Sept 2012 chemo

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  • Hopex3
    Hopex3 Member Posts: 397
    edited February 2013

    Mariposa...two weeks before my surgery, I was mourning my boobs. I would just sit at night and hold them. Sounds weird, huh. I tried not to think about it. Someone on this thread said to me, remember your breasts tried to kill you. I kept remembering that and it helped me realize I should be grateful that it is ok I'm losing them. This is what needs to happen! Now, my new expanders as I've said are not a pretty sight nor are the scars but they will be one day. My PS said he won't be done with me until October. I have seen other people's new breasts and they are beautiful. Yours will be too.



    Faith-focus....Well said. Our scars represent our strengths to battle this war and come out not as victims but as strong head held high warriors!

  • fight4two
    fight4two Member Posts: 146
    edited February 2013

    Neta - I just had a quadrantectomy.  The BS took out a 1/4 of my breast because of the satellite tumors.  Turns out the satellite tumors were just scar tissue (yay!) and that my tumor was only 2cm at the largest part.  The margins she got were very large (4cm!!) PS took the remaining breast tissue to form a cone shaped breast (rather then leaving a gaping 1/4 section missing!) and he also gave me a lift at the same time.  As you can imagine, this breast is a lot smaller and a lot higher than the untouched one and I haven't even had rads yet.

    The PS plan is to later reduce and lift the good breast to match after I have rads.  I may or may not do the surgery depending on if its possible to conceal the mismatch with good bras and padding.  Only a month ago I thought I was getting a lumpectomy for a 1cm tumor and wouldn't have to worry so much about mismatch, so this is still pretty new to me.

    Long answer to your question, but YES, considering it!

  • Neta69
    Neta69 Member Posts: 203
    edited February 2013

    Fair, focus: Thankyou! What you wrote was exactly what I needed to hear today. It really resonated with me!

    Fight4two; That is great news about your surgery/path results! Very happy to hear it. Sounds like we are in very similar situations. I had a lumpectomy but my surgeon said my tissue was so extremely dense that it was hard to tell what was healthy and what wasn't so he took a big wedge out of the upper outside of my breast. He did a good job of putting me back together but the difference between thr breasts is big. I'm like you, considering and a consult can't hurt. Definitely can't face more procedures anytime soon.

    Mariposa thanks for the kind words. At least I have a bit of hair now and I'm glad it's growing in evenly.

    I think it would be strange NOT to mourn the loss of a breast (or both) but I do think it gets easier with time.

    Lots of love to you all. Thanks for being here.

  • Neta69
    Neta69 Member Posts: 203
    edited February 2013

    I meant Faith, focus...

  • jojo2373
    jojo2373 Member Posts: 662
    edited February 2013

    Neta, how do your radiated breast change after treatment? My BS took a 10cm chunk from mine and it is slightly smaller than the good breast now. I am expecting rads will change it further. Love ur new pic!



    Got my Miaderm cream! Feeling so tired, hoping not getting sick. Hope you are all feeling well today!

  • Hopex3
    Hopex3 Member Posts: 397
    edited February 2013

    My left eyebrow has decided to leave town! I haven't had chemo. In 5 weeks. WTH!

    Glad I had bangs put into my wigs as I'm not very good with those pencils.



    Neta...you look so good without a wig. Maybe by summer, I will be confident to go wigless.

  • patriciahurtado
    patriciahurtado Member Posts: 489
    edited February 2013

    Well said faith!!!!!!!!!!!............ we all will ware are badges with pride......and honor.........

  • jojo2373
    jojo2373 Member Posts: 662
    edited February 2013

    Hope, I kept brows and lashes thru chemo then lost all 4 weeks after. I am glad to say now at 8 weeks pfc, I have all new brows/lashes. I have read in other threads that this cycle can repeat several times, ugh.

  • Amy4978
    Amy4978 Member Posts: 473
    edited February 2013

    JoJo.... let me know how the miaderm works for you. If all goes to plan I will be starting rads around the beginning of April.

  • Mariposa123
    Mariposa123 Member Posts: 267
    edited February 2013

    Another cool resource I saw today on the Annie Appleseed site -It is a sheet on natural strategies for reducing the toxicities of cancer treatments.  Some interesting things on radiation.  I will have to talk with doc about them.  http://annieappleseedproject.org/images/HANDOUTNatural_Strategies_to_Reduce_Toxicities.pdf

    Hope the miaderm works!  My parents put some miaderm in my Christmas stocking:-) 

     



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  • Foreverchanged72612
    Foreverchanged72612 Member Posts: 223
    edited February 2013

    Hey everyone. Haven't been on in a couple of days and seem to have missed so much!

