Is There A September 2011 Chemo Group?

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  • RaeBob
    RaeBob Member Posts: 79
    edited November 2012

    Well it has been a long time since I have been on here but I have never forgotten you ladies and how you supported me in some of my darkest moments, especially you Kimberly with your humor and our late night conversations. I have often thought about all of you.

    I got busy with a double mastectomy diep flap and going back to teaching trying to put myself and my life back together and you all know what I am talking about.

    Kate you look adorable and your son is a cutie pie too. RJ glad you got everything worked out with your grand kids. I hope everyone is doing well.

    I came out of this with the same straight hair about 3 inches or so long now. In fact some lady asked the other day where I got it cut and I said I don't. As she looked at me funny I fumbled around with something about growing it out from chemo. Oh bless your heart she said and I thought wow its been awhile since I have had to deal with the chemo issue with people since I am back in the world of looking relatively normal again. I haven't dyed it yet but don't really like rocking the gray much!

    I am 45 pounds lighter so that's nice except when friends say dumb things like you are so lucky to have lost all that weight and got a tummy tuck too. I just look at them like WTH are you crazy then they sort of try to back track and just make it worse. Or I love the one where it just pops out you lost so much weight and then it just hangs there because what are you going to add wow you look great or gee cancer really reshaped you nicely.

    Overall I am doing well still have the neuropathy in my feet some in my hands the Doc told me it disappears after a year for 90% well unfortunately my lucky numbers have never been good so it seems I am in the 10%that will never get rid of it.

    I can handle anything as long as I never have to deal with "the other stuff" again. Well one of these days I may try to get rid of the goofy profile picture. That seems like another lifetime ago.

    You all take care I have a face book too I will try to friend you. Hugs to all of you!!

  • khegidio
    khegidio Member Posts: 100
    edited November 2012

    Sitting at the hospital waiting to be called back for my 6 month scans...just to make sure the cancer hasn't come back. Scanxiety is hitting BIG TIME. I hate this feeling. I have felt great recently and so I am not expecting bad news. But - we all know how that goes. I expect that I will have scanxiety for the rest of my life.



    So ladies.... Pray for me and that my results come back clean. My 3 month scans did so I don't have any reason to think these will be any different. I think I'll feel better the mo clean scans I have under my belt.



    I'll keep you posted. I should have my results when I see my MO on Friday.



    Hugs to all my BC sisters!

  • khegidio
    khegidio Member Posts: 100
    edited November 2012

    We must be coming up on some 1 year celebrations - i'm sure we've already passed some.  Who's ready to celebrate!!

    I was diagnosed on 9/7/2011, but since I did chemo first and then surgery, I don't consider my cancer free date to be until 2/1/2012.  Coming up on that one year!! So far with cancer staying at bay! 

    Who else has milestones just recently passed or coming up??

    Kate

  • rjbaby69
    rjbaby69 Member Posts: 349
    edited November 2012

    Me!  I want to celebrate!  I was diagnosed on July 20, 2011 and had surgery, then chemo and then finally radiation.  I have already celebrated my cancerversary so I'm getting close to celebrating one year since my last chemo!  I had my last chemo on December 22, 2011.  Hardly seems possible that it has already been a year.  So much has changed in my life since a year ago.  I finally feel I have found my new normal and I am happy to just be living again.  My grandbabies are doing well and we have settled into a nice little routine.

    I am looking forward to the holidays.  I always loved having family and friends around during this time.  Now, more than anytime in the past, it is especially fulfilling.

    Hope you all have a wonderful holiday season.

    HUGS!

  • rjbaby69
    rjbaby69 Member Posts: 349
    edited November 2012

    RaeBob:

    So good to hear from you.  I can't believe your hair is straight!  Mine came back as curly as Shirley Temple's!  LOL!  I'm still trying to figure out how to deal with it most days!

    I am wishing you and your's a wonderful holiday season and I hope and pray we never have to deal with this "stuff" again!

    HUGS!

  • cooka
    cooka Member Posts: 278
    edited November 2012

    Hello everyone, I was just checking in to say Happy Thanksgiving and to say I think of you often. Today marks 1 year since my last chemo treatment, and i have much to be be thankful for...especially all the support that got me through to this point.  Hope you are all well.  Cheers, Anne

  • Kimberly1961
    Kimberly1961 Member Posts: 407
    edited December 2012

    I's a Wonderful Life guys, isn't it?  We have all had at least one more year.  i so love that one year later, I finally needed a haircut/style.  That is my christmas present landed on me this year.  Ladies.  I remember all of you.  All the fear and pain and fricking cancer we shared.  I love you ladies. Merry Christmas and Happy Hannukah to all of you dear souls who helped me during the worst.  I just want to say, I remember you guys, and love you for holding my hand throught it.  Oh dear, I don't even know how to say thank you for being there.  Love you ladies.  Kimberly

  • Kimberly1961
    Kimberly1961 Member Posts: 407
    edited December 2012

    You guys gave me a lot of strength that I don't think I would have otherwise had to get through treatment.  Pat yourself on your shoulders, that you fished someone else out when they would have gone under. Love you September ladies.  Kimberly.

