Diep reconstruction

Options
shianne29
shianne29 Member Posts: 452

Hi ladies

Newbie here, I was just wondering if anyone has had a diep flap before radiation? And how was the outcome?

«1

Comments

  • dlb823
    dlb823 Member Posts: 9,430
    edited January 2013

    shianne, I had a unilateral Diep, chemo and then radiation.  My outcome was great.  I waited several months -- longer than my PS said I needed to -- after radiation to have my Stage II Diep, just to be sure my skin was as healthy as possible.

    As you may know, Diep normally requires a Stage II surgery for asymmetry.  In some cases, a PS or the rad onc will want you to do that before rads.  My PS was very comfortable working on radiated skin and wanted me to have the rads first, which is the way we worked it out with my rad onc.

    If you're going to have a Diep and also know you will need rads, be sure to talk to your PS about that need and find out when he/she would schedule Stage II.

    I'm glad you've found BCO!  Good luck with your Diep!   (((Hugs)))   Deanna

  • RosesToeses
    RosesToeses Member Posts: 721
    edited January 2013

    Hi Shianne,



    Glad Dianna could weigh in a little further along in this!



    I have a DIEP on the cancer side (immediate implant reconstruction on the other side--non cancer issue prevented both being DIEP) and just finished my rads yesterday. I know it's still early days for me and we'll see how it does with more time.



    But, I can say my RO thought it was a very positive thing that I had a flap and not an implant on the side they were radiating, I gather the flap would have less chance for complications as far as immediate reconstructions go.



    My PS told me it could shrink with the rads and I think it has a little bit, not obvious looking at it, but I can tell in the fit of my bra. It's too bad because the match between the implant and the DIEP was so exact, and so like my pre-surgery self, but the shape is still good and my PS told me before the rads that when everything healed he could fill it out again with fat.



    Of course, too early to say how my skin will do with stage 2 work, though. But my PS has experience with it so hopefully that will help. And truthfully I would be ok with how it is now, too.



    For myself, I'm glad I had the immediate reconstruction and I'm not disappointed in how it's gone so far. And not having another major surgery to go is a big relief, but I can easily see how other women might see the same options differently.



    Good luck with your decisions, your surgery and treatments--wishing you the very best with all of it!

  • Janetanned
    Janetanned Member Posts: 532
    edited January 2013

    Hi Shianne,

    I had immediate DIEP reconstruction following my BMX in Nov 2011.  It was a long and difficult surgery and recovery, but very manageable.  Surgery was followed by chemo and rads.  My reconstructed breasts did just fine during rads.  I see no difference between the pre-rad and post-rad left breast.  The right side was not radiated so that one is just fine.

    My PS wanted me to wait at least 6 months before doing any revisions.  I waited longer and am scheduled for stage 2 in Feb.

    I am glad I took care of the BMX and reconstruction at the same time.  I knew I would be tempted to not reconstruct if I delayed the surgery.  While it has taken more than a year to really feel good, I think it was well worth the ordeal.

  • shianne29
    shianne29 Member Posts: 452
    edited January 2013

    Thanks Ladies!!

    I'm so glad I found this site, it's been very enlightening. I see my surgeon tomorrow and she was sort of pushing for delayed recon due to radiation damage to tissues etc. I know it's stupid in the grand scheme of things but I just cannot see myself waking up without at least a breast mound. My RO prefers to work on a non recon breast but has in the past with favourable outcomes. He is not opposed to it if it is what I choose. He mentioned something about possibly using T/E until after radiation is complete then doing the diep, but I just think that is more major surgery that I would be undergoing. I have competed neoadjuvant chemo (4AC-4T) and the taxol was HELL!!!! I am normally an active person and to be down as long as I have is torture. So, to prolong any surgery just does not make sense to me.

    I understand the stages for diep and that the recovery is long and hard. I understand that there are risks also. I guess I just wanted to hear some positive outcomes. Thank you!!!

