For those starting chemo in June

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  • NancyLee13
    NancyLee13 Member Posts: 496
    edited June 2006
    Oh, gosh, I think I brought my Montana weather to Oregon. They had a huge hail storm here yesterday and the hail piled up in drifts just like snowbanks. Everyone was in shock because it was such a freak storm that appeared out of nowhere. My Brother in law had taken me on this little driving tour of the surrounding area and we got back home moments before the storm started. I have been going on these marathon walks every day, but I hadn't gone yesterday because he had the day off. We saw the black clouds looming when he was driving back towards town so we hustled. Then my sister called from her workplace in the downtown area and said that it was hailing. Not 5 minutes later it dumped on their house too. Maybe I'd better think about heading home and taking this weather with me. I don't think I'll be able to walk today either. It looks pretty grim out there. Janie--I went through the Alzheimers thing with my mom in December and the first part of January. It was one of the hardest things I've ever had to face. It continues to be difficult in that she seems to slip further and further away from us each day. She is on the other hand not at all upset to be in the care facility. She has made friends with several other residents and they are taking excellent care of her. At first I thought that I could do it myself, but I was made to realize that it's a 24/7 job and I don't have the stamina anymore. I miss her all the time when I'm at home because she was ALWAYS there in that house so maybe that's part of the reason I'm still here at my sister's house. A little part of my mind can pretend that Mom's back at the ranch. I know that she's in the best place for her and she's able to see my brother every day and she thinks that I was "just there yesterday" every time I go to see her SO--but it's hard--isn't it? I'll quit rambling--And on the putting stuff off end of things--I just apparently drive 1300 miles away and really put them off. I don't even want to think about all the stuff I have to get caught up on when I do go back. I guess I've always lived with the philosophy that "If it weren't for the Last Minute, I'd never get anything done!" Hope everyone has a great 13th of the month. It's my Lucky Day--Life is Good-- SMILES --NancyLee
  • janie44
    janie44 Member Posts: 1,460
    edited June 2006
    Mary, The further away you get from Herceptin the better you will feel. I can actually wear my shoes again. I only had one pair I could wear for about 18 months.

    Renee, Turtleneck? Are you kidding? It is in the 90's here...I just read something about Georgians today, among other things it said that parking spaces are not chosen by distance from the building but rather for where the shade is...how true.

    NancyLee, Oregon is so beautiful, especially the coast. We didn't want to bring my Dad to GA and immediately put him in a facility before he acclimated to GA, but he probably will not know the difference. He forgets he eats and says he is starving. I don't understand that. How could someone be hungry who just ate, even if they did forget they ate. However, he has always eaten from the time he got up until the time he went to bed and never gained weight -- something I did not inherit.

    My onc apt went great. Says I am doing fantastic.

    Hugs to all,

    Janie
  • PJB
    PJB Member Posts: 2,615
    edited June 2006
    OK, so i couldn't stay away from you guys after all. I'll just come less often, probably. Janie, yippee on the news from the onc!

    Nancy Lee, sounds like things are going swimmingly for you. Glad to hear it. You've had a tough road on TOP of the whole freezing cold thing.


    Hi to Mary and Renee, too. Hope you guys are doing great.

    Paula (melting in Texas and looking forward to some Wisconsin cool)
  • janie44
    janie44 Member Posts: 1,460
    edited June 2006
    Welcome back PJ, I know you are more than ready for some cooler temperatures.

    Hope Mary is feeling better.

    Hey to Nancy and Renee.

    Hugs,

    Janie
  • mary1220
    mary1220 Member Posts: 1,246
    edited June 2006

    Hey girls, just seeing if this will post. Mary

  • mary1220
    mary1220 Member Posts: 1,246
    edited June 2006

    Hey, I have written twice and it keeps saying my form has expired and my post dissappears. I am going to bed but I will be back tomorrow. Sorry about your dad Janie and glad you are back P.J. If I write too long it won't post so better go. Hugs, Mary

  • janie44
    janie44 Member Posts: 1,460
    edited June 2006
    Hi Long-winded Mary. Glad the gang's all here.

    Have a good day all.

