Sept 2012 chemo

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  • Amy4978
    Amy4978 Member Posts: 473
    edited January 2013

    MRI went great as I watched the nurse empty the syringe I fell into complete bliss and said go ahead and push me in lol.... Now as long as the results come back as hoped I will be one happy woman! What ever it was they gave me I had no problems any more..... Next MRI I will request it ahead of time!



    Congrats on those of you finishing chemo and rads... Jealous of the ones finishing rads!



    Keep fighting sisters we have lots to live for!



    Xoxo....

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  • cgesq
    cgesq Member Posts: 319
    edited January 2013

    Mariposa, Your phrase of asking somebody to speak French, when they don't know the language really resonated with me.  My DH is one of those people who just isn't good with words or feelings.  He is great at doing things...he will shop and cook etc, but he is not a talker, nor is he good with words and is incapable of providing emotional support.  I have learned to rely on my close friends and my siblings for that. Before I got to this point, I was very frustrated and angry with him.  However, I realized that it really isn't his fault, he just isn't wired that way.  It would be like asking him to speak French, (or me to be a prima ballerina for that matter!)  I can now appreciate that he is a good person and he means well, and I just look to others to provide what he can't and that has made me a happier person.

     

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  • florbo
    florbo Member Posts: 178
    edited January 2013

    Neta--great tips on rads.  I'm sure I'll be asking about tips again because my memory is just so foggy these days.

    English Rose--congats on finishing rads!

    Timbek--Yay to finishing chemo!  It's time for your POLE DANCE!  Work it, girl!

    Kelley--will pray for good news when you go back to the cardiologist.  So glad to hear you had a wonderful massage.

    Amy--keping you in my prayers about your MRI

    Mariposa--I hope you get some more rest and that your son is better soon.

    Butterfly--I'm hope that your husband will be more helpful and that you will have additional help and support soon.

    Cheerio--I hope your cold is mild.  Have you tried putting some hydrogen peroxide in your ears?  I saw a Dr. Mrecola video on YouTube and did it to my kids and myself when I thought we were coming down with something a few weeks ago.  I think it worked because not one got worse.  If you do it, make sure you warm up the hydrogen peroxide or else you'll be really dizzy.

    Jojo--great news with the eybrows and lashes.  I haven't seen any growth yet.  I lost a few in the shower earlier ;(

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  • Cherioo
    Cherioo Member Posts: 305
    edited January 2013

    Amy , glad you were out for your MRI. Your results will be fine.

    Florbo thanks for the info I will try that .

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  • Hopex3
    Hopex3 Member Posts: 397
    edited January 2013

    Boy, I'm really behind! I'm doing very well. Hoping I get my drains out tomorrow. I get real tired. My sister and I went to grocery store today and it literally wiped me out. My hair grows every day but will still be sporting the Raquel wig for a long while. Still don't have any eyelashes.



    Patricia..I have a great DH as well. Sometimes I don't let him know enough how wonderful he is. We have been married 32 years. I got married when I was 10. Lol!

    I watched Hope Springs today and it taught me that I need to kick it up a notch in my marriage and show my appreciation more....and not by sex either....TMI, I know, not ready for that yet. He did break down awhile ago and cried over me. I've never seen him cry. Guys are not like us. They don't express their feelings well or have friends they can lean on. So this BC thing is hard. Us women are strong. We really are the leaders in our families and out DH's are scared and they don't know how to handle it. I don't think mine would go to a support counseling if there were one. He would say, I don't need that, I'm fine. I don't know what the answer is except maybe open up the communication more.

    Here is another thing I'm struggling with and that is I won't let my DH see my chest as I feel I look horribly mangaled right now. He hasn't asked to see it either. I don't want him to see me as disfigured. This whole thing...BC...each step we go through is so hard.



    JoJo...you are so lucky to be able to grab your hair!!! Yay! What color is it coming in?

    Mine is salt and pepper. I think I will go for the Jamie Curtis look.



    Englishrose and Timbek...congratulations. Finally, we are all getting to the finish line.



    Mariposa...Sorry about your little guy! So scary when they have to go to the emerg. Room so young. But you put on your warrior princess hat and took control!! Hope he is ok now!



    Night ladies,

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  • jojo2373
    jojo2373 Member Posts: 662
    edited January 2013

    Hope - my hair color is so ironic.  I was blonde as a child then it turned to light brown as an adult (I highlighted it to keep it blonder).  Now it is coming in dark brunette (with some grey).  The irony is my mother who was diagnosed with same cancer/same age had dark brunette hair.  I feel like some of her is being reborn with me.

