In shock
Comments
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Hi beautiful brave sisters. Hope each and everyone of you is well and happy.
Slept like a log for NINE hours ! (except for 4 pees, thank you cmf ).
Going to hopefully have a ME morning providing no se's rear their ugly heads.
Scottie, I too am 65 and think you are amazing still teaching ! Well done and as long as you are out there we will hug you close.Lesleyanne, nice to hear from you too. HUG.
Cowgirl and you as well, know sometimes I just wish I had a secretary to come on here and type lol.
Liefie, thanks I really am not bothered about being baldy ( wish it was summer tho ) WILL go swimming with GD she adores the no hair look and yesterday was trotting around with my wig on.
Your card story made me sooo angry, I have had it happen to me once, funds well in bank card not going through the assistant looked me up and down as if I had stood in pile of poop.Then the huffing and puffing from other customers !!
I was in retail all my life and was always gentle with people this happened to.
Your DH is defo your knight, hope party prep going well.
Websister, hope you feeling less yuk.
Lovely that Mum had two wins at bingo, sounds as if she is all nicely settled in.
As for your hair, what a lovely compliment.Benny, hope you home and happy.
Keemo, photo area so beautiful.
Glad your Dr said you are ok, be gentle with yourself your body has been through enough.
I too will miss the happy smiling faces of the dear people at the unit when this is all over.
Great about your hair too.Traii, how's things with our little angel today ?
Hope you caught up on your sleep as well.Bevlee, clicked on that link. THANK YOU you have made an old lady sooo happy lol. Going to make my girls get the phone app. It is funny but so informative and of course the men in tight pants are the icing on the cake.
Seriously sisters DO click on Bevlee's link and recommend to your friends and daughters. Brilliant idea to bring the message home.
Bearcub, Jennie, Dakota, Carla, Caitlin and all other sisters love and healing to you all.
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Hi everybody....thank you for understanding......I just love everybody here...I love your strength, your sense of humour and the (words cannot describe) support you give.
I decided to keep on teaching because it keeps my mind from going to "other places"
But I do love my job and get a lot of satisfaction from it. I am tired at the end of the day.
I "try" to come home and relax little and then get on my treadmill for 40 minutes.
I still have my two grown sons living with us, so full house...
I so,love to come here and read all your stories.....most make laugh a lot .....some cry, but that's ok....just wanted to say all,of that so you don't think I come in and out like when the mood takes me....just don't have the energy to reply to each one of you.
Have a great day ladies....Toronto has a snow storm warning for today and tomorrow...
Hmmmm......drive or take the subway???? Ok, I'll start with a shower. -
Scottie, have a good day.Please keep safe ! I would subway, even though that is a sandwich shop here lol.
Think a general post each day ( or when we can ) might be easier for us mature ladies and just an answer if a specific question asked ?
We know we all pop on to read but can't always answer.
We all love each other to bits ,and even when not on here, hold the others in our hearts. X -
Morning Edi,
I seem to have followed your lead .....been up since 4 this morning icing the alien. Soooooo just want it gone. Had another "session" with the "friend who doesn't get it" the other day. Tried to help her understand where I'm coming from when I tell her it doesn't help me to hear all her worries and opinions about my upcoming surgery. She seems to think that telling me how worried she is, shows how much she cares about me. I don't want to shut her out completely as we have been friends for a long time, but she just doesn't get it. Tough situation, since she is part of a "group" of us, so I have to either put up with her, or stay away from everyone in the group. One of the other girls (my snowshoe buddy) is going to try to sort her out for me, cause I have run out of patience with her. Now I'm worried she is going to hover over me while I'm in the hospital, even though I have told her I don't want visitors.
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Nihahi
Im so with you.
Its hard when theres that ONE person in the group that just doesnt get it!! By the sounds of it youve tried everything you can no wonder your patience is runing thin!
I too want only family to visit...minimal family like mum dad brother sis n law my aunty dh and ds thats it...no friends! Calls are ok...even texing is better...lol but visits no!!
Scottie...its hard to keep up with everyone..knowing youre on here and caring is enough hun. Like edi said its hard keeping up but we know we all care for eachother
Edi havent caught up on sleep...lol but after ds and i had our water fight we showered had dinner and relaxed watching his fav shows while dh was still at work...so was nice and relaxing.
