Charleston Bound, part 2
Comments
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Scarey......I'm not computer smart enough to know. I'm glad though.
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jeskachi, Would you please add me above for April 9 with Dr. Massey. Thanks
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Marty, 2 hamburger buns EXACTLY describes my stage 1 after the SGAP, the PAP looks more like soft serve ice cream, but 3 weeks post surgery is getting more hamburger bun shape! Wow, though, never heard it said as hamburger buns. Its a great description.
One thing, wish there was something that would explain that hamburger buns was the look that was good before the stage 2, that the tubing could be taped, all these great tips and info would make the journey a little easier to know so we would know what to expect.
I know, my daughter has her best for me, however you are right that it's me I have to please and hubby as my daughter is not privvy to seeing me in the buff anymore than necessary (not much).
Hugs
Catie -
Downey...Erlene is in Ashville, NC. Here is her website: www.ashevillepermanentmakeupclinic.com. I have not heard anything but good things about her work!
Joni...I am still around, but do not post! Glad everyone is doing well!
Sandy
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Very observant Marty! I tell Downey not to worry about it and didn't even realize her post was fine. Joni, we'd love to have you join our Mermaid weekend. Anyone else too. Marty and Downey you are Mermaids. FYI: Craigie/Kline flap patients; Dr. M calls us her Mermaids. Don't really know why, but she does. Even non- Mermaids are invited. Just three of us now, but we do have fun. We've done Chicago and Nashville for starters. Sandy, thanks for filling us in on your tatts. Always such good information shared here.
Downey, you're post are perfect now.
Have any of you ever seen this cartoon? I hope it copies over OK. I think it is funny.
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Re: cartoon. Shoot, it didn't copy over. It showed up before I posted, but now where in the heck did it go? I copied it from my iphotos. Anyone know?
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LindaG47, where are the mermaids going? I'd love to join a girls weekend. Sounds fun. Jamie
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Jamie. We're planning on Asheville where at least Sandy is going to get her tatts redone and I'm going to watch. Wanna come? Not sure on dates , but I think it will be after Sandy is out of school Our Breast friend, Laura, also goes. Any other takers ? It is just a weekend. Jamie, how far are youi from Asheville?
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I would love to come. I think I am about three hours or so. Sounds great. Just let me know when you figure out the dates. How about you Marty? Up for a girls weekend?
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Jamie, I sure will, just as soon as I hear the details.
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Let me know the details.....don't know if I can swing it, but will try!!
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Joni, it would be fun. We'll give you enough time to figure it out? Would love to have you.
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Y'all are too funny. Keep me posted!
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You're on the list Marty. It would be fun just to see Joni and I together. She is 5'10 and I'm 4'10!
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Dear all,
I'm writing to give you am update. I had my gap surgery on Wed the 23rd as planned and it went well, except that it took 12 hours rather than 8. There was some difficulty attaching the right flap but they did some creative problem-solving in the OR and got it placed. Biggest issue was that for some reason I lost a lot of blood which made my bp plummet after I went back to my room for the night (down to 40/30). So I had to have some transfusions and go to ICU for a day/night. After that it stabilized and all other numbers (and the flaps) look great. Waiting to be releases toy IOP condo today. -
Diedre - Sounds great! Glad you will get out today. Weather will be perfect. BTW - I had to have 2 units of blood, too.
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Seewaneegirl, So happy to hear from you and know things are getting better. Happy Healing.
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Diedre, so glad you on on the way to IOP. Looking forward to a possible face to face chat with Marty and you, but will let you settle in and see how you are doing first.
This has to be the best place in the world to recoup from surgery. So soothing to hear the ocean. I crack open the slider just an inch or so and the room fills with the ocean! -
Sewanee, thank you for posting , have been thinking about you. I am sure that must have been scary but glad all is ok now and you are on the road to recovery . IOP such a perfect place to heal.
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Sewaneegirl-
So glad your flap surgery was a success and you are on your way to healing and relaxing on Isle of Palms.
At another institution I had a long difficult 7 hr Mx followed immediately by 2-3 hr direct implant recon. I ended up with a 10 hour surgery instead of planned 4-5. Ended up with 2 blood transfusions and 6 days later a massive hematoma in breast that had to be surgical removed. This all wiped me out and put me a step back in recovery
When i had my bilateral SGAP with Dr . Kline it ended up being 12 hours too due to extensive chest wall scarring and radiation damage they had to repair before going into SGAP part of surgery.
