December 2012 chemo group
Comments
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Bren58, wow, wouldn't it be great if you're that close to being finished? I'm 99.9% certain that my MO said 6 TXs but I had one positive node and my tumor was 2.5 cm.
Steiner, if given a choice, I would have chosen four as well. Absolutely. Re: getting enough water - for this next go round I'm going to try the NUUN tablets. I bought two tubes at the Vitamin Shoppe the other day - lemon lime and tangerine lime. It's not too bad.
Nicole, lol re: seal love!
SharonS, it's amazing to think that the weight of dead hair could make the scalp so sore but I read the same explanation in the archives here, i.e. the weight of the hair in the closed up follicle. One person described it as feeling like a sunburn and someone else said it felt like she had been hit with a baseball bat!
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I went to the integrative doctor at the cancer center today. She sat with us for an hour and a half and discussed diet, supplements, exercise, acupuncture, etc. I'm going to start walking 30 minutes a day versus 20 minutes (20 minutes = a mile plus). She cited a study about 30 minutes of walking per day significantly lowering cancer risk (30%?). She also suggests a Mediterranean eating plan which is pretty close to the way we already eat (other than those days after chemo when I was eating stupid things to try to find something that tasted good). She went through every supplement I take, etc. so it was all pretty interesting.
I'm hoping I can have TX 2 on Wednesday.
Oh, one other thing she mentioned -
Acupuncture can help increase WBC. I'm going to do a search on that because I was pretty surprised about that. She's pretty conservative in her recommendations so maybe there's something to it.
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Hey fellow baldies,
Is your scalp super shiny?? Mine is like "whoa, who put some polish on that head" shiny. I wonder why???
The last time I went in for chemo, I noticed a young man sporting a super shiny head and I thought "wow. He must wax his head or something." It looked good on him but now I see I have one too! Curious. It's the perfect topping for the seal look this body is sporting.
Wishing everyone a good Tuesday. Two more days of freedom and then back down the AC rabbit hole for me (white counts willing).
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Bren58 - a hair cut for free.. score!
LeeA - That is awesome you were able to meet with the Integrative dr. So her scoop is.. moving forward, try and get a thirty minute walk in a day and eat a Mediterrain diet and you will typically reduce your rist of reoccurance by 30%? That is quite motivating. Hmm, so if I'm doing chemo, rads, and tamoxifen that should reduce my risk to under 10%. Add your suggestions and I'd lower it to under 7%? Just trying to find the right numbers to keep me motivated to eat right and move my body. Did she discuss alcohol at all? I have always enjoyed drinking and have just started to have a glass or two during my good week of treatment. I was so freaked out in September of my diagnosis I didn't touch any alcohol until my Thanksgiving dinner. I'd like to think there's a place for it in my life (moderately) where the positives outweigh the negatives.
Nicole - I'm still too fuzzy headed to be shiny. Have you lost all the hair on your head?
I'm really light headed today and having a hard time getting enough water in. I'm not peeing enough which concerns me although I have had about 20 ounces. May skip out of work a bit early today.
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Saw my MO today. I have finished 4 rounds of dose dense AC. I start dose dense taxol on Monday.
He's not awarm and fuzzy guy but I broke down in tears when he asked how i was since in addition to having only 3 days without nausea every two week cycle (despite taking all the anti-nausea meds available), after the third AC I started and continue to have shortness of breath upon the mildest exertion.
He was very responsive emotionally to my surprise and congratulated me on finishing the AC in addition to empathizing with what I've been through. It's amazing how much better I Felton leaving his office. I think sometimes doctors forget how important bedside manner is.
He did send me for a chest X-ray "just to be sure nothing else besides the chemo and mild anemia" was causing the shortness of breath.
He also confirmed that Vitamin B-6 (100 mg twice a day) has helped some patients avoid the neuropathy often associated with taxol. He also said that I should not have much nausea with the taxol and I pray that I don't.
By this Friday the nausea should go away and I'll have a decent weekend before starting taxol.
I hope every one is coping with their SEs. I feel so fortunate to be part of this group, which truly is a support group. I don't know if I could have made it this far in chemo without you. Thank you for being there!
Peggy -
Hello to all! I am 2 weeks past my last treatment and have my next on Monday. I have a shiny head also! Not much peach fuzz left up there. Unfortunately, I had a very itchy head this last week and have red bumps all over it. My hands and feet wre itchy too. Anybody else have that? I feel like I stayed on top of most of the side effects this round and felt pretty good, other than tired. And I am very tired! I almost wore myself out this morning mopping my kitchen floor! And I took prilosec faithfully the first two weeks and avoided heartburn. I thought I could stop but I immediately got heartburn or acid reflux so I have started taking it again. I feel like I haven't bounced back as much this time and I wonder how it will be after the 3rd and 4th round. You ladies who are working and exercising through all this have my admiration. I feel like I am in hibernation for the winter and plan on emerging At the end of February. I daydream about sunny beaches.
