Just diagnosed. Mom is in stage four!!!
Comments
-
566,
Glad to hear that your mother has kept her sense of humor and is doing well.
Thank you for the update,
*susan* -
566,
Keep smiling, and keep her laughing! -
Mom isn't feeling well. She feels that there is so much going on. She travels into town every week, twice. The kids and I went to visit yesterday, but she was in bed all day. She just isn't feeling herself. Today she was in and found out that she isn't eating the proper foods to get the warfarin to work. So now we add the dietician to her group of "prodders". She also has to see the surgeon who will perform the masectomy.
I was talking to her today. She is feeling better than yesterday, but still not great.
My poor Mom. -
Poor sweetie,
Yes the treatments are accumulative and she is most likely feeling the effects. Rest, rest, rest .
Hope Mom feels better soon
hugs, Carrie -
Hope she gets feeling better soon!
-
Mom is walking again!!
I could hear her beaming through the phone. She was busy telling me all the places she was walking inside her own house.
Her leg doctor told her she could now put 50% of her weight on it. She is thrilled.
She goes to see the surgeon on Wednesday regarding a masectomy. Is it possible they will only do a partial masectomy? She thinks they will only take the lesion.
I am frustrated that her doctor came out and told her that he wouldn't be curing her, only managing her condition. I am frustrated that she asked to have both breasts removed and he put her aside saying it wasn't necessary. The more I meet him, the less I like him.
She is just a patient to him. She is a Mom, Granny, wife, aunt and daughter. He doesn't see this.
I reminded her tonight that there is a 20% cure rate. She needs the positive.
We will go and visit her tomorrow. She needs us. (But not as much as I need her).
No tears for me tonight... I hope. -
566,
Important information !
There was a recent release and it said that even if DX with mets, people who have a mastectomy live longer.
I think there was also a thread on this but "not" certain. -
I saw that thread too. Think it was under Mets/recurrence.
-
Mom met with her surgeon today. He said that her lumps and lesions are healing. Mom said he seemed surprised. Anyway, he is removing one breast. I told Mom to ask for the removal of both (as this is what she wanted), but instead, she didn't ask.
I want to tell her to stick up for herself!!! It seems to me that she should get what she wants. But she lets the doctors do all the thinking.
She is still excited about walking on her leg. We went to visit on Tuesday and she walked out to the kitchen, the other room, around the living room, then back to bed.
She is cold a lot lately. And she was getting nauseous last week too.
If anyone knows where that thread is, please let me know. I was looking around for an hour or more, but found nothing on it (although found lots of nifty other threads!!!) -
Just click on the link -
http://community.breastcancer.org/ubbthr...ge=1#Post333499
There is the link sweetie~
Hugs,
Carrie
-
Thanks so much!
It seems sometimes that I am always reading, checking out something or other. I was talking to Mom today and she wanted to have a masectomy, but the doctor originally told her it wasn't worth it. Then he decided that she needed a partial one, to remove the (large) lesion. When she met with the surgeon, he is taking the entire breast. She is happy with this decision, mainly because he made it.
Originally, she wanted to have both removed, but wouldn't bring it up with the doctor.
I have talked to her about it, but she refuses to ask and says he knows what he is doing.
Should I push it? Should I go for the next consult and ask for her (she wouldn't mind, as she isn't the one asking.) or should I just leave her be and accept her non-decisive decision making? I am so confused. -
We went today to Mom's fourth and last chemo. I spoke to her doctor. I am so frustrated. He told us that with a stage four patient, the object is to slow down, without looking at curing. The only reason Mom was recommended for a masectomy is because the cancer has eaten away at half of her breast.
She starts Tamoxifen in three weeks. Masectomy scheduled for July.
I cannot believe she has endured this cancer growing for so long. I would have been terrified. And at the same time, I am frustrated that she waited so long. I keep thinking that if she hadn't, we (her whole family) wouldn't be going through this now.
But, we cannot think like that as it doesn't change the present. Mom is still upbeat. She figures she will show him a cured stage 4 patient.
Any tricks of the trade, things she can expect with Tamoxifen? He wants to try it first because it is cheaper and she isn't on a drug plan. -
My mom was just diagnosed with stage iv bc and I can understand your frustration with this disease...your mom reminds me of mine, always upbeat no matter what. thank you for your posts.
-
Any pointers on either? Both are coming up. Tamoxifen in three weeks, masectomy early July.
