January 2013 chemo group

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  • Rhonda2
    Rhonda2 Member Posts: 133
    edited January 2013

    On top of having all the wonderful SE's, I started my period this morning! Yuck!

  • Anonymous
    Anonymous Member Posts: 1,376
    edited January 2013

    Completely made DH feel guilty this morning. I am not a crier, so when I do I mean business. He hasn't taken time off work to go with me to treatments, but also because my GF has a lot of vacation time to use and is taking me to treatment. He was off during surgery and so has had to build his time back up. Anyway, I have tx on V-day and the following day is my non-birthday (because I'm not having this big birthday this year and putting it off for a year when I can actually celebrate). I asked him to take that day off and take me to tx. He calls this morning to say someone already put in for the day off and he won't be able to do it. I know he felt bad and I just started bawling. It just isn't fair. I ask for one thing, and during such a time and we get screwed. Normally I would suck it up and say that's fine there is nothing he can do, but I'm sick of sucking it up. I'm sucking it up to go to work, and sucking it up to keep a postitive attitude about loosing everything womanly on my body, and sucking it up to exercise, and keep somewhat of an otherwise normal life outside of the rest of this shit! I just can't suck this one up. Seriously . . . I have f#cking chemo on Valentine's day. Need I say any more?!? I always get screwed as it is because my b-day is the following day, so I only get one celebration and shorted on the other.

  • Colleenkelly
    Colleenkelly Member Posts: 99
    edited January 2013

    So sorry skimommi. Hugs! Maybe something will change and he will be able to get the time off. I hope so. Take care.

  • Colleenkelly
    Colleenkelly Member Posts: 99
    edited January 2013

    So I just wanted to let you all know that my Dr. Has me taking claritin once a day and aleve twice a day for the neulasta. Also they gave me 4mg instead of 6 because they said that usually the 4 works just as well but lowers the chance of the nasty side effects. So I am really tired and a bit foggy two days after treatment. Not nauseated. How long should I expect to feel this way and what else is probably coming my way. I get treatments every two weeks so I don't think I will be getting much relief in between. Also I only get the steroids in my IV right before chemo. I don't have to take any at home.

  • carlads
    carlads Member Posts: 241
    edited January 2013

    Skimommi, I'm so sorry!  I would be crying too and I like you am not a cryer.  My birthday is the 18th and my youngest son's 16th birthday is the 11th, I feel a little lucky because I should be feeling better by his birthday and good for mine..  Next year will be much better.. 

    Loading up today on my steroid's for the 2nd treatment tomorrow.  They are actually having me take my Claritin one day early and 5 days after  to try and prevent the headache that they believe was caused by the injection..  Infusions aren't so bad it's just waiting for the other shoe to drop as far as SE's. 

    Sheryl, hope yours go well tomorrow and anyone else who will be joining us!

    We have this girls!!     

    http://www.facebook.com/#!/photo.php?fbid=483452608358129&set=a.455803391123051.91588.451108421592548&type=1&theater

  • Colleenkelly
    Colleenkelly Member Posts: 99
    edited January 2013

    Skimommi and carlads, my birthday is th 17th. That is kind of strange. Do we have anyone here who's birthday is the 16 th?

  • LeeA
    LeeA Member Posts: 1,660
    edited January 2013

    Good morning, ladies!  This thread has provided me with my first laugh out louds of the day, so for that, I am grateful!  Cancer will not steal my joy, nor will that lady who cut right in front of us in the dark on the outdoor track last night and almost knocked us over as she walked to her car.  There will be no joy stealing.  Thank you very much, Joel Osteen.  

    Never, EVER did I think the day would come when I would watch a television evangelist - much in the way my old grandma would do back in the day.  This new normal has taken on such a surreal twist that I can't even begin to wrap my brain around it.  My oncologist is saying words like "head of the penis" and sending me home with a tube of medical lubricant and I'm watching a television evangelist.  

    I'm suddenly reminded of the lyrics from the Talking Heads song: 

    And you may ask yourself - Well...How did I get here...And you may ask yourself - How do I work this?