    Amy: AMAZING MRI results!! That's great that they do an MRI because now you know going into surgery. My bs doesn't want to do one because he said he doesn't feel anything anymore or, as he calls it, I have a "complete clinical response". So I won't really know if there is any residual cancer until after surgery when the pathology report is back.

    Neta: your hair looks like it's growing back so fast. It looks great. I can't wait for mine to get to that length...I wouldn't wear a wig anymore. To be honest, I mostly wear the wig out because it's warm. My head gets so cold!!

    Englishrose: Yay, Yay, Yay! You're finished! How are you feeling? I heard that radiation is like chemo in that it's cumulative and the fatigue can really creep up on you. Hope you get to rest!!

    Surgery update: I saw my oncologist and he said surgery 4 weeks post chemo would be ideal but March 21 would not be "horrible". The bs said that the reason it's pushed is because I chose to have tissue expanders put in immediately so the ps has to be there meaning the two of them have to coordinate their schedules. So if I want to forego putting in te's I could technically have surgery sooner. If I leave my surgery date on March 21, my MO wants to start me on tamoxifen 3 weeks after my last chemo. I think I might leave my surgery date as is because I want the te's in immediately. And I could have my son's birthday party on the weekend before. He is so excited about it. I think turning 5 is a big one. I remember my older son's 5th party as the first one we invited his friends from school to and for the first time there were parents that I had never met and I was struck by the realization that he was becoming so independent as to be out there meeting kids and becoming friends with them all on his own. 

  • Amy4978
    Amy4978 Member Posts: 473
    edited February 2013

    Forever.. The reason my BS ordered the MRI is because I want a nipple skin sparing mastectomy. My cancer is in my ducts and the original MRI in the beginning showed it pretty close to my nipple so she wanted to check the distance to see if I can keep nips lol

    Since It is not showing at all I am.gonna be pretty clear to her I wanna keep them. She said they still scrap the backs during surgery and send it to pathology and if cancer cells are present

    They taken them but here is my argument... When woman opt for a lumpectomy they dont get the nips scraped so who knows is cancer cells are present. Right? I still have radiation 30 treatments! So I will be demanding to keep my nips! Its my body right? I have had an amazing response to chemo and the MRI proved it.. I may have lost the save the tatas fight but damit the save the nips fight aint over lmao....

  • Foreverchanged72612
    Foreverchanged72612 Member Posts: 223
    edited February 2013

    You are right, Amy! Your body, your choice. "Nip" that argument in the bud!

  • Amy4978
    Amy4978 Member Posts: 473
    edited February 2013

    Nice pun lol....

  • kidsandlabs
    kidsandlabs Member Posts: 138
    edited February 2013

    So a month after chemo, started growing eyebrows and then they just disappeared. One hair at a time. How long does it take to get all these chemicals / drugs out of our system?

  • Hopex3
    Hopex3 Member Posts: 397
    edited February 2013

    Kidsandlabs...I'm a month after chemo and just lost my left eyebrow. I guess that is normal to lose your eyebrows and lashes that long after chemo. The side effects just keep on coming or staying. I still have neuropathy in fingers and toes. I just want it to all go away.

  • Mariposa123
    Mariposa123 Member Posts: 267
    edited February 2013

    I lost half of my left eyebrow and the right super thinned out- but they seem to be growing back... but from what you all are telling me, I shouldn't get too attached.  I still have neuropathy too:-(  I hate it.  It is worst at night.  I also have super bad muscle pain if I have been sitting too long, bloody nose, and a few mouth sores.  I am ready to be done with chemo too!!! 

    Thanks everyone for sharing your feelings about sadness.  It helps to remember that this is all a normal part of this process.  I feel like grieving now and being ready is better than not grieving and having everything hit me all at once a few months down the road.  Anyway, I also love how this group doesn't try to just cheer you up- but gives you a chance to feel what you are feeling without judging.   Thanks ladies:-)

     



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  • Faith-Focus-Finish
    Faith-Focus-Finish Member Posts: 124
    edited February 2013

    Kidsandlabs & Hope - I'm almost 7 weeks PFC and my eyebrows are still trying to hang on!  My left one is almost totally all gone.  My eyelashes are starting to come back and hair is starting to grow.  I have a 10 o'clock shadow now - all dark.  I still have neuropathy in my fingers and my feet look swollen a lot of the time.   I shuffle along when I walk.  Still having issues with nails too.  I want it to all go away too. 

