January 2013 chemo group
Comments
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Hi Brandie, hoping you don't have to go through chemo but if you do know that we are all here for you. I am just starting my chemo on Monday. It is helping to read what the ladies here have to say. Thank you for your prayers. We will be praying for you also. Colleen
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Welcome to the newbies sorry you have to be here . Hello to everyone here just updating you on my status.
In the am I am schefuled to have my heart exam done at the hospital. Sat is my appt. for the port placement .I am considering having it put in my arm as to the chest Will see how it all goes . Doc called today to call in a prescription for Vit D3 glad he did . Learning still so much about the do 's and dont's .Doc did say I can not have coffee anymore green tea only .Fruits and veggies sounds great .
Glad to hear everything is well for you all . Will keep you posted .
Fighter
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Hi Ladies...i'm a Feb 2013 Chemo and have been lurking here, gather intelligence on what's to come. Just wanted to say i enjoy this thread (as much as one can enjoy anything bc related) and thank you for your continued strength and humour (especially Bryona's crack monkey). Pls feel free to pop into the Feb chemo thread- your experience, info and suggestions would be very welcome. And thanks... Here's to chemical warfare...death to cellular insurgents. Shannon
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Bryona ~ I mostly post on the December boards but come over here periodically and just wanted to complement you on your articulation of the "rough patch" that comes following AC. That is exactly how I felt after both of my treatments. #2 was worse than #1 but it IS hard to articulate exactly why. It is as much a crisis of spirit as it is of body for sure.
I'm theoretically scheduled for #3 tomorrow but my CBC results this morning were abnormal so I have an advice nurse trying to figure out whether or not they will be deferring me tomorrow. I'm not really sure which outcome I hope for.....I don't really wanting to get poisoned again so soon but I also know that the only way out of the chemo valley is through it so there's something to be said for just getting back up on the horse and riding a little further.
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Happy Wednesday, everyone! Welcome to the familly, Tammi and Giraffe...you came to the right place as this is a wondefrul group that has helped me more than I can express.
skimommi, it's interesting what you mention about taste and vinegar...everything tasted so salty to me at first and then I started back on taking apple cider vinegar every day to help me just in general, but now that I think about it, my taste also started to retrun at that point, so russell, it's worth a try. I mix 1-2 T of organic, raw ACV into a small glass of water and chug it. Not very tasty but it's good for so many things.
Bryona - so glad to see you back with us and feeling a little more like yourself!
I know I am a bit late weighing in on the food ideas but as I was struggling to find something I wanted to eat my DH bought me several cans of Campbell's Chunky soups. I steamed up frozen veggies and mixed into the soup and then poured over whole grain noodles...I subsided on that for days, and it helped with both calories and protein as I was starting to lose weight. Normally I would steer clear of a salty canned soup, but it was a godsend and easy to mix up, just healthy it up with the veggies. I will also admit to going the Taco Bell route one day as it was all that I could think of...didn't taste as good as I was hoping, but at least i was able to eat that day. I'll try the fish sandwich next time around!
Amrdbit, hope all is going well...just remember we have an average of 100,000 hairs on our head with an average shed of 50-100 per day, so while some will still fall, I know you'll do great with the caps! We just need to keep more than we lose
LOL!
Hope all you Wednesday lounge ladies do well today!
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Ciao everyone-
Just got back from my CBC which was less than spectacular. I was sent home with a script of cipro (antibiotics) and instructions to stay at home today and tomorrow. I feel ok though-enough to go and eat Thai food for lunch :-) I made an appointment with a naturopath/acupuncturist Monday so I'm pretty excited about that.
Newbies-Tammi, Giraffe (anyone else I forgot) welcome to the club.
Colleen-this might be redundant, but take it day by day and BREATHE ! :-) I was getting horrid anxiety until my happy pills -but I still meditate, pray, and take each day as it comes. Looking at this big picture for me right now is too overwhelming.
