Update from Mamita49

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Mamita49
Mamita49 Member Posts: 538
edited June 2014 in Stage III Breast Cancer
Update from Mamita49
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  • Mamita49
    Mamita49 Member Posts: 538
    edited February 2013

    Hi Ladies,

    2 Stories,

    1. As you might know, I first had an ultrasound then ct scan that confirmed 2 tiny spots on my liver. I had my biopsy 10 days ago and will see the Onc tomorrow. As I was having the biopsy, the radiologist found not 2 spots, but 8. EIGHT spots. Well, I guess, the Femera is not working. Anyhow, the biopsy was not done to see IF I have those spots on the liver, they know it is cancer, just to see if my hormone biology has changed. ( I was told this does happen quite often during a cancer journey, and my brother who is a radiation micro-biologist confirmed with me that this could happen) Weird thing I feel in my body great, no symptoms whatsoever. I have done everything to prevent this from more surgery than needed, plant based organic nutrition, pills, and more pills, and lots, lots of exercise. I was last summer 2 months in India and climbed a mountain even the Guru of that Ashram had difficulties with, I did, and that barefoot. Strange is that i cant care anymore, it is what it is.....

    2. Story

    Marie, my oldest daughter, is now 25 years old, and will get married to a great guy very soon. I am not anymore worried about her, she is almost done with her Master degree in Primate Sudies and will be soon on her own. I am sooooo happy that I had the pleasure to get her where she is, at least into adulthood. I will mostly not see my grand-children, but at least I will be remembered by my dearest Marie.

    Emily is now 18 years, and will start University in one year. Chances are that I will still see her entering University, but not be there when she finishes. This breaks my heart, but at least I am comforting myself that her older sister will always be there for her.

    Well, thats it, just needed to let you know who I am, and what my thoughts are. Sorry for this long story.. I will let you know what my Onc has up his sleeves.

    Best, Carol from Montreal

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  • Kathleen26
    Kathleen26 Member Posts: 210
    edited February 2013

    Wow, so sorry to hear your bad news.   It's the news that we all live in fear of. 

    Please don't write yourself off yet, and don't blame yourself.   Cancer's gonna do what it's gonna do sometimes regardless of the effort we put into keeping it away.   Yes, it's a tough diagnosis, but if you're healthy, the oncs may be able to keep you going for quite some time.   There is a sense of unreality about it when you feel fine, so in some ways it may not have hit you yet.   Thanks for keeping us up to date, and do let us know how you are getting on. 

    I wish you all the best.

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  • lkc
    lkc Member Posts: 1,203
    edited February 2013

    Hi Mamita, I am so happy you are feeeling well.

    When my Mom was dxd with " too many to count" liver lesions, she lived a LONG time afterward. She died  at 80 Y.O!

    Alot of Liver mets response well to treatment.

    good luck Dear.

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  • mary625
    mary625 Member Posts: 1,056
    edited February 2013

    Dear Carol/Mamita:  I think it is a positive sign that you are feeling well, and I do hear a lot of positive news about treatment of mets.  I guess you are new to these forums, so may I suggest that you visit the Stage IV forum when you are ready because there will probably be women there who are living successfully with mets.

    Hugs to you and best wishes.

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  • lovujja
    lovujja Member Posts: 119
    edited February 2013

    Hi Mamita,

    Please don't count out yourself yet. I have a friend who living more than 30 yrs after lungs cancer diagnosis. Doctor told him he has 6 months to live but he chose multiple treatment method and he is still a healthy man.

    We are here to support you. Believe in yourself and your internal power. No medication can give you internal power, only you can bring it and that's what keeps us stong, healthy and happy. 

    Hugs and prayers on your way, :).

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  • hopefour
    hopefour Member Posts: 459
    edited February 2013

    The strong and wonderful love you have for your daughters will be such a strength for you as you take the next steps to treating your BC. You did nothing to bring the cancer back, but you did give yourself the advantage of being at your best to continue to fight this and hopefully live many years to come. 

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  • Pure
    Pure Member Posts: 1,796
    edited February 2013

    Just today I had my 6 month check up at Duke...My doctor and I talked about stage 4 and I wanted to know what was new in that area. She said the median life span now of stage 4 is SEVEN years...It use to be 3!!!! Then went I went upstairs to get my zometa I asked the girls if it was hard loosing patients to stage 4 disease all the time. The nurse said actually that doesn't happen a lot that they have a ton of stage 4 girls 7, 8, 10, even 12 years out. You keep going...You keep yourself healthy. Set goals of 5 years-then 10 and so on. We are on the verge of a LOT of new tx coming out. You stay alive until then! That's it... Keep fighting... We all need to keep fighting.....Time to pull out the gloves... Saying you wont see your daughter graduate-NOT TRUE...And doesn't matter 2 liver mets or 8 tx is tx and either works or doesnt and it's going to work!!!!We are ALL behind you!

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  • exbrnxgrl
    exbrnxgrl Member Posts: 12,424
    edited February 2013

    Mamita,

    I see that you are far from new to these forums as a previous poster suggested! Anyway, do join us over on the stage IV threads. We are smart, funny, supportive and there for each other. Most importantly, you'll find lots of positive stories, info on the latest treatments, and hope. You may be surprised at how many years you have ahead of you.

