DIEP 2013

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  • MartyJ
    MartyJ Member Posts: 1,859
    edited February 2013

    Blue - I have an LGS (has size zippers), but will be adding an LGS2 for after drain removal at stage 2.  They are the same, but the LGS2 doesn't have zippers.  I also have an LGT (zippers and short legs), but the legs seem to roll up all the time.  Sizing will be the challenge.  

    Nihahi - I am not doing physio, but am trying to do things at home.  Walking 2.5 mi at least 4x per week.  I do a modified push-up off a wall just to get that area moving (seems to be effecting my upper arm more than chest, where the pec crosses onto the arm).  Plank.  BUT, I didn't start doing the weight-bearing strength stuff until 8 weeks post op.  I am a back sleeper with a bad back.  I think I was about 8 weeks out when I was sleeping flat without a problem, unless my back was bothering me.  The boobs have not been a problem.  

  • BleuGirl
    BleuGirl Member Posts: 21
    edited February 2013

    Nihahi - I assume the sternum pain is from where he removed part of my rib to access the mammary vessels. I will ask him at my next visit on Thursday.



    MartyJ - thanks for the marena info. Their website was down yesterday but I will try again today to place an order.



    Fun fact : according to my final pathology report my left boob weighed 2 lbs 15.75 oz and my right boob weighed 2 lbs 13 oz. I was a DD cup size so that equates to almost 6 pounds of boob!!!! Amazing!!!! I told my PS I wanted my new boobs to be a full B/small C. I am definitely bigger than that right now but am hopeful that once the swelling goes away I will be smaller. PS also told me last week he can make changes during stage 2 especially to work on my side boobage which I really want to get rid of.

  • nihahi
    nihahi Member Posts: 3,841
    edited February 2013

    Marty....did you have sternum pain?? I'm kind of hoping that having a stretched out pec muscle gives the docs better access to the mammary vessels, and might eliminate the need to resort to the rib thing? There has got to be SOME benefit of going in stretched out!!!!!

  • MartyJ
    MartyJ Member Posts: 1,859
    edited February 2013

    Nihahi - no sternum pain that I remember. Removing a bit of rib isn't a requirement, but a surgeons preference.



    Blue - I figured my implants weighed about 6 lbs combined, yet no weight loss. Go figure.

  • SheChirple
    SheChirple Member Posts: 954
    edited February 2013

    I"m not posting, but I'm reading.  I'm gald nihahi asked the question about the implant. I, too, am having an implant removed during the DIEP surgery.  Mine has only been in since july, 2012, but I hadn't even thought about it. 

    My surgery is not until the end of May and I can't wait! I don't come here often, as I'm trying to not get myself worked up so far in advance.

    Everyone's postings are encouraging. 

  • faith729
    faith729 Member Posts: 244
    edited February 2013

    Bleugirl! Relieved to see your back and your results came back good.

    Sounds like you were in critical care for a few days was that because of the sleep apnea (extra monitoring) or just your hospitals protocol.?

  • BleuGirl
    BleuGirl Member Posts: 21
    edited February 2013

    It was the PS's protocol. He wanted the flaps checked every hour for good blood flow and the nurses on the regular floors don't have time for that. If there looked like there could be a Problem with the blood flow he would have taken me back into the OR immediately. While I was in the critical care unit I was also continuously monitored with heart leads and the pulse oximeter. I am allergic to morphine, codeine and Demerol so I was given dalauded (sorry I don't know how to spell that) every 2 hours in my IV so having the extra nursing care was great. There were only 2 patients per nurse in the unit I was in. The only problem I had in the CCU is on day 4 my IV failed (it was time too move it really anyway). Since they couldn't use my right arm due to the sentinel node biopsy they could not get another one started in my left arm. 4 different people tried 5 different times to start a new IV but no luck. Even with the help of an ultrasound machine they couldn't get an IV in. They even were using the ultrasound to look in my neck!!!! I was trying not to freak out. I guess the CCU staff is not comfortable with a patient in their unit without IV access. Finally my PS just told them to switch me to oral medication. By this time I was hours past due with my antibiotic and pain meds. I'm not telling you this to scare you but just to be honest and keep it real.

  • faith729
    faith729 Member Posts: 244
    edited February 2013

    I appreciate the keeping it real factor. Because of this site I am so much more comfortable with having my surgery as the date gets closer. All of the post surgery updates are a big comfort.

    This weekend I managed to distract myself by reorganizing cabinets, scrubing the bathroom and putting new grout on the bath tub. Tonight its catching up to me though I am really nervous about whats happening with my liver. Anxiously waiting to hear from my surgeons and feeling like a ticking time bomb !