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  • Timbek2
    Timbek2 Member Posts: 204
    edited January 2013

    This is for all my pink sisters!  Kissing CANCER GOODBYE TODAY!  :):)


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  • jojo2373
    jojo2373 Member Posts: 662
    edited January 2013

    OMG Becki that is so awesome and I am in awe!

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  • patriciahurtado
    patriciahurtado Member Posts: 489
    edited January 2013

    Timbek.... Hey yeahhhhhh everybody say hey yeahhhhhhh .... Everybody clap your handssssss clap clap clap clap...... Every one here is almost done with everything .... Yeahhhh I can't wait to be there ............surgery then radiation....

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  • Mariposa123
    Mariposa123 Member Posts: 267
    edited January 2013

    honk honk honk!!!!!!!!!!  Congratulations!!!  Smile

     



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  • Amy4978
    Amy4978 Member Posts: 473
    edited January 2013

    I second that HONK HONK!!!

    My BS called today and said my MRI results are back and they are great... Ive had a complete radiographic response to the chemo and she sees no sign of cancer.... Whooo Hoooo

    and I still have radiation to kill off any cells that may be lurking! So I am feeling damn good today.....

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  • whenlifegivesyoulemons
    whenlifegivesyoulemons Member Posts: 184
    edited January 2013

    CONGRATULATIONS Timbek!

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  • Neta69
    Neta69 Member Posts: 203
    edited January 2013

    Amy and Timbek, Awesome news! Just wonderful! So happy for you both!

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  • Cherioo
    Cherioo Member Posts: 305
    edited January 2013

    Way to go Amy and Timbeck . That is great news

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  • bearcub
    bearcub Member Posts: 485
    edited January 2013

    Timbek congrats on the last chemo, you look like you enjoyed it!!



    Amy the MRI will turn out fine, wonder what was in the syringe? Blissful!



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  • QueenKong
    QueenKong Member Posts: 154
    edited February 2013

    Love the Poster Timbek, I'm kinda jealous as I never go to that last treatment I've done it point so I had no celebration. It's great to see you handle it with piazaz and humor. What's next for you? 

    What's next for everyone.

    After my chemo-interuptus. It's on too radiation treatments and I'm learning new meanings for important words like simulation. I did have a simulation now just waiting for my start date then the count down. It's going to be a hike to get the radiation. Subway and a long walk. I'll get through it. 

    I need to find a support group here. I need something.

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  • jojo2373
    jojo2373 Member Posts: 662
    edited February 2013

    Queen, you got us! I start rads on Monday. I had my simulation on Tuesday.

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  • Timbek2
    Timbek2 Member Posts: 204
    edited February 2013

    Quick question. Did u meet with to to set up plan then go back for simulation?? Exactly what is simulation?? I'd love to know how this works. Not one person honked. .(. But it was still a great day! My dh surprised me by showing up during his lunch. He even brought a card which I love. Now rest. Then rads. Burn baby burn! Lol



    The nurses loved my outfit and gave me a certificate of graduation. Heart rate 102. Little bit hyper today. :-)

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  • jojo2373
    jojo2373 Member Posts: 662
    edited February 2013

    Becki, I will elaborate as I understand. Please chime in other rad experts! The simulation is the planning session. I met with my RO for a consult then had simulation. I think normally this is 2 appts, but they were kind enough to do both for me at same visit. I was in a CT like machine were they took pics which will be used to calculate the radiation. I got some markings done with the rest done on Monday. My RO will review all this again prior to my first treatment on Monday. The RO team is busy now planning my treatments based on the info from the simulation. Ready to bring the heat on to those cells!

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  • QueenKong
    QueenKong Member Posts: 154
    edited February 2013

    *HONK*

    I do have you all!  ~GROUP HUG~  <---I don't do these often so yeah!

    The simulation is where they set you up for rads using CAT scan machine and beams. They also make a mold that is just for you so you are in the same position each time. I took a pic of the mold because I was curious and a few other things that I will put up. They also gave me tattoos. I think 5 total and wrote all over me with markers and glued things on me. It's important that we be perfectly aligned the same for each treatment. Like jojo says, they do the simulation and then everything is sent off to the team and pysicists to finalize. You do a run through the day before you start from what I understand.

    A bunch of other stuff, like I have to stop taking vitamins til after the rads. 

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  • Faith-Focus-Finish
    Faith-Focus-Finish Member Posts: 124
    edited February 2013

    Hope-It seems like my hair growth is similiar to Jojo's.  As a child, I was a towhead.  As I got older, I was a honey blonde, then dirty blonde.  That is when I started to dye it (to be a bit more blonde).  Now, it is coming in dark brown.  There are some light areas, but there isn't enough to tell if it is grey or blonde.  It's probably grey. 