Its 1am here and ive been up since 6 might go to bed soon hey!! -
nihahi, you poor love, that alien so needs to be gone.
Sometimes think the " concerned friend " is just a pain in the ass. If someone I know is really ill, sympathise of course. Offer to help if they need it then, SHUT UP.
So hope you other friend can get the message home.
Here one of our hospitals is closed to ALL visitors at the moment shame you don't live nearer.lol.Traii, night night, hope you sleep, try counting the gorgeous men in Bevlee's video.
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Hi ladies !!!
Nihahi - yikes. How much more can u say!! Hate that!!
Scottie -
Lol.... I take notes. And I am 41
. Please take the actual subway but if u need a sandwich stop by the store 
Traii - it's so hard to "catch" up on sleep I feel like when it lost its lost.
Bevlee- did I miss something with the ostrich ??!
Edi - never got to congrat u on ur win. Yahoo !!! Hope unrnjoy ur me day !!!
Web sister- well know my kids are my strength. Glad u got to see our Benny !!!
Lifie/ I agree with edi- shame on them for making u feel that way!!
Lesley - good to hear from u!!
CarlA - can u PM ur name so I can friend u on FB. u too edi
Keemo hope u slept too!!
Preparing for a nor'easter here coming tomorrow. Can't wait to shovel- ummmm no thanks
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If anyone else out there wants to be friends on Facebook don't be shy.

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Cowgirl - yes Marin. We will have to ride some time. YEAH!
Traii - Great that you get your last chemo on your birthday. Keep me posted on the date and I'll be sur to have a glass of wine too in your honor. (I know - twist my arm)!!
Happy day everyone and thanks for the nice words about my daughter.
xoxkim
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Scottiee1, you must home safe and sound by now? About the boys still living at home: One of ours had to live with us for 18 months while he was articling. He got paid so little that he could not afford to rent a place of his own. Poor boy went through the whole cancer drama with us. He moved to Edmonton in May last year, and I still miss him, his wonderful sense of humour and his company.
Traii, what a wonderful birthday present it will be to be done with chemo!
Nihahi, so sorry your friend does not get it. Some people just react weirdly under these circumstances. You need positive influences now, not doom-and-gloom prophets. Maybe afterwards you can phase her back in when you are okay again. She seems like a genuine friend.
Edi, hope you are doing well. I'm sure you treated every customer with kindness and respect - no doubt!
Party prep is going well. I want to try and finish everything that can be made ahead of time today, so that I won't be running around so much tomorrow. So the two soups are on the stove, I've made some spiced nuts and jerky pate, and will make the dessert tonight. I want to do this for my DH, because he did not have a good birthday last year at all. It was the day after my mastectomy, and he was by my side holding my hand in hospital. He needs to be spoiled a little, and I want to thank him in this way for being my Rock of Gibraltar, always loving, steadfast, loyal, reliable and there for me in everything I went through. Think I must make a little speech tomorrow night . . . It is also my youngest son's birthday tomorrow; it was really special when he was born on his dad's birthday 26 years ago. Where did the time go?
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Liefie - tomorrow sounds like it is going to be a wonderful celebration for all of you! I like that term 'Rock of Gibralter'
I saw the second radiation oncologist this afternoon, she said that according to the guidelines used at our cancer center radiation therapy to the chest wall and to the regional lymph nodes is indicated for me and would be extra insurance. She spent a good amount of time reviewing results from recent studies. She kept referring to me as 'young' which I loved.
My 'rock of Gibralter' and I are off tomorrow evening for two nights in the nearby town of Canmore (mountain getaway) courtesy of the people I work with, our weekend includes dinner on Saturday evening, two breakfasts, champagne and chocolate covered strawberries and a tea service, as well as a generous gift card to spend on whatever.
I am very much looking forward to it, we spent our 30th anniversary on September 4th in the chemo area, we will try make up for that this year.
The board has been a little quiet today, I hope all are doing OK with side effects, etc.
Hugs to all -
Good evening everyone! I am so impressed with all of you and how strong you are. What a kick-ass group of women!