    ---

    Sheryl, yes, yes, yes.  Re: matching up righty with lefty (or lefty up with righty) - it was discussed at first but then the thought was that my tumor was too large but in reality, it was about a centimeter smaller at pathology and much closer to the original biopsy report size.  I just didn't see how they could ever get the two looking right since they looked so saggy (sorry, but they were) to begin with!  On the other hand, who knows how these smooshed hamburger buns will turn out.  Right now, my port sticks out about as far as my pseudo-breasts do so there's that.  

    bcfree2013 - I am so, so glad you're feeling less scared this week.  Years ago I read one of those self-help books called Feel the Fear and Do It Anyway.  It was all easier to put into practice back then when I was younger and not looking down the barrel of the cancer gun.  I tend to get frozen by fear quite often so all this mastectomy/chemo/possible rads stuff has really left me in deer in the headlights mode but reading the posts here since early fall have left me feeling less alone and frightened.  There truly is strength in numbers!

    hope49, happy to hear you can forego the $9,000 shot from hell!  That's a nice vacation - not a shot!  I had no idea what the going rate for these things really was when the nurse left the little package on the chair arm next to me to "warm up."  

    skimommi, Yes, wizened old crack monkey does not look amused.  And yes, I envy him his hair length.  On a more serious note, I'm sorry you had a rough morning.  Good old cancer is full of all kinds of crappy surprises that mess with our heads and our calendars.  I'm hoping as well that your husband can get someone to switch days off with him.  

    3littleangels, okay, this was my big guffaw moment: "his only thrill is going to be going to the plastic surgeon's apointment and getting to feel the implant options!" LOLOL!  I would call it a cheap thrill but hey, we all know there's nothing cheap about anything that happens at the plastic surgeon's office (or anywhere else along this roller coaster ride).  

    skimommi (again), reading your paragraph about the greatest sex ever I feel compelled to do one of those stereotypical psychologist's poses (chin in hand, pipe, etc.) and say "please, go on."  But, I won't!  But I get the picture.  When and if your oncologist gives you the sex talk just wave your hand in the air and say "hey, we got this, 'k?"  And you will once again.  If for no other reason than what my onc says "if you don't use it, you lose it" (great, where was all the concern over my atrophying vagina when my husband was in the hospital for over a month in 2007 and ill for several more months well into 2008??).  I'm kidding, of course.  All of our parts made it through just fine and he was pretty darn sick (had to relearn to walk again) so I'm thinking that all will be normal once again.  

    Jubby, Jubby Jubby... poopy in the tubby?  Well, I'm going to have to bring this to an end on that one.  I think your oncologist makes a fascinating point: younger women/stronger immune systems.  You go, you warrior of all things that freak me out!  I've said it countless times before but those of you who are either working throughout this and/or have children still at home have my utmost respect.  Everyone here has my utmost respect and knowing that you all can do it helps assure me that I can do it, too.  

    Have a great day, everyone.  Let the side effects be minimal or non-existent.  I'm off to see the wizard of oncology.   

  • hope49
    hope49 Member Posts: 370
    edited January 2013

    LeeA - LOL, I can't believe your onc provides sex training, that's a new one!  Be sure to check your bills, probably a charge for it as a 'relationship consultation' or something.  Now that my MO says I don't have to get the Neulasta shot, of couse I am second guessing...I'm going to see what my counts look like tomorrow when I go for treatment and decide then.  Also, right there with you on Joel Osteen - he's so great!  You should check out his book 'Every Day a Friday' - I loved it and find myself referring back to things I highlighted when I start to lose faith.

    skmommi, sorry your day is off to such a rough start...(hugs) to you!  Bummer that your DH can't get that day off...no chance of FMLA?  That's what my husband did, so now when he needs time to be with me, he has it all 'legally' approved and can't be turned down.  As for the sex, bummer on that, too...but I know you will get back to that great place again!  Hey, we have to be able to get some advantage from our 'brazilians' at some point, right?  I can't even think about that department right now...not that I don't have the urge, but I am paranoid of the germs.  So it's a kiss on the head and lots of hugs until I feel I can share body parts again.  Speaking of body parts I was planning to keep my new boobs pretty much the same size as the old ones which is not very big, but I liked them...now I'm thinking I should go slightly bigger so my husbad gets a little something out of the deal!  Is that crazy???  

