Surveillance for me? Yeah, Right, Sure.
Comments
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So glad to hear that there was nothing invasive that it such good news!!!! Good luck with your fills.
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Simply Audre - Yay on your fills! For the nipple debridement - do they consider that par for the course for something like what you have been through? Awesome news that they didn't find any invasive CA in your pathology - although I personally think all the LCIS and ALH confirms that you made a wise choice! I'm glad to see you looking so great in your pic!
I saw my BS on Friday - he immediately felt the lump and when he did the ultrasound, he also found a cyst. Good news is that he thinks the lump is extremely dense lobular tissue and does not think it requires a biopsy at this point. Our plan for now is for me to see him in February after the breast MRI. I didn't expect the cyst, he was surprised on that too...but of course that has the black hole blessing on that one. I am wondering if this is the new normal...how does one know if it is a lump that you go in for...or one that you watch until your six month? The BS was really nice about it and basically indicated that unless they look with US or other imaging...you simply don't know - so better safe than sorry. Just SO GRATEFUL that this time around it was a report that didn't involve more biopsies or the word "carcinoma"!
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I want to get as much information as possible (I have some) but want to make sure I know everything about LCIS if that is possible, nobody can agree on LCIS-google is not a good source. Everyone is different, even talking to people they say cancer yes, cancer no. I know whatever decision I make is the right one for me, would still like to get as much information , there are a lot a post on here about it, still confused over this, two memebers of my family have been the greatest support, the rest of the people in my life have been useless, acting like nothing was ever wrong with me. As I said everyone is different, so probably different answer's, all information will be helpful.
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SimplyAudrey that is great, great news about your path report. Best feeling in the world, isn't it? Congrats to you and now you have only to rest and recover and create your new boobs that can't get cancer! Very happy for you.
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News - I lost most of my right nipple. This was the breast full of LCIS and ALH. Oh well. I only lost about a quarter of the left.
The good news is later we'll play with reconstruction of my nipples if I so desire. Totally up to me. I knew this was a risk going in. It's just sad to see it go. BUT...no infection from it......no major complications.....and the fills are going great. I'm even getting an extra week off work so we can complete the fills and gear up for implant exchange!
The areolas are in great shape, so it's only addition of a little "button" if I want. We shall see.
Happy Tuesday!
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SimplyAudre,
It is good to hear the update from you and KUDOS for staying so positive with the slight setback! Relieved to know the areolas are in good shape, as for some reason I was thinking that perhaps the entire area was in danger. Enjoy the extra time off - I hope you are feeling well enough to do something fun at least for some of the time.
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SimplyAudrey,
So happy to hear about your path report. Sorry to hear about your setback. I lost both of mine and I'm ok with it now. I just scheduled my exchange surgery for Dec. 4th. I'm getting new boobs for Christmas! I'll decide on nipple recon/tattooing after the first of the year.
I'm wishing you continued healing!
Lori -
Hi Lorio, we both have the same surgery date- Dec 4th!! my last fill was today. tight as a drum but ok. Best of wishes to you!!
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Shabby, I was walking around singing, "I'm getting boobies for Christmas" to the tune of "I'm Gettin' Nuthin' for Christmas". My 12-year old daughter told me that I was being inappropriate. My son just shook his head and walked out of the room and mumbled under his breath, "Disturbing." I enjoyed it though. Good luck to you too!
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OK...something to make you all laugh. Constipation sucks!
Otherwise, fill on Tuesday...opted for one more week off to do a "full fill" (80 in left, over 100 in right) and my Noobs will be coming in December!
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Update: Looks like exchange surgery is going to be next Monday, November 19th! 7 weeks post original surgery!
I'm floored at the speed of my reconstruction course.
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Pun intended... No Sh!t...