Nihahi - Have you heard of caringbridge? Google it and see what you think. I found it really helpful as it allowed me to set the boundaries that I wanted to set, get the word out to everyone, and update people so they knew what was going on and didn't need to call all of the time. I know it's really hard to advocate for yourself, especially if it is a close friend, so this site really helped me. I guess what I liked was it allowed me to say how I wanted to get support without having to have direct conversations with everyone. (Kind of a global out)!
Dakota - I'd love to be facebook friends. I'll PM you!
Love, sleep and good healing energy to all of you and Scottie - hope you took the subway!
xokim
Websister - I am so jealous of your upcoming weekend! I hope you have a marvelous time!
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I had my first chemo today (so can't sleep which is why I'm typing this). Once again had a last minute change in plans, since saw second opinion doc yesterday and she recommended different regimen (she said dose dense ACT, my onc said 6 cycles of TC - although he had also mentioned dose dense ACT as an option). So went in today not knowing which way to go, but after discussing with my onc, who had also discussed with my second opinion onc, we opted for dose-dense ACT. They both said "you're young, you're healthy - you can handle this regimen" and I'm thinking "I'm 51, and I have advanced breast cancer - what am I missing here?". Anyway, decided what the heck, I'll give it a go. A bit scared because of the problems Benny has had, but know another woman who did dose dense ACT with few problems and is still going strong (6 years out). Just depends on the individual, as you all know.
Ladies, I can relate to what some of you have said about the well-meaning friend. One friend of mine was incredibly supportive during my surgery, but she keeps questioning my treatment choices, and every time she does, I feel stressed. Main thing is she keeps saying I should drop my MO (have been seeing him for 6 years for my blood disorder) in favor of MO I've seen for 2nd opinions. Finally asked 2nd opinion doc yesterday if, given my now high risk situation, I should switch to her. She said absolutely not necessary - my onc has been doing good job for 6 years) - so hope that issue has been laid to rest.
Sometimes I don't know if friends realize how important it is for us to have a plan, and to have confidence in that plan. MO said to me today, once you head down a path, don't ever look back, feel any guilt, or second guess you choices, regardless of what happens. Think sometimes friends find it hard to know when they should voice their concerns, and when, if they truly care about us, they should remain silent.
Okay, time to pee and hope for sleep. Had a great evening tonight. My brother from Canada was here along with 3 friends. One friend (former neighbor from when we were growing up in Canada who lives on other side of town) prepared dinner and it was delicious (guess nausea meds are working so far). I laughed until I cried when Mum phoned up and started to tell us a story (on speaker) about the time someone (and the someone turned out to be a woman) bought Dad a pair of leather pants (which she then admitted were actually shorts). Guess our minds were all in the gutter and we could not stop laughing - Mum was not impressed.
Wishing everyone a wonderful weekend ahead! -
Hi Ladies,
Hope you've all had a good day.
I'm up on 4 hours sleep too Nihahi, whats going on...lol...well i can tell you that I didn't sleep until 3am and then DS woke up with the bin truck waving at the driver at 6am.....but luckily we both fell back asleep for a bit..well DS did until i woke him up for kindy.
Lifie, enjoy your parties tomorrow. My brother and nanna were born on the same day....and now my cousin whos pregnant is due on that same day too......!
Kim, glad I'm not going to have to 'twist' your arm too much re having a wine with me...lol.....I'll let you know closer to the time, but its the 12th March ... celebration !!.
Anyone is welcome to PM me for my FB info..... I don't share anything on there about BC, some of my 'friends' are more 'acquantances' that only need to know about my situation on a 'need to know basis' if you know what I mean.!
Carla, i missed your name i know you posted and it was probably 20 pages ago and i can't find it

30 years, congrats Websister.....You and DH can make up for that again this year..... I was married 4 years on Sept 20th....must be a good month September...lol I will be celebrating our 30 years too in 26 years time !!!!!
Websister, you are young...and glad that they are doing what they need to do re radiation with you..unfortunately I can't have radiation again on the same areas so I'm a little worried about that , but I guess I just have to go with it....thats why I'm having the BMX....and higher doses of chemo... fingers crossed it worked and working ! ( i guess looking at my head and nails if its done what its done on the outside I'm sure its done what it should have done on the inside hey!!)
Enjoy your evening everyone and night night to those off to bedsys!! x
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Websister, enjoy your romantic weekend in Canmore. It sounds like you are going to have a ball there, and it is such a picturesque, beautiful town in the mountains.
