Returning DCIS after treatment for DCIS 2 years

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  • LAstar
    LAstar Member Posts: 1,574
    edited January 2013

    What factors affect the skin's ability to sustain an implant?  How do you feel about node removal?  It will be good to talk to the PS there -- you will have a lot more info then.

    As we were discussing before, if the skin cannot be used, a flap procedure can provide skin to use for reconstruction.  I forgot to tell you about Dr. Marga Massey.  She is also highly recommended for flap procedures and works out of Chicago (as well as New Orleans and Charleston).  

    http://drmarga.com/  

    I hope you are feeling okay about it all.  I think it doesn't all sink in until about 4 months post-MX!  It will be okay, though.

  • jmemama
    jmemama Member Posts: 18
    edited January 2013

    Green cowgirl..just want to say you are definitely not alone. I'm 37 with 2 small children, dx with dcis, had Bmx, bcause I wanted to give myself the best possible chance of not getting cancer again, and also have extensive family history of bc. I'm six months out and completely done and reconstructed. I look and feel almost exactly as I did before bc. I also did not have to undergo any additional treatments bc it was all dcis with no node involvement. Having a mx is obviously a decision that you must carefully consider, but I have absolutely zero regrets about having them both removed. Best wishes.

  • Pamela44
    Pamela44 Member Posts: 143
    edited January 2013

    Just my opinion-but if i were you and a triple negative dic i woul go for sentinel bx and mastectomy. Triple negative has the possibility of being very aggressive and sneaky. Also since it seen frequently in brca people, i would also get genetic testing. Hope you are navigating all this without tremendous stress.

  • GreenCowgirl
    GreenCowgirl Member Posts: 237
    edited February 2013

    Hey lastar  The ps at mayo in Rochester i am seeing is Michel Saint-Cyr, he came from tx.  the nurses i have spoken with say he is the rock god of ps-"an Artist" "Willing to get Creative" So i see him next wed.  I did find out that mayo does all of the flap procedures too, they did offer those up as possibilties.  I think they are wanting me to be open about options,since the implant and skin stretcher may/may not be an option since i have had radiation 3 years ago.  I did do the braca testing, though no history in my family.  Also the surgeon at mayo is going to check some sentinel nodes at the time(they inject a color dye and use it as a tracer.  Also she is open to trying the nipple sparing as long as the distance from the new dcis is within a certain range.  So these are two things that katsmann breast center would not do(nippel sparing or check nodes) plus i do not know any great  PS here,so looking like mayo will be my choice.

  • LAstar
    LAstar Member Posts: 1,574
    edited February 2013

    It sounds like you have a wide variety of options there, including a masterful PS!  Finding a place where you can trust the doctors is such a critical piece of the treatment.  I'll look forward to hearing how your visit goes next week!

  • GreenCowgirl
    GreenCowgirl Member Posts: 237
    edited February 2013

    Hey  Well i am back from meeting the ps in mayo.  Dr Saint-Cyr has made a bright light in this dark time.  I have been told so much mixed/incorrect info, he was downright mad.  I had been told   that having previous radiation i was not a candidate for recon with implants.  He said that is wrong and i want you to feel like this is your happy place.  I will do whatever it is YOU want to do, i will make it happen, you deserve a silver lining in this awful situation.  WOW, I could have cried, finally someone that is giving me choices, not telling me what will have to be taken from me-how flipping liberating! We also talked about bilater mx, which i thought i would never consider. We talked about the diep flap, as this is his specialty, but he said, i was not big enough,(not enough tissue to do both breast) but lets save that option as a back up plan.I also had been told that expanders would not work and would take a long time, he also said not at all. He would know during surgery how the muscle would behave and a whole ton of other ideas.  The alloderm he thinks is great but if i did choose bi mx he would use the extra tissue from my unaffected left breast to make the slings.  So now i have to decide uni or bi.  If i had the uni mx the left still needs reduction, so do i go all the way and match em up?  oh, the things you never imagined you would be saying!!!!!

  • GreenCowgirl
    GreenCowgirl Member Posts: 237
    edited February 2013

    Where are these photo forums i keep hearing about?  I need to see some women with similar reconstructions that had previous radiation.

