Where are the Skin Sparing Nipple Sparing Procedures Done?

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  • TinaT
    TinaT Member Posts: 2,300
    edited December 2012

    Hi mermaidswim -

    I'm surprised that U of M doesn't offer NSM! 

    New things are happening all the time so I am only making an educated guess about the term "skeletonizing".  It is pretty routine for a spared nipple to be cored out from behind.  In other words, the breast surgeon (BS) will try to remove as much tissue as possible from behind the nipple.  This specimen is typically sent separately to the pathologist for immediate review during the mastectomy as well as more extensive review along with all the other tissues.  If any cancer cells are seen in near proximity to the nipple during surgery it is usually removed at that time.  If it initially looks clear, but the final pathology report shows cancer cells the nipple would likely be removed after the fact.

    Mastectomy surgery removes blood vessels and nerves along with the breast tissue.  Typically, there is some sensation around the base/periphery of the breast, but the closer to the the center of the breast the more numbness there is.  Please don't get your hopes up that the nipples will feel anything like they do before MX.  My BS has performed many NSM and initially told me that I could expect some "sensation", more like a knowledge that clothing is touching, etc.  Some women report an actual uncomfortable sensation.  That said, at my last visit with my BS she said that she has recently had a few patients reporting some more positive feedback 2-3 years after surgery.  In other words, more sensation and less uncomfortable.  So.....it's not impossible, but pretty rare for normal sensation to return, but hopefully some surgical tricks will be discovered along the way and someday this will be less of an issue.  I knew this going into surgery and I had some problems along the way, but I'm still so happy I pursued NSM.

    There is another thread called Nipple Sparing Mastectomy with Immediate Reconstruction that you might want to check.  The "immediate" means that reconstruction is started at the time of MX so there is a mix of women there who have implants placed immediately as well as those who have tissue expanders placed for later implant placement.

    I am sending you a PM with my personal info...

  • Kd6blk
    Kd6blk Member Posts: 114
    edited December 2012

    PRMA in San Antonio does them. So does the place in New Orleans. I opted out mainly due to increased risk of cancer. There is no guarantee you will maintain any feeling. I just got mine rebuilt. --lisa

  • PB22
    PB22 Member Posts: 315
    edited December 2012

    mermaidswim, 

      If you scroll back there are several postings of surgeons in the Chicago area. If you have any questions on the procedure , feel free to PM me.

  • whitedove
    whitedove Member Posts: 292
    edited January 2013

    *BUMP

    New Haven, Connecticut 

    St. Raphael's Hospital

    Dr. Deborah Pan. (for Nipple Sparing Double Mastectomy)

    In CT there are many doctors who do Skin Sparing/Nipple Sparing. Yale and St. Raphael's are the main hospitals I can recommend.

    Good luck!

  • armywife199
    armywife199 Member Posts: 19
    edited January 2013

    Did anyone post of a BS in the Atlanta, GA area that performs NSM?

  • Chocolaterocks
    Chocolaterocks Member Posts: 364
    edited January 2013
    I had my surgery by Dr. Koch  who is with the same group and here is an article they are sharing as there statistics and I hope it assists others. I have had only 1 surgery which is a good thing. Regards to all.
     

    January SPECIALS

      

       

     
    January 2013

    ny group for plastic surgery cosmetic news


     


    Focus on technique: one-stage implant-based breast reconstruction, C. Andrew Salzberg, M.D.

     

    Focus on technique: one-stage implant-based breast reconstruction.Plast Reconstr Surg.  2012, Salzberg CA


    Division of Plastic and Reconstructive Surgery, Northwestern University Feinberg School of Medicine, 675 N. Saint Clair Street, Galter Suite 19-250, Chicago, Ill. 60611, USA.

     

    C. Andrew Salzberg, M.D.
    Dr. C. Andrew Salzberg

    BACKGROUND:Direct-to-implant reconstruction with acellular dermal matrix has expanded the surgeon's repertoire and given the patient an opportunity to have a one-stage option after skin- or nipple-sparing mastectomy. The technique produces total implant coverage without the need for expansion, repeated operations, and delayed return of normal body image.

     

    METHODS: In patients with adequate, good-quality mastectomy skin, a subpectoral pocket is created after mastectomy. The inferomedial pectoralis major muscle is elevated for implant placement. The acellular dermal matrix is sutured to the released inferior pole of the pectoralis muscle along its entire lower course and to the lateral mammary fold. The implant is introduced beneath the muscle-matrix layer, and the matrix is sutured to the inframammary fold at its desired position. Two suction drains are placed, one subpectorally and the other subcutaneously, through separate stab incisions, followed by skin closure.