    I was sooooo nervous about my DH seeing me after my MX.  I was afraid of his reaction.  He knew how vulnerable I was; he was so kind and caring with me.  We have shared everything else; I am glad I was able to share that with him too. 

    Jojo-What a special thought about your mother being reborn with you.....

    Timbek2-Love the sign and the pic!!!!  CONGRATS!!!!  HONK!!   : )))  We're honking for you!

    Amy-That is just so awesome.  It is a great day! 

    I am reading about everyone moving onto rads ... even more ammunition to keep the bad cells away!  I am not a candidate for rads or tamoxifen.  Just continuing to pray that surgery and chemo took care of it all for me ...  I wish all of you well!

    Hugs : )))


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  • QueenKong
    QueenKong Member Posts: 154
    edited February 2013

    I wonder why no rads Faith?

    I'm think about getting this bit of dark hair coming in dyed blonde. Too weird? or have the sides sheared while the top grows. I don't know....I like bald but not the short hair. 

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  • Faith-Focus-Finish
    Faith-Focus-Finish Member Posts: 124
    edited February 2013

    My MO and RO reviewed everything several times.  They kept insisting that I did not need it.  I asked them to double check several times and I always received the same answer - I did not need it.  I too am classified as TNBC.  I see MO again next month.  Even though she's probably sick of me asking that question, I am going to ask again. 

    Now, my focus has been with PS - it looks like my surgery will be at end of March or early April (tissue expander swap).  It's just so strange ... I was on such a rigid schedule and then for it to just stop ... it's a strange feeling.  Feel a bit lost I guess.  Is it really over????

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  • QueenKong
    QueenKong Member Posts: 154
    edited February 2013

    Faith - I've heard from many that when all treatments end that it's important to find support of other surviviors for many because of issues we face. And don't be afraid to ask again. You might even bring in some studies to back up your concerns or seek a second opinion. 

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  • Amy4978
    Amy4978 Member Posts: 473
    edited February 2013

    Queenkong... I agree with jojo, you have us!

    Next for me is surgery feb 13th... Coming fast and kinda nerve wracking! I hate short too... Bald was easy, someone else on the thread said they feel more like a victim now that their hair is growing back and I see why they said it.... Im happy its growing back but its just odd being short and dumb...

    I want my long hair back..

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  • Faith-Focus-Finish
    Faith-Focus-Finish Member Posts: 124
    edited February 2013

    Queen - Thanks! I definitely will ask again.  I haven't gone to a group, but have been speaking with a few ladies locally that have been through this as well.  It has been very helpful.

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  • Hopex3
    Hopex3 Member Posts: 397
    edited February 2013

    Amy..Congratulations on a clear MRI..I know you must be so relieved.

    Timbek...Honk! Beep! Honk! Hip Hip Hooray...No more cancer any day!!



    Faith..I'm not having rads either. They tell me since I had a BMX, I don't need the rads.

    Did your expanders feel strange? I feel like I have a band across my chest. It's not tight but just an almost numbing feel. I don't like it. I'm wondering when it will feel more normal. Or does that not happen until after the exchange.



    JoJo...Awww, love that about your mom! You said your mom had the same cancer at the same age as you. My sister had my same cancer at my age as well. Strange!



    Nighty nite..watching Netflix movies constantly. What else is there to do? Can't use my arms too much...oh, but I can eat!

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  • Cherioo
    Cherioo Member Posts: 305
    edited February 2013

    Amy, you are going to breeze through surgery . You are prepared and ready.

    I feel so blessed that we all have been able to go through this with each other. Look how far we have all come. Once we are all finished we our treatments we need to defiantly all have a girls weekend .



    Has anyone heard from Cindy ?

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  • Amy4978
    Amy4978 Member Posts: 473
    edited February 2013

    Cherioo... Thanks ! I actually do feel prepared I did all the shopping I need to do and have my ducks in a row... Im a huge planner. One thing I have learned to hate from cancer is the anxiety anticipation syndrome.... Sucks! I know its just fear of the unknown but still cant shake it. I told my DH the other day I just want the day to get here so I can relax...



    We are all making huge strides its truly amazing.... We kick ass every last one of us! Much love to my sisters....

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  • twinsplus1
    twinsplus1 Member Posts: 43
    edited February 2013

    Timbek: HONK HONK!!!!

    Amy: AWESOME NEWS, GIRLFRIEND!!!

    XOXO to all

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