Bryona- welcome back Bella and glad you are doing better! I had the same feeling last Friday and Saturday and then Sunday I had a little cry in the shower (it's where I do my best crying) over nothing in particular and kinda went back to "normal".
Skimommi- I LOVE that story your shared -kids are the sweetest. My veggie broth was super easy I bought organic (and scrubbed them) carrots, parsnip, celery, potato, onion, 2 smashed garlic heads, 1bay leaf, some whole black peppercorns, and 2 Tbsp of tamari (or soy sauce) to salt it up but I'm sure you can use more, i just limit my sodium intake bc of its dehydrating nature. I quartered up all the veggies and stuck them in 6-8 cups of water in a crock on the stove (you can use a crock pot too) on med-low for about 3-4 hours then let it cool and strained it into a mason jar. The flavor isn't strong but better than water and I can't take the fake crap in bouillon!
Zorina-thanks for your input on the STD. <<giggles>> I turned in my time record Monday (payroll day) when I took the day off and I'm sure they thought I was ready to go. My paranoia stems from being fairly confident they were building a case to fire me before I was diagnosed-now they can't do anything (I hope). My direct manager doesn't even contact me anymore except for the initial obligatory "sorry you got cancer" email.
Mutual of Omaha contacted me today because I'm not sure if I can even do intermittent STD. Being off work until June really wouldn't be the worst thing ever. But we'll see.
Nance-get better soon!!!! Prayers & love to you!
Everyone else enjoy the day and whoever had some cocktails hope your hangover is nonexistent!
Nikki -
Sorry my post came out in a big blob. Don't know what happened! :-/
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Nicole - sitting in the chair right now and just read this:
"The only way out of the chemo valley is through it"
Perfect!!
I wasn't sure if I was going to get my cocktail today but my WBC was up so I'm sitting here listening to music and perusing the board.
Music helps (I like being in my own little world).
Nicole, I hope your counts come up and I thought about your seal comment while I was in the shower this morning and laughed because I was shaving my legs while hair was falling off my head - ha - why do I think my leg hair will persist throughout this? I can't imagine not having a 5 o'clock shadow (on my legs).
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Speedy well wishes to Nancy
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And now I know what the Red Devil looks like (the woman across from me just had a bagful)
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Hope everyone is having a good day - all things considered. -
Skimommi- Love the new picture! I have no idea what to do with this stubble on my head. It's getting blotchy and i find myself just pulling it out. I would think that the duct tape thing would work. lol. sounds a little harsh though. My son thinks we should try it. He is still giggling.
Tammi- Good luck tomorrow! Remember, Stay with the meds and stay hydrated. They dont want you to have bad SEs. So I listened to my body and I had a dry erase board to keep track of what I took and when. I was dead on with the timing of all the anti nausea meds. I never missed one and I had very few problems. Certainly nothing that kept me in bed and unable to care for myself.
Fighter69- I cant do anything without coffee first thing in the morning. I have cut way back. I know caffeine dehydrates you and that's the only reason they gave me as to why I should cut back. So, I am def hydrating enough with 3 litres of water daily. I can afford a coffee. lol
Paula- Feel better and get home soon! I'm praying for you.
Bryona- Welcome back from the fog. It's tough not being able to focus and feel do disconnected.
Nikkiliz- you said the magic word -parsnips- we love them and I have copied your recipe. oh and I have found a new craving. it's broccoli. I have hated broccoli since I was 5 and now I cant get enough. weird.
This week I have been busy. I've packed all the appts in this week so I can hibernate for the next few weeks following TX#2. I saw my PS this morning and he is happy with the way my reconstruction is settling. It does not look like my right one yet but I can see how it will a few months from now. So, good news from him. So, now it's just the MO for a while. It's takes some organizing to keep all the DRs straight.
Friday I am going to ask if I can go back to work part time. I hope she says yes. I love my job and I miss the fast paced world of bartending. If she says no then oh well... bummer. I'm going to have the cleanest house on the street.
