Sept 2012 chemo

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  • kidsandlabs
    kidsandlabs Member Posts: 138
    edited January 2013

    Peach fuzz on my head, I can't really tell what color. Looks like a mixture of dark brown and grey. A few eyebrows have started to sprout, no sign of the eyelashes yet. Anyone know how long it takes for eyelashes?

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  • butterfly14
    butterfly14 Member Posts: 253
    edited January 2013

    Queenkong - So happy you are doing better, and gppd luck with the RO appointments on Monday.

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  • jojo2373
    jojo2373 Member Posts: 662
    edited January 2013

    Kids, Mine all fell out by 4 weeks pfc, but now at almost 7 weeks pfc I have a nice dark shadow in the brow area. The length is not much but they are filling in. I can use my pencil better now to fill in and am excited to achieve a better shape with them. How many ladies get to start from scratch like us? lol.

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  • patriciahurtado
    patriciahurtado Member Posts: 489
    edited January 2013

    OMG.............my ladies it took me 4 days to catch up with you i just finished all the post....so chemo brain dont fail me now

    :)....im so happy that most of you are done with chemo yahoooooooooooo for that i will toast to that tonight red or white (wine ) here i come......

    i missed out my ladies getting surgery...i will be praying for a promt recovery and sending lots of virtual {{{{{{{{{{{{{{{{{{{hugs}}}}}}}}}}}}}}}}}}}}}}}}

    Please please post all your recovery and lots of advise.....L/E scares me too but i will start my research soon.....

    Love the pole dance i dont know what i plan to do that day but  for sure it will be something wild too cause ill be leaving chemoland for sure!!!!!

    BRCA testing was very important to me because i have my 2 younger sisters and lots of  nieces and i wanted to make sure that i can have that peace of mind where i can prevent them from having BC....my BRCA came back positive which means that my sisters do have 50% of getting BC and my daughther too. In a few months i will have my daughter get her BRCA and avoid all this that we are going through...My sisters are getting all their exams done and we are just waiting on the results....i guess im really glad that i got sick cause it would of been devestating knowing that my sisters have BC...they are like my babies i raised them cause my mom was always at work ...we are 7 ....4 boys 3 girls....so i am like their second mom.....like i said to them Ill take one for the team...but not my girls....i have always been the strong one from the family anything that happens they ALL come to me for advise or vent......parties........ and now they are here for me ........i love my brothers and sisters.....we are like parenthood show....fun games get together for the holidays we fight laugh cry and all of that...

    Queenkong....welcome back you do belong here too ....this is where we all started together this is where i will stay for sure cause i feel that i know everyone of you and that with each other suport we are where we are today standing tall and  proud of how far we got......today now i feel stronger then ever with all those nice comments that made me get up every day and say  "CANCER AINT GOT SHIT ON ME"..............i wake u happy every day .....

    I started working on December and co workers tell me how great i look and that im always happy....im not pretending to be happy i am happy cause we are fighting and we are winning.....for sure and that makes me so happy.....

    Thank you my beautiful sisters for those wishes on my birthday it was awesome....

    On my birthday i went shopping for a nice outfit...but ofcourse nothing fit from a S to L thats kind of F$%$# up  i couldnt find the right cloths so i decided on a blouse and shorts black ones to play it off....strech ones so it can hide my ass.....got ready i couldnt wear my nice 7 inch hill cause my hills were killing me so i wore my combat boots ....lol which they are on style ladys.......so here i am looking hot.....suppostly.....just to remind everyone how i love to have young friends.....well all of my friends a group of 14 couple went to my dinner that my hubby planned out for me....well all of then were dressed really nice outfits like THEY were turning forty.....ofcoure meeeeeeee i was looking like i was turning 25 lmaf...........lol......lol it was so funny i felt like i was a teenager lol....well my nice blouse  that i wore that i thought it FIT me....... yeah right ......there i was smilling nice and beautiful and there it went ..........the button of my blouse boobs out........so i guess im still fat and not a small but extra large.....so no pictures for me that day!!!!!!!!............lol....lol....lol.......you would think that i would pick out the right size ...i did....it was a large.......... i tried it on it fit nice.......next time ill try it on sitting down....lol.........had 3 margaritas and didnt give a shit if my boobs pop out again........maybe it was waiving good bye to everyone ......who knows....but i had  fun....

    that was my birthday!!! on a nice out side patio on second floor beautiful view....

