January 2013 chemo group
Comments
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I am so afraid that what I intend to be good eyebrows will end up looking like this to everyone else (although knocking on wood that the Brian's works).
If this is a sister, daughter or cousin of anyone I apologize for making fun. But really, please let the poor girl know.
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Hahahah, no way, none of US will make that mistake, but as for me ( and maybe others?) my wig has long brush-aside bangs, I don't wear makeup and I have glasses, so at least on me no one would notice anyway!
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Hi Colleen,
I hope your stop at the bar was doable. I was told to take the meds at 7pm the same night that I stopped at the bar. I hope that helps. -
Stopping at a bar will never be the same for me again....
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Watta, they were thinking I probably wouldn't need it tonight cuz they gave me two kinds in my Iv. What time was your chemo? How are u feeling?
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Colleen, I started my chemo today at 9:30, they put zofran and ativan for the nausea, the nurses recommend me to start taking the nausea meds today at 10:00 pm.
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Anne~I had my third AC a week ago Friday. I take 2 steroids on Saturday morn, 2 Sunday morn & 2 in the evening. Same routine on Monday. Last Sunday I was already in bed when I realized I had missed my evening dose. I didn't want to get up, make a snack, and get myself all woke up, so I missed the second dose on purpose. I didn't seem to have any problems, so on Monday I only took the morning dose again.
It's to avoid nausea. So just see how you feel.
Blessings
Paula -
I've had moderate constipation since stopping at the bar, as well as what feels like a mild flu. I'm hoping this is the worst of it, but only time will tell.
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Rhonda~Didn't they tell you the anti-nausea meds cause constipation? They should have told you to take stool softeners, Milk of Magnesia or something. Run...Don't walk. Go get something for that before it gets worse!!!
Paula -
I've had two doses of chemo thus far with anti-nausea meds (or one med) in the bag. The onc nurses said I should start the anti-nausea meds around 9:00 the same night. I take them every eight hours as indicated/prescribed.
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Skimommi, thank you for the info. I'll just be sure to tell them tomorrow. Hope your well. I read all the post every other day or so, but not good at responding. You are all strong women and I am strong because of all of you:) Hope you have a good week. Anne
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Well ladies. I had my tx#2 last Friday. My nurse ran the cytoxan a bit fast and I felt my sinuses burn a little. She said that might happen. Next time she said she would slow down the drip next time. So I've been feeling like I had some post nasal drip from it and now I think Its a good old fashioned cold. Perfect. Sore throat and I feel really blah. I am hoping its just a blend of the mild SEs and maybe a little irritation from the drugs. Fingers crossed...
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russell,
Sorry I didn't respond earlier. Take the 4th one now if you want it won't hurt you but might keep you awake.
Sheryl
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Colleen, I rec'vd aloxi before chemo in IV and was queasy when I got home so I started alternating my compazine and zofran around the clock as ordered, no further problems. You shouldn't have any problems. Check with doc/or nurse if really concerned.
Sheryl
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Hey Everyone,
As I read through these posts (so many as I've been off for a couple days. Been so busy that I hadnt had time to jump on line) and so much to catch up on.
Kale.... kale is a bit bitter, but if you massage your kale with a 1/2 teaspoon of sea salt for 2 minutes it will get rid of any and all bitter taste. It sounds strange and wierd, but.... honestly, it works. Kale is a favorite in my house. DH and both teenaged boys love it. You can use it as a salad (once you've massaged it), cook it like spinach, use it in soups, put it in your vitamix or juicer and drink it, omg!..... the possibilities are endless. They even have baby kale now in packages that are already washed. (But.... I wash it anyway... just in case.)
For the Neulasta shot, I never knew until tonight while reading all of these posts that it was a pricey shot. My insurance covers it. I jsut pay my $20 co-pay and that's it. Interesting. When I went in last time for my labs, my WBC was still pretty high, but they weren't worried or anything. I guess we wills ee what happens this time around. Sigh.
