Calcifications recurring after radiation and while on Tamoxifen

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Lbwagner69
Lbwagner69 Member Posts: 45

Hi,

This is my first post to the site. I am wondering if anyone had any recurrences of DCIS in the same breast after radiation. I have been on Tamoxifen....isnt that supposed to stop any other cancer from forming? I have a biopsy scheduled next Thursday and of course I find myself worried and searching on the Internet. It in all probability could be benign and calcifications from the scar and radiation, however I am having anxiety over the fact that I could have to go through it all again. I did not have a mastectomy, but will consider all options if the BC returns. Thank you for any help...or reassurance you can give me.

Laurie

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Comments

  • CTMOM1234
    CTMOM1234 Member Posts: 633
    edited December 2012

    They most certainly can be benign! My '09 diagnosis resulted after a cluster of micro-calcs appeared on my annual mammogram (and then a stero biopsy confirmed grade 2 dcis), so I definitely understand your worries. I underwent a lumpectomy and rads, no tamoxifen, but always ask about the random calcs that still to this day show up on my annual mammos -- they've told me not to worry about them, lots of non bc reasons why our bodies have them. Wishing you benign results!!!

  • Lbwagner69
    Lbwagner69 Member Posts: 45
    edited December 2012

    Well...the waiting begins.  I had the biopsy on Thursday and all went well.  Waiting for the pathology report, which will probably be next week.  So many things are going through my mind and I am trying to go on as usual.  I do know that if it does recur, I am going to have a bilateral masectomy.  That may be drastic as the other breast is perfectly fine, however, at 43, I do not want to have this happen again. Of course, I am hoping the report comes back negative... Has anyone had this happen?

    Thanks!
    Laurie

  • Beesie
    Beesie Member Posts: 12,240
    edited December 2012

    Laurie, it hasn't happened to me - I had too much DCIS so I had to have MX - but I can think of quite of few women who've been through this board who've gone through the same situation as you.  Most have ended up with benign results, with the calcs probably having been caused by the radiation. 

    Hoping for benign results for you!

  • Lbwagner69
    Lbwagner69 Member Posts: 45
    edited December 2012

    Well..DCIS has recurred in the same area. I am looking at a bilateral in a few weeks. Doctor is a little confused as to why there was recurrence when I was taking Tamoxiphen. Oh we'll....guess I am in the lucky 6%.

  • JamieB86
    JamieB86 Member Posts: 397
    edited December 2012

    Lbwagner - I am so so sorry.  I completely understand why you want to go with a BMX.  I wish you well.

  • CTMOM1234
    CTMOM1234 Member Posts: 633
    edited December 2012

    Laurie - I am so sorry and wishing you the best.

  • GreenCowgirl
    GreenCowgirl Member Posts: 237
    edited January 2013

    Laurie,   I have just had a similar reoccurance of dcis after lumpectomy and 7 weeks rad in 2010.  On a regular mammo i got the bad call back of calicfications, however all my docs were sure it was going to be califications from the radiation trmt.  The biopsy revealed friday it is dcis, however we are having a second opinion for peace of mind.  I hve gottne no gradings on the dcis yet, and will know something by tuesday.  Sooooo I do not know what the plan of action would be,since i have already had full breast rad.  I am wondering if you were given any other options and how you came about your choice.  I was never a candidate for tam, since i was her2 -     I am large breasted and already notice the size difference from the lumpectomy, which makes me a bit sad, as i am against cutting on my body further.  I am not sure what lays ahead, but i feel calmer and more empowered due to wonderful forums like these and can share and read about other girls in the same club that noone wants to join.  I would like to kow how you are doing and what you have planned.

    Warrior Women Stay Strong,

    Nancy

  • Lbwagner69
    Lbwagner69 Member Posts: 45
    edited January 2013

    Nancy,

    I knew that if I were to ever have a reccurance, I would opt for a mastectomy.  Being that I had undergone rads in the breast with the reccurance, this was the only option to prevent any other cases of DCIS.  I am opting for a bi-lateral for peace of mind.  It will be a tough recovery, but I am in good spirits.  This was not invasive and I am thankful for that.  I am rather large breasted as well, and know that I will not be after the surgery.  I am confident that my plastic surgeon will work with me to make me feel comfortable with my new body. I know that it will be both a psychological and physical battle, but I am ready for it.   You have to make the decision that is best for you.  We are all here for support. I never thought I'd be back on the boards again...and here I am.  My surgery is scheduled for Jan. 29th. 

    Best wished to you....keep in touch with how things are going with you!

    Laurie

  • Julie--MA
    Julie--MA Member Posts: 33
    edited January 2013

    Laurie,

    I am so sorry you are going through this. 

    I am just here to say that that could have been me.  I had three lumpectomies this summer before getting clean margins for DCIS grade 2.  I was all set start radiation--CT scan, tattoos and all were completed--when my local RO asked for a new baseline mammo.  It is not protocol, just something she likes to do so that she can use it against films that might later show calcifications caused by radiation.  My surgeon thought it made sense, and lo and behold, the new mammo showed more calcifications that a surgical biopsy revealed to be more of the DCIS.  I am a little fuzzy, but I think they said it was probably there all along--so not new after my surgeries--just not seen behind the larger group.

