Just Diagnosed TN

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shadytrake
shadytrake Member Posts: 142

I just had a lumpectomy last Tuesday and got the final Path report on Friday.  I'm trying to think positive thoughts but TN is absolutely terrifying.  I just went through and printed the research articles provided by BCO (thanks for those - very helpful). 

I think I am going to have to look at my insurance for a therapist or psychiatrist because I feel like I have been given a death sentence.  I have never had any problem with depression before, but I feel like there is an elephant on my chest.

I wish my mom was here, but she died of BC in 1997.  I feel so alone. 

Comments

  • helperro1
    helperro1 Member Posts: 5
    edited February 2013

    Shadytrake,

    So sorry to hear about your diagnosis.  It is so scary and overwhelming.  I want to assure you, TN  is not a death sentence.  I was dx 12 yrs ago with TN in the left breast, then again 2 yrs ago in my rt breast. I am BRAC1 positive, hence why I had a second primary. So I opted for BMX this round (probably should have the 1st time) Anyways, my point is I am here.  I lost my sister to BC 23 years ago, she was only 34. So I know the fear you are talking about.  But it looks like you caught it early, and the good news about TN is that it does respond well to Chemo. It is an aggressive cancer, so you had to treat it aggressively, but it is beatable!!  Take a deep breath, one step at a time, remain positive, move forward and put it all behind you.  My prayers are with you. Hang in there.

  • sylviaexmouthuk
    sylviaexmouthuk Member Posts: 7,847
    edited February 2013

    Hello shadytrake.

    I have just read your post and also wanted to reassure you. You can survive this and do not worry about all the doom and gloom on the internet about TNBC. I was diagnosed in June 2005 with a large tumour and TNBC receptors. It is now seven and a half years since then and I am alive and well.

    I noticed you are from Memphis, so thought you might like to join the Calling all TNS thread, created by Titan in 2010. There are lots of women on there with lots of experience and information and they will give you plenty of support and comfort. You can also post on my own UK thread if you wish.

    You can get through this.

    Very best wishes.

    Sylvia

  • jojo38
    jojo38 Member Posts: 16
    edited February 2013

    Hi Memphis,



    I'm sorry 2 hear of ur dx. I, too, just dx w/TNBC on Jan. 30th. My mass is 6.5cm in which my mammo last year read negative on cancer & my doctor dropped the ball to investigate further and assumed it was my saline implants under muscle. It was not. I have many tests coming up & honestly I'm freaked out. People think of me as a strong & independent mother of 2 girls, but maybe cuz I'm only 38 (turning 39 on the 12th), I am not feeling so strong. I so understand what you're feeling & I'd like to reach out to you to possibly support each other since we are both starting out. Hang I'm there. Everything will be ok.

  • HollyHopes
    HollyHopes Member Posts: 497
    edited February 2013

    Dear Shady - we've ALL felt like this at one time or another.  I am 6 years post diagnosis and perfectly healthy, or at least - NED (no evidence of disease).  There are a ton of us TNBC survivors out there.  The first two years post treatment are critical ones for us in terms of recurrence.  You can and WILL get through this and your sisters here will be there to help and support you all the way...

    -Holly

  • shadytrake
    shadytrake Member Posts: 142
    edited February 2013

    Hi all,



    I had my follow up post op today and met with the genetic counselor. My surgeon doesn't think a mastectomy is necessary since we caught it early. He did say that I may have to have chemo, which I expected. I meet with both oncologists next week and they will have the tumor board on 2/15.



    So today was better. I'm still crying at the drop of a hat, but I figure that's ok.

  • deeteeone
    deeteeone Member Posts: 19
    edited February 2013

    Hi Shadytrake..I was diagnosed last April.I was devastated also.All everyone around me kept saying was"everything will be okay".It was very hard to believe that,but it is true.I went thru 4 rounds of chemo,and just finished 33 rounds of radiation.This was harder on me mentally than physically.It has changed my outlook on life and everyone in it.I too need to go find a support group,to hekp me with the worrying about recurrance.I send you hope and love because you WILL get thru this .

  • shadytrake
    shadytrake Member Posts: 142
    edited February 2013

    Thanks deetee. I'm hanging in there.

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