January 2013 surgery
Comments
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Fight - you're not imagining it - surgery causes a lot of fluid build up, which is why they put in the drains, but drains don't remove it all. It can take weeks for the body to absorb what's left. I foolishly wore my jeans when I went in for my bmx - when I left I could barely get them on, and couldn't zip them up at all. I never thought that upper body surgery could affect the lower body that way, but it does. I learned after that to always wear sweatpants when going in for surgery.
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Fight4two~ Yes! I noticed this too. I also couldn't eat large portions or my stomach would swell so much. That lasted about 2 weeks and then it was better. I'm not sure what causes it, but I know that when I'm on an IV, I can easily gain 10+ pounds. So maybe it's the IV fluids accumulating?
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Auntiem, Amy has it covered but would add don't wait till ur nauseous to take meds with AC. Take them on schedule and keep food in your stomach. To me AC felt like I had the flu for a week after. Take ur Neulasta shot in your stomach, less painful. Ask your MO about Claritan with Taxol. For alot of us it lessens the pain. But most of all join a chemo thread for the month you start and take the journey with others here. The companionship will work miracles for you!
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Great additional tips jojo!
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DX. 2010 DCIS stage 0
2012 DCIS stage 3 & IDC stage 2
I'm having my BXM on Feb 4th with TE...had radiation two years ago, for my DCIS, so I'm not sure how well my L breast is going to accept the TE.
I also have a problem with blood clots (Factor V Leiden) and it damaged my left leg, ten years ago...never did hormone treatments for this reason.
Livid with my doctor because we talked about me staying out of school (PE Teacher) for the rest of this year (even if I don't do chemo) because I need to avoid getting hit by balls, kids, jump ropes, sick from germs... Yesterday, his nurse called and said, that I'm going back to school THIS year. I'm in shock!!! How does he expect me to stay safe and heal...crying all day!!!
Anyone take Lovenox after surgery (with drains in)? Wondering how much more bleeding I should expect?
Any thoughts or advice would be appreciated!
Teresa
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DNAdebbs.. Doing chemo now.. Before surgery.. My docs say that if there is no cancer I nodes after chemo then no rads... Will have mastectomy regardless... But I already know its in the nodes before chemo so I guess it all depends on what chemo does.
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Isn't it amazing what can make us oh so happy on this journey? Yesterday I got the perfect post op trifecta-first shower, first shampoo and first BM and I felt like I had rejoined the human race. I have been staying pretty quiet trying to get my drains under the legal limit for removal so of course I achieve that today when the surgeon's office is closed until Monday. Oh well gives me a few more days of laziness and I really can't complain if they come out just a week post op. I too am noticing the nerve sensations which I have taken to calling "the creepy crawlies" because that is what it feels like. Sorry that I got behind in wishing this week's surgery sisters well but you have all been in my thoughts and in my prayers and it feels so much better to be doing this together.
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Thanks ladies! I appreciate all the tips! Doctor told me about the Claritin. Crazy how that works! The things that are uncovered... Amazing...
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Hi AuntieEm,
It is amazing the things we discover. I discovered while taking Benadryl with my Tramadol to keep me from itching (I'm allergic to codeine) that the Benadryl did wonders for my hot flashes. That was an amazing discovery.
I had the DaVinci procedure for stage IV endometriosis and the surgical menopause kicked in immediately. I don't know what I would do without the Benadryl. -
I'm home and I hurt! BS was suspicious of three nodes cause they were hard. She was shocked by the looks of them that they would have cancer. Pathology was there during surgery and said it looked clear. We should find out by the final pathology on Monday!
I should have gone to a motel as I cannot stand noises and people talking to me. I just need to be alone. My foobies look really good. He filled them with 200cc's. I wore a pain dispenser that would constantly release licodine into my chest area. That was kind of a pain as I had to wear the bag for it around my neck. S when I go to the bathroom, I've got all these cords to juggle.
Anyways..I will write more Monday and let you know about the pathology.
Hope everyone is well. jenimomof3,, sorry you couldn't have both surgeries at the same time. -
Hope--I hope your pain gets better. Glad the initial look on the nodes was good and I hope that the official report confirms the good news!
Jen- I hope you are recovering well.
My nipple still burns...I suspect that the cut must have gone through some nerves as it feels like my nipples did when they would get chapped while nursing my kids. Other than burning and the brushing, I'm doing well. -
Hopex.... So happy you are out of surgery and all the reports look good so far! Relax as much as possible and Im sending you healing.vibes....
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Hopex- sending healing thoughts your way! Take it easy.
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Hi Shadytrake,
Thanks for the Benadryl update. I will keep it in mind when I get catapulted into menopause.
Keep the info coming ladies!
Positive thoughts and prayers to all! -
Can you describe the process of getting the port placed? Do they put you out for this?
Janice
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AuntieEm Can you describe the process of getting the port placed? Do they put you out for this?
