The Hermit Club

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  • markat
    markat Member Posts: 909
    edited February 2013

    Camille, hugs! Is your urine supposed to be red!? Like that's a normal side effect? That would freak me out. Cancer has cured my hypochondria, but that would probably make me call the doc!

  • camillegal
    camillegal Member Posts: 16,882
    edited February 2013

    Markat yea it is, but of course I forgot (as usual) just another SE from a new med. hahahaI'll be fine. markat I keep on getting stuff that's all. My immune system is shot.

  • Teka
    Teka Member Posts: 10,052
    edited October 2013

    I am still here but being lazy!Embarassed   Yesterday I saw PCP, then husband and I enjoyed lunch at a local restaurant.Tongue Out

  • camillegal
    camillegal Member Posts: 16,882
    edited February 2013

    Teka I love this eating out thing u do. That's what I like to do.

  • Skittle
    Skittle Member Posts: 400
    edited February 2013

    Ah, sweet ladies, I am still in the hermit nest.  Wishing I had stayed in it all weekend.  DH and I ventured northwest about 250 miles to "get away"... and ended up dealing with inept hotel personnel and then becoming a part of a crazed-woman-caused 911 call when the driver she was verbally assaulting (after leaping from her car, screaming) decided to move forward after she had planted herself on his front bumper.  It was awful.  DH goes into rescue mode (Navy training) and I run into the little ice cream shop we had just emerged from, telling the manager to dial 911.  Emergency vehicles came roaring in after 15 minutes of waiting.  The woman's eyes indicated severe drug trauma.  The driver was in disbelief.  It was crazy and so out of "Judge Judy" and so out of hermit comfort zone.  Awful.

    Camille... I hope you feel better soon.  Never had red pee before.  Dramatic for Valentines season!

    Wishing you all well.  Hoping se's aren't too much to deal with.  Am in a cranky mood with se's at the moment.  (Doesn't mix well with teaching, so I have to put on my happy face.) 

  • camillegal
    camillegal Member Posts: 16,882
    edited February 2013

    Skittle u could have been on TV with that crazed week-end geeze when u go out u really shake things up. No wonder u like hermitude--u have a real reason. LOL I watch enough of that in TV I don't need real life stuff. WowU'r DH was lucky to keep safe, u never know what people are up to.

    So back to quiet work tomorrow--me I take my quiet at home.

  • Teka
    Teka Member Posts: 10,052
    edited October 2013

    My fun activities are eating out, soaking in the tub, and posting on threads that leave me feeling warm & fuzzy during the dead of winter!WinkKiss

    Sweet dreams!!Innocent

  • camillegal
    camillegal Member Posts: 16,882
    edited February 2013

    Teka sounds goodLaughing

  • bgirl
    bgirl Member Posts: 538
    edited February 2013

    Hey all, getting over cold.  Went to a bday party out of town this weekend for my aunt.  She was so good to my sister and I when we were taking care of dad this summer that I felt it was worth leaving hermitude for.

    Cami - red pee doesn't sound very romantic...lol

    I hate drama too these days.

    Hear you on the SEs .... ready to toss out tamoxifen .... so tired of being tired, acid reflux, gyn problems, dry skin that is blistered like a sunburn, muscle pain, injured joint that won't heal ... oh and did I mention not sleeping ...

    Working on trying to be grateful, but having a hard time .... ok done whining ... maybe will feel better once I go from exhaustion from cold back to just being very tired.  

    Doing my business year end to get ready to go to tax accountant ... maybe when I am done that it will improve my mood too!

  • camillegal
    camillegal Member Posts: 16,882
    edited February 2013

    Jane I know it's all crap these Se's we all (Mostly) hav crazy ones but there's a fine line that happens between SE and something real and that's what I hate. U know I was in ER last week and here I had 2 bad infetions that mimiced SE's so I feel lost sometimes cuz I wait to long, but I'm not going to call the Dr. everyday either. I guess I just get aggrevated not know what to call about and what to suck up. No wonder I'm so confused all the time LOL 

  • markat
    markat Member Posts: 909
    edited February 2013

    Skittle, oh my. That is definitely something that would happen to DH and I. I hope you guys could laugh about it later. Not a mean laugh, but a, omg what just happened laugh.



    Teka, love your style. We don't go out to eat because of the cost, but get take out at least once a week. I made some delicious sausage and peppers and another baked ziti this weekend. The sausage and peppers recipe is one of Giada's. I tweak it a little and usually serve it with a pasta or hoagie depending on what the clan is in the mood for.



    Bgirl I hear you on the Tamoxifen. My whole body hurts on that junk. My onc wants me to start just taking Advil or Aleve to treat the pain SEs, um no. I'm sick of it. I'm going to try halving the dose for awhile if she won't help me. I love working and feel so much better, but part of that is because my pain is under control. I'm not a drug addict and I hate to be treated like one! Before cancer, I would have a little too much to drink on a few occasions, but that's it! Wah I'm just pissy because the nurse was rude when I called for a refill. Maybe it's time to see a pain management doctor.



