INSURANCE no longer pays for BMX? *when BC just in 1breast

chasingdreams
chasingdreams Member Posts: 23

Hi all,

My mother met with her local surgeon, i listened via speaker phone, and an advocate was with her. It was a great consultation and was done more for peace of mind, as much as anything else.

Prior to Surgical Consult, she was thinking bilat masectomy BMX-- however the Dr informed her that NO insur incl Medicare, covers the cost of moving the unaffected breast-- even when the Dx is ILC :(

The Dr said even if he RECommended the bilateral MX that Insur wouldn't cover it. He then said it is only a 1-2%chance that her ILC would recur in the 2nd breast!!!

**isn't that % low???

and WHO wants to be that person? and then head back for another MX? I am not being negative, I believe in positivity, but it makes perfect sense in my mind, for her at her age76 to remove both breasts, simply because she is a worrier and worrying constantly about a recurrance can affect quality of life in itself.

She was going to skip Reconstruction, (she's 76), but interesting that Insur would PAY for Plastic Surgery costs! Including the cost to "match breasts"!!! And according to her Dr, the actual MX is about 1/10th cost of the Plastic Surgery to repair!

I can't find anything on Medicare website to confirm this. Planning to call. But so bummed that BMX may not be covered!

Now, I am thinking perhaps she should have a tiny sizeA breast implant placed in MXside, which would mean having to REMOVE most of her other breast~ as well as giving it a lift- for them to "match"..... she would still have some breast and therefore some worry, but maybe less?

The Surg did recommend MRIs for her in future instead of mams.

ok, anyone else consider this kind of thing??

My other thought is YES she should pay out of pocket for the 2nd breast to be removed. as prophylaxis....

thank U to all

Comments

  • hightide1
    hightide1 Member Posts: 244
    edited January 2013

    Talk with your insurance company directly. My BMX was covered by BC/BS with no arguments.

    She is 76 and surgery and anesthesia are major undertakings. She should not have to endure this twice.

    MRIs are rational since she will not have breast tissue for a mammogram if she has BMX. They will provide more detail on the remaining breast if she opts to keep one breast.

    You are right. No one wants to be in the percentage of cancer showing up in the remaining breast. That was my concern and I have not regretted the decision.

    I am so sorry that you both have to be going through this.

    It is wonderful that you are acting as her advocate.

    Ask questions , take notes and get second opinions if you are not comfortable with the answers.

    Good luck

  • carpe_diem
    carpe_diem Member Posts: 1,256
    edited January 2013

    I just checked with my insurance company (United Healthcare) and was told that they cover the bmx if the doctor indicates that it is medically necessary.  I just had a umx and both my BS and PS asked if I was planning on having both breasts removed, as though it were my choice, so I got the impression that it is fairly common and generally covered.  Some insurance companies may have stricter standards than others and want to see BRCA1 or 2 or at least a strong family history, and some types of bc are more likely to affect the other breast.  On the other hand, if your mother's doctor (and maybe a second opinion) says that there is no increased likelihood of cancer in the remaining breast, having it done for peace of mind should be balanced against the increased recovery time and chance of complications.  I know that I was glad I still had one arm I was allowed to use!

  • softness1
    softness1 Member Posts: 217
    edited January 2013

    Some insurance companies will not pay unless you're 45 and under and/or you have family history of breast cancer.

    I read that on my insurance company website. I have Cigna

  • SpecialK
    SpecialK Member Posts: 16,486
    edited January 2013

    I also had a bi-lateral mastectomy, my choice, when I was actually a candidate for lumpectomy.  My insurance did not blink an eye and paid for everything.  However, I was Her2+ and node positive, required a separate axillary node surgery and chemo and Herceptin.  The problem with insurance paying for removal of a healthy breast is because there appears to be no reason to do it, so that is a viable reason to deny payment.  Worry is not a valid reason to remove the breast, although it was actually the reason I did it!  Turned out I had ALH and ADH in that breast, and 20 years of imaging problems and many, many cysts.  The law requires that reconstruction be covered when a breast is removed, that is why insurance must pay.  If your mom is considering a small implant and lift be aware that the lift may be a more extensive surgery than the mastectomy, and maybe more painful.  Placing an implant is most often a multi-stage process, requiring another surgery so consider that in your decision process in regards to her age and overall health.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited January 2013

    I'm a little floored. I have United Healthcare and my options were presented as I could go with whatever surgical treatment with which I felt most comfortable. Although a candidate for lumpectomy/radiation, I chose BMX to avoid the radiation and to lower my ongoing stress over future mammograms. Had absolutely no problem with insurance, except their refusal to pay for the BRCA testing. My mom has had three cancers (including breast) and I have a history of anxiety disorder but I am unaware of any role those may have played. I also was treated at MD Anderson which is a UHC center of excellence so that may have been a factor.