    Rhonda...bummer about getting your period...I haven't seen mine since surgery, not sure what that means, but I'm not complaining...just not sure what I'd do about birth control right now, too much to figure out, another reason sex is off the table! MY DH said he would get a vasectomy but we'll see what happens with hormone therapy before I send him off to get fixed :)

    italianflamingo...I'm with the others on the cravings (for me Mexican food) and having to break our old healthy habits...I have given myself permission to just eat what appeals to me during this time and hope the chemo knocks out any troublemakers that may have liked sugar or meat, etc.  What I did find was a good intermediate solution was to open a can of Campbells Chunky Soup which is very thick, and add steamed veggies then pour it over multigrain noodles.  It was really good and creamy and yet still squeezed in some veg, plus it boosted my calories and protein which was hard to keep up at times, same thing with mac and cheese, pop in some tomatoes or broccoli or whatever and it's a meal!

    Well, back to hydrating and peeing now as I prepare for round 2 tomorrow!

  • InspiredbyDolce
    InspiredbyDolce Member Posts: 1,181
    edited April 2014

    Hi Everybody,

    Question for all of you:

    I have scar tissue at base of right implant (not visible).  All doctors on my medical team said it was "probably scar tissue".  But not happy with the "probably" part, I had an us and mammo in October.  The Radiologist said, it was definitely not cancer, but looked like fat to him.  He said to return in 6 months.  However, I decided to go back to my PS and ask him again.  He felt it again, and said it was scar tissue, but knowing I wouldn't rest, he said the only way to know 100% was to have an MRI. (Background is when I had the tissue exchanger trade out surgery, he had to scoop a little more at the base of the right breast, to make sure my right implant lined up perfectly, and that is when the scar tissue was created. But I like things nice and tidy, so I needed a more formal answer.

    So I had the MRI last week, and when I called in today for the results, they said "the doctor said it was fine".  I said:  "is fine, normal?" .. and then she said "yes, normal".  But then she told me the doc said for me to come in for my appointment in 4 months.  

    My question is this:  Would you be concerned over the words "fine" or am I just overanalyzing a subtlety in the way each of us speaks.  Just like my PS said my treatment was adequate, and I sure hope that is his way of saying appropriate.  Of course, my Oncologist who carries the most weight in regards to treatment decisions, said I was treated aggressively).  

    Back to the question .... they did an enhanced MRI.  They did the standard one, and at the same time they did a 2nd type, which is more definitive, and was developed to properly discern questionable things, to lessen people having unnecessary biopsies.  It's called Diffusion MRI, and Diffusion MRIs have a track record of more accurately discerning tumors as being cancerous, than in standard MRIs which did not reveal concern, in 25% more patients, which has led to earlier detection.  So I do feel like the got a real clear picture of everything.

    Thanks for all the opinions - I appreciate it - have a great day!

    - post-mastectomy scar

  • Yayme
    Yayme Member Posts: 107
    edited January 2013

    Hi Deb...

    So ironic....I am kinda still going through my little lumps trauma....I go back in 3 weeks and have another u/s after my biopsy showed lipoma...then MRI later on....ugh

    Anyway...I would go to the imaging center and request a copy of the written report so you can see it exactly as they reported it and can also give you time to ask appropriate questions if you need some more clarification. I have done this. I think like you, and have been accused of thinking too much as well...

    Let me know how it turns out...

    Lisa

  • InspiredbyDolce
    InspiredbyDolce Member Posts: 1,181
    edited January 2013

    Hi - I requested today, that the report be sent to both my Onc and PS - and the PS' office has been waiting with me all this week, so they know how particular I am.  They said if they are allowed, they will have the nurse call me today, and if not, they will also see if the PS can call me tomorrow. Also, in the meantime, the breast center is mailing me a copy today, so I should get that in the next day or two.