And YES... smethot- Here's to chemical warfare... death to cellular insurgents! Well stated... I might have to borrow that statement.
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Brocolli has cancer fighting properties.
Link:
http://www.dailymail.co.uk/health/article-2190293/Researchers-discover-broccoli-suppress-growth-breast-cancer-tumours.html -
Skigirl- a) I put a request to you on FB b) Parsnips are SO underrated! (as are turnips and beets-but i digress). c)Broccoli is awesome! Try it roasted... :-)
LeeA- hope happy hour is going well! I take that particular red devil you saw except in push form which looks like they are pumping Hawaiian Punch into your port. Its bizarre. -
NikkiLiz - I'm on my last bag (Herceptin). I asked them to run it over an hour and the nurse agreed to it. I'm going to have to do a google image search of adriamycin via pump (this was hanging). Since it was such a distinctive red color I just assumed it was adriamycin but perhaps it was something else. She just had that one bag and then left. And she had shoulder-length hair that looked intact (unlike my own sans 75,000 or so hairs). I see a pair of clippers in my not-to-distant future.
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Brocolli with ginger is also really good. We buy the chopped/frozen ginger at Trader Joe's. Our local Chinese restaurant serves an excellent ginger brocolli.
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Lee-I could take a picture next time and post it if you'd like! Lol I saw a woman with the same bag last week and she had a full head of hair too! Next week I'll be at the 75,000 mark I hope it's gradual so I can understand what my follicly-challenged male friends feel like! Lol!
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I totally have a new respect for the bald man...
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Thanks, ladies! It's a huge relief to hear that I'm not the only one in the fog. And Paula, "fog" is just the right word. All this time you've been talking about it, but I never knew what you meant until I was in it myself. I wonder if anyone sells chemo fog lights. You know, like the ones on cars, only for my brain...
Zorina, hooray for a full set of clean scans! And hooray for the 1000 deaths for any rogue cells, too. I like to think that after surgery I had 16 cancer cells left, and each chemo tx is killing one of them.
Colleen, here's a different way to look at things: For me, the worst part of the fog was the part where I didn't know what it was. Now that I know, I think it'll be easier to wait it out next time. For you, since you've had feelings like that before, maybe if it happens during chemo you'll already be prepared for it. Anyway, looking back at the first week I can honestly say it wasn't so awful. It was strange and new, and I'm not saying I'd choose to do it for a weekend of fun, but it was really okay. You will be okay, too. Hang in there, sister.
Holly (kiwi), I've been having palpitations for the past few days. My heart isn't racing or irregular, but it sure does beat HARD! I hope yours has eased up, and that the demolition men have decided that today is a great day for drinking tea and cleaning out their tool boxes.
Fighter, thanks for letting us know what's going on. I hope your port placement is a piece of cake.
Shannon (smethot), I'm so glad to see you. I hope your surgery went well and you're charging forward with that same take-no-prisoners attitude you started with. And I think I may have a t-shirt made with that as a slogan: Here's to chemical warfare...death to cellular insurgents. Awesome!
Nicole, I totally understand not knowing what to hope for. Even knowing that the only way to the other side of chemo is through it (great metaphor), how can we help wanting to just sit down at the side of the road for a wee while and have a bit of a rest. Whatever they decide for you tomorrow, I'm sure you'll make the best of it.
Nikki, we really are chemo twins! I have my Red Devil as a push, too. Are you every two weeks for your AC or every 3?
Lee, woohoo for rebounding WBC! I'm sure what you saw was Adriamycin. I don't think there's anything else in the chemo world that looks quite so much like Kool-Aid. I'm not sure why it's dripped for some and pushed for others; I guess it's time for the research junkie to do more research.
Skigirl, I hope they let you get back to work. I was a bartender for 5 years (back in the college/grad school days), and I can see how it would be a great distraction. And you strike me as a whirlwind! Maybe even one with duct tape on your head...