    Camille, if I were you I would call them every darn day I had the d until they could get it under control. I was reading on another message board about a man that had the D everyday and no doc could figure it out. They ran every test known and still couldn't figure it out. I think finally they decided to treat it as an allergy and he had to eat like 1 type of food for a week and then the next week another type of food, and so on. They were trying to see if it was dietary. Anyway, hugs to you my friend!



    The ladies are back to school! Yay. Both had strep and God love them, they were little terrors. I'm hoping to stay healthy.

  • whaevah
    whaevah Member Posts: 354
    edited February 2013

    Big waves to my fav hermits!

    So, the *rain* has stopped. No sunshine yet, my mom passed recently. It was really peaceful and for that I am grateful.

    It has been a tough few months, many left my life in such a short time. Have to say it has been overwhelming  but I have managed to keep my humour, my DH and 1 spoiled cat.

    Hope all are well, I think of you often.... I can't keep up right now as work had piled up and I want my paycheck Smile

  • markat
    markat Member Posts: 909
    edited February 2013

    (((Hugs Whaevah))) I'm so sorry about your mom. Sending love and good thoughts.

  • whaevah
    whaevah Member Posts: 354
    edited February 2013
  • Skittle
    Skittle Member Posts: 400
    edited February 2013

    whaevah... prayers and hugs your way.  So sorry. 

  • FLwarrior
    FLwarrior Member Posts: 977
    edited February 2013

    whaevah, my condolences to you in the loss of your mom.  I'm glad for you that it was a peaceful passing. ((hug)) 

  • Teka
    Teka Member Posts: 10,052
    edited October 2013

    whaevah,

    May you find comfort in fond memories.

  • Teka
    Teka Member Posts: 10,052
    edited February 2013

    whaevah,

    May you find comfort in fond memories.

  • camillegal
    camillegal Member Posts: 16,882
    edited February 2013

    Whaevah I'm so sorry about u'r mom (((hugs))) to u and u'r family.

  • whaevah
    whaevah Member Posts: 354
    edited February 2013

    KissKissKiss

    thanks everyone

  • Jazzygirl
    Jazzygirl Member Posts: 12,533
    edited February 2013

    Hi ladies- just getting a chance to check in since I began my latest internal rad treatment process. Reading your posts and want to respond a bit more to a few of you with time. 

    Whaevah- I am sorry about your mom. My mother passed almost a year ago and also went peacefully too, which I am so grateful for as well. I will say that going through a year like I have had with the health issues, including the bc, on top of grief from my mothers passing has been one of the hardest things I have ever had to do. Do take extra special care of yourself emotionally, so many layers of feelings with all this. My thoughts and prayers are with you and your family. 

    I had my procedure today to insert the catheters for the radiation treatment. All went fine, although I have more pain and bruising this time. Got some good meds going for that today, and taking it easy the rest of today. Rad treatments begin next monday for five days, 2X a day.

    Going to read more of your posts ride now. The painkillers and valium have me tired and not able to focus for very long. But I wanted to say hi to my fellow Hermits.

    Blessings to you all.

  • Skittle
    Skittle Member Posts: 400
    edited February 2013

    Jazzy--I still think you are brave!  Best of luck with treatment and recovery.

    Camille--I hope you're feeling better.  You have put up with so much for so long.

    Markat--DH and I looked for more info on the news to see how it all ended, but nothing there.  Sad that people sometimes interact so violently with each other.  It's all too shocking for me.  All the more reason to stay hermiting.  Glad your little ones are better!

    bgirl--you said a lot.  Tired of being tired.  When those inserts list endless se's, little do we realize that we'll get hit by a pile of 'em. 

    Fl--hope the job is doable and you're having a good week!  We're having ice storms and "thundersleet"--never heard of it before.  Really spooks the kids.

    whaevah--hugs continue your way.  Give yourself time.

    Teka--Cool

    Shambles--you ok?  Hoping better and better.

    Hermits, all--happy Friday.  Stay safe and warm.

  • camillegal
    camillegal Member Posts: 16,882
    edited February 2013

    Wow Jazzy this is quite a procedure u have to go thru---good Luck sounds icky but if it works then it's worth it.

    Skittle we're getting some crazy weather too--snow during the nite and I can hear the wind so there say now it won't be so bad--it's always changing here so we'll see in the morning. I purposely made an early Dr, app' to get it over with, so I hope streets are good, then I come home and put a nice clean fuzzy warm long nitegown on for the rest of the day--that's what I'm looking forward too. So I can hermit warm and cozy with my Katie-Kat.

    And Jazy take it very easy;

    And all the hermits It's going to be Friday very soon, so u can rest a couple of days. Hopefully get a little hermit time in.

  • Jinkala
    Jinkala Member Posts: 193
    edited February 2013

    I'm glad it's Friday - not that work is hard but just that I'd rather be home with my video games. Heh   I am taking off a little early today though as I need to go take another blood test.  My MO wants me to have another CT scan but my creatinine keeps coming back slightly high so they keep calling me to drink more water and take another blood test.  It's a bit frustrating at this point (though I don't really want the CT scan) as my creatinine is about the same as it's been since before my surgery last year when it was first tested.  I'm just slightly above the normal but my numbers all through chemo were hovering right at the top or slightly above normal so it's not like I've had a sudden or drastic change in my numbers.