  • faith729
    faith729 Member Posts: 244
    edited February 2013

    Got word from the surgeons and the green light for surgery :). They said to just follow up with my reg doctors office and they can decide what to do as far as my liver goes. I take that as good news and they arent too worried about it !

  • BleuGirl
    BleuGirl Member Posts: 21
    edited February 2013

    Faith729 that is great news!!



    I had my first physical therapy appt today. She worked on the tightness in my chest and the superficial sensitivity. I definitely feel better but came home and took a 3 hour nap.

  • gotoell
    gotoell Member Posts: 29
    edited February 2013

    Hi Ladies,



    Today is exactly 2 weeks after my diep and I feel really good. I got my last 2 drains out today and boy it makes a huge difference, my mobility is so much better. After the doctor I was able to change into clothes I could go out in and have a nice lunch with my husband....what a treat! I can't emphasize enough that my experience so far has gone so well, no issues at all with the flap it looks great, my stomach looks even better with no bloatiness and the scar looks very even and fine not angry at all, and the pain is becoming a distant memory. Good luck Faith :)

  • nihahi
    nihahi Member Posts: 3,841
    edited February 2013

    Bleugirl and Gotoell...your updates are so reassuring and helpful. Thanks so much for taking the time to let us know how you are doing. 

  • gotoell
    gotoell Member Posts: 29
    edited February 2013

    Nihahi...thanks for your reply :). I know this is such a scary journey and I gained knowledge and comfort from those who went before me on this site. I will continue to post updates and please don't hesitate to ask any questions. Here's to moving on with life!

  • faith729
    faith729 Member Posts: 244
    edited February 2013

    Wow ladies that's great to hear! Each time I see those updates I get a little more excited to "move on with life " :)

  • ketch
    ketch Member Posts: 157
    edited February 2013

    Moving on with my life and not having the reminder each time I look downward is why I am doing the DIEP....plus, my tummy needed some tucking. I'll admit to a bit of vanity, but the main thing is to get as much back to normal as possible!

    Thanks, Bleugirl, for the tip on the backscratcher. I am itchy too and always have mine handy. But, I'd not thought of taking it with me!

  • KiwiMum
    KiwiMum Member Posts: 704
    edited February 2013

    Thanks for posting gotoell and bleugirl. I had my DIEP 4 days ago and am still in hospital. My recon was delayed, my MX was March 2011.



    I'm doing really well, but still have a pain drip.



    What I've disliked the most

    - wearing the surgical tights and leg pumps

    - the heat the room was for the first 2 days to help the flap take, gosh I was hot

    - the hourly checks which mean I got not a lot of sleep in those first 2 days

    - trying to walk with the drains and hunched over like an old lady. I get halfway around the hospital hallway and have to stop due to back ache, not stomach pain.

    - low blood pressure which need a blood transfusion on day 2

    - constant nausea from the meds



    On the positive side

    - 3 of my drains have been removed. I have one remaining in my reconstructed breast. The other lifted breast had the drain out yesterday

    - my flat tummy is going to be awesome. The surgeons also did some lipo on my hips for symmetry - anyone else have that?

    - I now have 2 breasts

    - today I've managed to get myself in and out of bed to use the bathroom

    - today I had a shower and got my hair washed - yay!!



    Standing upright and feeling good seems distant. Posts like yours saying you are great after 2 weeks is amazing.

  • lilyun
    lilyun Member Posts: 54
    edited February 2013

    Just wanted to add to the post-DIEP discussion as I am now 8 weeks out. Tomorrow I am going back to work and I can't wait.I feel like my old self only better. I had a mastectomy 9 years ago with no reconstruction then was diagnosed again this September in the other breast. Had another mastectomy and a bilateral DIEP on 12/12/12. I am loving having two breasts again. I look at the clothing catalogs coming in for spring and summer and have to remind myself that I can by things with spaghetti straps and bathing suits without special pockets. I can drive my son to school in the morning without "strapping on the boob" as my husband called it in case I get stopped or have to get out of the car for some reason. Even better is the tummy tuck that I got and really needed. Two of my 3 children were 9 and one half pounds. I did not have a flat stomach prior to getting pregnant and had had an ovarian cyst (benign) and removal of my right ovary years before. My abdomen always created a problem with clothing. Now it is gone! I go in for my Stage 2 on April 15th. I feel fortunate that I should be done with everything by summer. Wasn't expecting to have breast cancer this year, but I also wasn't expecting to have two breasts and a flat stomach this summer!  I feel good in my new body and feel that I am stronger emotionally for having gone through this experience. I just want to quell any doubts or fears. As everyone says this surgery is so worth it!

  • Janet_M
    Janet_M Member Posts: 1,068
    edited February 2013

    lilyun - 

    Thanks to you and all the other ladies with the positive posts. I'm still waiting for my surgery date - and I'm terrified - but thaks to you gals, there's also a glimmer of excitement. 