    Janie
  • NancyLee13
    NancyLee13 Member Posts: 496
    edited June 2006
    Right back at you in the Good Day department. It's looking to be a beautiful day here in central Oregon. I went for a little 3 mile walk yesterday and ended up stuck in Barnes & Noble during a lightning and thunder storm. I guess I can think of worse places to be stuck. I read thru their section on Alzheimers and spent a good part of the time in the childrens' books. My sister stopped after work and gave me a ride back to the house. My jeep is in the garage getting a new water pump put in before my drive back to Montana. The old one developed a crack. It's probably been there since I had that overheating problem back in
    April and the garage in Baker just didn't find it. THAT'S why I've been pouring antifreeze in every time I turn around. SIGH!! Well, off to the shower and then out for a stroll. Life is Good-- Smiles NancyLee
  • mary1220
    mary1220 Member Posts: 1,246
    edited June 2006

    Nancy Lee you have a time girlfriend. Well I went to the Madonna concert while in Phx. Someday-to-be-son-in-law gets skybox tickets from one of the hospitals he works at so thats why I went. I would never have gone otherwise but I am glad I did because it was a great show. I was not offended by the cross scene and I am catholic. Not a great one lately as I have gotten behind on church since treatment, well I have gotten there on Hollidays or maybe I have thought about going and thats a push in the right direction. I will get back soon or sometime. My mom always made us go when I was a kid and that ruined a perfectly good sleep in day so she burnt me out on church. I do go but mostly I think about it so thats kinda like going huh? Well this is my second time writting and it erased the first one so I am typing faster so if this works good. Better go so maybe this will post. Have a great wk. end. does anyone know why my time keeps expiring? Hugs, MAry

  • mary1220
    mary1220 Member Posts: 1,246
    edited June 2006

    Hey, it posted that time. I just have to type real fast. Mary

  • NancyLee13
    NancyLee13 Member Posts: 496
    edited June 2006
    Mary, you absolutely crack me up. How funny--Maybe your computer is trying to teach you to be a speed typist. I could never do that because I miss letters all the time and have to go back and fix stuff. Especially if I don't look up at the screen most of the time. My sister and I spent the morning scanning in pictures of my dad and his two brothers to put on the luminarias for next month's Relay for Life. We spent more time talking and laughing and crying than we actually did making the luminarias. She went to work at Gramma's House where she is a volunteer. It's a really nice place here in Bend for unwed teenage mothers and mothers to be. When she gets home we're going to finish making the ones in memory of friends we have lost and then we will make luminaries to honor cancer survivors in our family and among our friends--So many, but at least this year I think we have more "In Honor Of" bags than we do "In Memory Of". That's progress in the right direction. I'm making an "In Honor Of THE JUNE THREAD" one. Everyone who sees it will wonder what the heck that means and I will smile and think of Mary, Janie, PJ, Renee and Moi every time I walk past. Hope everyone has a lovely weekend. Life is Good-- Smiles NancyLee
  • janie44
    janie44 Member Posts: 1,460
    edited June 2006
    Mary, hurry, hurry, hurry, type type type

    Nancy that is so nice. You have such an unusual extrordinary life.

    Mary, I am not Catholic, but we were in church every time the door was open while I was growing up. I was the pianist from an early age on. If loaded down with homework, I had to take it with me and complete it in the back while the service was going on and then go up and play the closing hymns. My treatment was set so I was the sickest on weekends and I got out of the habit as well. I need to get back into it soon.

    Everyone have a great day and may all the fathers in your lives have a good one as well.

    Hugs,

    Janie
  • mary1220
    mary1220 Member Posts: 1,246
    edited June 2006

    Well, Hi Girls, I have to type fast as when I hit continue it will not say Sorry, your time has expired. Hubby needed to fix something while home so he worked on the bay window that broke. It would not reel out and in properly. I checked it out and figured it was ruined and instead of paying for a new one I would just leave it shut. Well GUESS WHAT???? Hubby fixed it and did it right!!!!!I could just shit. OOPS! Crap. He is going to work on the shutters next as some are loose. Could it be he is getting better???? NAH, it was just easy. Kinda surprised me a lot. HE leaves tomorrow morning. I sure will miss the repair time we spend together.....Ha,Ha,Ha,....oh, you girls. I know you didn't buy that one! He is planning all the "fixer-uppers" he can get done when he is home next time and he is talking putting in new windows. Haven't I suffered enough? He doean't know the first thing about windows except you raise them and lower them. Well I am glad you all had a great wk. end. Thanks for the June thread in all our honor Nancy Lee, Thats very nice. I better go before it cuts me off. I am typing like a fool. I don't know why it keeps doing that. Later little June Bugs, Mary

