calling all emu oil users please

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I am starting rads in 2 weeks.  I have read the threads over and over again with lists and lists of creams, etc to use to stop all the discomfort of treatment.  I am so sensative to so many skin products and have heard from a few emu oil is wonderful for about all the symptoms.  If you have used this product can you please share your experience wiht me start to finish?  How often did you apply it?  Did you start using it weeks before rads started?  Do you apply it before your daily treatment or after?  Thanks to all of you for helping with this journey

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  • dlb823
    dlb823 Member Posts: 9,430
    edited February 2013

    jabal, I also have very sensitive skin, and I used Emu Oil and continue to sing its praises.  I actually started with 100% aloe vera gel, as recommended by my rad onc, then moved on to something she had free samples of in her office.  Then one day in the rads changing area I was talking to another bc patient who was using and loved Emu Oil, and I found out that b'cuz she was extremely fair skinned (I'm olive), our rad onc had started her on the Emu Oil.  So I switched to that, and neither of us had any problems.

    I can add that the first bottle of Emu Oil I bought, which was the least expensive one on the shelf at my natural foods market, actually felt a bit gritty, which I didn't like.  So I bought a more expensive brand at an organic farmer's market that was "ultra refined," and it was much nicer.

    I still use it today as an occasional vaginal lubricant, and it works great for that, too.      Deanna

    PS ~ I just applied it immediately after my 7:00 a.m. tx, and then again in the evening.

  • Elizabeth1889
    Elizabeth1889 Member Posts: 1,036
    edited February 2013

    I used emu oil all through my rads tx and I loved it. My skin held up well all through rads. I applied it after each morning tx and again before bedtime.

  • jabal
    jabal Member Posts: 79
    edited February 2013

    Deanna, I noticed you were DX in 2008....did you do chemo? hormone therapy?  Same with you Elizabeth (maybe you already told me) I was wondering because we are all stage IIa with one positive node.  Thanks

  • dlb823
    dlb823 Member Posts: 9,430
    edited February 2013

    jabal, yes, I did chemo (TCx4).  Did you?  I did not do an A/I, but chose a natural path following almost a full year of active tx that was really dragged out for a variety of reasons, some of which are detailed on my bio page.  

    I've used a natural aromatese inhibitor (I3C), but I'd also gotten off HRT, and I've worked with a naturopathic doctor to balance my hormones naturally.  In other words, I didn't just "skip" hormone therapy, but chose to treat the need naturally.  If I hadn't been post-menopausal and very holistic in my beliefs, that decision would have been even harder than it was.       Deanna

  • Elizabeth1889
    Elizabeth1889 Member Posts: 1,036
    edited February 2013

    Yes, I did chemo (TCx4), then rads, and now I am taking Arimidex. My main problem with Arimidex is joint pain, but it is controllable with cortisone shots. My MO wants me to try Aromasin to see if I can avoid more cortisone shots. If that does not help, we will try Tamoxifen.

  • jabal
    jabal Member Posts: 79
    edited February 2013

    I ask because my DX is about the same as yours but my onco score was 18 so chemo not recommended.  I will do the rads but I want to avoid the HT and want to do it naturally.  Deanna, can you share with me your exact natural way to control the hormone issue?  If worse comes to worse I will try meds but I have joint pain from other things already and My body won't take cortisone.  I truly need an alternative that will work.  thanks

  • jabal
    jabal Member Posts: 79
    edited February 2013

    Deanna, I read your bio...wow you have been through a lot and lucky you did what you did.  My question is , do they or should they do an MRI?  I have never been told to have one and all my work was done with originally mammo with a few more taken later to look at it again.  Now I am a little freaked out thinking maybe they didn't find it all that may be elsewhere in the breast.  I know women have tests done after all their treatment to see if there is cancer anywhere.  Why don't they do these tests before they go through all the treatment?  Wouldn't that tell them if there is cancer elsewhere to treat?  I don't get it

  • dlb823
    dlb823 Member Posts: 9,430
    edited February 2013

    jabal, if I was in your situation, I would want an MRI.  And some BSs or oncs do order additional screening prior to tx, but it probably depends on each patient's situation. I had a PetScan, for example, prior to starting chemo, because, as my onc said, if bc had shown up elsewhere, the game plan would have changed.  But my bc turned out to be more complex than originally believed, and there was a delay in figuring that out, having my second surgery, and starting chemo.  So a scan was probably a reasonable recommendation.  OTOH, if you have a Grade 1 bc, for example, the radiation from a scan might outweigh the very small potential that it would show anything concerning.  But MRIs don't use radiation, so I would at least ask  about having one for the added peace of mind, especially since you had a positive node with a very small lesion and a Grade 1 bc.  

    As far as the hormone issue, I would start by having your estrogen levels tested, to see where you are.  I hesitate to recommend my regimen to others because I do a lot of stuff with diet, supplements and exercise that may or may appeal to or work for someone else.  I also had chemo, which you did not, and I'm under the impression that the Oncotype-DX score assumes a woman will do Tamox or an A/I.  One thing you might consider doing is at least trying an A/I.  Some women do surprisingly well with them, and you could be one of them.    Deanna

  • Elizabeth1889
    Elizabeth1889 Member Posts: 1,036
    edited February 2013

    I second Deanna's recommendation to at least try Tamox or an AI. Even with my joint pain, the side effects were not nearly as bad as I feared. 

  • jabal
    jabal Member Posts: 79
    edited February 2013

    thanks, will give it a shot.  Now to just get through rads with no time off work.  I can't even miss one day , no vacation or sick time.  UGH

  • Pegs
    Pegs Member Posts: 198
    edited February 2013

    I had rads about 2 years ago and I used emu oil in the morning and after treatment, unfortunately I didn't find out about it until I was in the middle of my treatments, I was using the aloe and aquaphor, which I hated, way too greasy.  i still use emu oil today, i always recommend it, i wish i had heard about it before . 

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