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Sa--helloooo and helloooo to all. SA was trying to find you b/c I lost you ---sent you a PM. Noticed you mentioned constipation. Wrote a topic thread on it some time ago. Members have added allot of interesting comments to it, to the tune of 7 pges on poop. That's allot of poop talk. A general tabulation shows that prunes and apricots win butts down. Brought the link---what a gift LOL.
Glad no infections.
http://community.breastcancer.org/topic_post?forum_id=6&id=781867&page=1
L&H&P's sassy/sheila/sas
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SimplyAudrey---WOW! I can't believe it has been 7 weeks already. Where did the time go. I have been thinking of you and your recovery. Glad to hear everything has gone well, and best to you on Monday!
I am scheduled for a BS appt in Phila in December....here's hoping she agrees that I am a good candidate for PBMX. I am shooting for surgery with recon in May 2013. I hope to emulate you and your awesome recovery time.
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Well, a week and a day had passed since exchange.....and I'm sadly back at work (LOL).....
I LOVE the Sientra implants my PS chose for me. I no longer need a wonder anything or anyone's secret to create a bust line! The "physiologic" shape of the implant is incredible. Other than funky nipples and my surgical scars underneath (glued by the way) you wouldn't know. Just don't ask me what "size" I am as I have no clue. That's a question on the list for tomorrow's office visit........how long for the 24/7 surgical/comfort/sleep bra deal (PS: they have GREAT ones on EBAY), and who is the best and closest bra fitter to go see when I'm ready to graduate to truly attractive undergarments.
I did have to have part of my left pec "loosened" (nice word for cut) because of chronic spasm - it evidently was clamped down so badly the implant didn't "place" well in the pocket........ so I am a bit restricted on my left.......and I get to restrain my arms at night until such time that the good doc says the implants have settled in nicely and I can go back to flailing my arms over and behind my head at night while I sleep. I haven't lost any range of motion....I just don't make a habit of lifting my arms above my shoulders more than twice a day.......
Hope all who are reading ths are well! must wander back into workland for now!
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Audrey - so great to hear of your progress! And, what an amazing attitude, as well! Sorry you are back in workland (lol), but I guess it does help give the bank acct. a shot in the arm. Thanks for sharing your story throughout all of this and wishing you all the best.
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Audrey,
Thanks for the update. My exchange is FINALLY next Tuesday. I can't wait. He doesn't expect that I'll need too much pocket work so I'm hoping it goes fairly smoothly.
Take care and best wishes for continued healing!
Lori -
Hi Audrey,
We have exchange on the same day! My PS said I will need some pocket work on the left. Hoping it's a quick recovery for us both!
Best of Luck!!
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Hi to ALL!
It is great to hear from those who have been through the surgery and have positive things to report. I will be going through the procedure w/expanders and implants in May'13. I am looking forward to the RESULTS and hope to find some support from you who have been in the trenches.
Our PS appointment is in late February. It is at this point we will find out when we are scheduled for the PBMX.....hopefully in early May. I need to use the summer months wisely since I am have a semester schedule with classes as an adjunct professor. Any advice would be sincerely accepted.
Marie
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I am back from 5 years ago. Diagnosed with LCIS & ADH. Did tamoxifen for about 2 years, had to have a complete hysterectomy with ovaries out. Now 5 years later, had a mamo on Monday, which showed a new calcification. The radiologist said will probably wait 6 months to do repeat mamo to see if it has changed. Does that sound right, or should I insist on a biopsy? I don't see my BS till Tuesday. The wait is killing me.
Thanks
Peggy
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Hello to all 2 months later!
Things have settled and it looks like I am getting liposuction covered by insurance! (HAHAHA!)
I have a ridge in the left upper pole that needs to be filled in, so it's a fat graft in April for me!
LOVE the way I look in clothes. The ridge is minimally noticeable, but PS and I would like more symmetry than I have currently. Truthfully, I have to gain weight to make this happen (hence April)..
Holly, don't let the wait kill you. With LCIS it's your right to have a PBMX should you choose. For me the waiting was not an option. Lack of sleep and high anxiety would have led to greater illness. To me, for me....I made the right choice.
