Anyone with lymphangiomas, result of lymphedema and radiation

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aussieched
aussieched Member Posts: 244
edited June 2014 in Lymphedema

Hi, I have just posted in the radiation thread, but thought maybe someone in this thread might know about lymphangiomas.  I have about 10 lumps under my arm and told it is caused by the lymphedema and radiation.  Have had about 4 bouts of cellulitis since is appeared.  Now told I may need surgery.

Can anyone advise me about this condition?

thank Ched

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  • Binney4
    Binney4 Member Posts: 8,609
    edited January 2013

    Hi, Ched,

    Bummer! I think you're the first person ever to bring this up on this board, so I hope if someone with personal experience is lurking out there she'll speak up and share her experience.Smile

    Good news is, lymphangiomas are benign. Still, nobody needs this! Besides surgery there are two other options to consider: laser and sclerotherapy, either of which would be less invasive. You might want to get a couple of opinions to put your mind at ease going forward. Bad news is, with surgery they do often recur, and as you're undoubtely aware, repeated surgeries are a real bear with lymphedema.

    More information at LymphedemaPeople.com, and thanks to Pat O'Connor there for talking this over with me, as I haven't encountered it myself.

    Please do stay in touch, and tell us how we can help.
    Gentle hugs,
    Binney

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  • aussieched
    aussieched Member Posts: 244
    edited January 2013

    Hi Binney, thanks for your response and going to the trouble to find out about my issues.  Much appreciated.  All this never ends does it, well at least for me anyway.  Just seems to be one thing after another over the last 5 years.

    Ched xx

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  • Binney4
    Binney4 Member Posts: 8,609
    edited January 2013

    Ched, I hear you on that! Once this "adventure" starts the trail just seems to get longer and longer! Hope you get solid answers and quick relief on this! Please keep us in the loop.
    Hugs,
    Binney

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  • kira66715
    kira66715 Member Posts: 4,681
    edited January 2013

    Ched, here's the link for lymphadema people and lymphangiomas

    http://www.lymphedemapeople.com/thesite/Lymphedema_lymphangioma_lymphatic_malformation.htm

    Let us know how you're doing

    Kira

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