    I see an incredible dr at Mass General.  It just got missed.  I just thank God for my local RO who requested it, because otherwise, I would have gone in for my mammo in July 2013, after rads and Tamoxifen, and I would have had the same report as you.

    I wish you the very best and am so sorry.

    Julie

  • LAstar
    LAstar Member Posts: 1,574
    edited January 2013

    I thought that Tamoxifen was used to protect the other breast.  I had a lumpectomy and re-excision before my MX.  The re-excision took a wider area and some intermediate-grade DCIS was found behind a clear margin.  I wonder if that would have been taken care of with radiation or if it would have been classified as a recurrence later. 

    Best wishes for your surgery and recovery!

  • lisagwa
    lisagwa Member Posts: 232
    edited January 2013

    Laurie- I was touched by your story. We all make the best decision we can at first and hope for the best long-term outcome. There is no crystal ball to guide us. When I chose BMX, up until 5 minutes before my surgery while the surgeon was going over things with me, my husband was still questioning my decision. He was on-board but didn't totally understand it. Although I miss the sensitivity of my breasts, I am content with doing all that I could to eliminate some of my worry about recurrence. Best wishes to you in going forward with your surgery. (Hugs)



  • ballet12
    ballet12 Member Posts: 981
    edited January 2013

    LAStar--Tamoxifen for DCIS is supposed to protect both breasts, in the situation where the breast with DCIS was treated by lumpectomy or lumpectomy/rads.  If one has a mastectomy, then the Tamoxifen is protecting the contralateral breast, and I guess also, the very rare instance of reoccurrence in the tiny amount of remaining breast tissue after mx.

    In invasive cancer Tamoxifen protects against regional and distant recurrence even with bilateral mx.

    As we can see, none of these treatments is completely fool-proof. 

  • GreenCowgirl
    GreenCowgirl Member Posts: 237
    edited January 2013

    Laurie  Thank you for sharing your story and making me feel welcomed and surrounded by positive thoughts-no matter wha ti decide.  I will be thinking of you on the 29 and sending lots of healing thoughts your way.

  • Lbwagner69
    Lbwagner69 Member Posts: 45
    edited January 2013

    Nancy,

    You are very welcome!  Can use all the postive thoughts I can get!

    Laurie

  • april485
    april485 Member Posts: 3,257
    edited January 2013

    So sorry for your reoccurence despite the rads and tamox. Ugh...BC is so insidious. I have a biopsy today for microcalcs and if it is cancer, after reading this thread, I may just have a mastectomy v lumpectomy with rads. This stuff can come back despite those low odds of reoccurence with lumpectomy/radiation. Huge hug Nancy. Your post has helped me more than you know. It may change the way I handle everything in the future if I am diagnosed next week.

  • GreenCowgirl
    GreenCowgirl Member Posts: 237
    edited January 2013

    April Thank you and a big hugg back to you.  Wow, if all my questions can help you in your future decesions making that is priceless!  I will keep you in my prayers for a negative on your biopsy.  Thsi forum and the wonderful ladies have made me feel so much better about what may be in store for me.  Getting to ask questions and share fears/worries is soo therapeutic.  I just refuse to let this stupid ass cancer stress me out like last time.  I am focusing on my family, yoga, healthy eating and being kind to myself.  I hope you take care of yourself and know there are many people out here rooting for you.

    Nancy

  • proudtospin
    proudtospin Member Posts: 5,972
    edited January 2013

    my story may give reassurance....my diagnosis was in June 08.  Did 3 lumpies to get clear margins then into the rads and now on aromasin.  Looking forward to an end in a year so crossing fingers.

    but just so you understand, I had 2 biopsies from junk seen on mamos over the past 4 years.  Both were only an alarm and had no reoccurance of DCIS or other cancers.  This last scare, I asked my MO about why stuff showing now that did not appear before?  her response was that some have what she called fat necrosis which looks troublesome but is not generally.  The fat necrosis shows up in her experience at about 4 years and needs to be checked but mostly B9.

    Check it by all means but try not to assume the worst

  • april485
    april485 Member Posts: 3,257
    edited February 2013

    I have chosen lumpectomy with rads and some type of AH therapy since diagnosis. I am comfortable with the chances of reoccurence at 6 % with this at this point. I just pray that I cut my odds enough but if anything does return, mastectomy will be in my future. Hugs to those of you who fell on the wrong side of the odds.

    I am still wrapping my mind around the fact that my biopsy wasn't b-9! Ugh...freeking stupid cancer.

  • CTMOM1234
    CTMOM1234 Member Posts: 633
    edited February 2013

    Laurie - Hope all went as expected with your surgery last week and wishing you well.

  • maindeer
    maindeer Member Posts: 1
    edited March 2013

    Hi, my name is Tracy and I am 47.