My risk, my rights, my choice!
Happy February all!
A
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So....the surveillance thingy just up and bit me in the ass this week. I had my (supposedly) last MRI on Monday 3/25 and yesterday I got a call from my BS in Phila. to tell me I needed to go back and have an US for a NEW spot in the right breast.
This will be # 5 in <7 years. It is too small for biopsy and in a different spot than the one they did in 2011.
I am so SICK of this!
US appointment is tomorrow. I am going to keep putting one foot in front of the other and be positive. This is going to be NOTHING and I will be breastfree and burdenfree on May 15th!
Sorry, but I needed to vent...only dh and best friend know. I just can't deal with having our kids worry (again).
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Well, the ultrasound did not go as well as we expected. It is a solid mass, small...1.49 x 0.55 with an irregular border. The radiologist is still positive that it is benign, but just in case, I am now scheduled for an MRI core biopsy on Monday, 4/8.
This could still be a sclerosing adenosis which is fairly common in LCIS patients, but from what I read it adds another degree of risk for CA. An excellent reason to continue through our journey of PBMX.
Interestingly enough, I am not totally petrified and I am grateful that the Docs are being pro active and bumping this through the fast lane so we can stay on track with our May 15 date.
Has anyone else with LCIS ever had a path report for sclerosing adenosis? Just wondering.
Regards-Marie
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My path report from both the Stereotactic biopsy and the lumpectomy showed sclerosing adenosis.
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Yup, I had schlerosing adenosis, which I found via self exam prior to the BMX. It was a small bar bell shaped mass near the aureola. We did a core biopsy to prove what it was prior to performing the bmx. Same breast as the LCIS. Yes, it does increase your overall life risk of bc, but LCIS probably is a much greater risk factor.
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Hi auntiems3 - I just wanted to send you a big (((HUG))) and let you know I will have you in my thoughts and prayers as you are going through your testing on Monday. All of this is SO worriesome and stressful to go through!!! I must admit I view your upcoming PBMX as perhaps a blessing....and wonder when/if I will have the nerve to do the same as a prophylactic measure....or if I will end up waiting until it is required. I hope all goes well for you and that the results will be B9!
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SO......... fat grafting done, and I LOVE the results.
The bummers are temporary....bruising and having to wear this compression torture device since when my PS harvests fat he does it as if it's a primary lipo procedure.
Glad I took the road I did. And looking forward to taking time off for FUN instead of recovery!
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Well, I got the full report on the US. The radiologist listed the mass as a Bi Rads 4....no letter a b or c. There are 3 red flags in the report which make me less optimistic about this one. Hypoechoic, lobulated mass in the retroglandular fat which persists with fremitus (they make you hummmmm). 1.075 x 0.649.....so somewhat elongated which is good. Not so good is the comet-like tail, and non-compressible.
I appreciate all the support and hugs, beacon500 and ED2012.
ED-I never thought I would have the nerve to do the surgery, I felt I would be paralyzed with fear no matter which route I chose. It took but one moment of clarity and I (actually we) never looked back. Whatever path you choose is the right one for you.
However this all goes down, I am grateful for my family (as weird as we all are), my friends (who I also consider my family), and never once regret the choices I have made.
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Auntie - Look forward always.....no matter what is in your way...take that baby step each time. Eventually you will find yourself on the other side of what seemed a mountain, but was really a molehill.
Prayers and blessings to you......all will be well! Believe, and it will be so!
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Sorry about the worrisome report. For what it's worth, I never had a biopsy with less than a BIRADS 4 going in and it never was cancer. Absoultely commiserate with you on how crappy it is waiting for the biopsy and the result and the whole business.
Sounds like you are making a great decision about BMX. Like mine, your breasts seem to keep presenting abnormalities and you will be so much more relieved once you get past the surgery.
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