  • kidsandlabs
    kidsandlabs Member Posts: 138
    edited February 2013

    I lost my eyebrows and eyelashes a long time ago. I was so excited when the brows started growing. Then this morning they are gone again. No sign of my eyelashes yet. My head looks like a chia head. A lot of stubbles on the sides and back, few on top. Most of it is grey, I have colored my hair for so long didn't realize how much grey there was.

  • Hopex3
    Hopex3 Member Posts: 397
    edited February 2013

    Kidsandlabs...I've colored my hair for years as well and at first my hair starting coming in all gray and now it is darkening up....thankfully.



    Another thing I've noticed on me is how I have this wrinkly skin at the corners of my mouth. Never had that before. I guess this cancer is going to age my looks as well. Why not, it's taking everything else from me!



    Oh, and I can't seem to see as well. Any of you having that problem? I have reading glasses but its really kinda blurry.



    Ok, enough of that..I'm going to go on a walk. Wish you guys could go with me!!

  • jojo2373
    jojo2373 Member Posts: 662
    edited February 2013

    Hope, I too feel chemo aged my skin but the ladies in the hair thread said its probably more the lack of hormones. But, chemo killed any remaining ovary activity I had so whichever way you look at it, its another SE.

  • Faith-Focus-Finish
    Faith-Focus-Finish Member Posts: 124
    edited February 2013

    Hope & Jojo:  Now that you mention it, my skin is different too.  It doesn't seem as soft as it used to be.  I just returned from a 1 mile walk.  It's beautiful outside!  I wish we lived closer Hope - I'd walk with you!

  • Neta69
    Neta69 Member Posts: 203
    edited February 2013

    Thanks everyone for your kind comments about my hair. It's not much, but it's hair and I'm happy about it. It is very dark though. I used to be blond! I "only" had 4 TC treatments so I think maybe I was the first one of us done with chemo (end of October). Soon you will all catch up and we will all have hair again :)

    I heard your eyebrows and lashes can fall out all at once a few times until their staggered growth cycle is back to normal.

    Jojo, my breast shrunk slightly I think and my skin is still a bit darker too. It is also a slightly different texture. More rubbery somehow. Good luck with your first radiation treatment tomorrow!

  • Amy4978
    Amy4978 Member Posts: 473
    edited February 2013

    Good luck tomorrow Jojo...



    This is my last full week before surgery! I feel like I have so much todo in so little time.... I am also worried my baby girl wont know how to stay off me, she is my shadow and always wants to be by my side. As I write this she is snuggled in right beside me in the recliner.... I did order a drain belt that velcro's around you and comes with enough pockets to hold 4 drains. It was only 26.00 which is a way better price than the camis....



    Hope all of you enjoyed your weekend!

  • Hopex3
    Hopex3 Member Posts: 397
    edited February 2013

    Amy...good idea on the belt. I just ended up pinning the drains to my shirts and took back the cami's. I wish I would have put things I use frequently on lower shelves. I'm constantly asking for help on that.

    We also made a med chart so people knew when to give me my meds. I couldn't have done that for myself for at least four/five days after surgery. I was just too druggy.

    Enjoy that snuggle time. They grow up so fast. I would give anything to go back to those days.

  • Hopex3
    Hopex3 Member Posts: 397
    edited February 2013

    JoJo...good luck tomorrow.

  • Faith-Focus-Finish
    Faith-Focus-Finish Member Posts: 124
    edited February 2013

    Best of luck tomorrow Jojo!

  • Faith-Focus-Finish
    Faith-Focus-Finish Member Posts: 124
    edited February 2013

    Hope - I forgot about the med chart!  Yes, I had one too and it was soooo helpful.  I too was groggy and could not keep up with all the meds I had to take. 

    If you think of it, buy the "grabber" too.  It helps a lot.  I found mine in Office Depot for around $11.  I think they also sell it in the drug store. 

    Have a good night all!

  • Cherioo
    Cherioo Member Posts: 305
    edited February 2013

    Jojo I start rads tomorrow as well. They finished my markings on Thursday and Dr wanted a fresh start for Monday. Mine is at 9.00 every day. Will be thinking of ya sister . I hope all of you had a great weekend. Pretty much relaxed and watched movies with the kids . Just finished watching the super bowl . Great game so happy for the Ravens

  • Mariposa123
    Mariposa123 Member Posts: 267
    edited February 2013

    Good luck with rads tomorrow Jojo and Cherioo!  Can't wait to hear how it went.

     



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