Calling all TNs

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  • Hopex3
    Hopex3 Member Posts: 397
    edited February 2013

    Shady..My tumor hurt as well. That is how I found it. Then my armpit hurt all the way through chemo.



    5thsib...You are right about the hair. There was no way I could dry and curl my hair every day going through treatment. It is nice to be able to pop on a wig or hat and go. I may stay with shorter hair. Jamie Lee Curtis style. It's coming in salt and pepper. I've been told we can't color our hair for at least 6 months after chemo or it will turn orange.

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  • NavyMom
    NavyMom Member Posts: 1,099
    edited February 2013

    I had pain, too.  But not until after routine yearly mammo Then I had a walnut sized lump that ended up BC.  Who ever said that BC does not hurt is wrong.  It can hurt.  I wonder if there has been any studies about BC pain and TN being related???

    Lauren where are you??  Last you posted you were in the hospital.  Would love to see a post from you.

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  • shadytrake
    shadytrake Member Posts: 142
    edited February 2013

    Hopex,

    The MO called today and said be prepared to start chemo on Monday so I guess I'm getting a haircut on Monday afternoon. I got a flu shot today and I made a list of all medications and supplements that I take.



    I like that all the Drs are moving fast, but it is a little overwhelming.

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  • Missy123
    Missy123 Member Posts: 18
    edited February 2013

    It's interesting to see that so many of you had pain in your breast where the tumor was.  I had the exact same thing.  Went to my ob/gyn twice about it.  He did not diagnose my cancer.  Mine was found during a routine CT Scan for follow-up of ovarian cancer.  The breast biopsy hurt like hell!  It continued to hurt until they removed the tumor.  Maybe pain can be associated with some triple negative cancers.

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  • Wrenwood47
    Wrenwood47 Member Posts: 73
    edited February 2013

    I found my tumor while showering....my hand brushed up against the outside of my breast and Ouch, there was this 2cm lump. It was NOT there the day before nor was the pain. The lump and pain appeared overnight. They say cancer doesn't hurt...I am here to say Yes it does. I have friends with BC, they are not TN and their lumps did not hurt.

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  • Hopex3
    Hopex3 Member Posts: 397
    edited February 2013

    Shady...Yes, it is overwhelming at first but you will settle in with your chemo routine.

    I wrote a daily journal to keep track of how I felt during chemo. I would constantly refer back to it. It was so helpful to compare treatments. Good luck to you!



    Wrenwood..I notice your avatar is of you golfing. I too am a golfer....nothing serious, just fun with the DH and other couples. Did you have surgery? I'm wondering what it will be like to golf again. My PS told me today I can golf in 6 weeks. But then I will have exchange surgery end of May, so I won't be able to do anything again for a long while! Ugh!

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  • 5thSib
    5thSib Member Posts: 141
    edited February 2013

    Hopex3 -- I think my hair will be salt and pepper too or maybe more gray. I'm tired of coloring so I may just leave it natural. DH doesn't like short hair but after seeing me bald he may love any hair!



    My tumor did not hurt but it did seem to come up overnight. Since my sister was diagnosed with BC 5 years ago, I had kept a close check and I found it myself.

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  • tnbcRuth
    tnbcRuth Member Posts: 454
    edited February 2013

    Hi Ladies!

    I'm just dropping in to say hello!  Lots of familiar names as well as new members to our support 'club'.  This was the best place for information and understanding, as my friends seemed frightened by my diagnosis and treatment.  Anyway, I finished treatment 10/10/10, so you do the math!  

    I have had horrible Right jaw pain with lymph node swelling, neck pain and 'something' caught in the back of my throat.  I went to the hospital twice with uncontrolled pain, and 3 months later, I have had every test and scan imaginable with 13 doctors.  No diagnosis.  I'm trying Neurontin (hate it), been on Lyrica and back on hydrocodone.  Boo Hiss.

    First it was my back, then hip, jaw, now my neck...horrific pain comes...then 2-3 months later, it goes...so other than the roaming 'devil' in my body, I am cancer free! I passed the 16 month 'higher than normal possibility of recurrence', to the 'same ratio of recurrence' and at almost 2 1/2 years NED, I am done with this Bitch!  So hang in there, do your treatment, be kind to yourself, and look forward to the day you will not think about this 24/7.  