  • smethot
    smethot Member Posts: 161
    edited January 2013

    ok...the results are in and i am on Team AC-T.  4 rounds of AC every two weeks and then 4 rounds of T every two weeks.  MO wants to start asap- says i'm healing just fine and why wait?  Getting a pic instead of a port and can start as early as late next week, pendng pic placement and 2 more f-ing tests- spleen ultrasound (CAT found a spleen blob- both docs say its nothing but MO wants to rule it out & take it off the table) and a pelvic to ensure i'm clear of ovarian issues (mostly at my insistance) since they're telling me there's a remote possibility i could be BRCA positive (getting a freaking test for THAT too!).  No receptor info back yet but MO says ER & PR don't change chemo treatment and if i'm HER2 postitive, it gets added into the T, not the AC so we have time.  OH!  MRI isn't back yet but bonescan came back clear- whoop-whoop! 

    So my "scanxiety" is lessened but we now have to wait on more test results...have i mentioned i hate waiting for the f-ing test results?  The docs seem to think the rest if the tests are pretty perfunctory so that's helping but it just comes down to ETL- extreme test loathing.  Smile  Keep your fingers crossed for me, ladies.

    Can anyone on Team AC-T chime in on my chemo regimen, pls?  4 rounds of each every 2 weeks...normal?  Abnormal?  Weird?  typical?  Give me the straight dope, teammates.  Doc is insistant on Neulesta (or nupogen) w/every treatment (and had NO idea about the claritin deal- guess we don't do that in Canada???  He said go ahead...its not contraindicated), got my pharma list of anti-nauseants and other assorted crap but overall, pretty low-key.  Watch my temps, said i can eat yoghurt, may be tired, work if you want...seemed to think i would do just fine.  Guess i look mean and tough...all 5'2" and 127 lbs of me!   DEATH TO CELLULAR INSURGENTS UPCOMING!!!

  • Anonymous
    Anonymous Member Posts: 1,376
    edited January 2013

    gr8flmama~Did you know that Lounge Lizards are truck stop prostitutes? Lol



    LeeA~I love your posts. You always make me laugh.



  • SherylB
    SherylB Member Posts: 450
    edited January 2013

    Hi all,

    I am going to post this message on many of the threads please help me share it as I found out about it here.

    www.GoodWishesScarves.org

    They will send a free head wrap/scarf. It took about 4 weeks but the wait was well worth it. I like the one they sent me better than any others I have. They even have a little fairy with wand in crystals on the edge of one of the tails. Too cute! They do accept donations too of course but it is absolutely free even the S/H is paid by them and they send a best wishes card signed by the staff. Just overwhelmingly generous and compassionate.

    Thanks, Sheryl

  • VirginiaJ
    VirginiaJ Member Posts: 13
    edited January 2013

    Have been feeling awful since Sunday and finally started feeling better yesterday.  Still not going to work because my WBC is very low.  I am hopeful that the Neulasta shot will kick in and my WBC will be up by next week.

    Skimommi -- like you, I have chemo on Valentine's Day -- that really does suck!

    LeaA & Bryona -- let the pun wars begin -- I love silly puns.

    SherylB -- your story about the MRI and your port had me laughing so far -- I know that it wasn't funny at the time but you told it so well.

    Gr8flmama21 -- the image of your cat dragging your wig around the house also tickled my funny bone -- I needed some laughter after a few rough days.

    Smethot & LeaA -- I have had skin problems since I was a teenager.  I remember being told that acne will go away when you get older -- of course, it never did.  Now I have rosacea.  I can deal with losing my breast and my hair, but I'm going to have trouble dealing with a major skin outbreak if it occurs.  I know "vanity of vanities" -- just can't help myself.

    Hope everyone is having a great day.

