Beyond Mammography/MBI/Molecular Breast Imaging/FDA approved

Dear Everyone,

I had posted similar information about MBI on multiple discussion groups, as I thought it was really important information that hasn't been made available by the experts or moderators on breastcancer.org and subsequently got this response. All of my postings on MBI were also deleted from my favorite topics and dashboard, including the original one noted here that they reportedly didn't delete.

What do other women think about this rule? It seems unfair to not allow wide dissemination of important scientific advances affecting breast cancer detection and treatment, especially when the information is not being disseminated by the experts and moderators. 

Private message sent to me from the Moderators

Hi chelseasanfran:

We just wanted to let you know that we're deleting your duplicate threads titled "Beyond Mammography/MBI/Molecular Breast Imaging/FDA approved," although the thread in the Clinical Trials, Research, News, and Study Results forum will remain, as that's the most appropriate spot for it.

Of course we understand that you're excited about the FDA approval, but multiple threads amounts to spam, however good its intentions, and is against our Community Rules.

Regards,

Judith and the Mods

My Response

Dear Judith and the Mods,

I am very surprised about your removing this and you considering multiple postings spam (according your rules made by whom?), when so many people post very similar information on multiple discussion groups and where it's information that is totally relevant to so many discussion groups that were it not posted in multiple sites, few women would see it. How is it any different than my doing 4-5 postings different types of postings in efforts to find local SF Bay area women who might want to get together.

I am also as a physician shocked by your response, as it's important enough information that I would think you would be integrating it into a global announcement that would go out to the widest number of women possible. Why don't you survery the membership of this listserve and ask them if they consider it spam or your rules about multiple postings a legitimate service, as you are clearly censoring important information that is not well-known or being widely disseminated to women.

I am hoping that if I put out the information in a different way - asking for feedback and sharing new information about MBI that that you won't censor that as well.

Also, I'd like to know who makes up your rules and where they are posted.

Chelsea