  • janie44
    janie44 Member Posts: 1,460
    edited June 2006
    Hi girls,

    I am so sick. Hope it is a bug, but in the middle of the night it dawned on me....dizzy, vomiting, blurred vision, neuropathy...I am waiting for the onc to call me back with directions to either come there or go straight for the scan.
  • janie44
    janie44 Member Posts: 1,460
    edited June 2006
    I was going to Mark's (son) to care for my Dad (Alzheimer's going to a facility soon). Mark has already taken on so much with my Dad, I was going to see if my good friend could go if I went anywhere today that required a driver, but Mark insisted on taking off. That is just as well bc I can sort of care for myself but not my Dad.

    The onocologist gave me 3 options, come there, the ER, or schedule an MRI brain scan. I chose to have the scan since that is what is going to tell me what I want to know. I just need to know what I am dealing with. The other two options would have led to the scan anyway, so this cuts out the middle man. The nurse told me they wanted to have one quickly bc they do not like to fool around with these symptoms. The quickest they can get a scan is tomorrow (Tues) morning at 7:00 a.m. and it is an hour away. I see the onc for results Friday at 10:45.
  • PJB
    PJB Member Posts: 2,615
    edited June 2006
    Janie, we're hoping for just a superbug. Are you feeling any better? Have the symptoms gone away? What the hell is this about waiting until FRIday? Are those people professsional torturers? It will NOT be anything bad, do you hear? We have plans and I'm tired of us being on pins and needles all the time. So get thee healed up.

    Mary, we're remodeling our kitchen, but please don't tell your hubby, lest he volunteer to help.

    Big hugs, to Janie and everyone else,
    Paula

    P.S. — We'll be ready for some more celebratory drinking on Friday. Who's in? ’Ritas again?
  • janie44
    janie44 Member Posts: 1,460
    edited June 2006

    Hey. the Zoloft has made me feel lots better. The rest i can deal with. I think if something were to show up they will call me earlier. I feel like if I keep that Friday apt, everything will be fine. Hugs to all. Janie

  • PJB
    PJB Member Posts: 2,615
    edited June 2006

    Damn, Janie, you scared me. Hurray for Zoloft. Glad you're feeling better.

  • NancyLee13
    NancyLee13 Member Posts: 496
    edited June 2006
    Zoloft--the wonder drug. Did you ever think you'd be happy to find out you have the flu? I was told--sometimes a backache is just a backache, but everything seems so ominous these days. I lit a candle for you and I hope you feel better and better every day. Hey, I'm home. I bought breakfast at IHOP for my sister and BIL on Sunday because in addition to it being Fathers' Day--It was their 29th wedding anniversary. After that I took off for Spokane and then across Idaho and into Montana as far as Livingston. I left there about 9 this morning and got to Billings around 1. I did a little shopping at Borders and Barnes and Noble and then went to Perkins for a late lunch----Bookstores and the best Muffins in the world--I never pass thru Billings w/o stopping for books and calories!!! I got back to Baker at 6 pm and went to the daycare and got a zillion things that I need to take care of and then came home to unload the jeep in the pouring rain. Yah, I brought the weather back with me from Oregon!! So gotta get some sleep and open the daycare at 6:30 tomorrow morning. Vacation is definitely over. Life is Good-- Smiles NancyLee
  • mary1220
    mary1220 Member Posts: 1,246
    edited June 2006