    I, too, would have your surgeon's office discuss this with insurance...the doctor may not be up on things, or get consults with some other surgeons. Good luck!

  • mgdsmc
    mgdsmc Member Posts: 332
    edited January 2013

    I'm so sorry you and your mom are having added stress on too of a BC diagnosis. I think the reason insurence companies would deny your mom BMX is because of her age and possible other medical issues she might have. Any type of surgery is very risky on the body and harder as we get older. Sad to say but some surgeons won't do surgery on people after a certain age because the odds of them surviving the survey is low, (not with cancer though always surgery for that), The main concen is the heart especially if the patient has hypertension, high cholesterol diabetes ect. plus possible infection and healing issues. Removing both breast the surgery is longer and the recovery too. So since the odds are low that your mom will get BC in the other breast in her lifetime the doctor are making a medical judgment but should have explained why. Plus not sure if chemo will be part of the treatment plan but that will also be a issue. Just have the doctor go into more detail as to why its not recommended. I'm not a doctor but a cardiac RN still just generalizing don't know your mom case.



    As far as reconstruction goes yes they have to cover that no matter what age if the patient wants it. Some women over 90 want breast reconstruction and some don't its hard for some woman no matter the age to live with no breast and some women in their 30's chose not too. It is a personal choice.



  • JoanQuilts
    JoanQuilts Member Posts: 633
    edited January 2013

    I chose a bmx with cancer in only the left and had no problems with insurance coverage. Now I am wondering if this is because it was my second round with bc, therefore firmly putting me in the high risk category ?

  • itsjustme10
    itsjustme10 Member Posts: 796
    edited January 2013

    Here's some info on the 1996 Women's Health Care Act.

    http://www.cancer.org/treatment/findingandpayingfortreatment/managinginsuranceissues/womens-health-and-cancer-rights-act

    The problem you have is that it covers employer paid group plans, but Medicare is specifically not included. 

    Maybe you can work out a self-pay option with the surgeon and anesthesiologist for the healthy breast, if it's done at the same time?  That's the only solution I can think of.

  • politicomama
    politicomama Member Posts: 187
    edited January 2013

    Granted I am 33, but my insurance covered my BMX no questions asked.  

  • HLB
    HLB Member Posts: 1,760
    edited January 2013

    He is just flat our wrong that insurance won't pay for it. They may want to have the Dr say it preferable, depending on the insurance but its certainly not tru that absolutely no ins will pay! So many of us have jad it done! I would get a 2nd opinion on that one.

  • HLB
    HLB Member Posts: 1,760
    edited January 2013

    I would look into the exact wording of the policy. If they have to pay for symmetry that doesn't have to mean reconstruction. Yeah that it! Don't talk about worrying about the other breast at all, just be real demanding that she wants them SYMMETRICAL! Get all obnoxious and say "I know the law and you're not getting away with this!" Haha then they will do it just to not deal with the crazy daughter.

  • wallycat
    wallycat Member Posts: 3,227
    edited January 2013

    Since I have private insurance versus medicare, I can only speak on this front.

    After 2 MRIs, 3 doc consults and a lumpectomy, I was WELL OVER my deductible.  Even if my insurance did not want to cover my bmx, they had to cover 80% of it since I did meet the deductible.  I never even checked with them...I just did what I felt comfortable with doing.

  • exbrnxgrl
    exbrnxgrl Member Posts: 12,424
    edited January 2013

    Chasingdreams,

    You are saying your mother had Medicare, correct? In that case it does matter what other insurance will or won't over according to the Women's Health Care Act. Is self pay an option? Does her age or general health make it a good or not so good idea? I'm sorry that financial considerations sometimes drive medical choices.