-
I wish I could help sweetie
but my sis is taking Arimidex for the next 5 years
Why don't you try posting this in help me through treatment, maybe you could get a better response
lots of ladies there that are taking tamoxifen and my sis had a partial mast. so I can't help alot there either. I do know she will need help with alot of things at first.
Wish I could have been more help
Hugs,
Carrie -
I would still push for double mast, it will help her cope mentally knowing her breast tissue has been removed. Especially if she wanted it. Tamox is a rough drug for some but a mild one for others. My mom took it five years. Expect hot flashes, dryness of all skin, some nausea maybe. Watch out for signs of neuropathy, it is a painful condition that the oncologist can treat. Lets pray your mom will do well on Tamox!
-
Her doctor is firm on the single mast. He told us (basically) that Mom was lucky she got chemo AND drugs. Usually they don't do both on a stage 4. I realize that he is speaking statistically about treatment, but to me, Mom isn't a statistic.
Can you stay indefinitely on Tamoxifen??? Everywhere I read, people are only on it for a definite period of time. -
Can't you get a second opinion? Sorry if it sounds offensive but to me, her doctor doesn't look good. Doctors who say things that only disappoint their patients never be able to be good partners to fight this battle with. I'm sure there are many good ones that are willing to fight against this damn disease with your mom.
-
The normal course is 5 years on Tamox, but with stage 4 it could be different.
-
I don't know if because of medicare whether or not we can ask for a new doctor, or even a second opinion?
-
You might ask on the Canadian board about that, I don't know about it. Hopefully you will get the answer and treatment you need.
-
I don't know why I even asked. I am sure that Mom wouldn't allow a change.
She goes for a second cat scan next on July 5 and then a visit to Dr. Grumpy on the 7th. From him she will get her prescription to tamoxifen. She is stil waiting to hear when her masectomy will occur. -
Yes you most definitely can get a second or third opinion in Canada. You are not stuck with a doctor that you dont like or trust.
Michele Wenz -
Michele Thanks for helping out!
-
Mom won't change doctors. There is only one cancer treatment center in PEI and the doctors all work together.
I just pray that Mom stays strong.
It can be difficult here, not knowing anyone else dealing with this. I hate to burden my friends, and I don't want to steal Mom's optimism by talking too much about things. I talk to my husband, and he is very supportive, but does he have any advice, or experience in this? No.
This really sucks. Sometimes I think about those two years the doc promised Mom and think OMG! 1/8 of the time is gone now. Man, now I am whining. I hate it when I get upset about this.
I am going to bed. I will be cheerful again in the morning. I will just chant my "two days left with the students" song.
By the way, how long does a doctor normally wait before checking the size of mets tumors?
Mom gets a second cat scan in two weeks, but as for the bones, the doctor said sometime they will re-check. What in the heck kind of answer is that??????
Seriously, I have to go to bed. -
Is Mom still taking chemo I can't remember?
I can't remember if My sister's onc said this or if I read this but I think that chemo will mess with scans if taken too soon . I wish I could give you an answer about the mets but I think it is after a course of treatment they check again to see if it has responded. Go ask this on the met board I know they will be able to better help
I have been zero help but wanted to bump you up so more would see -
I get new bone scans every three months but have heard of others who get them every six so I'd guess somewhere in there is when your mom will get hers.
-
Mom has a scan to see the lungs next week. I don't understand why they aren't checking the bone mets too.
-
Mom is set for July 6th for a "simple mastectomy". I don't understand why she isn't having lymph nodes taken out too.
I spent the day with her at the hospital going through all of the pre-tests. I was the noisy one, interrupting with questions, comments and information that Mom didn't ask.
I am glad I was there. I have to say that I am not happy that I know my way around the hospital the way I do.
This year has been quite challenging. Brenna, my (then four) daughter has a grand Mal seizure in Sept. Matt choked on a candy in October, I was diagnosed with hypothryoidism in November, Mom was diagnosed in March, and my Grandmother died in April.
One week and then Mom is in the hospital again. I am praying for her every day. She is a strong woman. -
Both Brenna and Matt are fine now, btw.
Categories
- All Categories
- 679 Advocacy and Fund-Raising
- 289 Advocacy
- 68 I've Donated to Breastcancer.org in honor of....