Caitlin, your onc sounds like a keeper to me. With chemo the expectation is often way worse than the experience itself. These days SE's are managed much more successfully than years ago, and although it is not pleasant, it is doable. Benny's reaction is the exception to the rule, and chances are you will handle it well. Glad you had a good evening with your brother and friends, and may you sleep well tonight!
Traii, that chemo will work. Like you say, you can see the signs of the war on the outside, so on the inside it must be really signficantly worse.
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Hi caitlin... i had dose dense act and it was completely doable. Everyone really is different so don't go in thinking the worst. It isn't fun but there is a beginning and an end. You can do this... sleep is your friend

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Hi Everyone,
I thought I would pop on and say hi. Second treatment was about the same. NO headache! That was a plus. Just the normal dryness and joint pain.. But only 2 more to go!
I agree, it's hard to answer everyone but I too love each and every one of you! This has been my lifeline during this whole ordeal. I would pop on every morning before work and then again at lunch time and evening. You all got me through my surgery and now the Chemo.
Caitlin, you can do this!! Try and get some sleep..
Everyone else, have a good night or day depends on where you are...
Love you all,
Carla
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Hi Beautiful Sisters xxxx
Is it just me. or have you noticed how we have all gone from being shocked,terrified and depressed ,to positive,kick ass, ladies who laugh and chat and are getting on with LIVING.
The BC BITCH must be so angry with us
we have relegated her to the one in the group that no one likes and I think she is getting the message.Websister, have a fabulous, romantic and sooo well deserved break.
Liefie, Party sounds like a wonderful celebration enjoy every minute.
Caitlin, proud of you !! You made your decision and are now on the path to good health.
Glad you enjoyed your evening, fun and laughter is what we all need.Keemo and Cowgirl riding together one day, we have GOT to have those pictures please.
Traii, agree with you on the" look what it is doing to the outside "etc.
DS and bin truck is so cute, but not for you of course. Is he still enjoying Kindy ?
One of my GD's is going through hell in school at moment. She is 6 but very tall with size 3 feet. One little boy has been telling her she is big and ugly.
know kids can be cruel but she now won't even look in a mirror !! My daughter and SIL have demanded something be done and soon.
Carla, well done on second chemo and no headache. Keep well.
I pop on and off here during the day too.Benny, So hope you are well, and popping on here, we miss you and Di.
DH just come down for brekkie, we have a day of moving bedrooms around today. Me bossing and him doing the moving lol.
Our bedroom being redecorated yay.
New comfier bed ordered.
The new bathroom being finally fitted a week on Monday.
No more putting everything off just getting on with it. DH will need a lie down in a darkened room and his wallet will need the kiss of life when I am finished.Anyone want to friend me on F/B ? PM me for details, would be delighted. I didn't share that I had BC but my daughters did so try not to dwell on it on there too much.
All have a wonderful day/night still love you all more than chocolate xxx
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Oh Edi, how cruel kids can be can't they. It's so hard being 6 at school and bullied....hope the teachers do something about it and real fast.
You are working that DH of yours a lot the last couple of weeks....lol.....he's wallet must be dry empty....oh well so long as you have your new bed, your new loo / bathroom and your bingo money.....just remind him, "happy wife = happy life" (my DH's fav saying...lol)
I added you on FB....thanks
I don't talk anything about BC on FB.....only family and very close friends know about me and the BC. No dwelling on FB its fun times on there..... lol I love playing games.....try bingo blitz I'm sure you'll love it 
Caitlin, we must of posted at the same time earlier. Like most have said, each person reacts differently to each chemo..... It's doable and there are lots of things to help manage side effects. You will soldier on and you will be fine. Just take each day as it comes and we are here for you.
Time for bed? hmm....just after midnight....I think I'll be heading off soon.
Enjoy your day ladies
xx -
Ewww, seriously lacking in sleep today (dang dexamethasone). That being said I got my house cleaned up last night.... yay! It's day 3 and the SE's are not too bad, some gut irritation but mucositis hasn't kicked into high gear yet. I am a bit weak but didn't eat very much yesterday so that could be it. Gonna drag out the Glucerna this morning. I know I should pace myself but I want to drop a saddle pad off at the leather doctor and pick up some photos for framing and see Di today.