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Congrats Peggy on finishing the AC. I just went for some bloodwork, and creatinine was still high. I finally can stop the antibiotic. Yesterday I started to turn the corner and I hope to get back to work Monday.
Have not felt like myself since Jan 5, so it has been a long haul. So glad to make it out. I go back to Onc on Feb 6, if all BW is good I will have AC #2.
Sharon -
Gwen, remeber it does not all have to be water. Juice, tea, coffee, whatever liquid you can get down is helpful.
Peggy - YAY on finishing your AC. You are well on way! I am really sorry that is has been so rough for you though.
Julie - I had the itchy red bumps after each tx, but not as bad after tx3. MO suggested hydrocortisone cream and it did help.
Julie - Sunny beaches sound awesome! Especially since it is only 18 and very windy here today.
Lee - hope all goes well and you can have tour treatment tomorrow.
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PeggySull - Super big congratulations on being done with AC!!!! So glad to hear that your MO was able to offer a sympathetic ear that made you feel supported. You deserve it!!! You have walked through a valley of darkness and I hope that it is something hat will stay in your rearvie mirror. May your taxol road be easier!
I will be curious to hear about your chest x-ray since I also started experiencing shortness of breath upon the mildest exertion after AC #2 ~ my blood work definitely shows lowered red blood cell counts so I'm chalking it up to that. I head in for #3 this Thursday and am really not looking to more severe SE's. I feel like several posters notice faster onset of SE's with #3 so I'm preparing (ie. shopping, laundry, etc) before I go in!
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FriendGwen - I assume this is what the integrative physician was referring to:
Exercise Helps Prevent Breast Cancer
http://abcnews.go.com/Health/story?id=116923&page=1
We covered a lot of ground and she didn't want me to take notes so I'm not sure how this factors in with a recurrence versus an initial diagnosis of breast cancer.
Regarding alcohol - I have read that one of the best things women (and I suppose men) can do to prevent breast cancer is limit alcohol intake. I just did a quick search and found this 2010 Medscape article:
Studies examining the relation between alcohol consumption and breast cancer have been decidedly mixed. But a paper published online August 30 in the Journal of Clinical Oncology reports that alcohol consumption appears to increase the risk for breast cancer recurrence.
Link to full article: http://www.medscape.com/viewarticle/727885
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LeaA - thanks so much for the links!
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Peggy- congratulations on finishing with the red devil and his dubious partner, cytoxin! I'll be starting my first round of Taxol on Monday as well. I'll be sending good thoughts your way!
To everyone else...smooth legs?! After four rounds of AC, my leg hair is still hanging strong. :- p -
Ok so I have 25 % of my hair after three rounds of TC....is it a bad sign ? If the chemo isn't killing my hair ....is it killing the bad cancer cells ?
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Runner girl - i don't think I would have lost near as much hair had I not done a pixie and bleach job just after my first infusion . I most or my " other hair " is still there
. I thinki cutting our hair weakens it some .
Mt Julie - I had those red bumps too after the first TC treatment _ I think it is still somewhat of a delayed allergic reaction - I took Benadryl and the dr also prescribed a gel called clindamycin phosphate gel 1 %-they both helped .
Overall handling the TC Bette this time - no infections . I do still struggle with hearburn even though I am on daily Prevacid . I may ask mo about taking 2 pills instead of just one daily . I don't want to end up with esophageal cancer because or chemo !!!
Thank u all for your positive outlooks - this December thread had been a real mental health booster !! (((hugs ))) Sandy -
Sandra, much to my chagrin I've given up popcorn permanently, or at least during chemo, due to the GI issues. The Prilosec (generic) seems to have helped somewhat but I just popped a Pepcid in the last hour (and I'm on day 21).
FriendGwen, you're welcome (re: links). I've increased my one mile plus walk (20 minutes) to 30 minutes but I may have to break it into two fifteen minute walks per day depending on how this next TX goes, which the integrative physician said was fine.
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kslansky and runner - I still have some hair on my head and most of the hair on my forearms. The drugs are designed to kill the cancer, the hair loss (among other things) are just an unfortunate SE's. I wouldn't worry about it too much.
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Good day everyone! I have been MIA for awhile, had a great cycle two, and I used it to get lots done! Cycle number three which started on Monday hit me like a tone of bricks, I am a full-time student as well as mommy of six and school started back today. Hair grows in betwen cycles, falls out after, good to know it will grow though. Chemo brain is real and in my life! The only side effect that is bothersome (makes me a little nervous) is a elevated heart rate, not sure it is from my steroid dexamethosone or from the chemo, anyone else experiencing this? Still going strong with six treatments, half way there. Last question ladies, I have been given no scans, MRIs or any other testing and my doc said I would not probably get, is this typical for you all, I think I asked this, but CHEMO FOG! Also, what are the after indicators once we are done with treatment to let us know we are "cured" or in remission. I have asked my doctors these questions, just curious on you all takes and what your physicians had to say.