    Had my 7/12 chemo yesterday and it didnt go well after 7 round you would think your body is almost use to taxol well i gues not cause i started to itch every where and told the nurse and they had to add more benadryl ..well i guess i didnt take it well cause they had give me oxygen felt dizzy i couldnt breath it was horrible when i turn around to look at my husband he was red and wanted to cry and i grab his face and told him that everything is going to be alrigh....my DH was so scared .......but there was this nice lady and told me that it had happen to her once and that i was going to be alright...she was trying to talked to me but i was out of it ..i dont even know what i said........lol.......but im doing great  today it was pretty scary.......

    I just wanted to share my crazyness with you sisters and hope that i made you smile for now......have a great weekend.....im going to the shooting range to let some steam out.....you guys should see how my DH loves to go to the shooting range cause every time i say "wanna go to the shooting range?" he starts to clean the house right away so we can be there faster lol.............

    and if i mispell something...i dont have time to proof read today!!!!!! i have chemobrain

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  • Faith-Focus-Finish
    Faith-Focus-Finish Member Posts: 124
    edited January 2013

    Hi all,

    Haven't been online for a few days.  Work is really taking it's toll on me.  Feeling better than before.  All flu symptoms gone, except for the cough.  The weather is beautiful here.  Planning on taking a long walk later today.  Fresh air and exercise - seems to be a good combination.

    Saw PS on Thursday.  We didn't go into too much detail on next steps.  Talked about the risks of blood cancer in the future.  He said there is .01% chance of developing it and there are 33 documented cases in the world.  He made me feel comfortable about that.  We talked about the textured vs the smooth implant - I will be getting the smooth.  We talked about treatment, how I was doing, etc.  He also filled me before leaving.  He thinks I may have 2 more fills and then - 4 weeks after that, I will be ready to do the exchange surgery.  I am excited about it and nervous at the same time.  He assured me that this was the easy stuff compared to what I've been through.  I sure hope so!  My chest is even tighter and it's kinda of painful at times.  I feel like I have two huge coconuts glued onto my body.

    Hope - I agree with you ... I still feel like a zombie most of the time. My nails are weirding me out and I still have neuropathy in my fingers.  Still shuffling along and walking like I'm 90 years old.  I am so over it already.  Sending positive thoughts your way; hope you are feeling better.

    Cocobean - Sorry you have another thing to deal with.  On the positive side, they recogized the LE early and I think P/T will really help.  It sucks that we have to think about and deal with so many things...

    Amy - Glad you got a recliner that you love.  I will be reconnecting with mine soon.  It is so comfortable ...

    Foreverchanged - I agree with your comments about the NEW normal.  I want to include massages into a regular rotation from now on.  Last year, DH got me a gift certificate on valentine's day for a hot stone massage.  I was so busy with work and putting others first, I used it AFTER my DX and a week before my surgery - in the middle of July!  I need to shift gears and put myself, my health and well being first.  It's going to be a huge adjustment for me, but I need to do it.  We all need to do it.  We deserve it as much as anyone does. By the way, cool pic.

    Neta - Glad you were paying attention to what the tech was doing.  It is so important to be our own health care advocate and speak up.  My gyno kept insisting that she did not feel a lump when she did the  exam on me.  She suggested to wait for my mammogram appointment - wasn't concerned about it.  My mammogram was scheduled for 1 1/2 month later.  I pushed back and insisted I wanted to have the mammogram/ultrasound done the next day-both breasts.  She finally gave me the Rx and my life was changed from that moment on.    I want to find a new gyno - which is too bad - I've been seeing this woman for 15 years.  I was so disappointed in her. I am no longer comfortable returning to see her.

    Jojo - Your comments too, ring so true.  Most people are just so clueless.  Now, we just need to learn to live with it.  Our Dx, our treatments, our successes, our new normal.    Still sending positive engery your way! 

    Bearcub - Congrats!  What is a dragon boat?  I thought the same about my hair.  Never had a problem with it growing before.  Still have peach fuzz.  I'm taking 2000 mg of Biotin now.

    Kidsandlabs - The results of my BRCA took 3 weeks; not sure where it was sent.  I hope all turns out well.

    Timbek2 - Hang in there.  Your appointment will be here before you know it and then you can get started. 

    Fight4two - Still sending positive vibes your way!

    Twinsplus1 - Hope you are recovering well from your surgery. 

    QueenKong - Glad you stopped by; it was great to hear from you.  So sorry you've had such a difficult time.  Talk everything over with your new oncologist.  It will get better.  Sending prayers and rays of sunshine your way!