Caitlin , please please please don't use my experience as your standard. Mine was the exception to the rule, as Liefie said. Lots of the girls have minimal SE's and carry on just fine. How is Sherman? He will be there for you as Benny was for me. One step at a time. It sure goes fast, even when you take it one step at a time.
Our most wonderful Websister met me at chemo on Wednesday. She had her computer tablet so I got to see Keemo's pictures! Wow! Riding on the beach! In my dreams! I am having to ride in the arena these days because the ground is solid ice. Is your daughter a trick rider? Love that pic too.
Websister also brought me some porridge with apples in it. It was perfect and delicious!
Hmm, I might have to shelve my plans for today. I might just go back to bed. Will log in later. I hope everyone has a great day. I truly love you all and missed being here last week. ♥
A (bad) photo of Di and me. As I said, have to ride in arena these days. My wig looks weird here too, but I washed and curled it last night so if I do make it out today I'll look fab! Okay, back to bed for a few hours.
Edi, did GD ever get her birthday (?) party at the horse stable? I must read back 10 pages when I wake up.

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Hi ladies !!! Benny that is a great picture!!'
Edi- poor GD, why are poeoe mean. If everyone was nice and honest this world would be a better place.
Traii - yay got the friend thing down!!!
I will be checking in if we have power 2 feet of snow predicted here !!! Yikes
Love to u all
Think I might have an early celebration Traii- yup wine in my future
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Carla, so glad the headache is staying away this time. Only two more - you're getting there!
Traii, sweet dreams 'down under'! I watched a TV program last night while cooking - Australia, land of Parrots. It is unbelievable how many different kinds of birds there are in Aus., and the most beautiful, vibrant colours. Some of them also sound just like people too!
Edi, yes, we're getting on with living. One eventually gets used to everything, even ca. The people on this board are certainly not allowing the beast to get to them. Like true warriors they put on their swords, and ride into battle. The great John Wayne once said courage is to saddle up, although you are scared to death. So true of all you wonderful people! That bullying is not cool at all, and I'm glad it is being addressed. My youngest son was bullied in school. When I found out, he would not let me do anything about it, but I did anyway. The principal took on the issue immediately, and by the time they finished high school, my son and the former bully were best of friends.
I'm sitting here eating my breakfast berries and yoghurt. Better get on with the rest of the task at hand . . . A very good day (night?) to everybody. You are all winners!
Hi Benny! So glad to hear from you, and thanks for the picture too. You look amazing considering what you went through up till now. Websister is an angel - what a kind gesture to go with you! Best wishes!
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Benny, so great to see you back here - and love the photo of you and Di! Glad to hear this round has started off reasonably well. Hope you're able to keep something in your stomach throughout the day.
So far so good for me - but get Neulasta shot this afternoon. Sherman and Braxton are being good nurses and even better entertainers.
MO thinks I might in theory have more pain with Neulasta because of my bone marrow already being "crowded" with a lot of platelets. He didn't seem convinced that Claritin helps much, but am going to ask nurse what she thinks today. Any thoughts from those who have taken it? I know Carla has already suggested taking it.
Keemo, it's encouraging to hear that you found dose dense ACT doable. Is that what you're doing too Dakota? When were your worst days? My mother, brother, two sisters and a cousin have all volunteered to come down from Canada and back up my DH to help me get through chemo in March, April and May. Just trying to figure out when is the best time for them to come relative to infusion. Guess I'll know better once I get through this round.
Edi, I hate to think of your GD being bullied. That kind of thing can have such a lasting effect on the victim. Hope there is some way for your daughter and SIL to nip that in the bud soon. -
Oh, forgot to say to Websister that I think it's just wonderful the way you have been helping Benny out. I've been reading your blog too, and it is inspiring. I hope that you will have the most amazing celebration possible this weekend!