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HI Ladies--Just thought I would pop in to let you all know I am thinking of you. I celebrated my one year "cancerversary" today and am here to tell you: YOU WILL GET THROUGH it. I don't know how I would have gotten through it had it not been for these threads. The support I received has been unbelievable and have met some great friends. I go for my one-year mammo tomorrow and meet with my BS on Friday. Keeping my fingers crossed.
If there's anything I can do for you ladies, please feel free to reach out to me. XOXO Karen
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Does anyone know why the Adriamycin is red? What's the point? Just curious...it's not like they track it or anything as far as I'm aware of so not sure why the vibrant color???
Speaking of the drugs, something I was taught and wouldn't have otherwise thought of at first is that the bathroom in the chemo center is teeming with all the drugs that get splashed about when either the guys pee (my center is a unisex bathroom) or from flushing - I was shocked that the toilet didn't even have a lid you could put down - yuck! Since you're drinking so much water, skipping the bathroom is out of the questions, so I would go and then get up and turn my back and reach back to flush while I ran to the sink area holding my breath! LOL!!! There has to be a better way. The other advice was to use a separate toilet from the rest of the family at least for the first 72 hours and of course close the lid and then do 2 flushes to get as much of the drug residue out of the toilet as you can. Meanwhile, we keep all of these lovely chemicals in our body...I like the 'chemical warfare' phrase, too and will keep that in mind, it's all for good reason, just scary sometimes when you think about it.
Have a great evening everyone, hope you all sleep well tonight!
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hope, I think Adriamycin is red because the microbe it's derived from is red. I don't think they add any pigment to it; it's just naturally that color. Although of course I use the word "naturally" loosely!
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Bryona- we're definitely twinsies! Lol! I am every 2 wks and my taxol will be weekly
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I just consulted Dr. Google and saw this:
If the dose of Adriamycin that you are being given is very thick, it may be given as a "push" injection, rather than through an intravenous drip. This red fluid drug will be delivered in a large plastic syringe, which will be attached to your catheter tubing, and your infusion nurse will slowly depress the plunger manually, to inject the Adriamycin into your vein.
http://breastcancer.about.com/od/chemotherapydrugs/p/adriamycin.htm
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Thanks for the thoughts ladies. I connected with the advice nurse this afternoon and my neutrophil count is high enough to proceed with treatment tomorrow. Hi ho, Hi ho, it's back on the horse I go!
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Hi ladies
I just wanted to pop in and say hi. It looks like chemo for me but not sure when. I've been so terrified about it i wake up sweating. I feel like I won't be able to do it or run out of the chemo room. Did all of you feel this way. How do your kids react to all this. I have three under 10 6 6. I will probably be doing mine in February but don't know how I can get thru it. It's been a worry of mine from the start and now I have to have it. My appointment is next week. Did everyone on here have a port? I really don't want to have one. I don't want another surgery. I'm so petrified about chemo and just upset. It's always on my mind. The hair is another big concern. I just don't know if I can handle having frozen scalp from cold caps.
Sorry Ramble just worried -
Question -- has anyone had an MRI with the latest water technology, called Diffusion-weighted imaging? It's purpose is to more accurately differentiate a benign from non-beningn area, so that women don't have to go through unneccesary biopsies. It eliminates the false positives. Here is some information on it:
Diffusion-weighted imaging, which uses water diffusion measurements, performed with MRI for breast cancer screening may reduce the number of preventable breast biopsies, according to a study published online in the journal Radiology.
The increasing use of dynamic contrast-enhanced MRI (DCE-MRI) for breast cancer screening has resulted in a substantial number of false-positive findings. These false positives often resulted in women having to undergo unnecessary breast biopsies. Researchers found that the introduction of diffusion-weighted imaging (DWI) to DCE-MRI reduces the incidence of false-positives and the procedure does not require any additional contrast or hardware. Further, it only adds a few extra minutes to the exam.