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I, too, have a question. I start my 4th treatment of TAC tomorrow. Last night, I went to dinner with some friends and got home about 7:30. I was so cold all though dinner and on the way home. I even jumped in the shower when I got home just to warm up. About 8:30, I started getting symptoms of a UTI. It came on so fast and I started chilling. I had a fever of 100.1, so I called the OC. She called the doc and I got a script of Bactrim that I had to get started on last night. This morning, the burning and urgency is gone, but I'm so tired and my bones ache, plus my ankles are swollen. Has anyone had anything like this before? Just out of the blue!
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Runnergirl~I've also finished 3 of 4 AC. I cut my long hair in a pixie the night before tx 1. Buzzed it the night before tx 2. I had treatment 3 on Friday. This all started on dec. 7. I still have all my stubble, lashes, and brows.
My hair had gotten dry and brittle, so losing it or not, I think buzzing it was a good idea.
Blessings
Paula -
Grannyj3 I hope you feel better soon.
Scaryola, I too woke in the night with palpitations. Did not attribute it to steroids but I hope that's what it was. Im also having dexamethasone! I'm on Day 4 of round two. What chemo are you having?
My MO told me I wouldn't have scans as its so unlikely the cancer had spread, I can't remember if I read that scans can be bad for us and actually cause little mets? Anyway, he said they wouldn't bother scanning without symptoms and I'm happy with that.
Hope everyone is going ok, I'm stuck in the jet lag hangover stage.
Stay strong
holly -
Chemo number 2 last thurs. Did get heart palpitations today and lightheaded . I thought I was drinking enough but mo said that I must be dehydrated. Drank more and Feeling little better and want to exercise but not yet I guess.
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Grannyj3
I had a spontaneous UTI right before 3rd or 4th cycle of AC. Was put on Cipro for 5 days and cleared up.
Read somewhere after that that UTIs are a SE of chemo treatment but less common than other SEs.
I had to go into MO office and see NP before they would prescribe.
My feet have been abnormally cold even with socks and slippers since my 2nd AC treatment.
Hope We don't get another UTI!
Peggy -
ScarYola - Glad you are doing well with your chemo, especially with everything else you have on your plate. Several of the ladies on here have reported an elevated heart rate on TAC.
I had a great appt with my PS today. He does not think there is any reason I should loose the implant with node surgery, but said I have options if I need them. He also gave me the name of a BS colleague that deals with weird recurrences all the time. Perfect. Now I just have to wait for them to call me with an appt.
Hope you all are having a good day.
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Peggy - I was wondering if this was an SE. It was just so spontaneous. I was put on z-pac for a sinus infection, which I had just finished up the day before this hit. And just before that I had been on Cipro for 10 days just for the chemo. I have relatively mild SE and now that I am half way through this, I was quite excited. I think I will just be grateful and hold my excitement for when I am completely finished!
I'm right there with you! I hope we don't get another UTI, too! I hope NO ONE gets one!!!
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Runner, I shaved my head bald after tx#2 because my poor scalp hurt soooo bad when I laid my buzzed head on the pillow at night and it's already grown back allover about 1/4 inch. And now it's MUCH softer and doesn't hurt
I still have hair on my arms, even a little on my legs and "down there" too. I don't know what made me think I'd look like this:
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Holy smokes Steiner18! Where did you get that picture??? Our cats are super furry and this picture makes me cringe a little.
Now that you mention it, I do notice that I still have some soft light hair on my forearms. Legs, pits, head and pubes are 99% hair free, but the arms seem unchanged. I hadn't really noticed before now but I guess it makes sense because chemo goes after the fast growing cells so I guess it goes after the fast growing hair.
Getting my bravery up to head in for AC #3 tomorrow. I've heard that it was a tough one for some of you so I'm definitely setting some mental resolve before I head in.
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Hi everyone! I woke up at 4:15AM motivated to do something today. I am so jealous of you exercisers...so I am determined to hop on my elliptical today, even if I slide off after 5 minutes. It's raining in So Cal this morning, so no walking!
I am on day 11 post AC#3. #3 has been a doozy...... I trust God has a plan, but He is sure is challenging me this week. My 7yo boy having school issues, my work division is in process of being sold (don't know if I will have a job to go back to), my right hand at work gave her resignation to me yesterday, and I am Still fighting the bronchitis and voice issues. Sigh. 😳 Something good will come out of all this. Lord, provide patience and strength please!