     

    RESULTS: Over a 10-year period, the author has performed this technique in 439 patients (790 breasts). Consistently low complication rates and good aesthetic outcomes have been obtained. Major complications, including implant loss (1.6 percent), skin necrosis requiring reoperation (1.3 percent), infection (1.1 percent), hematoma (0.6 percent), seroma (0.5 percent), and capsular contracture (0.5 percent), have remained at an incidence of less than 2 percent.

     

    CONCLUSIONS: The author's 10-year results using acellular dermal matrix in direct-to-implant breast reconstructions demonstrate the effectiveness of the procedure, as well as its long-term safety and aesthetic benefits. Its success, however, relies on appropriate patient selection and specific intraoperative technique principles. 

     

     

  • CyndiJW
    CyndiJW Member Posts: 18
    edited January 2013

    All I can say is I feel very fortunate to have been an excellent candidate for the Nipple-skin sparing surgery & reconstruction. It turned out great, but I do not, nor did I expect to, have any feeling in my nipples. It's strictly for aesthetics, as far as I am concerned. Too bad, but just happy not to have had to get them (nipples) removed & restructured. There certainly wouldn't have been any sensation then either, not to mention the extra surgeries & aesthetics.

  • Jen35
    Jen35 Member Posts: 1
    edited January 2013

    Hi I'm from Edmonton Alberta Canada and I'm also looking to have have a nipple sparring mastectomy with immediate reconstruction done. Im having a really hard time finding someone. Does anyone know of any surgeons that have some experience? Please help!

  • kirklandgal
    kirklandgal Member Posts: 63
    edited January 2013

    Who was your PS?  I live in Kirkland so Swedish would work for me.   I was diagnosed earlier this week and the BS I saw this week didn't even mention that NSM existed  - which should work for me since I have an occult primary (no detectable cancer in the breast) but cancer in my lymph nodes. 

  • Crescent5
    Crescent5 Member Posts: 442
    edited January 2013

    In Maine: BS Dr Melinda Molin, Mercy Hospital, Portland. Nipple and skin sparing MX. She and her staff are top notch. Feel free to PM me.

  • Jaegergirl
    Jaegergirl Member Posts: 60
    edited January 2013

     I was a candidate for nipple sparing on my non-cancerous breast (left), but not on right. Since my nipples looked odd to begin with and would never match, I had my surgeon remove them both. Luckily she removed as little skin as possible. Love love love both of my doctors and highly recommend them.

    In Ohio (approx 20 minutes east of Cleveland):

    Dr. Karen Grassie, MD: General Surgeon, Lake Hospital Systems (Tripoint Medical Center, Concord)
    Dr. Jennifer Greer, MD: Plastic Surgeon, Lake Hospital Sytems (Mentor)

  • tgilbert
    tgilbert Member Posts: 5
    edited January 2013

    Looking for nipple-sparring in Pitts PA area? 

  • netty46
    netty46 Member Posts: 296
    edited February 2013

    Bernard Chang did a diep on meand left my old tissue behind. I had problems from beginning. Stomach busted from hip to hip. He left a hole in my breast in middle. Alot of necrosis developed at bottom. During 5 yrs I emailed I'm. I begged him to help cause it was getting painful. He always said it will get better it's not cancer. I went 5 yrs with no mammo on that breast cause he said I did not need it. Finally 2010 a surgeon in Florida tried to help me only to discover that dr Chang never removed the old tissue from my chest. Dr Chandler thought he did but then admitted to my doc on the phone he did not. I was sick with worry . Well here I am that necrotic piece turned up cancerous 12 yrs later chemo again, Masectomy, radiation, and severe sadness and depression. What did Chang say? Sorry to hear this but I'm sure your in good hands.

  • SLGrib
    SLGrib Member Posts: 14
    edited April 2013

    I had my NSM done by Dr Kandace McGuire and immediate DIEP reconstruction by Dr Michael Gimbel at Magee Women's Hospital in Pittsburgh, PA

    IMPORTANT: if you are interested in this procedure you must be proactive. It will not be "offered" to you, you have to ask.

  • thirdgenerationmomof2
    thirdgenerationmomof2 Member Posts: 248
    edited April 2013

    Had NSM on 02/21/13 at GBMC Hospital in Baltimore, Md. My cancer was in the 12:00 position so my BS felt it was safe to do the NSBMX. Wonderful doctors! They did great work and I would highly recommend. Both my surgeons work together in the OR and have follow up visits in the same office. PM me if you would like details.



    Dr. Lauren Schnapper, BS

    Dr. Shari Slezak, PS

  • cateyz2
    cateyz2 Member Posts: 419
    edited June 2013

    Had mine 5/31 at Northwest Community Hospital in Arlington Hts , Dr Michael Kinney was my BS and I highlt reccomend him. He also performs surguries at Alexian Brothers in Elk Grove Village

  • peepgirl
    peepgirl Member Posts: 33
    edited June 2013

    In Pittsburgh, PA at UMPC Cranberry.  Breast surgeon - Dr. Mary Beth Malay; Plastic surgeon - Dr. Anna Wooten.  They work well together.  Love them both.