    Also, one more question... How long after surgery did rads start?

    I guess two lol, how long to recover from rads?

  • Janetanned
    Janetanned Member Posts: 532
    edited January 2013

    I had surgery first and then chemo, so radiation was scheduled 6 months after surgery.  I don't think it has to be that long.  I think they just want you fully healed before they consider beginning radiation.  My recovery from surgery took close to 2months.  Part of my abdominal incision took forever to fully close.  My PS would not consider scheduling the second stage for at least 6 months after radiation.

    I agree about delaying the surgery.  I just wanted to be done, so immediate reconstruction was my preference.  Both my PS and MO were fine with this decision. 

    I found chemo to be a challenge as well!  I was hospitalized twice while on AC and Taxol did a number on my toes.  I still have a little bit of black on two toenails and I still can't feel parts of my toes.  On a positive note, I have hair!  Today is the first anniversary of my first chemo tx.

     Good luck tomorrow!




  • mary625
    mary625 Member Posts: 1,056
    edited January 2013

    I had a 5 week wait between surgery and radiation. We were aiming for 4 weeks, but I was afraid of being able to get my arm overhead. It was slighty easier than I anticipated because there was a slight incline.

  • RosesToeses
    RosesToeses Member Posts: 721
    edited January 2013

    Shianne, hope you're still reading, it took me a while to come back to read this thread!



    Like Janet I had chemo before rads, so roughly 5 months between surgery and rads, but I feel like during chemo my body just went on hold as far as healing went, so I wouldn't exactly say I was what would usually be a 5 months of healing.



    Another thing, at my post rad appointment with my PS he told me to massage the radiated side and I swear it seems to have loosened up and unshrunk, so that's also good.



    Good luck with it!

  • shianne29
    shianne29 Member Posts: 452
    edited January 2013

    Hi Roses :-)

    It looks like I won't have to have radiation after all!! My post-chemo MRI showed a complete clinical response!!! I had a skin sparing mastectomy with diep flap recon on January 12. Yes a Saturday lol. BS took 3 sentinel nodes to make sure but her opinion by observation is they were clear :-D I get the final pathology report on Monday. Honestly, I cried harder when I got that news then I did when I was diagnosed. I'm still afraid I'm going to wake up from a wild fantasy dream!!!

    Thank you ladies for sharing your experiences

    Gentle HUGS

  • Momine
    Momine Member Posts: 7,859
    edited January 2013

    Shianne, that is absolutely fabulous. Laughing

  • Shari0707
    Shari0707 Member Posts: 448
    edited January 2013

    That is super Shianne.. That is what I hope for too.. What is doxil... I am in chemo now.. Until march 1st...

  • shianne29
    shianne29 Member Posts: 452
    edited January 2013

    Thanks Momine and Shari

    I was floored!! Totally didn't expect that, or rather I was too scared to hope. Doxil is another type of chemo that was infused along with my taxol. I think that is the part that caused me the flushing and the heaviness in my chest.

    Shari, are you doing 4 AC then 4 taxol? I was on a dose dense treatment going every 2 weeks, my tumour was so large that I could feel it shinking weekly!! But it was surrounded by fibrous tissue so I couldn't tell that the cancer was gone.

    How many infusions have you had so far?

  • RosesToeses
    RosesToeses Member Posts: 721
    edited January 2013

    Shianne, that is TERRIFIC new!  Congratulations!  And done with your big surgery and on to healing, too, is great news, too--I'm very happy for you!

