Multifocal Triple Negative

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sheila63
sheila63 Member Posts: 38

Hello Everyone,

This is my first time posting, and I am so thankful for a sight that offers so much support.  I don't feel alone as I travel this journey after reading all the post here from so many survivors. 

Now my question:  Were any of you diagnosed with more than one tumor in the same breast?  My doctor did not seem concerned.  Is this more serious, especially being triple negative?  I trust my doctor, but I would just like your opinions.  Thank You!

Comments

  • Luah
    Luah Member Posts: 1,541
    edited January 2013

    Sheila - yes, I had a 2.5 cm tumour at 11:00 (the lump I initially felt) and another 1.5 cm at 1:00 (found only on an MRI) in my left breast. They were considered close enough for a lumpectomy.

    I don't think I've seen stats on whether TN is more likely to be multifocal than hormone positive BC or not. It is aggressive, so it stands to reason it may grow multiple tumours more readily. Multi focal doesn't seem to be all that common though. 

  • Yayme
    Yayme Member Posts: 107
    edited January 2013

    Hi Sheila,

    I also had mutifocal tumors...2 centimeters apart from each other, and some DCIS to boot... My doc does not seem to be concerned about it, but I think I was more worried if it meant anything more. There are studies that show they do not have an overall bearing on overall outcome....I am also triple negative, had a BMX. There are numerous estrogen positive sisters on this board that are multi focal as well as some triple negative ladies. We're out there...

    Stay well...

    Lisa

  • PeggySull
    PeggySull Member Posts: 686
    edited January 2013

    Hi, Shiela, I had 3 tumors in the one breast, one of which was very difficult to find.



    Because one was so far apart from the other 2, I will have to have a mastectomy after chemo. At first I was devastated but I've come to terms with it.



    Breast doctors, in my opinion, can gloss over small tumors, because perhaps the last patient they saw had a large Stage 4 tumor.



    They tend to forget having breast cancer of any kind is initially terrifying to the person who has it.



    As one of the women said above, I haven't seen any differences in recurrence multifocal vs one tumor. As long as they get good clean margins around ever tumor, that's what's most important.



    You have every right to think through the appt., write down the questions you need answered and ask for a second appointment to get these questions answered. If your doctor is unwilling to do this, then it's maybe time for a second opinion.



    Hope this is helpful.



    Peggy

  • Luah
    Luah Member Posts: 1,541
    edited January 2013

    One thing my BS said was important, in my case anyways, was that she could remove all tissue around the lumps as well as between them, to catch any cells that may be migrating. That sounded like a lot of tissue to me, but I ended up with a cosmetically fine result. Even so, I think this is one of the reasons that surgeons often have to do Mx with multi-focal



















































































































































































































































































































































































































































































































































    . You may want to ask about that, if you/BS are considering Lx.  

  • sheila63
    sheila63 Member Posts: 38
    edited February 2013

    Thank you all so much!

  • TifJ
    TifJ Member Posts: 1,568
    edited February 2013

    Sheila, another multi-focal TN here. I had a 1cm and a .7cm connected by a "bridge" of DCIS. They were at 12:00 and 1:00. My surgeon said she could do a lx, but couldn't guarantee that it would not leave a concave area since the tumors were at the top of breast where there is less fat. I opted for the mx. The pathology from the mx came back stating there was also additional DCIS in the lower outer quadrant as well, so I am happy that I did the mx. Believe me, I would have done the lx if I had not had so much DCIS!

  • kianich
    kianich Member Posts: 5
    edited February 2013

    Hi Sheila,

    This too is my first post.

    In short answer...yes. I have 7 masses in my right breast and 4 in my left breast. I had 3 mammomgrams/sonograms in 18 months and each time my results came back "probably benign" and was told I had fibrocystic breasts. 3 month later, I had a swollen, light red right breast and I was sent for a biopsy and diagnosed with IDC, stage III, grade III, TN. My oncologist said the "mass" is approx. 6-7 cm (not sure how this was determined but pathology report stated) but according to the radiologist reports I have several masses. I asked him about this. He basically told me it's IDC so at this point it doesn't matter if I have 1 or 10, chemo STAT and then surgery. Since I have several masses I will need a mx in the right breast but I have chosen to do a double since there are masses in the left as well.

  • sheila63
    sheila63 Member Posts: 38
    edited February 2013

    Hi Kianich,

    I am so sorry, it appears this cancer likes to multiply in the breast, and both breast at that.  I thought my first diagnosis would be my last, but no it had to show up in the the other one twice.

    Do you have any positve nodes? 

  • Yayme
    Yayme Member Posts: 107
    edited February 2013

    Hi Sheila...



    So sorry you have to go through this twice...but since it came back in the contralateral breast, I was wondering if you were BRCA tested?



    Lisa



  • sheila63
    sheila63 Member Posts: 38
    edited February 2013

    Hi Lisa,

    Yes, I was BRCA tested, and it was negative.  I was a bit surprised when I found this out since I have had other family members to have BC. 

    Sheila   

  • Bethie
    Bethie Member Posts: 5
    edited February 2013

    Hi Sheila, I wish I knew if I had multiple tumors... I have no known primary.... The pathology is assumed breast cancer because I have a 4 cm tumor in my rt axillary lymph node.... Amazing how different the diagnosis can be... But the fears haunt us regardless... Keep thinking positive thoughts!

  • kianich
    kianich Member Posts: 5
    edited February 2013

    Hello again,

    I do have positive nodes but I won't know exactly how many until surgery. I meet with her next week. I'm nervous but so ready to move forward to remove this nasty disease. Like Bethie posted, it's amazing how each different the diagnosis can be because we are all so different. Keep positive thoughts and I wish you lots of love and prayers.

  • Doragirl34
    Doragirl34 Member Posts: 49
    edited February 2013

    I am not TN but ER+. Stage 1, grade 3. My doctor seemed more concerned by the grade rather than the multifocal.

  • Yayme
    Yayme Member Posts: 107
    edited February 2013

    Hi Dora...

    The Grade is always an indicator and director of treatment in most cases especially in all Triple Negative situations as most all TN are high grade due to their biology. The one positive note is that Chemo is effective on high grade cancers.....more so than a slower moving grade 1. That's good you had chemo at your high grade. We're you multifocal as well? Hope you are doing well... :)

    Best regards

    Lisa

  • Bethie
    Bethie Member Posts: 5
    edited February 2013

    Sheila, I was also so thankful to get the negative results for the BRCA tests... I have a first cousin and her daughter that tested positive and a sister who is a 7 year bc survivor ( never got tested). I have 2 daughters so the day I got the results was the happiest since this all began... So relieved they cant get the gene from me!

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