  • HotPinkMess
    HotPinkMess Member Posts: 70
    edited June 2013

    Atlanta, GA Dr. Diane Alexander at Artisan Breast Care 

  • Daninayd
    Daninayd Member Posts: 58
    edited July 2013

    I had my nsm on June 12, 2013. Dr. Nora Hansen from NW Memorial hospital performed the breast surgery and Dr. Neal Fine did the reconstruction. Both did a phenomenal job. 

  • TinaT
    TinaT Member Posts: 2,300
    edited July 2013

    Hi Daninayd - So glad you had a good experience!  In what city is NW Memorial Hospital located?

  • gonegirl
    gonegirl Member Posts: 1,871
    edited July 2013

    Washington DC, George Washington University Hospital



    BS Dr. Christine Teal

    PS Dr. Joanna Lenert

  • CLYDAY
    CLYDAY Member Posts: 81
    edited July 2013

    UAB Birmingham. Dr. Krontiras and Dr. Fix. They did an awesome job!

  • TinaT
    TinaT Member Posts: 2,300
    edited July 2013

    San Francisco - Nima Grissom (breast surgeon) and Gabriel Kind (plastic surgeon) at California Pacific Medical Center.  Both are amazing!  Dr. Kind is an experienced vascular microsurgeon and offers all types of reconstruction (implants, DIEP, etc).

  • Pawprint
    Pawprint Member Posts: 464
    edited July 2013

    Had mine done Fountain Valley, CA. My BS Dr. Jane Kakks. My PS Dr Andrew Smith.

  • Lucky777
    Lucky777 Member Posts: 25
    edited August 2013

    I had mine done in Des Moines, IA

    Dr Kostantinos Lekkas, I still have TEs in but I feel he has done an atrocious job. He says that everything can be fixed. My right one wss put in way too much to the side. My nipples point in different directions. Both are too low. He plans on lifting both. Creating more scars. He will have to do a lot of pocket work. I will have drains again. My husband says to try not to worry because he is not done yet. The pictures of TE that I have seen look way better than mine. I wanted the same size that I was, these are way bigger. I have to dress in layers b

  • TinaT
    TinaT Member Posts: 2,300
    edited August 2013

    Lucky777 - I understand that you're posting here to give others a heads up.  While it's true that in some cases the TEs bear little resemblance to how things look when all is done you sound very unhappy and skeptical.  Perhaps a second opinion could either confirm what your PS is telling you or will give you the "sign" that it's time to move on.  Whippetmom (Breast Implant Sizing 101) keeps a list of surgeons and may have a name for someone in the Des Moines area.  Or....perhaps someone on this list will chime in if they live near you and have had a good experience.

    Best wishes...

  • ribz99
    ribz99 Member Posts: 5
    edited December 2013

    HELP!

    I'm in NJ... I was referred to Sultan and Swistel for surgeons by my NY friends.

    Really not sure what to do.... Any thoughts? You look so beautiful in your picture.

    The more I read .....the more I am confused with my decision for surgery. I was Dx with DCIS in my rt breast. 6 cm. I now learned I have "extremely dense" breasts and that means I'm at a higher risk for BC in my future.

    Lumpectomy vs mastectomy??? I read the thread on this site, but it did not make me feel any clearer with my decision. I was scheduled for a lumpectomy for Dec. 30th, but cancelled it and was opting for a DMX. I thought.....hey, why not get new perky breasts?

    But it sounds like the road of recovery is more difficult than a "breast augmentation".

    Please.... Any advise?

  • ribz99
    ribz99 Member Posts: 5
    edited December 2013

    HELP!

    I'm in NJ... I was referred to Sultan and Swistel for surgeons by my NY friends.

    Really not sure what to do.... Any thoughts? You look so beautiful in your picture.

    The more I read .....the more I am confused with my decision for surgery. I was Dx with DCIS in my rt breast. 6 cm. I now learned I have "extremely dense" breasts and that means I'm at a higher risk for BC in my future.

    Lumpectomy vs mastectomy??? I read the thread on this site, but it did not make me feel any clearer with my decision. I was scheduled for a lumpectomy for Dec. 30th, but cancelled it and was opting for a DMX. I thought.....hey, why not get new perky breasts?

    But it sounds like the road of recovery is more difficult than a "breast augmentation".

    Please.... Any advise?

  • sarahjane7374
    sarahjane7374 Member Posts: 669
    edited December 2013

    Providence, RI - Women & Infants Hospital

    BS - David Edmonson

    PS - Pierre Michaud

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