Well, BFF from Boston is coming down to Dallas tomorrow to hang with me and DH during my 2nd TC on Wednesday. She'll stay for the week, and I am SO excited!!! Can not wait to see her, and it will be good to have company Thurs and Fri while DH is at work and boys are at school. She's going to die laughing when she sees the cold caps on my head. (Yeah, she ends every text now with a little picture of a penguin. LOL!)
As for my hair..... I'm now on day 19 post TC. My hair is starting to come out, so we will see if the cold caps are working. It's hard to tell. I am expecting the thinning, but it still strange to see the many long strands of hair come out, expecially when so many come out at once. I guess I'll know in the next couple weeks if they are really working or not. Today was about 77 degrees outside, so I went on 3 walks with the dog, totalling about 4 1/2 miles. It was pretty windy, and each time I'd come home I could see so many strands on my arms, shirt, etc. I hate that,. It feels nasty to feel them on my back when I'm changing or getting out of the shower. Argh. I'll post picutres of my hair and of the cold caps when I figure out how to do that. LOL! The funny thing is that I haven't lost my body heair yet, except for most of my pubs. (Sorry for the TMI) It looks like I went and had a brazillian done. Just that little bit is left, and the rest are completely gone. I wonder what's up with that? Ha ha ha!! Last time around (18 years ago) They all came out at about the same time. So strange. Right now at least it looks fashionable. LMAO!
Anyway, now I'm going back and re reading the posts I've missed. Hugs to y'all!! Deb
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Ciao, belle! I hope today has been a better day for everyone.
Mandy, lovely to have no news to share! I hope you've enjoyed your daytime TV, and that it hasn't led you to the purchase of any totally unnecessary products from QVC.
And, fwiw, I use boiled water for my Neti Pot. (I let it cool first, of course!)
Watta, I love that you've found something that makes you feel more positive and hopeful about your treatment... and I hope we haven't permanently ruined you for the real bar.
Once you're done with this nonsense, I'm sure you'll recover your appreciation for a Cosmo and a karaoke machine!
honeybair, doll, how ARE you? Are you due for your next tx this week, or not until next?
bcfree, ciao bella! Great news about those scans, honey. I know this is a whirlwind at the beginning, and it sounds like your diagnosis has been tough, but we're here for you. And I have to tell you, if I'm gonna fight this battle, I'm MUCH happier to do it with these amazing ladies at my back.
jules, ciao bella! I'm going to do a bunch of things differently this time around, too. I don't regret the lack of preparation for my first tx in some ways -- you never know which SEs will crop up -- but I'm sure looking forward to having a better understanding of what's going on and a better plan for dealing with it.
Shannon (smethot), I've also been looking at strangers in public places and thinking, "Why me?" But then I also think, "There are probably a half-dozen people here in exactly the same situation thinking that about me. Weird." So, when will you get your scan results? I heard a great name for what you're experiencing now on a different thread: they called it scanxiety. I'm hoping it doesn't last too long. As for the crack pug, if you can find a picture of one to post, you can have a one. Them's the Bella Rules.
Adrienne, ciao bella. I'm so fiercely sorry for all you've been through so far, but glad to hear Xeloda is treating you well.
russell, good to hear from you, girl. Have "fun" at the bar tomorrow, and let us know how you're getting on.
Rhonda, have you been treating for the constipation? My doctor had me take 2 250 mg ducosate pills the night of chemo and the morning after, and it still wasn't enough. This time, I'm going to take Miralax the first morning, too, to stop it from starting.
Skigirl, I do not approve of you having a cold. That's just rude. Hope you wake up tomorrow feeling all better.
Deb (amrdbit), our Texas rose! I've been wondering how you are! I'm glad to hear you're having such wondeful company for tx #2. I'm sure she'll keep you busy, but you stop in and tell us how you are.
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Deb, ROFLMAO at your comment on the pubic hair:
Right now at least it looks fashionable. LMAO!
Mine looks like a Brazillian wax gone bad!!