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Fighter69: What is the prescription for Vitamin D3 called? I too had a low Vitamin D3, but my PCP just told me to start taking 2,000 units of it a day.
Hi Everyone !! You all have been very busy on here today, and I'm still trying to catch up and see what I have missed.
)
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I buy Vitamin D3 at Costco. The integrative doctor at the cancer center where I have my chemo treatments says Costco is very careful about screening their supplements.
My Vitamin D3 level was 42 ("normal" is between 35 and 100). My oncologist, who is the medical director of the center suggested I drop down to 2000 IU daily but when I met with the integrative doctor the other day she suggested I bump it back up to 4000 IU (after I told her my level was 42).
I buy the Kirkland brand - 2000 IU per capsule. There are studies out there that a level of 50 and above helps prevent breast cancer.
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chgogemini......Dang, I was sending you a reply and my computer decided to erase all that I wrote! Don't be afraid...You can do this! I think you may decide you DO want a port, otherwise your veins are going to get ruined and then forever when you need to get any lab work or whatever, it will be very hard for the tech to get a vein and you will have to be stuck a few times...a port will save your veins and can be removed after chemo is finished, there ya go! As far as your hair, you can get a wig (I don't want one), or get your hair cut now, and keep getting it cut and then buzzed short so your kids and family and friends etc get used to it. I have a friend who just finished chemo and lost all her hair. She got a few different cute and funny baseball caps, and she looks cute in them! She used to have a fine head of hair, and will again, it's not permanent. The side effects are managable for the most part, and as women we probably have endured a lot more crap and aggrevation and pain than we ever wanted to and have come through it all with flying colors, or at least with colors. Don't let fear get the best of you. Then you have to worry about the chemo for weeks before you even do it and you don't even know if it is going to be that bad for you! I haven't done my chemo yet, but I've had to endure a lot of other things in my 66 years, and I know I didn't want a lot of them, but all I am now is stronger for all of my experiences. I feel your apprehension and your fear in your post. You will be fine. Keep checking this forum and get all the encouragement you can from these wonderful women! Also some good coping ideas too! Sue
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chgogemini - I can relate to almost everything you wrote and I, too, was paralyzed by the thought of chemotherapy. I'm betting many others around here might have been of the same mind.
I just had treatment #2 today and I can only speak from my experience thus far but what I've found is that it's very doable, for lack of a better word. The anti-nausea meds that have been developed in recent years seem to have really changed the chemotherapy experience.
I'm sorry you're feeling so much anxiety over it and I understand completely as I couldn't sleep the night before the first treatment.
Just be sure to take the anti-nausea meds as directed. You don't want to "chase" the nausea once it starts (to quote one of the chemo nurses at the center where I have treatments).
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Oh, chgogemini, big gentle hugs for you. I know this is scary. It's completely normal to be afraid, but I'm pretty sure the fear is far worse than the chemo itself. You can do this. You really, really can. It probably won't be the most fun you've ever had, but you'll come through the other side and be around for those beautiful children for a long, long time. The drugs they give us to help with side effects are pretty amazing; it's not like chemo in the movies. Take a deep breath, and then another one. And if that doesn't work, I know some of us on this thread are big fans of Ativan for relieving some anxiety when it becomes overwhelming. And remember, there are lots of women on these boards who are here for you and understand what you're going through.
Nicole, safe journeys on the next leg of your ride.
Inspired, my PCP gave me a perscription for Vitamin D, also. There are dosages that require a perscription, but in my case it was a lower dose (1000 IU pills)-- the script just meant I could use my FSA for it. Ah, the good old days, when I had $ in my FSA...
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Hope49, I got a chuckle visualizing you doing what I would would do...hold my breath and run lol!
Nicole, good luck at the bar tomorrow. Glad all is well enough to restart.
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