    I have fabulous hair, about the same weight, back at work and reconstruction went very very well!  I am switching out to the new teardrop shape (at no cost, yay) when my current pain situation takes a break.  

    I love you all!  (((((HUGS)))))) to old and new TNBC buddies! 

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  • tnbcRuth
    tnbcRuth Member Posts: 454
    edited February 2013

    My new Rescue dog I ended up adopting.  Scooter helped me re-focus on being normal!  He's a Cairn terrier mix, 8yrs old, 12lbs and loves his raw diet!  (shhh, he doesn't know I had cancer)

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  • tnbcRuth
    tnbcRuth Member Posts: 454
    edited February 2013

    Scooter

    My new Rescue dog I ended up adopting.  Scooter helped me re-focus on being normal!  He's a Cairn terrier mix, 8yrs old, 12lbs and loves his raw diet!  (shhh, he doesn't know I had cancer)

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  • Babs37
    Babs37 Member Posts: 455
    edited February 2013

    Aaawww...Now he is so cute!

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  • mags20487
    mags20487 Member Posts: 1,591
    edited February 2013

    Hi tnbc Ruth...I have a condition called trigeminal neuropathy and it causes episoded of extreme pain in my face.  I am not sure if it could affect the jaw and neck but maybe worth looking into.  Kinda rare so they may not be looking at it.

    Maggie

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  • OBXK
    OBXK Member Posts: 791
    edited February 2013

    Ruth - So glad to hear you are doing well, with the exception of your pain devil. I hope that ends soon. Your dog is so cute! Continue to be well...

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  • Titan
    Titan Member Posts: 2,956
    edited February 2013

    Love your post Ruth....but dang on the roving pain...!

    Someone has to be the weird one and it may as well be me..but my lump didn't hurt....except... when my son played basketball in high school I was one of those..well...bleacher moms that screamed alot at the refs...it hurt then..dang refs anyway.

    Shadyrake...good luck with your first chemo....I agree with getting things started...why wait if you are ready for the chemo....my dr's wanted me to wait 6 weeks after my lx to heal...I didn't want to wait at all...didn't want to wait for rads either...

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  • Wrenwood47
    Wrenwood47 Member Posts: 73
    edited February 2013

    Hopex3 Yes I am a golfer, not very serious about it, just enjoy the game with DH and a nine hole ladies group. I had a lumpectomy to remove a 2cm tumor in my right breast and then Rads. When I finished tx it was just too hot to golf. So I actually took about 6 months off. My first time back out went well.....was gentle with my swing and had no problems at all.

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  • SherylB
    SherylB Member Posts: 450
    edited February 2013

    Hey all, check out these straps they are too cool.

    http://www.survivalstraps.com/thedonna A portion of the proceeds from our pink ribbon collection go to the 26.2 with Donna race to help fund breast cancer research and care. You can read all about it and purchase the bracelets by clicking the link. All of these products are made in America! Thank you for your support!

    http://www.survivalstraps.com/thedonna

    Sheryl

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  • bexH
    bexH Member Posts: 49
    edited February 2013

    (((ANNIE))

    SherylB  I had the same problems...mostly due to the neulasta shot.  Are you taking Claritin to help with that?  Get Vicodin if you need it for the first bad day or two.

    Minxie sorry bout the lice.  My DH still won't believe me that I had them once when I was younger. Sealed

    I'm finished with rads and all.  Now just to have check ups.  Waiting for my "tan" to fade still peeling a little.  And I'm clearly hit with Insomnia today....boo.  My daughter's 7 year bday is tomorrow, no wait TODAY.  I'm going to be so tired.  Oh, well.  Hello Kitty day in our house. 

    Welcome to SweetPickle.  Hang in there.  We're all in this together.

    becky

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  • Cocker_Spaniel
    Cocker_Spaniel Member Posts: 1,204
    edited February 2013

    Look at this beautiful wee poppet

    Can U Still Hear Me?

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  • shadytrake
    shadytrake Member Posts: 142
    edited February 2013

    O Cocker, that is so cute! One of my work colleagues sent me a teddy bear from Good News Bears in CA. It is weird that I find it comforting, but I do.