  • CJRT
    CJRT Member Posts: 524
    edited December 2012

    Kimberly, your words brought tears to my eyes. You put into words what I think/feel.

    Every now and then I venture back to this board or the boards in general. I have mixed feelings doing so because I hate to stir up BC thoughts when I am trying so hard to move on but I feel that you September ladies helped in ways that I don't think I will ever be able to verbalize. I think of you all often, feel so grateful for all of you, and only wish you had been brought into my life under other circumstances. Wishing all of you the best for the holiday season and a wonderful start to a new year. Hugs to all of you!

  • rjbaby69
    rjbaby69 Member Posts: 349
    edited December 2012

    Ladies:

    I feel the same way as Kimberly and CJRT.  I miss you gals a lot and I'm glad we've gone on to live again and find our new normal.  I would never have made it through all that I've been through without your support, advice and more importantly, your friendship.  You all mean a lot to me, especially when I didn't know if I would see tomorrow!

    I wish for each of us a blessed holiday season with lots of love and laughter.  So proud to call each of you my cyber friend.

    Lots of LOVE and HUGS!

    RJ

  • belleeast
    belleeast Member Posts: 653
    edited December 2012

    hi ladies,I,too,drift back here to check on everyone even if I don't post. I am very thankful to have had all of you in my life! I am glad everyone is moving on and recovering!

    I think I told you all about my great-niece Halli being killed in April,2009! They finally had the trial,I just got back from up north on wed. It lasted 7 days, jury was out 2 1/2 hrs. Guilty of first degree murder!!! I am so relieved it is done except for sentencing on Feb 25,2013!

    It was emotionally and physically exhausting being there! Seeing the autopsy photos, listening to the experts and other witnesses was horrific at times. We got some answers but I don't think we'll ever really know the truth about what happened especially concerning her mother's involvement!

    I hope everyone has a Merry Christmas and enjoys the holidays with their families and friends. May God bless you and yours this season and the new year coming up!

  • CJRT
    CJRT Member Posts: 524
    edited January 2013

    well i ventured back on today because i am freaking out and you ladies had been such a support to me in the past. i thought things were going well, though i seemed to have hurt my hip exercising with my personal trainer. i went to a random orthopedist today to see about a physical therapy referral, and he noted a suspicious lesion on my femur near my hip socket. he would like me to get a bone scan and hip mri immediately. he had no bedside manner and immediately went to dictating the note without saying anything more or seeing if i had any questions. i feel like breaking down crying and am waiting for my oncologist to get back to me. in the meantime, he told me to use crutches or something so i don't fracture my femur. i feel like this is a nightmare....just like at the beginning of this ordeal. i hate being negative at this point of the game but i can't help my mind venturing there. though i hate to burden any of you, i just felt like putting it out there to people that can understand. i hope that 2013 has started out well for all of you.

  • rjbaby69
    rjbaby69 Member Posts: 349
    edited January 2013

    Belleast:  I am so glad and relieved that the trial is over and you have the verdict.  Please let us know what the sentence is.

    RJ

  • rjbaby69
    rjbaby69 Member Posts: 349
    edited January 2013

    CJRT:  I understand somewhat what you are going through.  This cancer is soooooo damn scarey!  I was going to tell you to stay positive, but I know that is so hard to do.  But know, whatever "it" is, we are all here for you and care about you.

    Please, please, please let us know what your onc says.  Know that we are here for you!  We care about you and you are important to me too.

    Sending lots of hugs and prayers your way!

    RJ

  • rjbaby69
    rjbaby69 Member Posts: 349
    edited January 2013

    Well ladies, been a long time since I have written in this forum.  I am doing well.  The kids seem to have adjusted but their mother is back from prison and at times, it's difficult for the baby girl to come back home.  She is up to her old tricks....not going to NA meetings, moved back in with baby girls daddy cause she had no where to go......guy that she parolled out to asked her to leave....you know.  The usual stuff that addicts do.  She quit her job at McDonald's so she is currently unemployed.  Ho hum, same song, nearly the same verse!

    Had bone scans, CT scan and bone density test done today.  Will see my onc tomorrow to discuss results.  As usual, I am scared.  Been having some hip pain and naturally I jump right to the conclusion we all do.  Hopefully, I'm just getting old!  LOL!  We shall see tomorrow!

