SEPTEMBER 2008 rads group

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  • nancy258
    nancy258 Member Posts: 162
    edited July 2011

    Hi all, I was on here looking up info for my younger sister who was just diagnosed a few months back with stage IIIc IDC.  She is triple negative and not responding well to chemo to shrink her tumor and nodes before surgery.  This is such a great site.  I found that the third cocktail they are going to start next week has a good track record for triple negative girls.  Please send out some positive thoughts for her :)

    I just had my 3 year testing and everything is good Yay!  I was thinking of all of you and hoping you are all doing well also.  I did the race for the cure in May with my daughter for the third year in a row on mother's day.  I'm inspired by you Steph winning the survivor's category--congratulations!!!  Maybe my daughter will let me run ahead of her next year so I can give it a go also.  My reconstruction healed up eventually with a little defect.  Just had a revision on it last week so now I'm back to stitches, but I'm sure it will heal better this time. 

    Good Heath to All!

    Nancy258

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  • Makratz
    Makratz Member Posts: 12,678
    edited January 2012

    Happy New Year everyone!  Hope it is happy and healthy for us all.  How are you all doing??

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  • TexanCupig
    TexanCupig Member Posts: 1,539
    edited July 2012

    Hi y'all....ltns! I've been busy beading, and just wanted to let y'all know that I've been re-diagnosed with breast cancer of the bones...stage 4...I won't know for another couple of months where the cancer's at, because I just started taking Arimidex aka anastrozole...haven't really had se's, but I sure would like to know how it's working...I took a round of Zometa, and I'll be heading back to the village tomorrow...I'm so ready to get back to the village, but just wanted to stop by and say hi!

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  • Makratz
    Makratz Member Posts: 12,678
    edited July 2012

    Oh crap Sharon!!  I'm  so sorry to hear this.  I hope the Armidex kills the bastard!  Glad to hear you've had no side effects.  I'll be thinking of you.  Enjoy your time in the village.  So good to hear from an old friend! ♥

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  • NancyD
    NancyD Member Posts: 3,562
    edited July 2012

    Sharon, that just sucks! Hopefully the combo of anastrazole and Zometa will keep it at bay for years. I've been on Arimidex and then the generic anastrazole for almost four years now. As a Stage III-er, they have given me everything they had from the beginning.



    My side effects are hard to distinguish from some normal aging occurances. We all have aches and pains as we get older. The Arimidex just brings them on a tad earlier. That's the only one I can say I've had long term.



    Good luck with you treatment plan, and again, I'm sorry to hear of your recurrance.



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  • Anonymous
    Anonymous Member Posts: 1,376
    edited February 2013

    Hi everyone, I'm doing fine. I just wanted to say hello. I've been catching up on recent posts on this thread. I'm so sorry Sharon.. 

    I'll be keeping you all in my prayers. ♥

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  • Makratz
    Makratz Member Posts: 12,678
    edited February 2013

    Hi Rose!!!

    How are you doing now Sharon??  x0x0

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited November 2013


    Hi Friends, How is everyone ;)


    It's been awhile.. guess I always pop in when I have another mammogram coming up.

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  • Makratz
    Makratz Member Posts: 12,678
    edited November 2013


    Pop in when ever you can!! Thaks for PM ing me!! Wishing you all the best !

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited November 2013


    It was so nice to hear from you.. so nice to touch base ;) Thanks! talk to you soon.

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited November 2014

    Dropping by to say hi to all of you.. past 6yrs now..

    Wanted to wish you all well.. and Happy Fall!!

     

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  • Makratz
    Makratz Member Posts: 12,678
    edited November 2014

    Just celebrated my 6 yr rads on Oct 27.  Thanks for stopping by Rose!  Hope you and yours are in good health.  :)

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited November 2014

    Hey there Happy Just messaged you.


     

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited September 2017

    Hello my Sept. 2008 Rad Sisters .. Hope everyone is good!

    Heart

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  • NancyD
    NancyD Member Posts: 3,562
    edited September 2017

    Still hanging around.

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited November 2017

    Hug

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  • Makratz
    Makratz Member Posts: 12,678
    edited November 2017

    ,Hope you all enjoy the Holidays!!

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  • Castigame
    Castigame Member Posts: 752
    edited November 2017

    NancyD,

    May I ask how long you took AI? If you have completed 5 yrs or more, what did you do to minimize SE?


    Thank you in advance.


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  • NancyD
    NancyD Member Posts: 3,562
    edited November 2017

    Castigame, I have taken anastrazole for nine years as of this past September. My MO has not mentioned when I will stop—if ever. My SEs are minimal, and are hard to distinguish from normal aging aches and pains. I have arthritis in my hips that I think is exacerbated by the AI, but a few ibuprofen tabs take care of the worst of it. I have never taken a break to see if the pain would go away, just accepted that as a Stage 3-er this was my lot in life, if I wanted to have life. Maybe after ten years (next Fall), I'll ask my MO about taking a break.


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  • NancyD
    NancyD Member Posts: 3,562
    edited November 2017

    Just wanted to add that I have a fear about stopping the anastrozole. What if I still have my aches and pains—then they were not caused by the AI. And what if while I am off the AI, my BC returns in another part of my body? Then the cessation of the AI would be for nothing and the worst happened. A couple of Ibuprofen every now and then isn't such a bad trade off.

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