    I wish I could bring my dog with me to chemo. She just loves sitting in my lap. Min Pins are snugglers.

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  • OBXK
    OBXK Member Posts: 791
    edited February 2013

    Annie - so sweet!



    Managed a day out Saturday. Shopping and lunch with two English friends. Spent the day in bed recovering.



    Wishing everyone a good week ahead!

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  • Hopex3
    Hopex3 Member Posts: 397
    edited February 2013

    OBXK...you sound like me. I can go to lunch with friends but then I pay for it. Really tires me out just talking and listening to them! But it does feel good to get out and forget about cancer for awhile.



    Cocker...very cute.

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  • SherylB
    SherylB Member Posts: 450
    edited February 2013

    Hi all,

    Just wanted to say that I felt well enough Saturday to go to Sea World. I did rent an electric scooter but we were there for 10 hours and I just couldn't do all that walking. It was so great, even though I have been numerous times it was the first time for my two nieces, 9 and 14 and the smiles, oohhs, awws etc were better than the shows. Today feel the tiredness but so worth it to just enjoy a day out with beautiful sunny skies in the low 70s. Sorry all of you going through Nemo and the aftermath. Florida does have it's benefits.

    Hugs, Sheryl

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  • Renae64
    Renae64 Member Posts: 99
    edited February 2013

    Hello. I beat myself once, I beat myself twice, when will I stop beating myself again? This is in reference to my decision to use birth control pills for the 2 years leading up to TNBC. I was 46 when I started, 48 when the lump appeared out of no where. Is there anyone out there with TN who was on the pill when cancer was found? Also, anyone have solid evidence on the subject? Hugs, Renae

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  • jenjenl
    jenjenl Member Posts: 948
    edited February 2013

    Renae - I feel like my mirena contributed to my cancer.  My mirena perforated my uterus and was hanging out in my pelvis right next to my ovaries.  6 months after removing it...BAM.  I suppose I will never know and maybe just looking for someone/thing to blame.

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  • Hopex3
    Hopex3 Member Posts: 397
    edited February 2013

    Renae...I don't believe your birth control caused your TN as brith control pills are estrogen based and TN is not. I feel like my diet although it wasn't horrible, just inconsistent. I was told a few years ago that I was borderline insulin resistance and to give up sugar and bad carbs.....well, I never did. Then doing some researching, I read where insulin resistance is one of the causes of BC. And I was inconsistent on exercise as well.



    Next week, I meet with a Nurse who goes over survivorship things with me. One of the things is a diet strictly for TN. So I am looking forward to hearing,what she has to say.



    I don't think though we can blame anything we did or didn't do. I think it's just the makeup in our body and how our cells react.

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  • mom22ja
    mom22ja Member Posts: 31
    edited February 2013

    Hi ladies.  I know that TN usually recurs in the first 3 years.  Can someone tell me when you start the 3 years from?  Would it be from, say, mastectomy date, when the tumor is removed?  Or after chemo and radiation?  Thanks!

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  • Hopex3
    Hopex3 Member Posts: 397
    edited February 2013

    Mom...I'm going with Surgery date!

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  • gillyone
    gillyone Member Posts: 1,727
    edited February 2013

    Unfortunately there is no official time for when to start counting. This was a huge topic of conversation on a thread a while back. I think the most "popular" start time was that of diagnosis.

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  • Titan
    Titan Member Posts: 2,956
    edited February 2013

    I go with the date of my surgery which is 3-20-09...so I expect you ladies to be partying with me on that date!

    Renea....please please don't think that the reason you have BC is because of something you did...don't guilt trip yourself that way...there are so many of us on here that live in cities, rural areas, smoke, drink, don't smoke, don't drink, some vegan, some carnivores, some took birth control, some didn't...no one knows...there just doesn't seem to be a common demoninator besides that fact that we are women...please don't beat yourself up over it...it was nothing that you did....ok????

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  • Nuan
    Nuan Member Posts: 19
    edited February 2013

    Renea-- Titan is so right. We have bc because we are women! I dont smoke or drink. I'm a buddhist and I have been meditating for a long time. Often vegan. Never use birth control pill. Actaully I'm a virginInnocent and I dont think that leads to bc Laughing

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