  • Colleenkelly
    Colleenkelly Member Posts: 99
    edited January 2013

    Smethot, I am on same regimen. Think it is normal depending on who your doc is. I am stage IIIA with one positive node. My tumor was hormone positive but her2 negative. All my scans were clear. I am 43 years old. Not sure if age matters or not. I hope this helps. Have a great day! Crossing my fingers that all your tests come out good. :)

  • Amrdbit
    Amrdbit Member Posts: 114
    edited January 2013

    Hey Ladies,

    As I type this I'm sitting at the bar getting my 2nd TC cocktail with my cold caps on my head. My husband and best friend (who flew in from Cap Cod to keep me company for several days are here with me). Youngest teenage son just texted me from school to tell me that he loves me and to ask how it was going. Bummed I'm going to Miss his cross country meet this afternoon, but he knows in there in spirit.

    Hope everyone is having a wonderful and sunshiny day! Hugs to y'all, Deb

  • Anonymous
    Anonymous Member Posts: 1,376
    edited January 2013

    InspiredbyDolce I probably wouldn't be concerned. The docs are defintely going to be on the look out for anything knowing your history.

    Amrdbit, enjoy your visit with your CC friend.

    Colleenkelly you may feel foggy for a couple of days. With this being your first round seems like everyone says the SE's wear off quickly. Are you feeling better, other than the fogginess?

    LeeA you mentioned having had boxers in the past. We have a boxer. Absolutely the best breed in the world (there goes my biased opinions again). Thought you all would get a laugh outta this video (was online, not our doggie): http://yourdogdaily.com/049boxer-dog-singing-with-a-piano/

    An update to the ladies not on FB, Skigirl has been inebriated by the germ factory and hasn't been feeling well. 

    VirginiaJ hope you get to feeling better. Have your son or a DF make you some wholesome chicken soup. You've done your part taking care of others, now let them care for you a little.

  • LynneNJ
    LynneNJ Member Posts: 1
    edited January 2013

    Hi all, New to board, not breast cancer!  Had 1st AC on 1/17/2013, go for 2nd tomorrow.  Hair just starting to "thin", getting buzzed Sat when I get my wig (ready, it just needs proper fitting wiyhout my long hair-yup, little freaked out, haven't had short hair since 8th grade-LONG AGO!).  Have chronic lyme with severe vertigo (2 brain surgeries didn't help, that's why worried over hair-nasty scars on head and behind ear down neck). 

    SKIMOMMI- I have my 3rd "dose" also scheduled for Valentine's Day and hopefully hubby's schedule will allow him to come. Went to first, mom & dad tomorrow, but hubby has been at every appointment, can't complain.

    Didn't even want to go through mastectomy since already disabled w/vertigo (use cain & hanging on to someone or rollator-but always vear left, amuses me, scares whoever I'm with!).  All nurses, doc's tell you it's your decision, but they don't know the "browbeating" by family and friends!

    Glad I decided to join this site. Best of luck to all-speedy, strong recovery.

  • bcfree2013
    bcfree2013 Member Posts: 94
    edited January 2013

    Smethot, I am also doing AC every two weeks for two months and then T every week for twelve weeks. I think this is very standard treatment for people on east coast.

  • Oliverhog
    Oliverhog Member Posts: 74
    edited January 2013

    Skimommi, I'm so sorry you've been so strong throughout all this and have to face that on Valentine's and your birthday.  It does suck.  Love you, Sister!

    Tomorrow is TC #2.  I started my premeds and am starting to feel the anxiety building up.  Yuckity yuck.  

    The orthopedic surgeon was satisfied with the results of the closed reduction, so need to put pins and screws and wires in.  Pey will go in for his permanent cast on Monday after all the swelling has gone down and he'll get some films taken three weeks later to see how the fractures are healing and we'll take it from there.

  • Watta
    Watta Member Posts: 22
    edited January 2013

    Got home from the bar about 3....immediately fell asleep. Just woke up to pee, drink, and eat. DH is working late, should be home soon, then tv for a while. Steroids still working great, no nausea. Tomorrow will tell.....