    Hey Girls, Sorry you are having trouble Janie. Wish we could all be there holding your hand but you know we are all with you. I will say a few prayers for ya. I too have been sick but mine is a bug or infection or something. I have a sore throat, very weak and fever. Went to reg. Dr. and got antibiotics so I have to start them today as I came home yesterday eve and fell asleep. I feel really crappy and I was to go to Chicago with my daughter tomorrow I think or tonight. Some darn time. I wont be going anyway. Daughter just called and she is leaving tonight without me. I did want to see the King Tut exib.but I am just too weak to even try to go. The gal that took my blood said she had about 30 people in yesterday getting blood work done with my symptoms so it must be a flu. Glad your back home safe and sound Nancy. Hi to Rene and hope you are feeling better already Janie. Hugs, Mary

  • PJB
    PJB Member Posts: 2,615
    edited June 2006
    Janie, how did the scan go? Hope all was uneventful and not too stressful. We're here for you. Can you feel the love? (OK, that was cheesy, but we really are sending you all the good karma we can muster.)

    Mary, sorry you've got the bug. In the summer? Doesn't seem right. And Nancy Lee, glad you got back safe. I'm on vacation shortly, too. Can't wait.

    I'd tell you all about my adventures with lymphedema, but not only is it boring, well, it's just boring.

    Your fat-armed friend,
    Paula
  • NancyLee13
    NancyLee13 Member Posts: 496
    edited June 2006
    Well, Paula, our FAF??, I hope you have just as much or more fun (if that's possible) as I did on my vacation. I gotta do that more often--I went to work totally refeshed today and nothing that happened changed my mood. It was all good. I got hugs and kisses from all my sweet babies. Now I'll probably wind up with untold colds and infections because they're all little walking germ carriers BUT it was worth it. I drove back out about half way thru the day and got my lawnmower loaded into the pickup and took it in and mowed the lawn and around the daycare. It looks better and I got tons of exercise. While I was away on vacation, some angels mowed the lawn at my house in town for me. I found out who it was today--What nice people there are in the world--huh? Janie--Let us know how you are. Mary--hope you're feeling better today. Gonna go to bed--I'm watching an old Survivor episode on OLN and that's just stupid because I KNOW what's going to happen. Night all--Life is Good-- Smiles NancyLee
  • mary1220
    mary1220 Member Posts: 1,246
    edited June 2006

    Hey Girls, are you feeling any better Janie? I hope so that way we know it might be a flu. Your cheesly right P.J., we are all sending lots of love Janie's way. I am feeling better today but got a little itchy lastnight and thought it was the antibiotic but it is gone this a.m. so I will take more today and see if it happens again. It is making my throat better. I haven't had a sore throat like this since before I had my tonsils out when I was in my early 20s. Gosh Janie, it is bad they are making you wait so long for your report. You could call and ask the nurse to tell the Dr. how worried you are and I am sure they would talk to you. When I worked in the Hospitals they were always very considerate about things like that, I think they just don't think about what people are worried about sometimes and some Drs. want the office visit payment. Well I better shower so that might make me feel better too. I have a grandson that has a ballgame tonight in Springfield so I have to take him since his mom is in Chicago. The 8 yeqar old went and 14 year old stayed home. Gotta get so everyone have a great day. Hugs, Mary

  • rlswkndr
    rlswkndr Member Posts: 148
    edited June 2006
    Janie, sending you hugs and prayers for good results on that scan. Are you still feeling better with those drugs?
    Paula, looking forward to seeing you in a few weeks. What are you remodeling? I think Mary's hubby should stop by and help.. it would get done faster! I think Mary would love to share his talents with others. My hubby doesn't even pretend to know how to fix things. He just picks up the phone and calls for help- it's better that way.
    NancyLee- what a joy to see those little ones every day. I love when I see my nieces little ones- knowing I can give them back when they are crabby.
    This weekend we are going to the country music festival about 1 hour from here. We will probably go every day. It should be pretty nice weather. This morning I woke to the sound of crashing stuff- I left all the windows open and a huge storm was blowing thru... lots of stuff blew off my desk, the kitchen counters,etc... but it was all bark and no bite... just a few dribbles of rain.
    Later... Renee
  • janie44
    janie44 Member Posts: 1,460
    edited June 2006
    Hi girls,