    Almost a year ago today, calcifications appeared in my right breast at my routine mammogram.  After a biopsy, I was given the DCIS diagnosis.  I then had a lumpectomy, followed by eight weeks of radiation, and at the same time  began taking Tamoxifen.  Today, I nervously returned for my annual mammogram only to hear that the calcifications have returned in the exact same area.  I am having another biopsy on Friday...ugh!  The doctor seemed to think that is probably nothing to worry about...so why do I feel like someone just punched me in the stomach?  Cry  

  • Lbwagner69
    Lbwagner69 Member Posts: 45
    edited March 2013

    Tracy

    Hang in there. More than likely things will be negative. Let us know how things go.

    Laurie

  • Shayne
    Shayne Member Posts: 1,500
    edited March 2013

    wow - punch in the stomach indeed.  Keeping you in my thoughts.....please keep us posted on how it goes.  

  • Annette47
    Annette47 Member Posts: 957
    edited March 2013

    Please keep us updated, Tracy!

    Hopefully the calcifications are just benign ones caused by the radiation.   Thinking good thoughts for you!

  • AnnieBear
    AnnieBear Member Posts: 96
    edited March 2013

    I had calcifications after a lumpectomy and 38 treatments of radiation - I was told the radiation is probably what caused them and I have been having mammos every six months since then and things look o.k. - they said there is no need for a biopsy unlesss they grow.  I definitely will have a double mastectomy if I have a recurrence of cancer.  After the lumpectomy I had to have a ductal incision due to a leaking nipple - so my boob is really messed up.  It's gone next time and I'll get a gorgeous tattoo there.

  • Shayne
    Shayne Member Posts: 1,500
    edited March 2013

    Thats good to know AnnieBear.  Just for future reference.  :)

  • proudtospin
    proudtospin Member Posts: 5,972
    edited March 2013

    I had a similar scare last summer, 4 years post rads

    my BS said if anything had returned, it meant that boob was not my friend and needed to be gone~~~

    it turned out to be BP stuff, my onco called the fat necrosis, which she  said is not uncommon in women at about the 3 to 4 year mark

    looking forward to my 5 year mark and staying positive

  • Shayne
    Shayne Member Posts: 1,500
    edited March 2013

    So glad you ladies are sharing this information!  

  • Apolline
    Apolline Member Posts: 2
    edited March 2013

    Hi ladies,

    I haven't posted here since Oct 2009, when I was undergoing six weeks of radiation after a lumpectomy in late Aug 09 for DCIS in my right breast. I've been closely followed, with alternating mammograms and MRIs every six months, and today got the news that my MRI from yesterday shows two "enhancements" on the left breast that weren't there a year ago. They look to be 5 mm and 6 mm in size and at the lower inner side of the left breast. In every mammogram since the DCIS they think they see something and call me back in to take more views of one or the other breast, but this is the first time with the MRI. At any rate, I have to go for an ultrasound next week and most likely a biopsy after that. Anyone else have an MRI show something like this? I didn't take tamoxifen because of uterine cancer in my fam. My mom died from breast cancer after having it at age 45, 56, and again at 61 when she passed away. I was 43 the first time. I'm neg for the BRCA2 gene, but I've also had four colon polyps, three that were adenomas at age 39, so I'm closely followed for that, and my fam history is full of a variety of cancers. I want to remain positive but I'm frustrated. I'm grateful that whatever they find in me it's always been early (and this most recent may not be cancer) but I'm just feeling anxious, I guess. I try to eat healthy and exercise, and I'm scheduled to participate in my first half marathon in a week but may have to do a biopsy instead. I want to be strong but I'm angry, too, I guess. I want to be here for my three children. Sorry for the rant. I am grateful and know I'm blessed. Complicated, isn't it? Blessings to all of you who take the time to read this. Thanks.

  • CTMOM1234
    CTMOM1234 Member Posts: 633
    edited March 2013

    Apolline,

    I, too, was 43 at the time and like you had a lumpectomy and 6 weeks of rads (left side), and like you, had "something" show up on an mri. Our backgrounds are even more similar as I also have a fiboadenoma (been closely monitored with ultrasound and mammography for > 5 years, it seems to be shrinking, which I'm told happens to pre-menopausal ones as our hormone levels go down).

    It is a very good possibility that either the ultrasound will explain what the mri picked up or, if you do have a biopsy, it will be a benign result (that is what happened in my case) -- but it is so stressful, I know, I'm sorry you have to deal with it.

    My bc was detected from a routine annual mammogram, and I strongly believe in early detection via mammography. I have dense breasts and they almost always want to take extra shots, so I only have diagnostic ones (this year they began offering 3D which seems to be even more detailed); I stay in the waiting room rather than go home and get the "got to come back and have more shots taken."  I confess that I am no longer a fan of mris, the high false positive results which lead to the added emotional and physical stresses of biopsies are just awful. Wishing you the very best of news!

  • jmb5
    jmb5 Member Posts: 532
    edited October 2013


    Any chance any of you ladies were told your calcifications were pleomorphic? I was diagnosed and treated (lumpectomy and rads) for DCIS 4 years ago, and my mammogram report this week says pleomorphic calcifications are seen "near the site of previous biopsy scar". I have a diagnostic mammogram scheduled for Nov. 4.

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