    I wish my toes would just feel better.  I'm guessing it's a slight neuropathy though it's not really numbness but rather just my toes hurting some and just not feeling 'right' to me.  I've told my MO and the nurses but they said that's just a SE from the chemo and it will go away eventually.  I've also gotten some redness and peeling (and possibly blisters) on the one foot which my MO looked at but she said it didn't look like anything serious and to just put something on it if it itches a lot.

  • Jazzygirl
    Jazzygirl Member Posts: 12,533
    edited February 2013

    Hi ladies- just checking in again this morning post procedure. I had better sleep this time after this procedure. It is really quite the experience, but because I already did it in early Jan on the left side, less unknowns to me this time. I am doing this in another city from where I live and comfy in my hotel room where I can rest and work remote as I wish to. The biggest thing for me is to take it easy but also watch for any signs of infection. My temp was slightly raised this morning (99 F), but is back down to normal again. Rad treatments start monday and also have a med onc apt that day too!

    Jinkala-my sister has that same toe thing from her chemo. But it is good to be sure it is not anything more like a diabetic neuropathy. I think chemo toes do go away, but neuropathy stays. My mom had a neuropathy, the first sign of her diabetes, and had it after that for years. I guess I would want to do know from the docs, how long do you wait before you know the root cause of that?

    Teka- although I am not one who likes to go out to eat that much, I am on a stint of trying new places in the city where I live and enjoying that. Good food, soaking, and a check in with the hermits sounds like the way to go!

    Cami- how are you feeling at the end of this week? Did your test for the D get rescheduled yet?

    Skittle- I flew into AZ for my treatment wed afternoon and they had snow, rain and hail here. Something that never happens and the roads were not good. As I drove to the hotel that evening, there was a car in the left lane that got clipped and started spinning. I looked to my left as I sat in stopped traffic and saw the car spinning and was terrified it was coming at me. My guardian angel was with me that night and I was able to move on down the road, but was shook up the rest of the evening. Not a good way to start my medical process, but grateful nothing worse happened. Never heard of thunder sleet before either!

    FL Warrior- you and I share the same job craziness. I was glad to get out of the client site on wed and doing some remote work during my time away. It is so hard to deal with a chaotic workplace and go through this stuff at the same time. But I need to work to pay for all I am doing and I try to manage my boundaries with them as best I can.

    Okay ladies, TGIF and hoping everyone has something comforting planned for the weekend!

  • Jinkala
    Jinkala Member Posts: 193
    edited February 2013

    Jazzy - the toe thing started more episodic and coincided with the chemo treatments so I'm pretty sure it's because of that.  I never had the classic 'tingling' or 'numbness' but I did have some bad swelling in my feet after the last few chemos and the toe thing seemed related to that. 

    I've got my diabetes under pretty good control right now and it was only caught through some routine blood tests and not because of any symptoms.  I did not test much during my chemo months because my eating was really screwed up (taste and nausea issues) and because the steroids drive blood sugar way up so it was really frustrating.

    If my regular doctor wasn't on extended leave, I would probably ask for an appointment but I really don't want to go to someone new unless it feels really urgent.  I've mostly been just dealing with my MO and the chemo nurses lately.

  • camillegal
    camillegal Member Posts: 16,882
    edited February 2013

    Jinkala It does sound like chemo stuff on u'r toes and feet so that is probably it--tho it's aggreating it's another Se that no one wants. Just make sure u always tel the nurses and Dr.s know how u'r feeling and they've seen so much, they usually are on top of things.

    Jazzy I'm glad u can relax after treatments and Dr. stuff--it sounds like u need to and reall watch for infections.

    My D is on hold for a while my Onc. wants some tests done so it'll have to wait a bit--The Dr. was adorable today and so nice she spent alot of time with me. So I think some of it will be started next week sometime So his Nobel prize will have to wait.

    It's cold and windy but the streets are good and as soon as I cam home I got in my snugly long nightgow  and cussle all up--I'm in for the day. YYYAAAAYYY or did I tell u that already?? I don't remember.

  • Skittle
    Skittle Member Posts: 400
    edited February 2013

    Ok...  I'm dropping off the planet for a while.  One of my former students just commited suicide.  15.  What kind of world...   Just can't wrap my mind around it. 

  • camillegal
    camillegal Member Posts: 16,882
    edited February 2013

    OMG Skittle--What a tradgedy to happen--what could have possibly triggered such a violent act. I am so sorry--for his family and all who knew him. Skittle take u'r time and heal as best as u can. (((HUGS))

  • Jazzygirl
    Jazzygirl Member Posts: 12,533
    edited February 2013

    Skittle- that is just so sad to hear about your former student. Life is just so unfair and totally unpredictable. Take care of yourself.

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