    Here's wishing you the best!  Until I "talk" to you ladies again;

    Love and Hugs!

    RJ

  • CJRT
    CJRT Member Posts: 524
    edited January 2013

    RJ- thank you! you will be in my thoughts tomorrow, too. i will definitely keep you posted. hoping we both get positive results tomorrow. xo

  • ccjj
    ccjj Member Posts: 128
    edited January 2013

    Hi Ladies,

    Have not been on for awhile and was happy to see our Sept group was still active and posting. However very sorry CJRT to see you are dealing with hip issues. I am keeping my fingers crossed that's its just a normal old exercise injury.



    Sending positive thoughts and hugs your way. Good luck to you also RJ.



  • cooka
    cooka Member Posts: 278
    edited January 2013

    CJRT,

    I am very sorry to hear you are going through this.  Fingers crossed that all is well and you don't have long to wait and wonder.

    best,

    anne

  • cooka
    cooka Member Posts: 278
    edited January 2013

    RJ, thinking of you too, I meant to add you on the post before:) 

  • CJRT
    CJRT Member Posts: 524
    edited January 2013

    RJ- Hoping you have already gotten good news!

    Cooka and CCJJ- Thanks for your positive thoughts!

    Belle- I am so sorry that in my self-indulgence I did not notice your last post. I am so glad for you and your family that your niece is finally getting some justice. May this bring some peace to your family. It kind of parallels the cancer, in a way, with the ongoing trauma at each stage of the process. But I am hoping that 2013 brings you health, happiness, and peace.

    an update- my MRI showed a severe tear in my hip and a suspicious 2 cm spot "highly suspicious of malignancy." However, my bone scan showed inflammation but did not suggest metastisis. My oncologist said it would be unusual to have a clean bone scan and that the pain is most likely the tear. However, she ordered a PET scan for tomorrow for clarification. Asking for all your positive thoughts/prayers!

  • ccjj
    ccjj Member Posts: 128
    edited January 2013

    CJRT.... Sending positive thoughts your way.





    ccjj

  • CJRT
    CJRT Member Posts: 524
    edited January 2013

    Thanks so much, ccjj. I will probably get the results tomorrow.

  • cooka
    cooka Member Posts: 278
    edited January 2013

    Thinking of you CJRT and RJ, hope all is well!

  • belleeast
    belleeast Member Posts: 653
    edited January 2013

    cjrt and rj,my thoughts and prayers are with you both. I'm in the waitng game again,too. Had a breast MRI done yesterday,24th, after taking the last "picture" he said i don't like how that turned out,we need to redo it! I was thinking CRAP,i know i didn't move or breathe deep or anything to mess it up!!! so had MO appt today-3 month check-up,while waiting for her,my mind was going back and forth like a yo-yo, she's going to say they saw something- no,she's going to come in and say it was normal!!! you all know what i'm talking about!

    well,she came in and said,you had an mri-yesterday,it showed a suspicious line not a lump,they recommended a biopsy and i do too.

    report says,(1)right breast 1.5 cm suspicious linear area of non masslike enhancement directly below the nipple. Additionally,there has been interval nipple retraction.2nd look ultrasound with biopsy is recommended.

    (2) benign postsurgical changes in superior medial right breast.

    (3) no evidence of malignancy in the left breast.

    Bi-rads catergory 4:suspicious abnormality -biopsy should be considered.

    ok,from what i've read lobular breast cancer presents itself as a line not a lump,does not show up on mammogram,it is usually found by breast mri or ultrasound.

    still hoping and praying it is not malignant, I had a lumpectomy last time,if it is back I am going to be pissed I let that surgeon talk me out of a mastectomy!!!

  • belleeast
    belleeast Member Posts: 653
    edited January 2013

    cjrt and rj,my thoughts and prayers are with you both. I'm in the waitng game again,too. Had a breast MRI done yesterday,24th, after taking the last "picture" he said i don't like how that turned out,we need to redo it! I was thinking CRAP,i know i didn't move or breathe deep or anything to mess it up!!! so had MO appt today-3 month check-up,while waiting for her,my mind was going back and forth like a yo-yo, she's going to say they saw something- no,she's going to come in and say it was normal!!! you all know what i'm talking about!

    well,she came in and said,you had an mri-yesterday,it showed a suspicious line not a lump,they recommended a biopsy and i do too.

    report says,(1)right breast 1.5 cm suspicious linear area of non maselike enhancement directly below the nipple. Additionally,there has been interval nipple retraction.2nd look ultrasound with biopsy is recommended.

    (2) benign postsurgical changes in superior medial right breast.

    (3) no evidence of malignancy in the left breast.