- Test
- 322 Walks, Runs and Fundraising Events for Breastcancer.org
- 5.6K Community Connections
- 282 Middle Age 40-60(ish) Years Old With Breast Cancer
- 53 Australians and New Zealanders Affected by Breast Cancer
- 208 Black Women or Men With Breast Cancer
- 684 Canadians Affected by Breast Cancer
- 1.5K Caring for Someone with Breast cancer
- 455 Caring for Someone with Stage IV or Mets
- 260 High Risk of Recurrence or Second Breast Cancer
- 22 International, Non-English Speakers With Breast Cancer
- 16 Latinas/Hispanics With Breast Cancer
- 189 LGBTQA+ With Breast Cancer
- 152 May Their Memory Live On
- 85 Member Matchup & Virtual Support Meetups
- 375 Members by Location
- 291 Older Than 60 Years Old With Breast Cancer
- 177 Singles With Breast Cancer
- 869 Young With Breast Cancer
- 50.4K Connecting With Others Who Have a Similar Diagnosis
- 204 Breast Cancer with Another Diagnosis or Comorbidity
- 4K DCIS (Ductal Carcinoma In Situ)
- 79 DCIS plus HER2-positive Microinvasion
- 529 Genetic Testing
- 2.2K HER2+ (Positive) Breast Cancer
- 1.5K IBC (Inflammatory Breast Cancer)
- 3.4K IDC (Invasive Ductal Carcinoma)
- 1.5K ILC (Invasive Lobular Carcinoma)
- 999 Just Diagnosed With a Recurrence or Metastasis
- 652 LCIS (Lobular Carcinoma In Situ)
- 193 Less Common Types of Breast Cancer
- 252 Male Breast Cancer
- 86 Mixed Type Breast Cancer
- 3.1K Not Diagnosed With a Recurrence or Metastases but Concerned
- 189 Palliative Therapy/Hospice Care
- 488 Second or Third Breast Cancer
- 1.2K Stage I Breast Cancer
- 313 Stage II Breast Cancer
- 3.8K Stage III Breast Cancer
- 2.5K Triple-Negative Breast Cancer
- 13.1K Day-to-Day Matters
- 132 All things COVID-19 or coronavirus
- 87 BCO Free-Cycle: Give or Trade Items Related to Breast Cancer
- 5.9K Clinical Trials, Research News, Podcasts, and Study Results
- 86 Coping with Holidays, Special Days and Anniversaries
- 828 Employment, Insurance, and Other Financial Issues
- 101 Family and Family Planning Matters
- Family Issues for Those Who Have Breast Cancer
- 26 Furry friends
- 1.8K Humor and Games
- 1.6K Mental Health: Because Cancer Doesn't Just Affect Your Breasts
- 706 Recipe Swap for Healthy Living
- 704 Recommend Your Resources
- 171 Sex & Relationship Matters
- 9 The Political Corner
- 874 Working on Your Fitness
- 4.5K Moving On & Finding Inspiration After Breast Cancer
- 394 Bonded by Breast Cancer
- 3.1K Life After Breast Cancer
- 806 Prayers and Spiritual Support
- 285 Who or What Inspires You?
- 28.7K Not Diagnosed But Concerned
- 1K Benign Breast Conditions
- 2.3K High Risk for Breast Cancer
- 18K Not Diagnosed But Worried
- 7.4K Waiting for Test Results
- 603 Site News and Announcements
- 560 Comments, Suggestions, Feature Requests
- 39 Mod Announcements, Breastcancer.org News, Blog Entries, Podcasts
- 4 Survey, Interview and Participant Requests: Need your Help!
- 61.9K Tests, Treatments & Side Effects
- 586 Alternative Medicine
- 255 Bone Health and Bone Loss
- 11.4K Breast Reconstruction
- 7.9K Chemotherapy - Before, During, and After
- 2.7K Complementary and Holistic Medicine and Treatment
- 775 Diagnosed and Waiting for Test Results
- 7.8K Hormonal Therapy - Before, During, and After
- 50 Immunotherapy - Before, During, and After
- 7.4K Just Diagnosed
- 1.4K Living Without Reconstruction After a Mastectomy
- 5.2K Lymphedema
- 3.6K Managing Side Effects of Breast Cancer and Its Treatment
- 591 Pain
- 3.9K Radiation Therapy - Before, During, and After
- 8.4K Surgery - Before, During, and After
- 109 Welcome to Breastcancer.org
- 98 Acknowledging and honoring our Community
- 11 Info & Resources for New Patients & Members From the Team