    Florbo - That is awesome news!  I hope surgery is not needed.

    Amy - Way to go on the walking!  Keep it up!

    Patricia - Thanks for the smiles - sounds like you had a great birthday!  Glad you're feeling better now.

    Have a great weekend everyone! 

    Hugs : )))








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  • Mariposa123
    Mariposa123 Member Posts: 267
    edited January 2013

    Patricia- I am so glad you are okay!  How scary.  You and your husband must have been so scared.  Sounds like you are the strong one... even when you are having that bad reaction, you are reassuring your husband.  And I am glad you had a happy birthday!  What a wonderful fun and supportive group you have!  Thanks for sharing your journey with the BRCA- I know I need to do it too.  When they offered me the test, I just didn't want to deal- but you are right.  I need to do it to protect my siblings and children.  Knowledge is power.  You are super powerful:-)

    Well, I didn't get to Disneyland- but we are going to the disney museum in San Francisco tomorrow:-)  They are have a free day for families struggling with cancer.  I figured- why not!  And I won't have to feel bad about taking off my hat during a hot flash:-)  My daughter and son are super excited.

    Happy Weekend everyone!!!

     



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  • fight4two
    fight4two Member Posts: 146
    edited January 2013

    Thanks, ladies, for all the positive vibes you've been sending my way! It must be working, since I feel better than I expected. Went to see the PS on Friday and he removed my drain, hooray, I'm free!! I thought it was a bit early to remove but he got sign off from my BS.



    I just took my first real shower since surgery and it felt heavenly. Although I got the gauze wet where the drain was removed and I made myself nervous because I definitely don't want any infections! Hopefully a new dry gauze will do the trick.



    Seeing my PS on wed. Feeling nervous because I expect her to have my path report as well. Hoping Wednesday will be a joyous day!



    My mo wants to see me two weeks after surgery. Is this normal? I thought his job was done. Not sure what to expect at this meeting...



    Did anyone experience abdominal bloating after surgery? I swear my stomach is looking a lot bigger! I hope it goes back down on its own, although I know exercise should be on my to do list!



    Hope all are doing well. Its so exciting that we are moving on to next steps. For those nervously anticipating surgery, I will admit it is nerve wracking - mostly because of the unknown. But afterwards, knowing the unwanted beast is out of your body, well that's such an amazing feeling!



    Hugs to you all!!

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  • patriciahurtado
    patriciahurtado Member Posts: 489
    edited January 2013

    Mariposa i wanna have a freebe too!!!!!!!!!!!!!!!!!!!!!'

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  • SeattleMama
    SeattleMama Member Posts: 147
    edited January 2013

    Patricia: sounds like you had a great time - Happy Birthday luv.

    Mariposa: I wanna goooooooooo {very whiny today, I sound and feel like a baby}  Have fun tomorrow :) Hope you are feeling 100% better.

    {{waving}} F3: was wondering how you were doin'.  Good to see you.

    Queenie: I'm not doing the dragon boats, no. I never heard of them till now, and I love to sail.  o_0

    Amy: so try the epsom salts bath next headache ;) let us know

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  • Hopex3
    Hopex3 Member Posts: 397
    edited January 2013

    I am home from surgery. The surgeon could not find the original tumor. So the chemo blew it up! She found three nodes that looked positive but when pathology tested them, they were negative. They are doing a more extensive path report and I should know the results by Tuesday.

    I hurt pretty good. The pain pills wipe me out good! I had awesome nurses in the hospital. Gotta go. Really sleepy.



    Amy..I'm so jealous that you are walking! Good for you! I can't wait until I am ale to do that outside. My sisters make me walk laps around the house!

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  • Mariposa123
    Mariposa123 Member Posts: 267
    edited January 2013

    Hopex:  So nice to hear from you!!! And yipppeee!!!  Awesome news about the tumor:-)  Congrats on finishing this next part of the journey.  Rest and recuperate.

     



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  • florbo
    florbo Member Posts: 178
    edited January 2013

    Yeah for all who are recovering from surgery!

    *** Post-op gals---I keep on forgetting to mention that when you shower post-op for the next week or so, use a fresh, clean towel if possible.  A wet towel can harbor bacteria that is not good for all the healing wounds.  Or if you see any drainage or those crusty little things on the towel, don't use it again.  This would be the same if you are using a bathrobe. This is a tip I share from my experience as a nurse.