    Keep 'em coming! 

    Janet

  • gotoell
    gotoell Member Posts: 29
    edited February 2013

    What a difference the drains make. Two days ago I could only walk the treadmill for about 4 minutes, today I did 15, slow and steady but 15, the only pain was my knees that I think is due to inactivity. So I think doing what you can as soon as you can is important....and it feels good!

  • faith729
    faith729 Member Posts: 244
    edited February 2013

    Lilyun so happy for you! Your results sound great.

    Gotoell sounds like your coming along really well and quickly also!



    Janet M hang in there I'm scheduled for April 1st (yes april fools day ) lol! I was terrified at first also. It came in waves more frequently in the beginning and gradually got better and believe it or not Im actually starting to look forward to it. Will the help of this site Im confident that you'll gain a lot of support and comfort moving forward. I can say for sure that I would not have gotten to this level of comfort without all of this info from these lovely ladies !

  • sbelizabeth
    sbelizabeth Member Posts: 2,889
    edited February 2013

    I see the plastic surgeon next week.  I SO can't wait.

  • nihahi
    nihahi Member Posts: 3,841
    edited February 2013

    sbelizabeth...that is great to hear! It seems so long to wait, then, suddenly it seems like it's right around the corner. Hope it goes well and that you get lots of info, questions answered, and an early surgery date.

  • Janet_M
    Janet_M Member Posts: 1,068
    edited February 2013

    Faith729 - 

    Thank you so much -  I hope to follow in your calm footsteps.

    I feel the same about the support I get from the lovely ladies on this site. (Better than ativan, almost.)

  • BleuGirl
    BleuGirl Member Posts: 21
    edited February 2013

    I am 3 weeks post op tomorrow. My breast drains came out after one week. Under my right breast I have a pea size hole along the suture line that is open that the PS says will close over time. I am still using the ABD pads over each breast because I have so much dying skin. Every day there is always a small amount of fluid on the right pad but not enough to soak through the pad. This morning it was like a dam opened. I had about what I estimate to be at least 50 mL of clear yellow fluid come out. I literally leaned over the sink and it just poured out. There was absolutely no pain involved and no cloudiness to the fluid. Has anyone else experienced this? I wonder if the PT I had 2 days ago and the excercies i have been doing have anything to do with this increased fluid production. What do you guys think? I see the PS tomorrow so will discuss it with him then. I would have already called him if the fluid was cloudy or I had increased pain.

    As an added bonus my Marena girdle arrived today and so far it is more comfortable than the abdominal binders they gave me in the hospital. I did not pay for the expedited shipping, just used the free ground shipping. I ordered it on Monday and received it today, on Wednesday. Marena is in Georgia and I live in Maryland. I'm telling you this to hopefully save some of you the expense of paying for the faster shipping.

  • bdavis
    bdavis Member Posts: 6,201
    edited February 2013

    Bleugirl.. I had that leakage once. I had pulled a hip drain and after sleeping, I awoke to being all wet. Its actually a good thing. Had it not found its way out through the old hole, and the hole had healed, it would have caused a seroma that would need aspirating. My suggestion is to increased compression at the hole to encourage it to dry up.

  • keznick
    keznick Member Posts: 45
    edited February 2013

    So great to hear so many ladies doing well after surgery. I always hate to read about problems as it just stresses me out and makes me worry about more things than I already do (which is too many!). Tomorrow is surgery day for me and I'm so nervous. I have to be there at 7 am and surgery at 9 am, yikes. I just hope everything goes well. Thanks for posting all your updates, it helps to read them.

  • BleuGirl
    BleuGirl Member Posts: 21
    edited February 2013

    Good luck tomorrow keznick. Remember to take solicone ear plugs to get some good sleep once the surgery is over.

  • lilyun
    lilyun Member Posts: 54
    edited February 2013

    Be positive keznick, remember that you chose this surgery because you felt it would be the best for you. Go into surgery with confidence and you will feel self empowered because you made this decision and now you are carrying it out. We'll all be thinking of you tomorrow.

  • gotoell
    gotoell Member Posts: 29
    edited February 2013

    Good luck lilyun! I had another good day drove myself to target and did some shopping...did 20 minutes on treadmill. My only concern is feeling better than I thought I would just over 2 weeks out that I'm think I'm going to go stir crazy. My doctor has me off for 8 weeks which I think is going to be too long but I don't see him again until the 27th to see about going back to work sooner. I was thinking about going back 1/2 days maybe week 5 but do not see him again until week 6.

  • KiwiMum
    KiwiMum Member Posts: 704
    edited February 2013

    Best wishes for your surgery keznick!



    It''s a week since my surgery and I'm going home tomorrow - yay! I'm doing better everyday!

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