  • Shari0707
    Shari0707 Member Posts: 448
    edited January 2013

    I did dose dense AC and weekly taxol for 12 weeks.... Was supposed to do dose dense taxol but I read something that said weekly is same dosage, just as effective and side effects are less...same dosage just less per week...docs are saying my tumor is shrinking but I don't know.. I definitely am feeling something going on in there.. Like a sensation at tumor site.. Sometimes a pain.... I know I had some node involvement bc they tested one at diagnosis.. Wasn't enlarged and didnt show up on pet scan either but one looked funny on MRI.. Really want good response just not trying to get my hopes too high. I guess rads would depend on response in nodes.. Did you know of u had positive nodes before chemo? Were u going to have rads on nodes or breast.. Doesn't matter anyway because you had such a wonderful response... I have 6 more taxol left.. Done march 1st.... Then onto surgery.. So what kind of surgery r I having.. Wait this is the diep section, so I guess that is the answer..haha

  • shianne29
    shianne29 Member Posts: 452
    edited January 2013

    The side effects of the dose dense taxol were horrible!!! The pain was horrible, I'd stay in bed for days at a time because it hurt too much to do anything!! I hope you're not experiencing that.

    I had a biopsy done on one node prior and it was clear. The rads were to be on the chest wall and the nodes if they were positive. If they are now, I'll just have rads on the nodes. I'm not sure why, but the though of going thru radiation bothered me more than the chemo and surgery!! Maybe because I'm almost an hour from the cancer Center and having to drive that everyday 5 days a week for 5-7 weeks is not attractive lol.

    Yes, lol. I had diep with skin sparing mast. It really wasn't anywhere near as bad as I thought. I woke up feeling good, sitting in one day and walking (bent over) the day after. I was quite numb up until yesterday and the pain is pretty high now but tolerable. My husband is also on crutches due to a broken heel so I've been quite active from the time I got home, dr thinks that has helped me. Is diep what you will have?

  • Shari0707
    Shari0707 Member Posts: 448
    edited January 2013

    So the MRI was before surgery but after chemo? Think that is my plan too.wheb do u get ur path report? I am going to do diep as well, but have lumpectomy first in order to c what is going on in the nodes first. Bc if I need rads then we will delay the diep with mastectomy and just put expanders in until radiation is done....it all makes me quite anxious to b honest..

    Taxol is not too bad.. Achy a little the following two days and jus tired a bit but nothing too bad...

    It just feels never ending

  • shianne29
    shianne29 Member Posts: 452
    edited January 2013

    Yes I had my last MRI about a week to 10 days after I finished chemo then my surgery was two weeks after that. It was rushed a little due to my PS and BS having conflicting schedules lol so they called me on the Wednesday said it was booked for the Saturday!! Good in a way that I had no time to fret or stress but it was a mad dash to get all pre-ops done in time!

    I see my onc on Monday and BS Tuesday so I'm sure one of those days I should know (fingers crossed) the waiting thru this whole journey is frustrating. Wait for results from every test, wait to see dr., wait to start chemo, hurry up and wait! Lol but I guess it just seems like a long time to us. Anxiety gets the best of me too. I find myself wishing this was just over so I could get back to normal, then realizing that this will be my normal now. My incision started getting "weepy", some fluid seeping out yesterday and hubby wanted to take me back to dr. I started crying lol. I just didn't want to see anymore drs!!!

    I'm glad the taxol has not been to hard on you, it doesn't seem fair that the medicine makes us feel worse than the disease! But, in the end, I can honestly say it was worth it. If that which doesn't kill us makes us stronger, I should be able to lift a Buick!!!

  • Shari0707
    Shari0707 Member Posts: 448
    edited January 2013

    Ohmigod... You sound just like me! About everything! Waiting for Normal and realizing that it will soon be a new normal.. But also just hoping for everything to not always feel like its about breast cancer.. THat I am not sleeping eating and breathing it.. People tell me it will get better, and it wont be so forefront on my mind always, but when?

    Good luck on path report.. Keep me posted if you would like." I like chatting with you.. Pm me too if u like or we can just keep talking here.

  • shianne29
    shianne29 Member Posts: 452
    edited January 2013

    Thanks Shari. I know what you mean about it not being all about cancer. When my husband broke his heel I was almost relieved lol that people would ask about him now and not always want updates about me. I know that's bad but I feel like a broken record sometimes.