Nicole, you have a great sense of humor. Loved the seal comparison. You have made me laugh so hard, which hasn't been easy for me to do. I think I'm suffering mild depression, but I'm just stubborn as hell and I don't want to start taking meds for it (Mom is bipolar and takes lots of meds). Anyway, back to the slick body.... I was SO hoping to not have to shave for this time; it was supposed to be a highlight! I lost ~97% of my head hair, but that 3% is hanging tough and growing!!!! My lashes, eyebrows, legs, and arms are like they always have been. Still having to shave the legs regularly. But armpits and girl parts are "seal skin". Hahaha! Glad to hear a lot of you are having similar happenings....it's nice to not be alone!
Is anyone else dealing with insanely dry skin from AC? I'm so bad, like I have never experienced before! I am a desert. I am even using a form of infused olive oil now to try to relieve it....plus I noticed new wrinkles in my face. Oh NO!!!!!. I am working on getting enough liquid in the system to stay hydrated. Any suggestions?
Finally, I can't remember which of you recommended the BUFF head covers......but THANK YOU!!!!!!!!! I ordered and I love them. I even got one for my little guy and he loves it too! I wear it for sleeping to keep my head warm at night, so much better than sleep caps I tried before (darn seams hurt my sensitive head). And I wear them all the time except when I'm "wigging out"! 😃
Thanks for being here.....
Dawn -
Hey Dawn,
You are not alone in experiencing mild depression. I'm definitely right there with you. Last night I dreamed I was at a party with my family and friends and everyone was having a great time except me. It was too loud. It was too chaotic. I wanted a quiet corner to retreat to and there wasn't one there. When I woke up, I had to give that dream a 10/10 score for metaphorical accuracy. I use humor to try to lighten my own tendency to get serious and somber when I'm depressed. Besides humor, exercise (when I can manage it) helps a lot with the persistent low level sadness. I'm heading to the gym for some treadmill walking before AC #3 today. It always helps to have a little stress relief before hitting the poison recliner. I too am reluctant to go the antidepressant route because I worry about what a whole new level of meds will do to my chemo brain. I take each day as it comes and I still find my mood rebounding by days 10 - 14 in the cycle, but the rebound this time was not as great as with AC #1. I'm definitely watching it, with some nervousness as I head into #3. I might talk to my naturopath and see if she has some suggestions.
I noticed a new SE this morning and I'm wondering if anyone else is seeing it? The nail beds on my thumbs look bruised down by the cuticle. There is a deep purple flush to them. I had heard of nail problems with Taxol but I haven't started Taxol yet, just 2 rounds of AC under my belt. I will definitely ask the chemo nurses today but I was wondering if any of you have this SE?
Wishing everyone (especially me) an easy Thursday!
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Good morning,
You ladies are all amazing. You are all so honest and forthcoming with information It is very comforting to know that others are experiencing the same things as I am although it stinks that any of us have to go through this.
Geez, I got those little red bumps on the crown of my head too. I didn't see anywhere in my chemo school papers that would be a side effect... so thanks for the tips.
Also experienced the heartburn big time for about a week after chemo, but have now found that simple TUMS takes care of it. Easy to carry in your bag or pocket and you can take them often.
Hope you all have a good day today!
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Donster, thanks for mentioning the Tums this morning. My MO mentioned Tums yesterday as an alternative to the Pepsid I've been taking (I'm also taking generic Prilosec upon waking). I used to have a big bottle of Tums but must have taken it or tossed it at some point in the past. I'll be buying more today based on your recommendation as well as his.
Dawn, I'm in Southern California as well and am wondering how I'm going to get my 30 minutes of walking in today. We're members at the YMCA but I really don't like inside/treadmill walking (besides that, I'm a germaphobe!). I'm hoping it will taper off but hey, I can't complain, CNN just mentioned wind chills of 85 below zero in Mt. Washington, New Hampshire!
Nicole, I love your posts. You have a great attitude and like so many others here, an excellent way of putting to words what I'm often feeling - i.e. "persistent low level sadness." Thank goodness it comes and goes. If it comes to stay I'll have to look at other avenues.
Wishing everyone a good day with few or no side effects! And stay warm and/or dry - wherever you are!
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My newest side effect is that my eyes run all the time. TAC#3 this Tuesday so been busy cleaning so I can enjoy the wknd with the kiddos. Hope everyone is doing well. I have no hair on my head, little down there, none in the pits, a little leg hair but I don't shave.
For those with depression - I started celexa about a month ago bc all I did all day long was cry. It took about a month to kick in and I haven't cried in weeks in fact I am a much more happier person and horny, which is weird. But I am all weird about having sex - I have no hair and 1 boob. I'm not sure how how all that works out. Sorry that might have been TMI.
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