    Caryn

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  • lovujja
    lovujja Member Posts: 119
    edited February 2013

    Pure,

    I solute you! What a strong person. Yes we really need to focus on what we can do. Having positive energy in body is like a power. 

    Mamita49, I know it is very hard but try to be positive. You have wonderful daughters who love you so much. If you determine to fight it back, you will win. You will be with us.

    Our thoughts, prayers and powers is with you.

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  • karen1956
    karen1956 Member Posts: 6,503
    edited February 2013

    Mamita......sorry that you are having to deal with this, but hopefully the next treatments will have you NED again.....keep us posted...

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  • Gitane
    Gitane Member Posts: 1,885
    edited February 2013

    Thank you for updating us, Mamita.  I check back from time to time to see if you posted.  Hope that onc has a good plan for you.  Sending lots of caring support your way.  Hugs, G.

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  • gillyone
    gillyone Member Posts: 1,727
    edited February 2013

    So sorry you are having to deal with this.

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  • KerryMac
    KerryMac Member Posts: 3,529
    edited February 2013

    Hi Carol,

    Nice to see you post, I have been wondering how you were doing.

    I agree with the other comments, don't write yourself off yet. There are so many options for you, I will be interested to hear what your onc recommends. The fact that you are otherwise healthy will mean that your body is strong, and you will be better able to fight this.

    Keep us updated!

    ((((hugs))))

    Kerry

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  • Momine
    Momine Member Posts: 7,859
    edited February 2013

    My aunt was DXed with liver mets 18 months ago. She did 6 rounds of taxotere, and so far the mets are gone. 

    I hope your onc can help you kick the stupid cancer's ass.

    Thanks for posting your update.

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  • diana50
    diana50 Member Posts: 2,134
    edited February 2013

    Thanks for checking in. The biospy is very important is that they can figure out what treatment will be most effective. Believe in treatment as there are many options. Hang in. One day at a time strings those days into years. Sending only positive and healing thoughts

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  • YATCOMW
    YATCOMW Member Posts: 664
    edited February 2013

    Hang in there Carol..... there is so much in the tool box now with more rapidly coming......I think Pure said it best.....people are living longer.....and then there is all this new stuff coming that will just extend the current years longer....and then more will come out.....

    Everything now is expanding exponentially.....fast and furious.

    My bet is that you will see grandchildren....and you will see your daughter graduate......

    Fists up....

    Jacqueline

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  • Mamita49
    Mamita49 Member Posts: 538
    edited February 2013

    Hi Ladies,

    Saw my Onc,

    1. Receptor has changed.......I am now er+ 90% (was before 100%) er- 1% (was before 90%) Her2-. Well, as I was told, receptor sensitive cancers change a lot during a journey, you would never know until you get a biopsy. Well, it does not matter really, since I am still er+ very strong and Her2-.

    2. The Femera is still working, my doc told me it is a very powerful drug, even if you dont have side effects.

    3. 8 spots, Well...he said, I dont think so, cause an ultra sound picks anything up in the body, it is not the best tool to see if spots are active, dont forget he told me, you have a fatty liver ( not cancer related) and it could be anything. The CT Scan is a more sensitive tool to detect cancer, and it said that I have 2 spots from the CT Scan.

    3. I asked if it did matter that I still have my overies, not have been given the Lupron shots, starting Femera or Amiritex earlier.

    He said ..NO...( He gave an explaination about dormant cells, that have nothing to do with overies, lupron shots etc.....) Too long to write what he said......but it is what it is,,,,,,,,, a crap-shot.

    Right now, I am only on Femera, and the fact that I am otherwise, ( and feel) very healthy helps a lot.

    Here in Canada, only 3 hospitals ( in Vancouver, Alberta, and Montreal ) offer a sirt liver abilation. We talked shortly about it, but since the 2 spots are so small, lets see what the Femera is doing.

    4. I had a Pet-Scan today, and will see him next week again, I will keep you updated.

    Carol

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  • Elizabeth1959
    Elizabeth1959 Member Posts: 346
    edited February 2013

    Carol

    That sounds like good news. I tolerate femera well. I have lots of stiffness but exercise helps. I hope the femera works well against your liver spots.



    Elizabeth

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  • jennyboog
    jennyboog Member Posts: 1,322
    edited February 2013

    Thinking of you Carol and sending you big hugs and prayers.

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  • Gitane
    Gitane Member Posts: 1,885
    edited February 2013

    Hi Mamita,  The update sounds like positive news, with only 2 spots, and strongly ER+.  Hoping Femara wipes them out!  The PET may give more helpful information.  It's great to know what is happening and especially that you are so healthy and feel good.  I think about you often.  Boy is it cold in Montreal right now.  Sending VERY WARM hugs your way,  G.

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  • hopefour
    hopefour Member Posts: 459
    edited February 2013

    Thanks for keeping us up-dated. Sounds like you have a great treatment plan( fermara) and with you being in such great shape I think you'll do well!!! Lots of hope and hugs!!

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