    My MO says radiation will reduce my recurrence rate by 2 more percent, that's down to 9% now. I read that exercise can reduce it by around 40%, So planning on making exercise a part of life. And I have my herbal supplements, yay. Life is good!



    Hoping everyone minimal SE's and effective treatments 👍

  • ziffy321
    ziffy321 Member Posts: 41
    edited January 2013

    Shannon, I can't stand Dr. Oz either, and would never trust his advice regarding BC.  He lost me when he came out in favor of HGH (human growth hormone) injections for weight loss.  Even worse are the "doctors" on the daily TV show of the same name, who tout the benefits of testosterone replacement for both men and women as if they were advertising it.  (Which I suppose they are!)

  • ziffy321
    ziffy321 Member Posts: 41
    edited January 2013

    It's started!  My hair started to come out yesterday, two weeks to the day after my first treatment.  (HOW does the hair know what day it is????)  I first noticed when I went to the bathroom and there seemed to be a lot of hairs in my panties.  A gay friend from my church has offered to buzz me.  I know he would make me laugh, which would help me transition to being bald.  But I want to hang onto my hair for a little while longer, at least!

  • gr8flmama21
    gr8flmama21 Member Posts: 31
    edited January 2013

    Bahaha i had NO idea i was calling y'all truck stop prostitutes! Lmao. My apologies. But a good day since i learned something new today😁

  • MandyNJ
    MandyNJ Member Posts: 73
    edited January 2013

    Smethot - I am going to do the same treatment. My oncologist said it is like an east coast west coast thing. For example, the east coast - or at leat the NYC area - follows Sloan Kettering protocol and ac-t is what we get here. She said they are finally doing trials for ac-t up against tac. Her opinion is that one will come out ever so slightly ahead but equal enough. she gave me the choice and her opinion. I went with her opinion.

  • gr8flmama21
    gr8flmama21 Member Posts: 31
    edited January 2013

    Oliverhog-glad orthoped happy-your poor lil guy. You look fab too-rock it sister! Good luck tomorrow.

    Ziffy-my mind was right in the gutter when i read about your offer. Had to read that twice. Must've been one hell of a cocktail today cause i am loopy!

    Skimommi hugs. Your day sounds like my weekend was. Hope it passes soon.

    Watta-glad you are home and feeling ok. Fingers crossed minimal side effects.

  • hope49
    hope49 Member Posts: 370
    edited January 2013

    Oliverhog, glad it went well for your son. I am praying you have an easy time tomorrow!



    Mandy, my onc told me the same thing about east/west coast...I'm in the middle, so we settled on TC...who knows?



    Watta and the rest of the Wed gang, rest easy with minimal SEs.



    Here's to round 2 tomorrow!

  • bcfree2013
    bcfree2013 Member Posts: 94
    edited January 2013

    Hi ladies, just a couple of questions:

    (1) how much water do we need to drink everyday?

    (2) can we floss our teeth during chemo?

    (3) are you able to cook simple meals during chemo?

    Thank you!

  • InspiredbyDolce
    InspiredbyDolce Member Posts: 1,181
    edited April 2014

    Thank you Lelela and Skimommi - I appreciate the help!!

    Ziffy - my hair started coming out on Valentine's Day, exactly on Day 12 also!

    CollenKelly - We bought a puzzle to keep my mind active, a new one for each treatment.  Jigsaw puzzles with lots of cats on them.  Each was 24x36.  It really helped.  And we watched Wheel of Fortune.  LOL

    To everyone struggling with treatment, what I did was just kept reminding myself, 1 more down, 1 less to go.  Maybe that will help a little.

    Hope everyone is starting to feel a little better and doing better with SE.

    Remember to do something for yourself everyone.  Take this time to get healthy and try and put yourself first for once. I know you all know what I'm talking about.  

    I say we all make a pact to treat ourselves to something on Friday, and then we should post what our treat was!  By the way, if you go for pedicures, don't shave your legs for 24 hours prior.  The little nicks could let germs in.  Wait 24 hours after shaving before having a pedicure done.

    Hugs to you all!

    - chemo tip

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