Chemo Shopping...
Im going chemo shopping tomorrow...i saw a list of must haves, but id love to hear from you as what should be on my list....
Comments
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Good planning...I lost my taste, but I was on steroids to help with nausea and they made me hungrey. So, I ate not for taste but because I had to. I did a lot of ramen noodles and soups, I could taste a little bit of salt so they tasted better and were comforting. I have two small children so I bought easy things my husband could prepare for them in case I was too sick also. Chemo does everyone different and not everything that works for one will work for others. I was just tired a lot and it hit me worse on day 3. You'll need to drink a lot of water to flush everything out. My first round hit me really hard, they ran AC in like 45 mins and I was super sensitive. I had vertigo and couldn't even watch TV. After that I told the nurses and they ran it slower (3-4 hrs) and I used a motion sickness patch behind my ear. Which helped a lot and the other rounds went much easier. Find what works for you and fine-tune it to fit your side-effects. I did have terrible dry mouth, I used Biotene mouthwash to help with that. Good luck and let us know how it goes.
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I liked things that tasted lemony. get water bottle to carry around-and some things to flavor water. things pink/red colored made me feel sick-plus not pretty if they ever have to come up-I didn't throw up btw. I had stash of totally junk food-ding dongs or what ever you call them. had no appetite. so ate what I wanted
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I just had Taxotere last time and going in again this Wednesday, what I stockpiled based on this last experience is Imodium (if you're lucky you won't need it but better safe than sorry), Gatorade to stay hydrated in case you do throw up or get D, crackers. I also got some pain meds from my GP because the Taxotere caused bone pain not sure what you are taking so may be a non-issue. Good luck!
I just wanted to add that it sounds strange but I look forward to my next chemo, then I know there's something in me that's fighting the beast. As long as you think of chemo as the big gun in this fight it makes any SEs seem worth it, in my mind anyways.
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Water bottle...drink as much water as you can....a little lemon sometimes help...I also enjoyed strawberry smoothies....fruit ( granny smith apples, grapes, strawberries, watermelon), potoates, chicken....I couldn't eat anything spicey and I couldn't stand anything with strong smells.....Eat whatever appeals to you....
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Each BC journey is reflective of that person. I developed three wonderful relationships with woman dx at the same time as me. I loved my wig and bought one that made me feel and look like me ( down to the blonde highlights). I wore it all the time and loved that it brought comfort to my kids( they picked it out). My one friend hated wigs and would ride her riding lawn mower bald for all the world to see...I loved her spunk. Another friend went to a total new hair color and style with her wig and loved feeling different. So to each their own. I would say find a wig you feel good and pretty in...but, maybe that's not you!!
I heard about the drug Emend to help with the nauseness of Chemo...I had to request it, but glad I did as I feel it help with handling the Chemo. I also ordered off Amazon Gin-Gins it is a ginger hard candy that helps the metal mouth, mouth sores and your stomach. Agree with drinking lots of water. I didn't do much milk products or meat as this made me feel sicker, but did do a Whey protein powder mix with fruit for the protein. But, again everyone's journey is a bit different so hope some of this helps.
I am a planner and love to create dinners, trips and such for my family...I continued to do so through treatment but with more help from the kids and husband...it gave me something to focus on...I timed the events when I knew I'd be at my best after a treatment but before the next one.
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My oncology office is small, only 4 private rooms. I took things that made me comfortable and relaxed.
My own pillow, shawl (center has heated blankets that my nurse would change every half hour or so), fuzzy slippers, and a sleep mask. I sucked on sour Jolly Ranchers when I couldn't stand the taste change any more.
You will figure out what works for you. I looked like I was moving in each week, but I was always comfortable...
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Jolly Ranchers or other hard candy -- for when they flush the IV which gave me a taste like Windex.
Ginger capsules and carmelized ginger--start taking 2 to 3 days before chemo if doctor permits; this helped me with nausea immensely during A/C
Stool softener of your choice--chemo causes constipation like nobody's business
Claritin--take this and Aleve on the day you get Neulasta; I had no problems whatsoever
Food--no advice here; there were days that I couldn't eat much of anything; I lost 20 lbs. in chemo which is unusual; the steroids did not give me an appetite. I ate a lot of scrambled eggs, my usual favorites like peanut butter, yogurt. -
Hi. I found it best to eat light, crackers, for example, but hydrate well with gatorade or ginger ale. It was not nearly as bad as I thought it would be. Not bad at all, actually, once I figured out that eating light was better than eating whatever, even though I was hungry from the steroids.