Also, re: what Edi said about how you've all come so far in dealing with this beast. Last night, when I couldn't sleep, I went back and read old posts from when most of you were near the beginning of your journeys. You have indeed come a long way Warrior babies! All of you have certainly given me hope, not to mention so much good practical information on what to expect and how to cope with it as effectively as possible. -
Caitlin, my oncologist told me that 10% of women doing chemo end up in hospital. I was hospitalized 3 of the 4 chemos which puts me even lower than that 10%, so the odds are GREATLY with you that it will be a relatively seamless process for you. Plus, you learn from each one tricks that work for you. That Neulasta shot was fantastic for me. I had zero pain/side effects from it so I'm hoping the same for you, despite the platelets. Once I had the Neulasta shot I never had another fever again. The last 2 hospitalizations were for shortness of breath, which they now attribute to the mucositis irritating my lungs. Highly unlikely you'll get that. I'm getting another Neulasta tonight and I'm not worried at all. Fingers crossed for you.
Thanks Dakota and Liefie for the the positive comments on the picture. I am wearing 3 layers of clothing in that picture (arena not heated) and am still around the 120 pound mark, and looking pretty haggered.
Edi, what happened to GD?? OMG! I was bullied by a big nasty girl in grade 3 and I remember how scary it was. I must find time to read back and get caught up here. Poor GD. I am sending her a big warm fuzzy cyber hug. Thank goodness there's more awareness about this issue now. The school needs to be proactive and nip this stuff pronto.
Obviously I can't sleep so I might as well drag on my clothes and head off to the leather shop and start the day. Carrots for Di? Check. Apple crunchies for Di? Check. Codeine, Glucerna and water for Bennymuffins? Check. Well, that takes care of the priorities!
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Caitlin, my wish is that you won't have pain from the Neulasta. I did not use Claritin because I got Neupogen, but many people here swear by the Claritin. You seem to have a great support system, and a loving family. That will go a long way towards helping you through chemo, and just having someone there means a lot.
Benny, you should have seen me after 4 chemos. Haggard does not begin to describe it. My eyes were sunken with bluish bags under them, my skin was so wrinkled, colourless and dry, there were no lashes and just a few eyebrow hair here and there, and my eyes and nose were running constantly. Miserable. That poison takes so much out of you, and it is obviousy not possible to eat as healthy as one would want to. It all adds up, and takes a huge toll on your body. But take heart, once chemo is done, you will bounce back quickly. Enjoy the horse - sounds like you still have enough energy for the giant plush toy!
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Nihahi. If you want you can send her my way and I can set her straight for you - in a nice way. I can finally start to exercise and THAT feels good. So hopefully we get some fresh powder and I can do some short snowshoes!!!
You guys are all doing great.
Look at you Benny 4th chemo after all the trials and tribulations last time. You really are a ROCK STAR!!! I know you don't feel like one but even rock stars have their moments....Keith Richards.... : ) -
Caitlin-
I did 4 round of a/c and I have 1 more taxol to go. I was opposite of Benny. I really fine knock on wood. I was able to do everything I needed to do. Thank heavens I am basically a single parent. I took the Claritin thru A/C didn't bother with taxol so not sure if it helped or it was mental
. The first one is definitely the hardest the unknowns drive u crazy. Ask around here if u need anything we are all here happy to help !!! -
Caitlin, i had the Neulasta shot after each Taxotere. I had a bit of bone pain but it was manageable with no drugs. I dont know what claritin is over there but here its used for hayfever (sneezing,watery eyes etc).
Hope u have nil bone pain.
After chemo on a Weds with Taxotere Id have my low days on a Sat and Sunday only because there was no more steroids!! but back at work on the Monday!
Lifie funny you mention birds i cant go back to sleep because of them (dont they know its saturday morning and that means sleep in)!!!! Instead flying along singing there chirp chirp song!!!
First time my DH at age 2 heard a cuckatoo talk he cried...then he got over it and started screaming at the shop for me to buy one and bring it home...lol oh yeh he got one the following week , one from a toy shop where the batteries can come out when mummys had enough and I dont have to look after. Lol!!!!
Benny luv the pic...i had my wig curly the other day...had to go to the shop and really couldnt be bothered straightening it after i had just washed it...lol.
Websister YOU are an angel.....xx
Dakota more snow!!
Glad youll be having a wine with me too!!! we'll be having one for you sooner...what dates your last chemo?? -
Valentines day is my last chemo!!! Yahoo !!! No rads for me they said I didn't need to do it. So excited but u can't kick me out of the club when I am done.
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- 9 The Political Corner
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- 285 Who or What Inspires You?
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- 50 Immunotherapy - Before, During, and After
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- 109 Welcome to Breastcancer.org
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