Janice
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Hi Janice
I was apprehensive about having yet another procedure but it was not bad. To tell you the truth that night was my best night sleep since surgery.
I was the last case of the day so I was NPO pretty much all day. I had toast and a 1/2 a cup of coffee at 7:30am. I got to the hospital at 3:30pm and went in at 5:00pm. They put you to sleep (Michael Jackson style) and numb the area. I was home having dinner by 8pm and in bed by 9:45pm. Slept through the night... Ahhh... It was great! The area is a little tender to the touch. It is dressed with steri strips and covered. I took the gauze dressing off yesterday so I could shower. The incision is pretty small (3/4"). The steri strips should fall off on their own. It's more of the ick factor of having another foreign thing in my body. The other thing I noticed this morning is that the shoulder strap of the car seat belt rests right on it. That feels weird. I think I'll use a pad or small pillow as a buffer. Chemo starts this Friday. I'm wondering how that will go...
Hope this helps.
Best wishes to you! -
shari0707: well i'm hoping you won't have to do rads at all. it really makes everything harder. literally. but i just had my recon earlier this month and so far so good on that side.
teresa! hopefully you do really well......i had my rads last year and waited 6 months from the time of my last rad to have my recon. my skin healed really well.....but i can only imagine if i had waited 2 years.......probably much better! so good luck hun!
i got the flu this weekend and it sucked hard! i still have my 2 drains in so i'm thinking i'm not gonna be able to take them out on tuesday. way bummed! they're not only painful but soooo annoying! and being sick doesn't help at all! still trying to regain my energy.....i don't think it's all out of me yet. ugh!
so glad to see everyone is doing well! surgeries went well! i love to see all the questions people are asking! wtg!
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All the best to Tammy T for your surgery tomorrow. It feels so much better to be on the other side of that and our love and prayers are with you on your big day.
dnadebbs, so sorry to hear about your flu. There is so much of it going around this year that it is hard to avoid it. I live in Ohio and the hospitals around here are swamped with both GI and respiratory versions. The respiratory kind makes you feel bad longer but it is the GI kind that makes you want to die on the spot.
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Tammy T.. Prayers and healing vibes let us know how it goes
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Started running a fever yesterday afternoon and called the PS at 9:30 when it was 101.3 and wouldn't go down. Right drain and rib cage were very sore, but looked ok just slightly pink around the opening, and I just felt crappy. Dr called in Bactrim to the 24hour pharmacy and I'm feeling better now. I can't wait to get these drains out. I saw on another thread that some people had them for 7-8 weeks! Yikes!
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Goodluck tomorrow TammyT
Tamiami-I'm praying you get better quickly!
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Thanks Brandie! How are you feeling?
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Tammy .best wishes to you tomorrow! I'm feeling better each day. My chest hurts a tiny bit. Still on OxyContin and muscle relaxer but may try less tomorrow. Had a pain pouch put in and it came out last night. So glad to have that out. It's hard to tackle that and the drains going to the bathroom. So far so good! Hope you have smooth healing!
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Thanks for asking! Sore, bruised, but doing good. I wish I understood why my nipple burns as bad as it does, but it's no longer constant (thank goodness!). I have some swelling so my nipple looks funky at the moment...heres hoping it's not permanent.
I hope your fever goes down and the antibiotics kick in. I'd love for you to lose the drains ASAP~!
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Auntiem BIG TKS for the truth, it really takes the fear away. Anyone know if there's some kind of seat belt pad for people with a mediport?
Janice -
I get my pathology report tomorrow, hopefully. Fingers crossed!!! I'm so anxious, I feel like I'm going to jump out of my skin. It's been 3 weeks since my surgery. I still haven't be called about the bone scan I had done January 3rd, I was told it takes only days for results...no news is good news?
Coming to terms with chemo, due to my age I've been told I'll receive it despite even the best of test results. Found a wig I really like, it's been hard locating one more my style and age. Got my teeth cleaned, getting my eyes checked and even found some amazing Oliver People's frames I LOVE!!! Getting a little chemo bag ready and some supplies for the house. Getting some meals done up and frozen. Rallying up the troops to help out with the baby if/when I don't feel well, just organizing, going into battle mode~ You have get up EVERY morning & tell yourself, "I CAN DO THIS!" (FxC)
Good luck tomorrow TammyT!!! Kick some ass!!! -
Hi anyone here with invasive dcis who took chemo? i went to an onco today for peace of mind in taking tamoxifen it seems that my left breast 1cm focus is invasive and she told me to be aggresive on treatment. i thought my treatment is already ok but now im down into the dark side again
any thoughts please.
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Jannipanni, If you are getting Neulasta shots, one of their marrying gifts was a little Velcro pouche that goes on your seatbelt and you can place it exactly where the port is. Even if not on Neulasta I bet they would send you one. Google Neulasta.
Peggy -
Good luck today TammyT!
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