    Caryn

  • MMSS
    MMSS Member Posts: 103
    edited January 2013

    I had a BMX for ILC 9 days ago and have done great. I am 73 and medicare gave me no grief at all over the double procedure. Turns out that there was lobular hyperplasia in the "good breast" so I was very glad that it was gone. The good thing about getting ILC when you are older is that it tends to respond very well to hormone therapy and you can frequently escape chemo. I did 20 weeks of neoadjuvant hormone therapy and the tumor shrunk by over half and came completely out of the chest muscle allowing for a clean disection. I also had a total knee replacement last May and I would rather have 3 BMX than have 1 total knee. This was a piece of cake by comparison. I am otherwise healthy and active and am anxious to leave for 6 weeks in Florida 3 weeks post op. The BS sees no reason why I shouldn't go. Will do radiation when I get back. Having said that if she does decide to do reconstruction it hurts a lot more and the recovery time is longer. It is also multiple trips to the OR if you go with implants. When I was young and dumb I had implants put in and had them for over 30 years. For me it is a case of been there, done that and I have no wish to do it again. My only regret is that I ever got the implants in the first place but we don't get a do over on decisions like that.The best thing about a BMX is that I never have to have another mammogram. Woo Hoo! I never missed a mammogram in 30 years and then got the kind of BC that won't show up on one or in my case on an ultrasound either. I couldn't deal with the stress of keeping a breast under those conditions.

  • Momine
    Momine Member Posts: 7,859
    edited January 2013

    MMSS, just wanted to say "welcome" to the flat&fabulous club. Enjoy Florida. I too had ILC and opted for BMX for the exact same reason AND ended up with an interesting path report for the "good" breast too. No regrets.

  • riverhorse
    riverhorse Member Posts: 126
    edited February 2013

    Crazy thought, why not find out what it would cost if you decided to pay yourself for the second breast removal. Since most of the basic surgical costs would be covered for the authorized MX I bet your surgeon could give you a reasonable price.  I know that for most the thought of paying out of pocket is out of the question, but it is possible to negotiate and discuss the actual prices for various procedures. 

  • chasingdreams
    chasingdreams Member Posts: 23
    edited February 2013

    met with moms surgeon who said that YES the bmx is covered by medicare and didn't seem in least worried about it when i stated Medicare had not been covering some women's removal of healthy breast...

    surgeon also did not rec reconstruction to my mom, and stated if my mom wanted all insur must cover for breasts to be SAME. i am guessing since this surgeon does nothing but BS that she would know...

    and yah, paying out of pocket is not really a feasible option.

    my mom's surg is scheduled for Valentine's Day! it will be an easy anniversary to remember!

  • Di2012
    Di2012 Member Posts: 925
    edited June 2013

    I was denied by Medicare just a day ago for my prophylactic mastectomy, they called it "COSMETIC".....they did pay for my mastectomy which involved cancer......I guest being 3" away from my cancer did not count....I am really upset, as my "cosmetic breast" looks like a shar pei and medicare will receive picures and a sharp reply from me.

    I had IDC

    Prior to my BMX my breast surgeon said that medicare had always paid for prophylatic MX, and she has been a breast surgeon for 25+ years and has won awards in the medical community.

  • chasingdreams
    chasingdreams Member Posts: 23
    edited May 2013

    Just an UPDATE~

    Medicare has fully paid for all of my Mom's BMX incl the "good breast" which did turn out to also be full of ILC and various other stages of BCs!

    Her GAP coverage picks up what is left, just a fairly small amount left over for out of pocket! What a Blessing!

    though to be fair--- all those small amounts add up quickly !!!

    *to Di--- I wonder if it is b/c of the type of BC you have? IDC vs my Mom's ILC?? possibly?

  • Anonymous
    Anonymous Member Posts: 1,376
    edited May 2013

    If you are having problems with Medicare ( A FEDERAL PROGRAM) please call the local office of your Representative in Congress and ask for help.  I suggested this to a friend who's plastic surgeon said her surgery wouldn't be covered ( my friend was 81 at the time) and her Respresentative in Congress local office got it straightened out for her in a few days. 

    BTW - every memner of Congress has a local office - for help with ANY Federal Program.  You will usually find them, staff in these local offices very responsive - remember, they want your votes.

    Good luck.

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