Hello ladies, I'm new here. Can someone please help me?

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  • karen1956
    karen1956 Member Posts: 6,503
    edited February 2013

    Glad that you found us, but sorry that you have to go down this journey!!!  This is a great group of women.  Today is my 7 years "cancerversary"...7 years from hearing those dreaded works...I survivied, bilat, chemo, rads, oooph and endured 3 1/2 years of AI's before I said enough is enough....but I'm still here 3 1/2 years after stopping them!!!!

    I haven't read all the posts so if I repeating what others are saying, I apologize.

    BC is a hard journey, but it is DOABLE!!!!  It is not a death sentence.   There are lots of good treatments, even though they might be hard to beat the beast!!!!


    Its one day at a time....Take someone to the doctor with you if you can so they can takes notes and you can listen.  Allow people to help.....help with meals, playdates for kids, running errands, cleeaning the house....listen to your body....rest when you need to...and go about your life as you did before Dx.   I worked throughout Tx and it gave me a sensxe or normalcy....

    Hope this helps.....Please let us know how you are doing...

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  • fondak
    fondak Member Posts: 376
    edited February 2013

    karen1956, Your post is very encouraging for me as well!  And I second letting people help.  I think a lot of us, especially as moms, are used to taking care of everyone else.   

    I was homeschooling my sons.  They went to a group of around 500 other homeschooled students once a week and the moms formed a list and every week they came in with a meal and then my church brought meals.  What I was uncomfortable with at first, quickly became a huge blessing!  My mom also came over and cleaned.  My husband was working out of the country through the diagnosis, surgery, chemo, radiation and having the hysterectomy/ovary removal surgery.  Needless to say I'm very thankful for all the support we were shown.

    I had several offer to drive me to chemo also but I was able to do that the whole time and I was fortunate enough to not miss one church service.  We live out and chemo was 30 min away and church was an hour.   

    Chemo was no picnic for sure but it was doable.  The day after finishing radiation my twin sons had their graduation ceremony. 

    Where you are now was honestly the most difficult part for me. 

    You're in my prayers and hope you keep us posted. 

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  • Ariom
    Ariom Member Posts: 6,197
    edited February 2013

    Hi Mirmir, definitely sounds like sciatica. It is very treatable by a good physio.

    I am so sorry you're suffering so much. It isn't fair, you don't deserve it, and we will never know why so many great, wonderful, funny, intelligent, spiritual, beautiful, sensational people, (i could go on infinitum)have to endure this, and feel this excrutiating fear. Your poor body has taken such a hit. This is just so brutal.

    First, pregnancy and childbirth, you would hardly be over that at this point, huge surgery , that was only a month ago, and now all this crap on top. It isn't any wonder you feel the way you do. That's just too much, you are carrying such a huge burden Hon.

    I just wish things could move a little faster so you had everything laid out in front of you and have a plan to work to. I know you'll do this, and come out the other side a winner. I know it just doesn't feel that way while the fear is so overwhelming. You are exhausted Mir. I wish there was something we could all say, or do, to help. Just know the sentiments are absolutely genuine.

    The wedding dress sounds gorgeous, and perfect, Mir, and that black birdcage fascinator sounds just right too. I would love to see the photos.

    Take care of you!......Moira

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  • teeballmom
    teeballmom Member Posts: 322
    edited February 2013

    I am so sorry that you have to be here, but you've found a great group that will keep you going and positive during this time and through treatment.

    I will be thinking of you today while you go through your scans.  Wear big pockets and I bet you'll have a lot of us in them keeping you strong.

    When I was reading your post it brought back all of those memories of when I was diagnosed not even a full year ago.  I went into surgery with my medical team believing I was a Stage IIb and came out Stage IIIa.  I was devastated but at Stage III, I was told I would get everything thrown at me and I would get cured.  At the time our boys were 6 and 4 and I thought that I was going to leave them without their mommy and that I would not grow old with the love of my life.  Well, as so many of the women here have said, treatment is all doable and you will get through it all.  Children become the best focus of all and mine made every treatment I had worth it.  I told the doctors to do whatever needed to be done because I was going to see our two boys get married and I would be a grandma someday. 

    We are here for you always!

    Take care.

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  • Mirmirpanda
    Mirmirpanda Member Posts: 89
    edited February 2013

    Thank you everyone. You have all been so kind. I honestly can't express how your posts have made me feel, but I truly appreciate your words and stories.



