ILC - Long Term Outcome ( > 10 years )

tosog
tosog Member Posts: 1
edited June 2014 in ILC (Invasive Lobular Carcinoma)

My wife has got a surgery tratment with mastectomy to the left breast and prophilactic to the right one .

Istologic type was - ILC Classic  T1C SN0M0 G2 ER+ PR+ HERneg K67=5%  and results of Oncotype RS 10 .

She took Tamoxifen 20mg day .

The Oncologyst told me about 1% year risk of recurrencies in the fist 10 years.  But I read that risk should rise in the next period .

1) Is this prognostic true ?

2) Can I expect a a lower risk after 10 years ?

3) Should be the right move take tamox for longer period ( 10 years ) or use 5 tamox and 5 aromatasi ?

THANKS A LOT

The aswer is very useful to me . I'm very worried for the future

GIULIO

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Comments

  • Momine
    Momine Member Posts: 7,859
    edited January 2013

    Giulio, I don't think anyone really knows the answer to your question, since any studies longer than ten years are following women who had less/older treatment.

    As far as I can see, your wife had an early stage cancer with no nodes involved. That is very good and her prognosis should be excellent.

    How old is she and how close is she to menopause?

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  • Racy
    Racy Member Posts: 2,651
    edited January 2013

    Tosog, how long has your wife been on hormone therapy? If it is approaching five years, then I suggest consult with a few oncologists about what to do next.



    If she has only recently started therapy, then don't look too far ahead as the standard of care is advancing all the time and could well change by the time your wife reaches the five year mark.

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  • jillanne0306
    jillanne0306 Member Posts: 6
    edited January 2013

    Just had my 10 year anniversary from breast cancer. Been on hormone therapy for 9 years. First tamox for 2 years, Femara for 7 years. Plan to stay on Femara for a long time. Was only 46, and have seen both my kids graduate college. Was at my daughter's wedding and the day she made me a grandma for the first time. I plan to dance at my Grandaughter's wedding.

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited January 2013

    Jillanne, can I ask you why you switched to femara...? I'm curious.

    Claire

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  • jillanne0306
    jillanne0306 Member Posts: 6
    edited January 2013

    My Doctor just liked Femara for ILC. He is a young Dr that is into all the new studies. He even switched my chemo to dose density back in 2003. He put my on Femara after 2 years on Tamox because of a study. I believe He is the reason I got the last 10 years and many many more.

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited January 2013

    Thank you!  I think I'll try to find the study. I also did dose-dense chemo (AC), after requesting, when a friend and colleague who had breast cancer said she did the same.  Were you post menopausal upon diagnosis?  It makes a difference in the rx of anti-hormonals.

    Claire

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  • lago
    lago Member Posts: 17,186
    edited January 2013

    tosog many of us think our chances of recurrence is a lot higher than it really is. The reality is the earlier the stage the less likely you will ever had to deal with a distant recurrence.  As time progresses even more so BUT there are not guarantees. Someone had to fall in that (in the case of your wife) 1%. But the likely hood of getting into a car accident is probably higher.

    Hormone therapy helps prevent distant recurrence and reduces the chance of a new breast cancer.

    Here comes my seat belt speech: You don't worry about getting into a car accident every time you get in a car. You do take proper precautions and wear your seat belt and go about your life. For breast cancer we all try to live healthy, exercise and maintain a healthy weight. Then we go out and live. I would not be surviving if I worried about getting mets all the time.

    But don't be afriad to ask her oncologist for more explaination. You are paying them after all.

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited January 2013

    You are right, Iago.  I worry about recurrence because of my node status--6/11+ (and still get frustrated and  a bit sad when I see so many of you out there with negative node status). I worry about recurrence because of my ILC dx, which hid from 5 clear, regular mammos over five years.  But my MO has always made me feel she's got my back, if you know what I mean.  And I'm doing everything I can (diet, exercise, medication, supplements, bi-lat later this year) to prevent any repeat of BC.  I don't want to be the come-back kid.  And I don't let the fear consume me.  Every time I make a choice to "live well", I feel like I'm flipping off cancer with my middle finger. I feel defiant and powerful and it feels GOOD.

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  • jillanne0306
    jillanne0306 Member Posts: 6
    edited January 2013

    I was only 46 and the chemo put me in menopause. But I did have my ovaries removed before I switched from Tamox to Femara.

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