    I'm enjoying chatting with you as well, so nice to have someone(s) that truly get what we are talking about and how we feel.

  • Shari0707
    Shari0707 Member Posts: 448
    edited January 2013

    So when ur path report comes back, that is when u will decide if u need rads...? Am I correct with that.. I guess I am just trying to get a sense of if I should have rads... I feel that if there is nothing in the nodes after chemo then wouldn't radiation there b overkill .. I dont want rads but if I need them I will do it.. Do what I got to do..... Let me know what ur path report says and what route u r taking.. Can keep u updated on mine too.. Go thru the journey together.. Good luck with everything

  • Shari0707
    Shari0707 Member Posts: 448
    edited January 2013

    Shianne, did u have surgery yet? i want mastectomy with diep flap butvI am going to have lumpectomy first , get path report, see if I need rads then if I do wait for diep until after rads. Will see what ps says but if radar needed, either do it before mastectomy after lumpectomy or have mastectomy wi tissue expanded while doing rads.. It's all so overwhelming.

  • shianne29
    shianne29 Member Posts: 452
    edited January 2013

    Yes, I had surgery January 12. My BS said I won't need rads on the breast at all and on the lymph only if sentinel biopsy shows something. So you are correct in that I'm waiting path report.

    I'm lucky in that my surgeons feel it would be overkill. And they were adamant that I'd need rads before my MRI results. BS was very strongly recommending delayed recon. When I met with the RO for consult he said he would not be afraid to radiate a reconstructed breast. He'd prefer not to but he has done it and together with my surgeons he felt it would be possible. They would put a TE in till after rads then do the diep or they would make the breast bigger to allow for radiation shrinkage. I just could not imagine waking up without anything there. Silly, I know lol considering they were never very big anyway but it was how I felt. You are so right on the overwhelming part!!! My head was spinning every time I thought about my options, and every article you read is different, every case is different, every dr says something different. I honestly had a couple breakdowns were I was inconsolable. Between the stress and the instant chemopause, and lack of sleep I have no idea how anyone tolerated me.

    Do you have a date for surgery yet? Not likely, I just went back up and read past posts lol. Dam chemo brain! Your post chemo MRI should give you a better picture of what your options are. Honestly before I got my results from that back I changed my mind 15 times!!!

    I will for sure keep you updated, and please you keep me up too. The buddy system is a great idea! Lean on and be strong for each other.

    Thanks so much Shari and best of luck :-)

  • Shari0707
    Shari0707 Member Posts: 448
    edited January 2013

    I am supposed to have lumpectomy on march 28 th and if there is anything still in lymph then I will go have radiation.. I am getting mastectomy regardless.. But if there is still positive lymph nodes then I will have rads before mastectomy or have rads with,sate tommy and tissue expander e and wait for diep flap reconstruction .. It all seems like a lot but this way we know if I need rads before I reconstruct. I meet with plastic surgeon in about a week and a half to see if I am candidate for diep and then will discuss options if I do need radiation.. Thought is that i f there is no cancer in lymph nodes after chemo, rads would b overkill... ( we knew at least one positive ode before chemo..) no surgery yet..will definitely keep u updated.. N vice versa

  • shianne29
    shianne29 Member Posts: 452
    edited January 2013

    Just got back from MO. I'm so disheartened and barely keeping tears in. My MRI showed cCR but my path report showed a 7 cm tumour. It was just over 6 before chemo!!! How in the name could this tumour not been seen on the MRI??? How could it have grown when every 2 weeks physical measurements showed shrinkage?? How can this be???

    MO says that I need rads again. I've had recon already and it looks FABULOUS only 2 weeks out. I don't want to chance that rads will ruin it.

    Seriously, I was so on top of the world for the past 3 weeks thinking I kicked this beast in the butt and now I feel like my world has crashed on top of me.