  • mouse62
    mouse62 Member Posts: 5
    edited February 2013

    I ws refused surgery for DCIS as they said it was no longer covered .  they delisted it in Sept. 2012.  I waited a year to make sure i was cancer free.  I appealed it and was given an appeal date of May 2013.  I must say ohip reversed their decision and is granting me my surgery .  they quoted code R152 as the reason,.  this fight stressed me out but a victory for the women.  Hope this helps the next one in line.  Pass it on. Im worried that when they open me up to do corrective surgery they dont find anymore cancer.

  • GreenCowgirl
    GreenCowgirl Member Posts: 237
    edited February 2013

    Mouse62, What!  How can they rufuse you, this is pure crap!  Where do you live?  So happy to see you fought it, though i am sure it took all your strength.  The added stress is Not what you need right now. You are paving the way for other women-good for you!  I don't understand the last part about your surgery, you worry they won't find cancer??

    Nancy

  • TeresaF
    TeresaF Member Posts: 10
    edited February 2013

    What a relief Greencowgirl.  I have been following this post because I have been worried about my decision to do the lumpectomy and rads in case the cancer shows up again.  (Already have some questionable calcs on last mammo they are monitoring) I keep worrying that later reconstruction might not be possible after rads.  Thank you for sharing what your ps said.  I appreciate all of you who are sharing on these boards. It can be very helpful in easing some of the worry.  Rads start next week.  Have to leave my job, family, and move to another community until I'm done.  

  • GreenCowgirl
    GreenCowgirl Member Posts: 237
    edited February 2013

    TeresaF  My PS is really not concered about prior rads in my situation, though others have warned me it may not be possible.  Since i am wanting to go smaller, this will help, so i will not have to stretch as far.  I am a 34F and would like to be a 34D.  I did decide to do both, for a long list of reasons and to never go through anymore worry/wondering.  plus he said i can get an even better result with implnats in both.(would need a reduction on other breast as well)  If you have read about alloderm, he plans to use the extra skin from my unaffected breast to make the sling/dermal matrix.  It sounds like you have a tough road ahead with leaving your job/family for rads-i hope you have some support along the way.  I had to drag my children along and drive an hour both ways for my rads, it was hard but it became thenorm after a while.  On the last day We all cried as my rad staff was so wonderful/caring, they felt like family to me.

  • GinasMom
    GinasMom Member Posts: 5
    edited February 2013

    Glad u had a good experience with a nice rads staff. Congratulations.

  • GreenCowgirl
    GreenCowgirl Member Posts: 237
    edited April 2013

    just a new note after the returning dcis of 1 cm, a choice on a bmx/TE's so i can stop wonering when the other boob is gonna get me-the pathology done during surgery revealed a 4.5 cm of dcis that was not found on 3-d mammo, nor mri-so how can we feel safe??  Now i am regretting my rads because they are really messing with my reconstruction.

     ugggggg

  • LAstar
    LAstar Member Posts: 1,574
    edited April 2013

    Wow -- was the 4.5 cm the original trouble spot?  Why are you having radiation?  Did you have some micro-invasion?

  • crystalphm
    crystalphm Member Posts: 1,138
    edited April 2013

    I lost both breasts due to pure dcis, which did not show up on a mammo, ultrasound or a MRI...it was found with a surgical biopsy *I* requested when my one nipple had a slight discharge for 2 weeks. out of 26 samples taken, 24 had cancer. Unbelievable.

    I felt like a time bomb with my second breast, and when 3 irregulatites showed up with a MRI guided biopsy, I asked to please have the breast removed.

    Please always remember this is not so much about our breasts, but about living a long healthy life and getting rid of the cancer.

  • GreenCowgirl
    GreenCowgirl Member Posts: 237
    edited April 2013

    Hello LAstar, no the rads were from the origional dcis from 2010, and of course all the docs thought i was 100% in the clear.  A small dcis was found with 3-d mammo, close to the origional biopsy site.  Not until the masectomy surgery, as they were doing paths on the removed breast tissue and checking nodes they found the suprise 4.5 cm dcis.  I had an mri 2 weeks prior to this surgery and it found nothing.  So either these machines are not faultless, or blame it on dense breast tissue.  But it did make it easier to feel good about the decesion to take the left breast as well.  The nodes were clear, which was expected, allthough returning dcis has a 50% chance coming back invasive_finally i was on the good side of the odds.

    crystalphm-  Wow, what a story you have and so so happy you insisted on the biopsy!  Good for you and your instincts, I think we ladies have a bit more of that in our dna.:)

    Nancy

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