    Mariposa--that is a very good question about whether they can tell if I have left over scar tissue vs. tumors.  I will ask the medical team at my visit.  I think if there is anything remotely left over, I want it out.  I have been feeling sharp pains in the left side and pray each time that it's the tumor being decimated.

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  • jojo2373
    jojo2373 Member Posts: 662
    edited January 2013

    Florbo, was looking at your history. Did you have a recurrence in the same breast? Did you have surgery with your first cancer?



    Hopex, thrilled for your results! Rest and heal.

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  • Faith-Focus-Finish
    Faith-Focus-Finish Member Posts: 124
    edited January 2013

    Hope - Awesome news!  : ))))  Now, just let yourself heal.

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  • Foreverchanged72612
    Foreverchanged72612 Member Posts: 223
    edited January 2013

    Hope: what wonderful, wonderful news!! 

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  • florbo
    florbo Member Posts: 178
    edited January 2013

    Jojo--I did have a recurrence in the same breast.  I had a mastectomy of the left breast in 2009 followed by 4 rounds of Taxotere and Cytoxan which I didn't tolerate very well.  I was suppose to have 6 rounds but the MO stopped it at 4 because I was doing so bad--shingles, traveling hives all over my body for 5 months, neurophathy, and swine flu.

    So this recurrence is in the left pectoral muscle above my mastectomy.  It is almost to the collar bone.  I felt the main tumor myself a month after I had a clear breast MRI.  I think it was because the breast MRI doesn't really cover the pectoral area.  Looking back, the radiologist sees a little thickening, but nothing that lit up on the scan.  

    The medical team and additional specialist that I went to see and get second opinions all felt that there were some cancer cells that travelled through the ductal channels upward instead of to my lymph nodes which were negative during the sentinal node biopsy.  Somehow, those cancer cells did not die even with chemo.  In 2009, I got 3 second opinions on whether I needed chemotherapy, considering I had negative nodes, Oncotype Dx of 19, and BRCA1,2 negative.  The one I got from Seattle said I didn't really need chemo, the one from Dallas preferred that I do it.  And the one from MD Anderson thought I should do it.

    This time around, I had to do 6 rounds and went with the class of drugs that are totally different than the taxotere in case that my cancer is resistant to the taxane class.

    I will go change my info to see if it will appear on my signature.

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  • Foreverchanged72612
    Foreverchanged72612 Member Posts: 223
    edited January 2013

    Patricia: I just read your birthday party post. OMG, you make me LAUGH!!! LOL doesn't even do it justice. And the part about the shooting range? Too funny how your dh will clean the house for a trip to the range! Just wanted to say that I had an allergic reaction to taxol first time I got it but when they slowed down the administration of the drug (treatment went from being an hour to an hour and 45min) I never had a reaction again. Oh, and they increased the amount of steroids I had to take. I really, really cherish being able to sleep through the night now after having been on those steroids for three months!!!

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  • butterfly14
    butterfly14 Member Posts: 253
    edited January 2013

    Patricia - Glad yopu had an awesome birthday and are feeling better from the chemo SE.

    Hopex - so glad you are doing well, the hard part is over!!

    Florbor - how did you feel the tumor in the pectoral muscle? I was told no more mammograms since I had BMX.

    I hope everyone hasa  great Sunday!!

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  • Neta69
    Neta69 Member Posts: 203
    edited January 2013

    HopeX, great news! So happy for you and wish you a quick recovery from surgery.

    Patricia, you are too funny! I can picture you at the birthday party, lol! Sounds like you had a great time!

    Forever, Nice to get some sleep. The steroids used to make me wired and anxious and crazy! Still can't sleep and unfortunately the insomnia got worse after starting Tamoxifen :(

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  • jojo2373
    jojo2373 Member Posts: 662
    edited January 2013

    Oh no Neta, worse on Tamoxifen? ugh.

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  • kidsandlabs
    kidsandlabs Member Posts: 138
    edited January 2013

    Well, it cold in Ohio. I haven't been on a run in months. I was thinking of going back to the gym. Has anyone else been to the gym w/ their chemo head?

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  • Cocobean
    Cocobean Member Posts: 135
    edited January 2013

    Patricia- happy birthday! Sorry to hear about the BRCA test results, knowledge is powerful and you are protecting and helping the ladies in your family...that's inspiring.



    Hope- glad to hear you are doing ok, wishing you a smooth recovery, and love hearing the tumor was blown to bits! Great news.