Sheryl
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I was just thinking the other day that eventually (eta: and at long last) the carpet will match the drapes...only because there won't be any carpet - or drapes.
That's to be filed under stupid stuff one thinks about in the shower while watching hair swirl around one of those little plastic hair catcher thingies. It's also to be co-filed in the TMI category.
I'm both fascinated and repulsed by this hair loss thing. Not to mention rather pi$$ed off. The rational part of my brain says "it's part of the process" but the petulant child in me wants to scream "but why???" I used those drapes to hide acne scars for ten (plus) years (my acne wasn't scarring until after I went through early menopause).
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LeeA.... OMG! The caroet and the drapes comment was PRICELESS!!! Love it!
Bryona, of course I'll stop in. Need to see how y'all are doing luv!
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Carpet... drapes... Brazilian... oh, lord, I can barely catch my breath from laughing! And definitely to be filed under "details not to be shared with outsiders."
I love you people!
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Called my doc about claritin and bone pain. He said there is no conclusive evidence yet. But if I want to try, go ahead. He put me on Decadron, Ondansetron and Compazine. That is a lot of nausea medicine.
Anyone use Gabapenton for hot flash? suppose to help you sleep too. Please let me know what you think.
Thanks
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Kingboo,
My onc put me on Claritin and I'm supposed to take it 1-2 days before cocktail and keep taking it for several days post Neulasta shot. I had 0 bone pain, so maybe there is something to it. Good luck!!
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Since we had it around the house it was worth a try (Claritin, that is - generic). I haven't felt the greatest but when it comes to the bone pain I've seen described around the boards I can honestly say I haven't had it. Some lower back discomfort (as mentioned earlier) but that's about it.
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Has anyone ever has their face get numb? Mine is and its freaking me out a little.
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Also is anyone taking prescription pain meds?
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Colleen, the face numbness is a new one to me. If none of our girls here have experienced it, you might try posting a new thread in the "Help me get through treatment" or "Chemotherapy" forum. And, of course, I'm always a big fan of calling the MO. Mostly, though, I want you to give yourself a big hug from me.
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Smethot, omg, a woman at work came up to me and told me I should drink baking soda, she'd seen it on dr Oz! Great I said, I'll get right onto that, maybe I'll call my oncologist and have him cancel the next few rounds of chemo too, since we all now know the miracle cure.
Back at work today, was better than I thought.
Kia kaha
Holly -
OMG Lee, the picture is priceless!
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Kiwi kid - there is a study On baking soda to treat breast cancer - no joke ! I stumbled upon it a white back - it is at university of Arizona and sponsored by the national institute of health - 2 million dollar grant!
I wanted to report that I've run a low grade fever since last Friday . That was day 9 for me . I never let it get above 100.2 or so - took ibu - but demanded an answer today . Onc said it is not that common but some patients "run hot " to process the taxotere . Guess I a, one of those .... Thought I would,post in case it happened to someone else . Even a lw grade temp just wes me out ! Hoping Tuesday it will disappear !
Will try to find link on the baking soda study and post !
Thank u to all for the great ideas for handling side and for all the positive vibes - helps so much (((hugs)))to all -
Hey girls! First of all, welcome to all the newbies. You have founda new family here for sure!
Thanks for the responses about the neck pain I will ask my MO about claritin wheni go to visit later this week.
Well I didn't get away with no SE's. Yesterday sucked balls. I was nauseou and had a few vomiting spells. Couldn't eat anything but tried to drink as much as I could. Had a terrible headache. Feel so much better today but yesterday blew.
I read an article about eating and it basically said eat what you can and what tastes good. Sometimes calories are more important at this point. I'm a smoothie junkie and have been trying to get a couple of them in a day. I'm trying smaller meals more often as well.
I too, have had some bloody tissues after blowing my nose. I haven't hadany face numbness but my lips feel tingly. I keep carmex on them.
I got a little behind yesterday. Good luck to all the first timers, minimal SE's to us all. For those of you with serious complications, you are always in my thoughts. Keep your spirits high and in the words of many on here, this is doable.
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