    I know rads aren't bad considering everything I've already been through, but I was in the healing and moving forward mode and now that is all put on hold again!!!! ARRRGHHHH!!!!!!! I don't know if I've got enough left to get through this. :-(

    I just want to go and hit my first BS so hard. I want to ruin his life. This is the guy that 3 yrs ago told me the 8mm mass "was fibrocystic and not to worry. We'll watch it closely". Watch it he did!! US, biopsies, and mammos every 3-6 months. When I asked him to take it out when it got to 2.5cm he said "no it would deform my breast and its ok. It would likely disappear after menopause." May he lose his arms in a horrific accident and his crotch be infested with mites!!!!

  • Momine
    Momine Member Posts: 7,859
    edited January 2013

    Shianne, that does sound very strange and I am very sorry.

    I had complete clinical response, in the sense that nobody could feel or find the tumor after chemo, but there was still live tumor left and cancerous nodes as well. 

    You should really ask the doc to explain how they could find 7CM on the path, if nothing culd be seen or felt priot to surgery. Are you sure it was 7CM and not 7MM?

  • shianne29
    shianne29 Member Posts: 452
    edited January 2013

    Thanks Momine!! Was your cCR dx'd after the post chemo MRI? I'm still sort of new to all this and bewildered.

    I'm asking myself the same thing, how did it get BIGGER after chemo!! I asked hubby who was at appt with me and he is sure 7 cm was what was said. I see BS tomorrow so I have a few questions. I think the initial shock has worn off but I'm still angry, confused and upset.

  • Shari0707
    Shari0707 Member Posts: 448
    edited January 2013



    Shianne... I am so sorry that u r going thru this... I don't understand how all we do can sometimes do nothing... Maybe tumor did shrink some and was bigger to begin with .. i dont know if that helps.. i am on this post bc i saw u had written on here and i wanted to reach out to u.... Maybe what momine said is true too.. Maybe it was 7 mm not cm.... I am sorry this is happening.,

    With that being said, u r strong and will trudge forward because u have to and u r going to do what u have to do get through this.... I pray all will be ok and u will take the next step in your journey... You will soon be moving forward again... I know it





  • shianne29
    shianne29 Member Posts: 452
    edited January 2013

    Shari. You are so right, I've done everything I'm supposed to and now apparently it did nothing.

    It is a possibility it was bigger before. I guess that's the down fall of neo chemo, no path report to say.

    I'll see what my second BS says tomorrow. Maybe I'm panicking for nothing. Ha, wouldn't that be great.

    I've researched the possibility of false neg MRI and its low. Especially for IDC so I'm really confused.

  • Shari0707
    Shari0707 Member Posts: 448
    edited January 2013

    But what did ur pre chemo imagining say? What size was it? Is it possible that what is left is scar tissue from chemo and only a little bit of invasive cancer left.. Before u get too worked up ..see what bs says.... Let us know

  • shianne29
    shianne29 Member Posts: 452
    edited January 2013

    I'm not sure exactly but my 2nd BS ( going to call her BS now because the first is an a$$ and is gone lol) and MO said 6+cm of a mass. But not all of it was cancer. I had presented with fibrocystic tissue in the beginning and the cancer grew in the Center of that. My post chemo MRI report said fibrocystic disease evident and wide spread but no evidence of malignancy.

    SIGH, lol I'm just driving myself nuts. Tomorrow will bring a new light and a new dr.

    Thanks shari!!!

    Btw... My name is actually Luanne ;-). shianne is just a name I like lol

    Sleep tight

  • Shari0707
    Shari0707 Member Posts: 448
    edited January 2013

    Ok sorry Luanne.. Wrote u a message on the over 6cm+ forum... I jus feel there must be some explanation... How could they feel shrinkage and then say it grows... Doesn't make sense..keep me posted..thinking about u

Categories