    Fightfortwo- wishing you a continued smooth recovery, thinking about you this week, especially on wed.



    Quick tip that florbor reminded me of for those of you with BMX, when cleaning the incisions...use two separate towels for each incisions...that way you won't transfer any infection or bacteria from on wound to the other...that's from my mom who is a nurse and also a little bit crazy. :) but I had a lot of annoying wound issues, but never got and infection.



    Starting radiation tomorrow..been going to the gym since 2 weeks PFC...at first it was pretty depressing, but I'm 3.5 weeks PFC and I am actually feel some improvement in my energy and stamina, granted I'm still super slow, but it feels good to get a little better, baby steps...really hoping radiation doesn't slow me down too much. Saw LE PT on Friday, she made me feel a lot better, going to see her next week too...wearing my sleeve when I work out, not really having any big issues, keeping an eye on it. Carefully watching my head for signs of growth, definitely have peach fuzz, husband says he thinks its coming in...can't wait for hair! Got a sitter and went out to dinner in Chicago with my family, celebrated my parents 40th anniversary and my finishing chemo....ate lots of food and enjoyed a cocktail, first one in awhile....brother asked why I hadn't been drinking, said chemo is kinda like having the worst ever hangover for four months, didn't really want to add to the mix...think he got it (he's 27)...great night.



    Hope everyone had a good weekend...sending lots of healing thoughts to everyone!

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  • Cocobean
    Cocobean Member Posts: 135
    edited January 2013

    Kids- I go to the gym with a buff on my head and my sleeve for LE...I pretty much look like a weirdo and get some looks, but I truly don't give a f**k, so proud of myself for being there and going through everything, a couples of stares don't bother me at all.

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  • kidsandlabs
    kidsandlabs Member Posts: 138
    edited January 2013

    Coco, that About the point I am at. I don't give a rats ass anymore. Don't like it don't look at it. Tried of being lazy sitting around, really miss my gym friends.

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  • QueenKong
    QueenKong Member Posts: 154
    edited January 2013

    I proud of any of you who are making it to the gym. I'm not up to that yet and just happy to walk and do some light weights. I get do sore from exercise, even isometrics. I never had that before. I wonder why? If I saw you in the gym, I would stare too and would hope somehow we could be friends. 

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  • Cherioo
    Cherioo Member Posts: 305
    edited January 2013

    Neta69 I am going through the same thing on Tomoxifen. Last night I painted walls in the house until 2.30. I have had to take Xanax as well. During the day I am wiped out



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  • Timbek2
    Timbek2 Member Posts: 204
    edited January 2013

    Hi all. So have been researching tamoxifen. And I'm scared. My mo said I would start with radiation which will most likely be march. So anyone with experience with this phase let me know!! I was really hoping to be me again post chemo so guess I should enjoy the few weeks while I can. I'm hoping I bounce right back. Those post chemo report in and let us know how your progress has been. Love to all!!

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  • QueenKong
    QueenKong Member Posts: 154
    edited January 2013

    Cherio, you are painting walls til 2:30am? 

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  • jojo2373
    jojo2373 Member Posts: 662
    edited January 2013

    I will book my wall painting for March! Timbek, I will be starting rads in Feb then when finished Tamoxifen. You can join me on the late night patrol then! LOL

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  • Neta69
    Neta69 Member Posts: 203
    edited January 2013

    Sorry to hear that you can't sleep either Cherioo. Jojo, I havent really slept well since diagnosis but it got a bit better just before Christmas. Now I'm back to waking up in the middle of the night and I think it's the Tamoxifen. I don't want to take sleeping pills again and I'm very slowly weaning myself off the benzodiasepines (Clonazepam). Someone suggested Melatonin and I think I will try that. I'm hoping as my body adjusts to the Tamoxifen that it will get better.



    Cocobean, good for you! People stare at me as well when I go to the gym (I just joined and try to do some easy classes). At Yoga on tne other hand everyone is really cool about it and make me feel quite comfortable. I feel the same, I just don't care about the staring. I go topless and I'm proud of myself for exersising. People can stare all they want!



    Today it was a balmy -12. DH and I took the kids skating on the canal here in Ottawa. You can go for miles and have hot chocolate and "Beavertails" (these really bad for you pastries) on the way. I was slow but it was lovely! I felt normal and with the cold weather and everyone wearing hats I looked normal too. So nice!



    Amy, sounds like you are doing great with your exersise as well.

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