits up won't help at this stage! It makes me angry - it's not as if I ate too much over xmas then I would have nobody to blame but myself for developing a pot belly! I have had issues over weight all my life and been morbidly obese 3 times before, I am finally the weight I am happy with (ten and a half stone) and now I get this tum!!
Also have not been sleeping well, waking up with a bad back in my lower back each morning. Again hubby told me to just get on with it. I am just sick of hearing that because I am lucky to be alive I have to put up with second best! I know I am blessed to have got this cancer sorted but I don't feel lucky - I see lucky people as those that have never had cancer that are walking around now happy and just moaning about trivial stuff like their hair or their jobs - yet if they moaned about not sleeping well etc would people say to them "you're lucky to be alive" I doubt it!
All through this people have told me I have "coped" so well and been amazing, well I kind of have. I contemplated going to see counsellors, taking anti-depressants but I have risen above it, but at the same time if feels like I am not allowed to have a (long overdue) moan about stuff going on with me. I explained this to hubby (very angry and upset I was too) and he said he did understand. I told him that I listen to his moans and whinges about everyday life and am sympathetic! I said to him - is he gonna use that line about being lucky to be alive for every situation? If the bed was broke or the window pane smashed am I expected to not moan because after all "at least I'm still here" lol! If there is a problem in my life I don't see why I can't moan, and see what to do about fixing it!
I am really sorry to vent like this it would be lovely if anyone else has had a similar experience then I will know I am not going mad!!
Comments
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Hey if you want to have a moan then go ahead. I'm moaning today and I'm on 2nd chemo with very bad back, stars in my eyes from pain killers and no strength to have a shower.
Happy days -
You go right ahead. It's not them this is happening to physically, regardless of how supportive they are.
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Thankyou ladies! I knew I would find understanding on this page!! Have had a good chat with hubby and he says he didn't mean it to come out that way I think with some men it just takes a lot more explaining to them for them to understand he will never understand a lot of female things and he just sees my belly and all the side effects as still me being me, which I am blessed to have a husband like that xxx
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oh yes, feel free to complain away. It all stinks. Sorry you are going through all these terrible things, just one thing after another. Has to end eventually right?
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hahaha yeah I keep thinking about the light at the end of the tunnel I guess I have always been an impatient kind of girl tho lol!!!
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I haven't shared my story with anyone...other than my family. I can relate to what you are saying. I am 37 and was diagnosed at age 30. I had a double mastectomy and went thru chemo. Then I did the tramp flap that was highly recommended by the plastic surgeon. I have had severe diabetes since age 11 and he still told me this was the best option for me. My surgery was scheduled and I called and told them I had to talk to him again before I went through with it. I told him I read that diabetics shouldn't have this procedure and I also told him that I read the girl lost her belly button. His words to me were you are young and you will be fine look great, have nice flat tummy and perky breasts. He said if that happened to the girl about her belly button, then "that was an incompetent doctor. Needless to say I have nothing left. I am a butchered hog. I have no breasts, I have no stomach, I have no belly button and I ended up in ICU. I know my family gets tired of hearing me complain, but I don't feel like a woman, I can't look in the mirror, my husband will never touch breasts again. I cry while I write you this. Yes we are thankful to be alive, but it doesn't take away our pain. If u seen picture of me, you would be in shock. If you want to contact me, email me at missy28liz@aol.com and I will send you the pictures of me. Thanks for listening. Susan
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