    I posted yesterday but do not know why it did not show up. I should have said I was taking Zofran not Zoloft, although I could probably use some of that as well. The scan went off without a hitch. They had a doc standing by bc I am highly allergic to CT dye but the MRI dye did not phase me and I did not even get claustrophobic in that little hole where I listened to a radio via headphones for the 45 minute procedure. I am getting better by the day. Still a little queasy and have the blurred vision and a little neuropathy, but nothing like it was a couple of days ago when I was losing my balance and vomiting along with all that. I would think brain mets symptoms would stay constant, but I really have no idea. I think if anything shows up they will call me; otherwise, I think the news on Friday will be good. Thank all of you for being here as always. Hugs. Janie
  • PJB
    PJB Member Posts: 2,615
    edited June 2006
    Janie, glad to hear you're feeling better by the day. I, too, would think any mets symptoms would stay or worsen even. Remind me of a few years back, I had some spells where I'd get really dizzy, so I couldn't walk without holding the wall. And half my face would go numb. It'd last for about 15 minutes. At first I thought STROKE, but it'd go away. So I eventually went to the dentist and he asks me if I knew I had a sinus infection. I didn't, no headaches or anything, and my nose always runs constantly from allergies. But it happens I have weird sinuses and they were inflamed and pressing on all sorts of things they weren't supposed to. So it's probably something freaky like that.

    Renee, we get up there July 1 in the eve. July 2 we're going to Schaumberg to go to the Lego store. July 4, we're doing a cookout. Other than that, I don't know of any real plans. We leave the 8th. So I'll call you when I get up there and we'll figure out a way to get together. Mary, too bad you're not closer....

    It'll be very fun. Not only do my mom and sis live in Madison, but sisters are also coming from Omaha and Pennsylvania for a few days those first days we'll be there. They'll stay 3 days or so. We've done a great job getting together since the big C entered our lives....

    Mary, glad you're also doing better. Go TEAM! Hope you guys are having a lot of fun. So what's the status on Phoenix?
  • mary1220
    mary1220 Member Posts: 1,246
    edited June 2006

    This freeking thing just told me I ran out of time again. I typed a darn book. Janie, sounds more like inner ear for you. Good luck with the report as we are all pulling for ya. P.J. let me know when you girls get together and maybe I can talk daughter into driving me up. Oh sinus is good for symptoms too Janie. I will be glad to loan hubby out and hey, he is free. Haven't bought a place in Phx. yet as mom in law pretty much has it figured out that her "passing" should take place in like 7 months, 6 days and 2 hours. Well, she is going in exactly one year. She is doing great and will likeley outlive me. Oh well. She is sitting around waiting for "it" to come. You have to know her. She is a doll and I love her to death. She has pretty much been waiting on death all her life. She kinda likes drama. I may have to rent or buy a camper, yea me and a camper, somehow I never thought I would put me and camper in the same sentence but life; it is a changing. Hubby may get a better paying job for a local co. and he is excited about that. I am not but I guess we shall see what comes out. I believe everything happens for a reason and if this says I am expired I will have a reason to throw this keyboard through the puter. Better hurry and post. It is the website that tells me I am expired. Hugs, Mary

  • mary1220
    mary1220 Member Posts: 1,246
    edited June 2006

    Thank the Lord it posted. If I have mistakes well, we have to live with them as I have to type really fast and get it posted. I really do not type fast and accurate at the same time. I am not a typest at all. Quick Mary

  • SonjaR
    SonjaR Member Posts: 22
    edited June 2006
    Quote:

    I have Stage Ib, .7 mm tumor, neg sentinel node biopsy.
    I recieved my Ploidy analysis with states that I have, .."aneuploid tumor w/increased Ki-67 (clone MIB-1) proliferation index." index=1.80 (28.5%), GO/G1 81.4%, G2/M= 3.4%
    Will I have chemotherapy?





    You might try adding a new post on the 'Just Diagnosed' open discussion?
  • janie44
    janie44 Member Posts: 1,460
    edited June 2006
    SM4718,

    Hi, I am sorry if it looked like we were ignoring you. I am sure everyone else was like me and did not have an answer. The truth is, we all have individual profiles requiring situation-specific treatment, and only your specialists can guide you as to what is best for you. Good luck with your choices. Hugs. Janie

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