    Bi-rads catergory 4:suspicious abnormality -biopsy should be considered.

    ok,from what i've read lobular breast cancer presents itself as a line not a lump,does not show up on mammogram,it is usually found by breast mri or ultrasound.

    still hoping and praying it is not malignant, I had a lumpectomy last time,if it is back I am going to be pissed I let that surgeon talk me out of a mastectomy!!!

  • belleeast
    belleeast Member Posts: 653
    edited January 2013

    cjrt and rj,my thoughts and prayers are with you both. I'm in the waitng game again,too. Had a breast MRI done yesterday,24th, after taking the last "picture" he said i don't like how that turned out,we need to redo it! I was thinking CRAP,i know i didn't move or breathe deep or anything to mess it up!!! so had MO appt today-3 month check-up,while waiting for her,my mind was going back and forth like a yo-yo, she's going to say they saw something- no,she's going to come in and say it was normal!!! you all know what i'm talking about!

    well,she came in and said,you had an mri-yesterday,it showed a suspicious line not a lump,they recommended a biopsy and i do too.

    report says,(1)right breast 1.5 cm suspicious linear area of non maselike enhancement directly below the nipple. Additionally,there has been interval nipple retraction.2nd look ultrasound with biopsy is recommended.

    (2) benign postsurgical changes in superior medial right breast.

    (3) no evidence of malignancy in the left breast.

    Bi-rads catergory 4:suspicious abnormality -biopsy should be considered.

    ok,from what i've read lobular breast cancer presents itself as a line not a lump,does not show up on mammogram,it is usually found by breast mri or ultrasound.

    still hoping and praying it is not malignant, I had a lumpectomy last time,if it is back I am going to be pissed I let that surgeon talk me out of a mastectomy!!!

  • khegidio
    khegidio Member Posts: 100
    edited January 2013

    Mary, please keep us posted. Thinking about you sweet stuff. I am hoping for the best for you.



    CJRT: thinking of you too. Let's hope for no cancer.



    You ladies are my inspiration. Love you all.

  • belleeast
    belleeast Member Posts: 653
    edited January 2013

    thanks,Kate! I didn't want to post all that on facebook,I just wanted my Sept gals who have been there and truly understand what it is like to know the details! It just sucks thinking about going thru this again! I have finally started feeling good,hair is starting to grow better. I am walking at least 1 mile a day with leslie sansone walking dvd to get healthy and lose weight! 

    from my research on MRI results,I think it is a 50/50 chance of going either way! if it was a mass,it would have better chance of being benign. being a non-mass,it could go either way plus with my nipple inverting doesn't help. I told my MO 6 months ago it was changing arrrrgggghh!

    the last couple visits,her exams checking my breast have been what i call a lick and promise!! Not this time LOL i don't think i've ever had a more thorough exam ha,ha guess this woke her up LOL! she was like i don't feel anything,i said good. then later when i got a copy of the report- I thought maybe because there isn't a mass,it's a non-mass linear. my confidence and good feelings went down!!

    enough of my venting,I am watching a couple of the grandkids today and this evening,so they'll keep me busy!

    CJRT,thinking of you,i can imagine what you are going thru,hoping,praying for good results for you.

    RJ,how did your tests go? hoping,praying for you,too!

  • ccjj
    ccjj Member Posts: 128
    edited January 2013

    Belleeast.....My cancer was Iobular. I can tell you that it didn't show up on mammogram, but you could feel it. That was how I found it, went in for mammo which didn't show anything, then had Ultrasound. They could see it there, which led to the biopsy. I did want to let you know that when they did do a MRI after the biopsy to try and figure out what else was in there, the MRI did show three more additional suspicious spots. After my mastectomy and everything was tested, those three additional suspicious areas ended up being nothing. Keeping my fingers crossed that yours is nothing. So sorry you are going through this.

  • CJRT
    CJRT Member Posts: 524
    edited January 2013

    Ugh, Belle, I am so sorry! Unfortunately I can relate all too well. I felt like I was being the "downer" posting my stuff here, but when you all were such a support to me at the start of this, I felt that this was the place to share. I know exactly how you are feeling....like life is finally going well and now being terrified that the nightmare isn't really over. You will be in my thoughts and prayers. Please keep us posted.

    I got a phone call at 4:45 Friday from my oncologist's PA saying that it will be Monday before I get anything definitive because the oncologist wants to go over all the imaging "frame by frame" with the radiologists Monday morning because the top ones were out on Friday afternoon. Of course I am running through the scenarios and trying to psychoanalyze why I don't already have the results and of course I jump to the most negative conclusions. I appreciate all of the concern and support. Please keep me in your prayers Monday. I am terrified of that call.

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