Best wishes,
Cindy (IIIa)
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Spicy foods can be rough on your mouth; for instance, eating salsa burned my mouth. Oily foods, such as salad dressing, tasted awful! I ate a lot of oatmeal, cereal, ice cream, soups, and yogurt. Because I kept losing weight (my body trying to fix itself every three weeks, not nausea), I tried to eat more protein. I ate things I don't normally eat, such as fried chicken and Big Macs. Coffee and tea still tasted good to me, and I drank a lot of water.
Hopefor mentioned Emend. That was part of my chemo protocol. I was given Emend and Zofran for nausea, and I wasn't nauseated once, not even a little. However...I do want to warn you about one drug they may give you. It's a steroid called dexamethasone (decadron). I took it two days prior to chemo and then for four days after. It can make you hyperemotional. Some people become paranoid, others get very weepy, irritable, or even violent. If you are having dark thoughts, the drug will make them much worse. Nobody told me about this; I learned about it on the Internet about halfway through chemo. I really thought I was losing my mind, and that scared me more than the cancer! It helped me to know that the drug was causing me to cry uncontrollably, and I was able to tell my friends that it was "that time" of the chemo cycle so they could catch me as I bounced off the walls.
I took a vitamin B complex during chemo to help alleviate the peripheral neuropathy. I still have a little numbness in my left big toe, but I'm only aware of it when I think about it! Stock up on stool softener and if you do experience constipation, start taking the stool softener a day or two before your next chemo so it can head off any problems. In other words, don't wait for the problem to set in and then start taking the softener! You might also want to get some probiotics to help with digestion. Chemo really wiped out my digestive system for a week or so.
I always took a bag of "good luck charms" with me to chemo. These were small items, such as stuffed toys, cards, or jewelry, given to me over time by people who have always been good, positive forces in my life. When I felt scared or sad, I would pull them out of the bag and look at them. It was the next best thing to having those people there in the room with me (my boyfriend was always there, but sometimes I needed to bring out the reinforcements!).
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It's so different for everybody - the nausea part. Mine was awful, and I used the armamentarium of drugs. Don't be afraid to let your doc know right away if you have any awful side effects. If you're lucky, you won't.
I asked my daughter if I could take one of her stuffed animals, and she suggested a huge elephant - larger than an average pillow and very soft like a pillow. Elephant was perfect. I also did what Celtic Spirit did and took "good luck charms": photos of my kids, my little bag of stones from a good friend, some things like that. I made a list of what I would take, so I wouldn't be panicky about forgetting something when it was time to go.
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Books, magazines, laptop...you will probably be there at least 3 hours so take some snacks to get you through too. Anything to make you comfy...pillow, throw. Your oncology nurse will be your best friend and have lots of recommendations up her/his sleeve. Just need to be sure you tell them what kind of problem you are having. Confession: I ate at Mcdonald's after every chemo.
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I bought some comfortable clothes with long sleeves and that covered legs, because you are not supposed to get sun, and also to have something comfortable to wear when you sit there for 3 hours unable to move or go pee (some people move and go to the bathroom, but I was much too afraid to move the arm with the drop, IV-phobia).
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Don't stock up on your most favorite foods, at least till you know if your taste buds are affected. I'm 4 months post chemo, taste has pretty much returned, there are some things I can't even look at, much less eat. McDonalds is one!
My chemo nurse recommended Activa yogurt, I had diarrhea really bad. Supposed to help the good flora in your gut. Can't eat that now either -
Spookies, I took probiotics (acidophilus from CVS or similar, nothing fancy) all through chemo, with onc's blessing, and it really helped both the intestinal issues and the thrush.
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Hi leecy5, just checking to see how everything went with your first chemo.
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It has been rough. I cant seem to turn the corner on the weakness. My bp remains low 90/60 and so i went in today for fluids and iv zofran. If bp not up tomorrow, i will have to go in for more fluids.
I am also having a ton of chest and back pain from the neulasta shot.
I normally run two businesses and have 5 children. My friends call me superwoman. I currently dont have the energy to walk from the car to the chemo clinic without almost passing out.
The dr said they are gonna give me steroids after the next treatment to try to help. -
I second Outfield's suggestion. After the first shot caused me a lot of bone pain, I took Claritin and Aleve starting 12 hours before the Neulasta shot, kept that going twice a day for 7 days, and did not have any bone pain again throughout chemo.
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Leecy, I had some cortisone with all my chemos and with the taxotere I had extra steroids. It can really help. Hope you feel better.
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I had my first chemo session on the 12th. I go back in two weeks (26th). Is it pretty much the same symptoms you have the first time or does it get worse?
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For me, the first was definitely the toughest. Perhaps my body adjusted, and perhaps it was just better management of the symptoms the 2nd time. Any specific symptoms we could perhaps help you with?
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Humanity, for me the SEs varied, but the tiredness became worse gradually.
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