    I had my PET/CT scan this morning and about 2 hours later my oncologist called with the preliminary results and THE SCAN WAS CLEAN!!! I almost choked on the sigh that escaped my body. I screamed and cried. I feel relived to know. I will have to receive rads, which I really didn't want, but I'm just raring to get this over with.



    Now to move on. I start chemo on the 25th.



    Gotta read up on chemo and radiation, hormonal therapy and tamoxifen. Not to mention fertility after all this... I'm not sure if I will want another baby when this is all said and done, but I still want the choice!





    Thank you again, I'm going to celebrate. Gotta enjoy the small victories too!!!

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  • lkc
    lkc Member Posts: 1,203
    edited February 2013

    Hi Sweet girl Bone Scans are not confirmattory, Radiating pin down one leg is symptomatic of a lower back problem. Like the other laddies said Sciatica.

    Please know that all your emotions are normal. we have all been there. However, if you are having problems sleeping or realaxing and you can't stop racing thoughts, please speak to your Doc for  some short  term Rxs. They saved me, and it's only temporary.

    You wil beok, believe it.

    and I love the vintage black lace dress idea!!

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  • mary625
    mary625 Member Posts: 1,056
    edited February 2013

    Great news, MirMir! I love your spirit and attitude to celebrate the small victories, and being free of mets is really a big victory.  With your attitude, you are a fighter and winner, and you are going to do well!

    Please know that rads is a piece of cake.  I would not worry about that now at all.  Probably the most important thing for you to do between now and the 25th is to figure out the fertility issues.  I was 49 at the time, much older than you, and I was in menopause after the 2nd treatment.  I was obviously not trying to figure out the fertility issues, but I think between that and getting ready for chemo, it will be a busy time.  There are excellent resources here in the chemo forum to help you prepare --the shopping list is indispensible--but feel free to reach out to us here as we've all been through it and can give you help. 

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  • Ariom
    Ariom Member Posts: 6,197
    edited February 2013

    Happy Dancing for you Mirmirpanda!

    You have a ball celebrating with Chris.

    I know you still have a ways to go but you will do it and you'll have the most wonderful life after this is done and dusted.

    I couldn't be happier for you!

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  • Shari0707
    Shari0707 Member Posts: 448
    edited February 2013

    Been following u too girl and am ecstatic ur results were clean.. So happy for u. U deserve it!

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  • hopefour
    hopefour Member Posts: 459
    edited February 2013

    So thankful for clear scans..YEAH...had been thinking of you all day...so excited you heard so fast..the waiting is so hard!! We're all here for you and celebrating with you...love the lace black dress..you'll be a gorgeous bride!!

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  • edwards750
    edwards750 Member Posts: 3,761
    edited February 2013

    Mir...bless your heart and congrats on your bundle of joy and your soon to be husband. He sounds like a great guy. I agree with everyone else - get hitched. We can all relate to the anxiety and being sick to your stomach. This beast can do and will do that to you but remember it is not the death sentence anymore. I know it has screwed up your plans bigtime but you can and will get through this. You have 2 very good reasons. One other thing try and I mean try because its hard not to focus on every little ache and pain because you will make yourself crazy. My ONC said if I had a pain that just wouldnt go away and it wasnt from exercise or I banged into something then come and see her. The fear factor is alive and well in all of us. We all have learned to manage it. We will forever be looking over our shoulders because we have the C word but we wont let it dictate our everyday lives. Thing is all the worrying and hand wringing doesnt change anything. I had to really work on that because I am a control freak and a poster person for worrying. Agree also STAY away from Google and Webmd.com...Dr said Webmd is a research tool and should be interpreted accordingly and google doesnt produce things that are necessarily gospel. Direct your questions to your drs esp your ONC...he/she will be your lifeline - like us...good luck...diane

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  • kar123
    kar123 Member Posts: 273
    edited February 2013

    Yay for clean scans!!!!  Rads isn't bad at all so don't worry too much about that part!  So happy for you!

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  • MaxineO
    MaxineO Member Posts: 555
    edited February 2013

    Wonderful news. Some women do struggle with rads. I mostly breezed through it.  The RO was concerned it 'wasn't working' because my skin response was so minimal...just a little red toward the end.  Fatigue was the biggest issue for me.  Chemo was tough, but you can definitely do it.  Again, everyone responds differently. Adriamycin was pretty brutal for me, and taxol was a cake-walk, comparatively. For other women, the taxol is a bear.

    Talk to your docs about fertility...there is a lot of information, and I think a lot of women choose to save eggs in advance of the chemo. 

    I am glad to hear you are thinking about the wedding...the dress and veil sound beautiful...you will have many, many years to enjoy with your fiance and your baby girl.

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