Despite the long surgery, i had no need for blood trans and no hematoma (but did have barf probs). So hopefully too your next surgery will be uneventful like my future surgeries were.
Blessings to you and keep us posted when you can. -
Thanks ladies... See ya'll on the other side.
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Thanks! Yeah! Finally at the condo and hanging out. Managed the Arixtra myself ( far far less painful than the thinner shot at the hospital ...) . Ended up with 4 units if blood and one of albumen ... Calls or visits welcome.
Deidre -
Just finished reading all of your kind notes. Thanks - each of then is dear to me.
Wanted to also let you know how very fortunate I feel because when the path report came in the left side ( the one with all of the biopsies over the years) showed in fact there was ALH there waiting to turn into cancer which had gone undetected through numerous biopsies, mammos, MRIs, and manual checks ... So where there was smoke there really was fire! Would have been glad to have done this anyhow but now feeling quite vindicated!
Deidre -
Woo hoo, Diedre! Not happy you had the ALH (what is that??) show up which I assume was pre cancer or something like that, but very much a confirmation that you did the right thing.
The weather has turned a little windy/rainy but should be clear and cool the next few days.
I will see if Marty is able to visit for a bit and hopefully we will have a nice chat in person.
But, so happy you are on the island and able to do the arixtra on your own. I felt it was easier on myself to do it myself than to freak someone else out, and much less painful as well.
Take care and see you soon
Catie -
SewaneeGirl-
Great news to hear from you. How long will you be recouping on IOP.
Take care! -
A question to throw ought there: how long do you need to stay in Charleston for stage 2 and do you need a caregiver? Trying to make an April appt to get the next stage but not sure what I will need from a patients experience. I will ask the Dr when I see him again on Friday but you have gone through this and need to know what your experiences were. Driving? Carrying luggage, etc, and coping - need someone or not? And how long?
Thanks much -
Gma~
I think it depends on how you feel, what you are having done, etc. Now that I think of it, I don't even think I told Dr. K I was traveling alone.
I traveled alone for my Stage 2 SGAP & LNT Lymph Node Transfer which was a 7 hour surgery, with 3 drains. I flew down a week prior, flew home 3 days post-op. When I flew home I had wheel chair service and had one very short connection. I also had to check my bag going home because obviously can't be heaving it up in the overhead bin.
I've always worn my lymphedema compression sleeve and glove when flying, and always had kind passengers grab my bag for me and put it in the bin. However, after the stage 2 surgery, I really couldn't even pull or wheel my bag around either. So my friend in Charleston took me to the airport and got my luggage out of the car for the wheelchair service at the curb and they immediate took my bag in with me to check it. (Which of course meant $25 out of my pocket to USAir!). I also tip the wheelchair attendants $5. When I got to my airport at home, my husband and daughter were waiting with car curbside and got my bag off carousel. So it was easy for me, and it had a lot to do with flights being on time, etc. I did have a pillow to sit on for the plane since Dr. K did a little revision on my butt incision, and a little bit of fat grafting taken from my hips that ached. It helped taking oxy before the flight, too.
I have a date set for Stage 2b the end of March! -- but am waiting to confirm a few things before I ask to have it posted. I am actually planning on driving down to Charleston myself, again a week before surgery. Again, I will be staying with an old friend of mine in Charleston, and will drive home alone (11 hrs spread over two days) leaving about 14 to 17 days post-op. I'll leave to go home when I'm feeling like it. It will be an adventure.
If I do get a job offer, I will postpone surgery to a later date maybe 3 or 4 months after starting new job. This way I don't have to stress about buying a $500 plane ticket and losing money, and also come and go as I please.
March 20 through April 20 will be beautiful Spring time in Charleston!!!
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I flew home on day 4 after stage 2. My flights were delayed/ cancelled so took about 17 hours to get to another hotel before my long drive home.Exhausting. I also used wheelchair assistance at the airport, thank goodness. I did not have any drains, but very sore from the lipo. I would not have wanted to drive, pain meds wete my friend,and definitely you do not want to carry luggage. Depending what you have done you should be able to do most things yourself. Very impressive you are already thinking about your next surgery!
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Gma- how long is your drive?
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